November 23, 2022
A new data linkage software shows the feasibility and accuracy of linking research databases without revealing any personal health information. The ‘Brain-CODE Link’ software was used to combine a large dataset of routinely collected information with a smaller dataset of primary collected data. This privacy-preserving record linkage comprised the largest data linkage performed with the Brain-CODE Link software to date.
October 26, 2022
Overdoses related to illicit opioids and other substances are a significant public health crisis in Canada. In order to design effective public health interventions and reduce barriers to care, it is important to understand how people who experience overdose connect with the healthcare system. New research has examined how people who experience overdose in one province in Canada access a range of healthcare services, including ambulance services, emergency departments, and hospitals, with details published in the International Journal of Population Data Science (IJPDS).
October 19, 2022
Researchers from Western University, Canada have demonstrated the value of using artificial intelligence (AI) methods for descriptive epidemiology when developing data-driven decision support tools in health care.
Data-driven decision support tools are technology that provide information to help people make decisions. These tools use data from various sources to identify gaps, patterns or trends, or to make prediction of future events. Although becoming increasingly common within health care, their selection, development, and evaluation remains challenging to do well.
October 19, 2022
Denmark, similar to several other countries, benefits from nationwide registers of routinely collected data. This includes information collected on the entire population during hospital visits and when buying prescription medication. While this data is all anonymized, it is possible to link all the data from each individual. This is hugely valuable for health researchers, like us. However, this routinely collected data does not provide good information on several factors relevant to health, for example smoking habits, alcohol intake, diet, or over-the-counter medication use. Surveys tend to be better at collecting this kind of data, and can be linked to the registers to add to the information available.
October 13, 2022
If you have ever stayed in a hotel, accessed banking services, or dined at a restaurant, you have probably been asked to complete a survey about your experiences. Healthcare services are no different, and today, many hospitals and healthcare systems routinely conduct experience surveys. In doing so, they recognize the vital role that the feedback from patients and families plays in the planning and delivery of high-quality, patient-centered healthcare services.
October 12, 2022
A new study focusing on current methods of counting members of households in the United States has revealed that there are more same-sex couples across households than previously thought.
The research by Professor Peter Brandon and Oleg Ivashchenko from the University at Albany, New York, identifies two of the US government’s premier household surveys, the American Community Survey (ACS) and the Current Population Survey (CPS), as having inconsistencies in counting households which has led to inaccuracies and even conflicting results of the actual numbers of same-sex couples across households. As a result, the study has highlighted that same-sex couples are not yet being accurately represented in national household surveys.
October 05, 2022
Researchers from the University of Manitoba, Canada have documented current research and practices about natural language processing (NLP) preprocessing methods, in an attempt to describe and potentially improve the quality of unstructured text data (UTD), including UTD found in electronic medical record (EMR) databases.
September 29, 2022
A new data linkage study has revealed underreporting of stillbirths in a Health and Demographic Surveillance Systems (HDSS) in western Kenya, and substantial potential for downward bias in estimates of perinatal and neonatal mortality.
In a newly published article in the International Journal of Population Data Science (IJPDS), researchers leveraged record linkage with antenatal care (ANC) clinics to assess the quality and completeness of data collected on pregnancies and their outcomes in a HDSS in Siaya, Kenya. Their comparison with antenatal care clinic records of gestational age also indicated that miscarriages and stillbirths were likely subject to frequent misclassification in the HDSS.
August 02, 2022
The recent contribution of the ‘Children Looked After’ Census dataset to the Secure Anonymised Information (SAIL) Databank for research purposes, marks a significant step forward for children in Wales that come into contact with the care system.
These data will give approved researchers the opportunity to explore and understand in greater detail the journey of children through the care system and what happens to them when they leave. Using data linkage techniques, it will also be possible to gain a clearer picture of additional factors around children in care, by linking the new dataset with other data such as health, education and family justice.
July 26, 2022
Researchers have successfully demonstrated a way to identify sports and recreational injuries using existing routinely collected patient data.
The mountain of data collected from patient visits to a clinical provider, often called administrative data, can be a quick and affordable way to find out who is affected by certain health issues that occur after sports and recreational activities like basketball or rugby. Re-using the administrative data to conduct surveillance of health issues is a very important step to help keep people who participate in those activities out of the doctor’s office and on the pitch. Yet, turning administrative data into a form that gives us answers requires a lot of time, energy, and knowledge.
July 18, 2022
A newly designed method, known as INTEGRATE, has been successfully used to demonstrate how anonymised critical care data from a number of data sources can be brought together to give an overview of a patient's journey before and after admission into an Intensive Care Unit (ICU).
The beauty of the INTEGRATE methodology, which is published in the International Journal of Population Data Science (IJPDS), is that it can be easily reproduced by any researcher with appropriate access to critical care data and interest in research into critical care pathways, making it a valuable asset for critical care research studies.
July 7, 2022
In the first study of its kind using a large-scale data linkage, researchers have established a number of previously unknown factors that are likely to contribute to alcohol use in childhood. It is known that a child’s mental health, parental negligence and a dysfunctional family environment are some of the reasons why a child might turn to drink. But researchers have now revealed a more complex set of risk factors that could help professionals to identify children with alcohol related problems.
June 27, 2022
New insights into the educational achievements of 10 and 11 year olds in Wales with cystic fibrosis revealed that these children’s fare worse than the general population. As there is little known about the social consequences of living with cystic fibrosis, especially how it impacts a child’s education and whether they receive adequate support in schools, researchers conducted a population-scale data linkage study of all children born in Wales, the details of which have been published in the International Journal of Population Data Science (IJPDS).
June 9, 2022
While clinical trials are used to test how effective and safe medicines are in controlled settings enabling regulators and payers to decide upon which medicines to register and subsidise for the general public, in Australia, there have been crucial gaps in knowledge that give reliable evidence of how these medicines translate to the ‘real-world’ in terms of their use and effects, until now.
Study reveals the Winnipeg Boys & Girls Clubs help safeguard children from negative social outcomes.
June 9, 2022
A new study has revealed that the Winnipeg Boys & Girls Clubs are having a positive impact on the children who attend including better school engagement, lower risk of being charged with a crime, and lower risk of a teenage pregnancy. Members that use the Clubs most frequently are predominantly younger children aged 5 to 12, with some older children up to the age of 18 also taking advantage of the facilities, and many of the children come from low income families and face challenges in their home lives.
June 6, 2022
Population Data Science methods have great potential for informing policy in relation to the risk of infectious disease at large scale events, as demonstrated in a new study published in the International Journal of Population Data Science (IJPDS).
In summer 2021, as rates of COVID-19 decreased and social restrictions were relaxed in Wales, live entertainment and sporting events were resumed. Researchers in Wales used data linkage methods to assess the potential increased risks of spreading COVID-19 at large events in order to inform policy on the safe re-introduction of spectator events.
May 23, 2022
Generating synthetic, or artificial versions of administrative data, could improve the efficiency of data analysis allowing research to be conducted more quickly. Synthetic data can be used for research and training purposes in place of the original data routinely collected during the administration of services such as the National Health Service or through education, employment, or the justice system, whilst still preserving the structure and some of the patterns in the original data, and protecting the privacy of individuals.
May 11, 2022
Researchers and public authorities are increasingly exploring the potential of routinely collected administrative data to generate new insights. This includes recent work leveraging the opportunities of the crime report data collected by the UK’s national reporting centre, Action Fraud (AF). In fact, these data are a key resource for police officers and crime analysts and have a huge potential to inform local response, e.g. to help better understand victims’ needs, demands on police services and the experiences of repeat victims.
May 09, 2022
The Children in Need dataset and the Children Receiving Care and Support dataset are available to authorised researchers within the secure research platform at the Secure Anonymised Information Linkage (SAIL) Databank, based at Swansea University. These datasets include information relating to needs of children and young people and their social care support.
April 28, 2022
The first study using the Welsh Dispensing DataSet available via SAIL Databank, has revealed how health services in Wales, such as community drug dispensing, changed throughout the COVID-19 pandemic. Analyses led by Fatemeh Torabi and Ashley Akbari identified substantial fluctuations in dispensing patterns that corresponded with the timing of the UK national lockdowns. Many people on repeat prescriptions were provided 2 or 3 months’ supply of medication , in order to ensure continuation of care, and the pandemic also interrupted routine immunisation pathways.
April 27, 2022
Administrative data are routinely collected during the day-to-day delivery of services, such as health, education, justice and social care. Because administrative data contain detailed information about all users of a service collected over many years, they are an extremely valuable resource for research.
April 27, 2022
A project conducted by the Population Health Research Network (PHRN) has resulted in the PHRN Online Application System (OAS). The new system simplifies the complex process of accessing data for research purposes from multiple jurisdictions across Australia.
Developing an interactive tool to support health system capacity planning during the COVID-19 pandemic
April 06, 2022
The COVID-19 pandemic revealed an urgent need for planning tools to help manage increased pressure on hospital systems. To help decision-makers better plan for the pandemic, the Canadian Institute for Health Information (CIHI) developed the COVID-19 Health System Capacity Planning Tool.
March 23, 2022
The Children’s Data Network, based in California, now holds the single largest dataset on children and youth in the United States. In order to support and develop upon investment into programs for children and youths experiencing adversities, this valuable and rich source of data offers researchers opportunities to more accurately assess root causes of children’s circumstances, and track their progression over time.
People are happy for researchers to use their digital footprint data – as long as certain conditions are met
March 16, 2022
Our ‘digital footprints’ are the tracks and traces we leave behind when we use the internet, digital devices such as fitness trackers, and online services. As these footprints provide insights into people’s behaviours, these data have huge potential to improve researchers’ abilities to discover greater levels of understanding about people and populations.
Do social circumstances affect your health? Canadian researchers can begin examining the complex connections between social assistance and health, for the first time
March 03, 2022
There has been a growing interest in examining the how the conditions of a person’s daily life such as access to health, educational attainment, financial stability, or the neighbourhood they live in can effect their health.
Valuable research into Fetal Alcohol Spectrum Disorder is no longer being lost in translation - with impactful and life changing results
March 02, 2022
Fetal Alcohol Spectrum Disorder (FASD) is the name given to a group of conditions in children who are exposed to alcohol in the womb. It is a complex and largely preventable public health issue in many countries around the world.
How ADRC NI helped protect population data research during the 2017 Northern Ireland Government collapse
February 03, 2022
Following the collapse of the devolved Northern Ireland Assembly in 2017, the Administrative Data Research Centre Northern Ireland (ADRC NI), responsible for facilitating access to government data for research for public benefit, had to quickly adapt and identify new ways to continue to positively influence policy and practice.
Developing the freely available CENTRIC training curriculum for UK researchers working with administrative data
February 02, 2022
CENTRIC is a new administrative data online training course launched in September 2020 by Cardiff University that specifically addresses commonly identified training needs of researchers working with administrative data. Aimed at researchers based in the UK, CENTRIC training is completely free of charge.
How do we navigate the sensitive and often misunderstood use of data on child abuse and neglect, for research purposes?
January 26, 2022
Nationally and internationally, there has been a growing recognition of the importance of identifying, documenting and reporting suspected and confirmed child maltreatment.
Turning research into policy: The Manitoba Centre for Health Policy (MCHP) reveals its formula to drive impact
January 25, 2022
The ability to inform policies, programs and service delivery with scientific evidence continues to benefit individuals, communities and our society as a whole, so it is important that researchers develop skills not only in sharing their results in ways that speak to targeted audiences, but also in fostering relationships with these knowledge users.
Regular use of Universal Health and Education Services decreases the chance of developmental issues in young children
January 19, 2022
The first 2,000 days of a child’s life is a critical window of opportunity for establishing a strong foundation for their futures, and the universal child health and early education services are regarded as one of the best investments that governments can make to support caregivers in providing for their children’s health, development and learning.
January 18, 2022
Throughout the COVID-19 pandemic, data and analytics have been crucial to both understanding the virus’ impact on populations and health systems and informing the public health response. The unprecedented need for timely, relevant analytics presented challenges to many health systems.
Location-based sensors confirm that the public opted to ‘lockdown’ before policy interventions came into force
January 13, 2022
A new research study has confirmed that German citizens practiced self-imposed social distancing ahead of policy interventions during the COVID-19 pandemic. Using data from 100 sensors located across 49 metropolitan areas in Germany, researchers found that the numbers of pedestrians had fallen by 85% in 2020 compared with the previous, pre-pandemic year, before formal lockdowns were introduced by the Government.
December 14, 2021
New research highlights the potential to reduce the rates of premature birth and stillbirth in New South Wales (NSW), Australia, using smoking cessation campaigns that outline the benefits of not smoking during pregnancy.
ASSIGN - an algorithm to help researchers study more precisely how health is impacted by where we live and who we live with
December 8, 2021
Knowing where a person lives and who they live with can provide important insights into the effects of the local environment and household composition on their health.
Administrative health data help to monitor the role of universal funding for assistive technologies for diabetes management in children.
December 7, 2021
In order to understand why some children experiencing complications of diabetes stay longer in hospital than others in New Brunswick, Canada, this study used anonymized data on the provincial insulin pump program, hospital records, and residential characteristics to characterize the social and policy factors that may result in shorter hospital overnight stays.
Coronavirus infection rates are lower amongst people experiencing homelessness in Wales than the general population
December 2, 2021
The Welsh Government’s rapid response to protect people experiencing homelessness from the spread of COVID-19 has resulted in lower rates of infection amongst this section of the population, compared with the general population in Wales, according to new research published today in the International Journal of Population Data Science (IJPDS).
November 30, 2021
Data harmonization promising new way to support the advancement of research into population health to improve health and well-being of people worldwide, and provides unique opportunities for research.
Healthcare data linkage helps bridge the precarious transition gap from paediatric to adult services for young people with long term conditions
November 04, 2021
Up to the age of 16, children in the UK with long term health conditions receive ongoing healthcare, often by specialist paediatricians. But from age 16 onwards, the healthcare system views them as adults and transition to adult healthcare follows. This transition period is not only disruptive to the young people, but is also a source of concern about care standards that warranted inclusion in reports from the Care Quality Commission and the Chief Medical Officer for England.
October 21, 2021
In order to understand why and how some people develop cancer and chronic disease while others do not, Alberta’s Tomorrow Project in Alberta, Canada, invited Albertans that do not have prior history of cancer other than skin melanoma to participate in their long-term study by contributing information about their personal lifestyles and other risk factors for chronic diseases.
October 7, 2021
Across the United States and around the world, children and families are starting a new school year. Typically, a time of excitement and new beginnings, the first day of school has again been overshadowed by the COVID-19 pandemic.
Researchers can measure health across multiple generations using routinely collected electronic records containing information on family structures and health
October 7, 2021
Having a family history of a health condition could increase your own risk of developing that health condition. Family health history is therefore an important tool for identifying people who have an increased risk of common, complex conditions.
How can access to administrative data for research be improved in Canada? This study aims to find out.
September 28, 2021
Administrative health data are a vital resource for researchers seeking to study the provision of healthcare. How healthcare is delivered, the quality of care provided, and the areas of care needing improvement, are essential pieces of information if healthcare is to be delivered to the highest standards. Why then is it still so challenging for some researchers to gain access to the data?
September 21, 2021
Extending the age range of NEETs (people who are not in Employment, Education or Training) from the current 15-29 years to include all working ages from 15-64 years, will give social policy makers a better opportunity to deliver the right support and interventions to the right age groups.
Our understanding of complex relationships between health, education and social care of millions of children in England, is set to improve significantly.
September 16, 2021
A brand new database called ECHILD (Education and Child Health Insights from Linked Data) has been created that will significantly improve upon the depth and breadth of researcher’s understanding of how health, education and social care can impact the lives of millions of children across England.
A partnership between NHS England and NHS Improvement and The Health Foundation develops new algorithm to accurately identify the number of care home residents
September 15, 2021
The COVID-19 pandemic has been instrumental in highlighting how the lack of a national registry of care home residents in England has hampered efforts to adequately support this population subgroup. Meeting the needs of today’s ageing population with multiple health and healthcare needs is recognised to be among the most serious of challenges currently faced by the National Health Service (NHS) in England.
July 27, 2021
Research suggests that healthcare professionals are more likely to be exposed to work-related stress from long working hours, night work or shift work and can often experience sleep disruption, potentially leading to burnout, depression, anxiety and sleep disorder, for up to 40% of healthcare staff. Research suggests that healthcare professionals are more likely to be exposed to work-related stress from long working hours, night work or shift work and can often experience sleep disruption, potentially leading to burnout, depression, anxiety and sleep disorder, for up to 40% of healthcare staff.