The International Journal of Population Data Science (IJPDS) is an electronic, open-access, peer-reviewed journal focussing on the science pertaining to population data.

It publishes articles on all aspects of research, development and evaluation connected with data about people and populations. These include:

  • Accessing distributed data
  • Analytical advances
  • Architectures and infrastructures
  • Capacity building
  • Delivering and measuring impact
  • Data and linkage quality
  • Epidemiology
  • Ethical, legal and societal implications (ELSI)
  • Legal and regulatory issues
  • Linking to emerging/complex data types
  • Outcomes-based research
  • Privacy-protection methodologies
  • Public involvement and engagement
  • Service evaluations
  • Technological advances in data storage and management
  • Using big data

The creation of the IJPDS was inspired by the International Population Data Linkage Network (IPDLN). The journal has a regular section for topics of particular interest to the IPDLN sub-edited by the Director(s) of the network.



At IJPDS we value research that truly impacts society. We are uniquely committed to connecting academia with the public and keeping them informed of exciting new research as it unfolds.

Working to bridge the gap between academic research and the public

The IJPDS' innovative model brings a new dimension to the traditional academic journal format by informing the public of the latest research and providing authors opportunities for direct impact and even greater visibility.



As an e-journal, IJPDS has the flexibility to publish approved manuscripts immediately without having to wait for each Issue.

As soon as a manuscript is ready, we ensure that your work is instantly available to the right audience via Open Access giving authors the greatest possibility of citations.



IJPDS benefits from an established specialist global audience spanning six continents within the field of population data science through its strategic partner, the International Population Data Linkage Network (IPDLN). We publish articles from around the world in order to highlight how the field of population data science is impacting societies globally.

IJPDS publishes research of interest to a number of sectors including:

  • Academia and research institutes
  • Governments
  • Healthcare and hospitals
  • Third sector organisations
  • Private sector organisations (e.g. Information Technology, Manufacturing, Consultancies)
  • Life Sciences

Our established readership spans a broad spectrum of specialist areas within population data science. Here is an example of the types of experts included in the Journal's readership:

  • Government officials
  • The public
  • Regulators
  • Academics (scholars, researchers, students)
  • Information governance professionals
  • Data Scientists
  • Statisticians
  • Epidemiologists and public health workers
  • Social scientists
  • Technologists (computer and information sciences)
  • Public Engagement professionals
  • Media

The IJPDS has a particular interest in engaging with the public, the ultimate beneficiaries of population data science research, which sets us apart from other scientific journals.

We value research within the field of population data science that truly impacts society and are uniquely committed to connecting academia with the public to keep them informed of exciting new research as it unfolds.



At IJPDS we appreciate that good quality research is presented in different formats.

The Journal distinguishes itself by accepting a broad range of submission formats that may be considered to be 'non-standard' by other academic journals. These include:

  • Research articles
  • Methodological developments
  • Applied Papers
  • Case studies
  • Features on a particular topic
  • Commentaries
  • Comments and letters
  • Reports of events
  • Working papers
  • General reader summaries of complex topics
  • Help-sheets and tips
  • Informative reports
  • Consultations


In the spirit of supporting the sharing of research, IJPDS is offering authors the opportunity to publish their work free of charge until December 2017.

Call for submissions for a special issue

We are delighted to announce that in addition to general submissions Editor-in-Chief, Associate Professor Kerina Jones, is currently seeking manuscript submissions for the International Journal of Population Data Science (IJPDS) Special Issue on Cross-centre Working in Data-intensive Research.

There are two categories:

  1. Outcome based cross-centre research
  2. Practical issues in cross-centre working

Please refer to the author guidelines.

The closing date for this special issue is 30th November 2017.


Call for new submissions

IJPDS is now accepting new submissions and publishes on a continual basis. Please see the author guidelines for the types of manuscript accepted. There are no article processing fees at present.


Call for Peer-reviewers

IJPDS is looking to build up a database of peer-reviewers. If you would like to be added to the list, please email: contact@ijpds.org. As well as this, we will seek peer-reviewers on an ad hoc basis depending on the nature of submissions received.


Current issue

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Political and Policy Arguments for Integrated Data

Adalsteinn D Brown, Andrew S Boozary, David Henry, Greg Marchildon, Michael Schull
Published online: Apr 12, 2017

Incidence, recurrence and predictors associated with recurrence of low birth weight in Northern Tanzania

Michael Johnson Mahande, Joseph Obure, Miriam Hamisi Mvunta
Published online: Apr 12, 2017

Early mortality from external causes in Aboriginal mothers: a retrospective cohort study

Jenny Fairthorne, Nick de Klerk, Helen Leonard
Published online: Apr 12, 2017

Teenage pregnancy: The impact of maternal adolescent childbearing and older sister’s teenage

Elizabeth Wall-Wieler, Leslie Roos, Nathan Nickel
Published online: Apr 13, 2017

Effect of an Intensive Multi-Modal Intervention for Attention-Deficit Hyperactivity Disorder (ADHD) on Equity in Children’s Health and Educational Outcomes

Mark Smith, Dan Chateau, Jennifer Enns, Jason Randall, James Bolton, Laurence Katz, Elaine Burland, Alan Katz, Marni Brownell, Collette Raymond
Published online: Apr 13, 2017

Observational Data Exploration Via Online Tool For For Drugs and Cancer Risk

Usman Iqbal, Phung Anh Nguyen, Shabbir Syed-Abdul, Wen-Shan Jian, Yu-Chuan Jack Li
Published online: Apr 13, 2017

Data Integration for Assessing Census Coverage

Andrea Diniz Da Silva
Published online: Apr 13, 2017

A population-based study comparing multiple sclerosis clinic users and non-users in British Columbia, Canada

Kyla McKay, Helen Tremlett, Feng Zhu, Lorne Kastrukoff, Ruth Ann Marrie, Elaine Kingwell
Published online: Apr 13, 2017

Using Canadian data linkage to investigate the socioeconomic patterning of hospital burden for childbirth

Sarah M. Mah, Claudia Sanmartin, Michelle Rotermann, Saeeda Khan, Sam Harper, Nancy A. Ross
Published online: Apr 13, 2017

Describing the Linkages of the Citizenship and Immigration Canada Permanent Resident Data and Vital Statistics—Death Registry to Ontario’s Administrative Health Database

Astrid Guttmann, Maria Chiu, Michael Lebenbaum, Kelvin Lam, Nelson Chong, Mahmoud Azimaee, Karey Iron, Doug Manuel
Published online: Apr 13, 2017

Effect of short interdelivery interval between the first and second pregnancies in adolescence on low birth weight.

Claudia Vieira, Claudia Coeli, Fernanda Aguiar, Kenneth Camargo, Jr., Rejane Pinheiro, Patricia Flores
Published online: Apr 13, 2017

Yin and yang: why big data needs little data

John Wright
Published online: Apr 13, 2017

Linkage of health insurance data to the Netherlands Twin Register

Gerard van Grootheest, Adelaide Ariel, Tina Glasner, Bep Verkerk, Toos van Beijsterveldt, Jan van der Laan, Mark de Groot, Sipke Visser, Bart Bakker, Dorret Boomsma
Published online: Apr 13, 2017

Assessment of morbidity and fatal outcomes of Acute Coronary Syndrome in Scotland

Grant Wyper, Samantha Alvarez-Madrazo, Kim Kavanagh, Martin Denvir, Marion Bennie
Published online: Apr 13, 2017

General Public Views on Uses and Users of Administrative Health Data

P. Alison Paprica, Michael Schull
Published online: Apr 13, 2017

Improving primary care prescribing safety using routine data for intervention and evaluation: four trials in 500+ practices

Bruce Guthrie, Marion Bennie, Sean Macbride-Stewart, Tobias Dreischulte
Published online: Apr 13, 2017

The seasonality and effects of temperature and rainfall on Campylobacter infections

Abdelmajid Djennad, Gordon Nichols, Gianni Loiacono, Lora Fleming, Anthony Kessel, Sari Kovats, Iain Lake, Christophe Sarran, Richard Elson, Christopher Lane, Christophe Hoeser, Trevor Bailey
Published online: Apr 13, 2017

The other side of the coin: harm due to the non-use of health-related data

Kerina Jones, Graeme Laurie, Leslie Stevens, Christine Dobbs, David Ford, Nathan Lea
Published online: Apr 13, 2017

Match quality of a linkage strategy based on the combined use of a statistical linkage key and the Levenshtein distance to link birth to death records in Brazil.

Luis Carlos Guillen, Juliana Domenico, Kenneth Camargo, Jr., Rejane Pinheiro, Claudia Coeli
Published online: Apr 13, 2017

Weighted multiple imputation of ethnicity data that are missing not at random in primary care databases

Tra My Pham, Irene Petersen, James Carpenter, Tim Morris
Published online: Apr 13, 2017

Methods of defining hypertension in electronic medical records: validation against national survey data

Mingkai Peng, Guanmin Chen, Gilaad Kaplan, Lisa Lix, Neil Drummond, Kelsey Lucyk, Stephanie Garies, Mark Lowerison, Samuel Weibe, Hude Quan
Published online: Apr 13, 2017

Linking education and health data to examine the characteristics of children prescribed antipsychotic medication.

Sinead Brophy, Jonathan Kennedy, Fabiola Fernandez-Gutierrez, Ann John, Robert Potter, Linehan Christine, Michael Kerr
Published online: Apr 13, 2017

Impact of mindfulness for people with arthritis

Sinead Brophy, Roxanne Cooksey, Jonathan Kennedy, Helen Davies
Published online: Apr 13, 2017

Exploring the Impact of Health Insurance on Health Care Utilization and Outcome Using Electronic Medical Record Data

Yuan Xu, Mingshan Lu, Ning Li, Elijah Dixon, Robert Myers, Hude Quan
Published online: Apr 13, 2017

Effects of fetal reduction in multi-fetal pregnancy on perinatal outcomes

Neda Razaz, Tehila Avitan, Tracy Pressey, K.S. Joseph
Published online: Apr 13, 2017

Child Injury: Does home matter?

Cate Cameron, Jodie Osborne, Tamzyn Davey, Anneliese Spinks, Neil Sipe, Rod McClure
Published online: Apr 13, 2017

Trends in admissions for acute respiratory infections in children: an inter-country comparison between Western Australia and England

Hannah Moore, Tasmin Abdalla, Christopher Blyth, Ruth Gilbert, Pia Hardelid
Published online: Apr 13, 2017

Comparing a primary care dataset with a questionnaire based health survey

Mark Atkinson, Jonathan Kennedy, Sinead Brophy
Published online: Apr 13, 2017

ICD-11: towards better capture of quality and safety events in hospital

Danielle Southern, Hude Quan, William Ghali
Published online: Apr 13, 2017

Multinational Population-Based Health Surveys Linked to Outcome Data: An Untapped Resource

Stacey Fisher, Carol Bennett, Claudia Sanmartin, Doug Manuel
Published online: Apr 13, 2017

Developing and Validating Electronic Medical Record Based Case Definitions for Liver Diseases and Comorbidities

Yuan Xu, Ning Li, Mingshan Lu, Robert Myers, Elijah Dixon, Robin Walker, Hude Quan
Published online: Apr 13, 2017

Comparison of Risk Adjustment Methods in Patients with Liver Disease Using Electronic Medical Record

Yuan Xu, Mingshan Lu, Elijah Dixon, Robert Myers, Ning Li, Hude Quan
Published online: Apr 13, 2017

Do socially complex patients seek primary care from clinics specifically designed to meet their needs?

Alan Katz, Dan Chateau, Carole Taylor, Jeff Valdivia
Published online: Apr 13, 2017

Does quality of primary care vary across delivery models?

Alan Katz, Dan Chateau, Carole Taylor, Jeff Valdivia
Published online: Apr 13, 2017

Social Data Linkage Environment

Richard Trudeau
Published online: Apr 13, 2017

Record Linkage Project Process Model

Richard Trudeau
Published online: Apr 13, 2017

Early onset preeclampsia: using population data to assess recurrence risk and adverse pregnancy outcomes

Christine L. Roberts, Sean K. Seeho, Charles S. Algert, Jane B. Ford
Published online: Apr 13, 2017

An Integrated Genomics and Clinical Resource for Data-Driven Health Services Policy and Practice Decisionmaking

Mary Mcbride, Samuel Aparicio, John Spinelli, Scott Tyldesley
Published online: Apr 13, 2017

Record linkage improves assessment of interpregnancy interval (IPI)

Christine Roberts, Charles S. Algert, Tanya A. Nippita, Jonathan M. Morris, Jane B. Ford
Published online: Apr 13, 2017

Emergency department attendance after telephone triage

Amy Gibson, Deborah Randall, Duong Tran, Mary Byrne, Anthony Lawler, Alys Havard, Maureen Robinson, Louisa Jorm
Published online: Apr 13, 2017

Methods for enhancing the reproducibility of clinical epidemiology research in linked electronic health records: results and lessons learned from the CALIBER platform

Spiros Denaxas, Holger Kunz, Liam Smeeth, Arturo Gonzalez-Izquierdo, Harry Boutselakis, Maria Pikoula, Harry Hemingway
Published online: Apr 13, 2017

Development of data-driven framework for automatically identifying patient cohorts from linked electronic health records

Fabiola Fernández-Gutiérrez, Jonathan Kennedy, Roxanne Cooksey, Mark Atkinson, Ernest Choy, Sinead Brophy, Shang-Ming Zhou
Published online: Apr 13, 2017

Institute for Clinical Evaluative Sciences (ICES) Exploratory Data & Analytic Services Private Sector Pilot Project

Michael Schull, Alison P. Paprica, Charles J. Victor, Refik Saskin
Published online: Apr 13, 2017

Using linked records to improve National estimates of hospital admissions for coronary heart disease (CHD)

Derrick Lopez, Lee Nedkoff, Michael Hobbs, Tom Briffa, David Preen, Jane Heyworth, Frank Sanfilippo
Published online: Apr 13, 2017

Using probabilistically linked data to investigate the burden of Respiratory Syncytial Virus (RSV) in children <5 years of age on secondary care in England

Rachel Reeves, Pia Hardelid, Ruth Gilbert, Nikolaos Panagiotopoulos, Mehdi Minaji, Richard Pebody
Published online: Apr 13, 2017

The impact of social care expenditure at the end of life: a novel linkage study in Scotland

Claudia Geue, Olivia Wu, Terry J Quinn, Alastair Leyland, Jim Lewsey
Published online: Apr 13, 2017

Bibliometric Analysis to Scan and Scrape New Datasets: It’s all about that BASS

Karen Tingay, Brian Perkins, Athanasios Anastasiou
Published online: Apr 13, 2017

What are the causes of death of patients with tuberculosis? Multiple causes of death in a cohort of cases and a research proposal of presumed causes

Marli Rocha, Rejane Pinheiro, Gisele Oliveira, Fernanda Aguiar, Valéria Saraceni
Published online: Apr 13, 2017

Validation of dementia coding in hospital admissions, death and primary care data

Tim Wilkinson, Christian Schnier, Amanda Ly, Cathie Sudlow
Published online: Apr 18, 2017

Privacy-Preserving Record Linkage: An international collaboration between Canada, Australia and Wales

Conrad Pow, Karey Iron, James Boyd, Adrian Brown, Simon Thompson, Nelson Chong, Charlotte Ma
Published online: Apr 18, 2017

Predicting who applies to Public Housing using Linked Administrative Data

Aynslie Hinds, Brian Bechtel, Jino Distasio, Leslie L Roos, Lisa Lix
Published online: Apr 18, 2017

Evaluation of advanced techniques for multi-party privacy-preserving record linkage on real-world health databases

Thilina Ranbaduge, Dinusha Vatsalan, Sean Randall, Peter Christen
Published online: Apr 18, 2017

Maternal age and child development outcomes at age five in Australian Aboriginal and non-Aboriginal children: a population data linkage study

Kathleen Falster, Mark Hanly, Emily Banks, John Lynch, Mikaela Jorgensen, Marni Brownell, Louisa Jorm
Published online: Apr 18, 2017

Measuring precision for deterministic and probabilistic record linkage

Bindi Kindermann, James Chipperfield, Noel Hansen, Peter Rossiter, Jeffrey Wright
Published online: Apr 18, 2017

How sick is Austria? – A decision support framework for different evaluations of the burden of disease within the Austrian population based on different data sources

Barbara Glock, Florian Endel, Gottfried Endel, Klaudia Sandholzer, Niki Popper, Christoph Rinner, Georg Duftschmid, Peter Filzmoser, Mehmet Can Mert, Jürgen Holl, Michael Wagner-Pinter
Published online: Apr 18, 2017

Profile Matching of Brazilian Birth and Mortality Records where microcephaly is recorded.

Antony Stevens, Roberta Maria Leite Costa, Dacio de Lyra Rabello Neto
Published online: Apr 18, 2017

Health data on public trial: To what extent should patients control access to patient records?

Malcolm Oswald, Ruth Norris, Lamiece Hassan, Niels Peek, Mary Tully
Published online: Apr 18, 2017

Social and geographical inequalities in school starting age in Australia: a population data linkage study

Mark Hanly, Kathleen Falster, Rhonda Craven, Louisa Jorm
Published online: Apr 18, 2017

Severe parental mental illness is associated with lower school readiness in offspring: A linked data study

Megan Bell, Donna Bayliss, Rebecca Glauert, Amanda Harrison, Jeneva Ohan
Published online: Apr 18, 2017

Preschool attendance and early childhood development outcomes in the first year of school for Aboriginal and non-Aboriginal children in New South Wales, Australia

Mikaela Jorgensen, Kathleen Falster, Mark Hanly, Sharon Goldfeld, Louisa Jorm, Rhonda Craven
Published online: Apr 18, 2017

The Housing Regeneration and Health Study

Sarah Rodgers, Rhodri Johnson, Rowena Bailey, Frank Dunstan, Wouter Poortinga, Damon Berridge, Robert Smith, Ronan Lyons
Published online: Apr 18, 2017

Quantifying the fatal and non-fatal burden of Stroke and its modifiable determinants using routine Scottish healthcare datasets

Grant Wyper, Ian Grant, Elaine Tod, Margaret McFadden, Oscar Mesalles-Naranjo, Neil Craig, Richard Dobbie, Colin Fischbacher, Gerard McCartney, Diane Stockton
Published online: Apr 18, 2017

Identification of falls subgroups through semantic similarity analysis

Muhannad Almohaimeed, Andy Brass, Thamer Ba-Dhfari
Published online: Apr 18, 2017

Linking the Diagnostic Imaging Dataset (DID) to cancer registration data – improving understanding of diagnostic imaging in lung and ovarian cancer

Anna Fry, Isabella Careniro, David Kennedy, Abigail Bentley, Gemma Luck, Mick Peake, Nick Ormiston-Smith, Ella Ohuma
Published online: Apr 18, 2017

CanIMPACT: Understanding complexities, variation, and disparities in the breast cancer care continuum in Five Canadian provinces using administrative data

Patti Groome, Marcy Winget, Li Jiang, Kathleen Decker, Cynthia Kendell, Monika Krzyzanowska, Dongdong Li, Aisha Lofters, Mary L McBride, Nicole Mittmann, Rahim Moineddin, Geoff Porter, Donna Turner, Robin Urquhart, Eva Grunfeld
Published online: Apr 18, 2017

Differences in the breast cancer diagnostic process across stage groups in Ontario, Canada

Patti Groome, Marlo Whitehead, Li Jiang, Julie Gilbert, Eva Grunfeld, Hugh Langley, Aisha Lofters, Rahim Moineddin, Geoff Porter
Published online: Apr 18, 2017

The Health and Economic Impacts of Structural Energy Performance Investments in Wales: An Evaluation of the Arbed Programme

Rhodri Johnson, Sarah Rodgers, Alan Watkins, Wouter Poortinga, Charlotte Grey, Shiyu Jiang, Pippa Anderson, Ronan A Lyons
Published online: Apr 18, 2017

Comparison of child mortality by characteristics at birth in England and in Sweden using linked administrative data

Anna Zylbersztejn, Ruth Gilbert, Anders Hjern, Pia Hardelid
Published online: Apr 18, 2017

Using Linked Administrative Data to Examine the Educational Outcomes of Children in Care in Manitoba

Marni Brownell, Mariette Chartier, Wendy Au, Leonard MacWilliam
Published online: Apr 18, 2017

Young people’s views about consenting to data linkage: Findings from the PEARL qualitative study

Suzanne Audrey, Lindsey Brown, Rona Campbell, Andrew Boyd, John Macleod
Published online: Apr 18, 2017

No Strings Attached: Evaluating an Unconditional Prenatal Income Supplement Using Linked Administrative Data

Marni Brownell, Mariette Chartier, Nathan Nickel, Dan Chateau, Joykrishna Sarkar, Elaine Burland, Doug Jutte, Carole Taylor, Rob Santos, Alan Katz
Published online: Apr 18, 2017

The Nascent Pan-Canadian Real-world Health Data Network (PRHDN)

Michael J. Schull, Kimberlyn McGrail, Alison Paprica
Published online: Apr 18, 2017

Viral aetiology of acute lower respiratory infections in a birth cohort of Western Australian children

Faye Janice Lim, Hannah C. Moore, Parveen Fathima, Christopher C. Blyth, Nicholas de Klerk
Published online: Apr 18, 2017

High quality linkage using Multibit Trees for privacy-preserving blocking

Adrian Brown, Christian Borgs, Sean Randall, Rainer Schnell
Published online: Apr 18, 2017

Linking the Australian Childhood Immunisation Register to population-based perinatal datasets to assess coverage in at-risk groups

Hannah Moore, Lisa McCallum, Parveen Fathima, Nicholas de Klerk, Bette Liu, Tom Snelling, Christopher Blyth, Peter McIntyre, Heather Gidding
Published online: Apr 18, 2017

Out of the mouths of researchers: experiences of involvement

Anne McKenzie, Hayley Haines
Published online: Apr 18, 2017

How do you measure up? Methods to assess linkage quality

Anna Ferrante, James Boyd, Sean Randall, Adrian Brown, James Semmens
Published online: Apr 18, 2017

Implementing privacy-preserving record linkage: welcome to the real world

James Boyd, Anna Ferrante, Adrian Brown, Sean Randall, James Semmens
Published online: Apr 18, 2017

Variations in antibiotic use for respiratory tract infections

Rachel Mckay, Michael Law, Kimberlyn McGrail, David Patrick
Published online: Apr 18, 2017

Assessing the impact of different grouping methods: time to rethink and regroup?

Sean Randall, Anna Ferrante, Adrian Brown, James Boyd, James Semmens
Published online: Apr 18, 2017

Public Attitudes to Integrated Data in New Zealand

Che Tibby, Deb Potter, Anna McDowell
Published online: Apr 18, 2017

Born a bit too early: A study of early planned birth and child development at school age

Jason Bentley, Christine Roberts, Jenny Bowen, Andrew Martin, Jonathan Morris, Natasha Nassar
Published online: Apr 18, 2017

The effect of cross-jurisdictional linked hospital and death data on estimating risk-adjusted grouped hospital standardised mortality ratios in Australia

Katrina Spilsbury, Anna Ferrante, Diana Rosman, Janine Alan, James Boyd, James Semmens
Published online: Apr 18, 2017

How do you interpret a billion primary care records?

Martin Heaven, Laura McGinn, Sarah Lowe, Kerry Bailey, Ronan Anthony Lyons
Published online: Apr 18, 2017

Linking the English Cancer Patient Experience Survey to Cancer registration: relating patient experience to outcomes, a step towards better services and outcomes

Isabella Gomes Carneiro, James Charnock, Anna Fry, Vivian Mak, Nick Ormiston-Smith, Hannah McConnell, Yoryos Lyratzopoulos
Published online: Apr 18, 2017

Zone design for statistical disclosure control in administrative and linked microdata

James Robards, David Martin, Chris Gale
Published online: Apr 18, 2017

A review of a standards-based set of information security practices applied in Data Linkage Centers

Márcia Elizabeth Marinho Da Silva, Kenneth Camargo, Jr., Rejane Pinheiro, Claudia Coeli
Published online: Apr 18, 2017

A six-year trend of the healthcare cost of arthritis in a population-based cohort of older women

Tkt Lo, Lynne Parkinson, Michelle Cunich, Julie Byles
Published online: Apr 18, 2017

Measuring cumulative anticholinergic medicines burden in older Australian women

Lynne Parkinson, Parker Magin, Tkt Lo, Julie Byles, Rachael Moorin
Published online: Apr 18, 2017

Using consented health record linkage in a longitudinal cohort study

Karen Tingay, Ashley Akbari, Amrita Bandyopadhyay, Helen Bedford, Sinead Brophy, Mario Cortina Borja, Emla Fitzsimons, Lucy Griffiths, Melanie Healy, Jon Johnson, Efrosini Setakis, Suzanne Walton, Carol Dezateux, Ronan Lyons
Published online: Apr 18, 2017

Linking the Diagnostic Imaging Dataset (DID) to Hospital Episode Statistics (HES) – improving and understanding the diagnosis of lung cancer

David Kennedy, Abigail Bentley, Erika Denton, Ella Ohuma, Nick Ormison-Smith, Sheila Dixon
Published online: Apr 18, 2017

Modelling Diagnostic Validity Estimates from Administrative Health Data

Kristine Kroeker, Lisa M. Lix, Depeng Jiang, Saman Muthukumarana
Published online: Apr 18, 2017

Identifying superusers of health services with mental health and addiction problems: Putting the Canadian Institutes of Health Research Strategy for Patient Oriented Research into action

Jacqueline Quail, Joelle Schaefer, Cory Neudorf, Maureen Anderson, Valerie McLeod, Tania Lafontaine, Judy Pelly, Marilyn Baetz, Margaret Baker, Gary Teare, Nazeem Muhajarine
Published online: Apr 18, 2017

Collateral benefits: Unintended consequences of the Roots of Empathy program

Randy Fransoo, Mariette Chartier, Nathan Nickel, Yao Nie, Marni Brownell
Published online: Apr 18, 2017

Data linkage to develop a mortality outcome measure for patients with sepsis

Andrea Patton, Charis Marwick, Meghan Bateson
Published online: Apr 18, 2017

Investigating the relationships between chronic ill health and educational outcomes in children

Michael Fleming, Daniel Mackay, Jill Pell, James McLay
Published online: Apr 18, 2017

Record linkage augments cancer ascertainment in HIV cohorts in South Africa

Mazvita Sengayi, Adrian Spörri, Eliane Rohner, Michael Vinikoor, Hans Prozesky, Andrew Boulle, Matthias Egger, Julia Bohlius
Published online: Apr 18, 2017

Identifying superusers of health services with mental health and addiction problems

Jacqueline Quail, Maureen Anderson, Meric Osman, Claire de Oliveira, Walter Wodchis, Nazeem Muhajarine, Kathie Pruden Nansel, Valerie McLeod, Marilyn Baetz, Gary Teare, Tania Lafontaine, Judy Pelly, Joelle Schaefer, Margaret Baker, Cory Neudorf
Published online: Apr 18, 2017

Secure Research at scale

Simon Thompson
Published online: Apr 18, 2017

Dementias Platform UK (DPUK) Portal

Simon Thompson
Published online: Apr 18, 2017

Displaying Linkage Success Statistics to Identify Systemic Errors

Mike Simpson, Harold Yip, Brent Hills
Published online: Apr 18, 2017

The Australian Census Longitudinal Dataset 2006-2016: A Multi-Wave Approach to Maintaining a Longitudinal Dataset

Bindi Kindermann, Theresa Nunan, Sarah Hinde, James Chipperfield
Published online: Apr 18, 2017

Abuse and neglect in children with disabilities: risk varies by type of disability

Miriam Maclean, Scott Sims, Melanie Hansen, Helen Leonard, Jenny Bourke, Carol Bower, Melissa O'Donnell
Published online: Apr 18, 2017

Are There Long-term Academic Benefits of Full-Day Kindergarten? A Population-Based Analysis

Marni Brownell, Nathan Nickel, Dan Chateau, Carole Taylor, Leah Crockett, Alan Katz, Joykrishna Sarkar, Elaine Burland
Published online: Apr 18, 2017

Using record linkage to demonstrate the benefits of maternal influenza immunisation in Western Australia

Annette Regan, Hannah Moore, Nicholas de Klerk, Geoffrey Shellam, Paul Effler
Published online: Apr 18, 2017

Estimating the population effect of maternal alcohol use disorders on the educational achievement of children

Katherine Hafekost, Sarah Johnson, Carol Bower, James Semmens, Colleen O'Leary
Published online: Apr 18, 2017

Evaluating the Completness of Physician Billing Claims: A Proof-of-Concept Study

Lisa Lix, John Paul Kuwornu, George Kephart, Khokan Sikdar, Mark Smith, Kristine Kroeker, Hude Quan
Published online: Apr 18, 2017

Alcohol-related injury admission trends in adolescents: A comparison between Western Australia and England

Melissa O'Donnell, Scott Sims, Miriam Maclean, Arturo Gonzalez-Izquierdo, Ruth Gilbert, Fiona Stanley
Published online: Apr 18, 2017

Integrated KT 2.0: The next generation of teamwork

Randy Fransoo, Kathryn Sibley
Published online: Apr 18, 2017

Colonoscopy resource availability and colonoscopy utilization in Ontario, Canada

Colleen Webber, Jennifer Flemming, Richard Birtwhistle, Mark Rosenberg, Patti Groome
Published online: Apr 18, 2017

Determining breast cancer recurrence following completion of active treatment: A novel approach using linked administrative health data

David Preen, Anna Kemp-Casey, Elizabeth Roughead, Derrick Lopez, Max Bulsara, Frances Boyle, Christobel Saunders
Published online: Apr 18, 2017

Wait times and patterns of care in the colorectal cancer diagnostic interval

Colleen Webber, Jennifer Flemming, Richard Birtwhistle, Mark Rosenberg, Patti Groome
Published online: Apr 18, 2017

Conducting Population Health Intervention Research using Linked Databases: An Evaluation of Home Visiting Programs for At-Risk Families

Mariette Chartier, Marni Brownell, Mike Isaac, Dan Chateau, Nathan Nickel, Joykrishna Sarkar, Elaine Burland, Alan Katz
Published online: Apr 18, 2017

Multi-Agency Data Integration Project - Linking Data – Improving Lives

Bindi Kindermann, Sarah Hinde, Michael Abbondante
Published online: Apr 18, 2017

How different administrative databases change the size of a potential palliative care population

Kate Brameld, Katrina Spilsbury, Lorna Rosenwax, Kevin Murray, James Semmens
Published online: Apr 18, 2017

Educational outcomes are predictive of mental health diagnoses in adolescence

Janice Wong, Janet Fletcher, Rebecca Glauert, Melissa O'Donnell, Donna Bayliss
Published online: Apr 18, 2017

Population-based estimates of the effectiveness of pneumococcal vaccination in Australia

Heather Gidding, Hannah Moore, Lisa McCallum, Parveen Fathima, Thomas Snelling, Nicholas de Klerk, Peter McIntyre
Published online: Apr 18, 2017

Understanding the coverage of Statistics New Zealand's Integrated Data Infrastructure

Gareth Minshall, Antony Gomez, Bycroft Christine
Published online: Apr 18, 2017

Design and evaluation of probabilistic record linkage methods supporting the Brazilian 100-million cohort initiative.

Robespierre Pita, Clicia Pinto, Marcos Barreto, Samila Sena, Rosemeire Fiaccone, Leila Amorim, Mauricio Barreto
Published online: Apr 18, 2017

Assessing mental health outcomes for residents of supported accommodation services

Scott Sims, Fernando Lima, Michael Moltoni, Amanda Harrison, Rebecca Glauert
Published online: Apr 18, 2017

Unified health database creation: 125 million brazilian cohort from information systems of hospital, outpatient, births, notifications and mortalities

Ramon Pereira, Leonardo Dias, Juliano Ávila, Núbia Santos, Eli Iola Gurgel, Mariangela Leal Cherchiglia, Francisco AcÚrcio, Afonso Reis, Wagner Meira, Junior, Augusto Afonso Guerra, Junior
Published online: Apr 18, 2017

Real-time linkage: when is near enough good enough?

Katrina Irvine, Jennifer Williamson, Victoria Pye
Published online: Apr 18, 2017

Multiple operating models for data linkage: A privacy positive

Katrina Irvine, Stephanie Hollis
Published online: Apr 18, 2017

PEAC Events: identification of Predictable, Expensive, Avoidable, and Cardinal events within a learning health system.

David Whyatt, Matthew Yap, Matthew Tuson, Mei Ruu Kok, Berwin Turlach, Bryan Boruff, Elizabeth Geelhoed, Alistair Vickery
Published online: Apr 18, 2017

Data visualisation to support decision making and equitable healthcare service provision.

David Whyatt, Mei Ruu Kok, Matthew Yap, Matthew Tuson, Bryan Boruff, Berwin Turlach
Published online: Apr 18, 2017

Chronic Disease Case Definitions for Electronic Medical Records: A Canadian Validation Study

Lisa Lix, Alexander Singer, Alan Katz, Marina Yogendran, Saeed Al-Azazi
Published online: Apr 18, 2017

Effect of incomplete registration at general practices on the annual prevalence of treated asthma

Mohammad Al Sallakh, Sarah Rodgers, Aziz Sheikh, Ronan Lyons, Gwyneth Davies
Published online: Apr 18, 2017

Preparing linked population data for research: cohort study of prisoner perinatal health outcomes.

Lisa Hilder, Jane Walker, Michael Levy, Elizabeth Sullivan
Published online: Apr 18, 2017

Linking AWPS and CARIS data to estimate perinatal mortality in Wales due to congenital anomalies

Kim Rolfe, Mallinath Chakraborty, David Tucker
Published online: Apr 18, 2017

In Utero Exposure to Antihypertensive Medication During Pregnancy and Neonatal and Child Health Outcomes

Catherine Fitton, Markus Steiner, Lorna Aucott, Jill Pell, Michael Fleming, James McLay
Published online: Apr 18, 2017

Reliability of Geneological Cemetery Records in Ascertaining Vital Status in an Historical Cohort Study

Stella Gwini, Ewan MacFarlane, Geza Benke, Malcolm Sim
Published online: Apr 18, 2017

#BritainBreathing: Codesigned citizen science to map seasonal allergy symptoms across the UK

Lamiece Hassan, Sheena Cruikshank, Markel Vigo, Caroline Jay, Indira McClean, Andy Brass
Published online: Apr 18, 2017

CHERISH: Understanding Suicide Clusters tHrough ExploRIng Self Harm behaviours

Marcos Delpozo-Banos, Keith Hawton, David Gunnel, Keith Lloyd, Jonathan Scourfield, Michael Dennis, Ann John
Published online: Apr 18, 2017

Adherence and persistence of subcutaneous biologics delivered through homecare services to a cohort of patients with rheumatoid arthritis

Samantha Alvarez-Madrazo, Kim Kavanagh, Yvonne Semple, Norman Lannigan, Kevin Milne, Brian Godman, Alessandra Maciel Almeida, Francisco Assis Acurcio, Stefan Siebert, Marion Bennie
Published online: Apr 18, 2017

For the greater good? Patient and public attitudes to use of medical free text data in research

Elizabeth Ford, Jessica Stockdale, Richard Jackson, Jackie Cassell
Published online: Apr 18, 2017

Linkage of health care claims data and apps data: The ADVOCATE oral health care dashboard

Frank Gabel, Karen O’hanlon, Pamela Brankin, Robert Bryce, Anna-Lena Trescher, Christian Haux, Helen Whelton, Geert van der Heijden, Stefan Listl
Published online: Apr 18, 2017

Using administrative and claims data in the GNC-study – how to overcome legal restrictions

Janett Powietzka, Christoph Stallmann, Enno Swart
Published online: Apr 18, 2017

A UKSeRP for SAIL: striking a balance

Kerina Jones, David Ford, Caroline Brooks
Published online: Apr 18, 2017

IMECCHI-DATANETWORK: empowering knowledge generation through international data network

Marie Annick Le Pogam, Amy Metcalf, Søren Paaske Johnsen, Phil Hider, Alka Patel, Hongsoo Kim, Emanuele Carlini, Raffaele Perego, Hude Quan, Rosa Gini
Published online: Apr 18, 2017

Disclosure and Data Linkage

Andrew Turner, Madeleine Murtagh, Paul Burton
Published online: Apr 18, 2017

The effect of ultraviolet radiation on birth weights and gestational length in a scottish birth cohort

Tom Clemens, Megaw Lauren, Chris Dibben, Sarah Stock, Richard Weller
Published online: Apr 18, 2017

Application of natural language processing methods to extract coded data from administrative data held in the Scottish Prescribing Information System

Clifford Nangle, Stuart McTaggart, Margaret MacLeod, Jackie Caldwell, Marion Bennie
Published online: Apr 18, 2017

Qualitative content analysis for international comparison of data usage agreements

Christian Haux, Frank` Gabel, Anna-Lena Trescher, Helen Whelton, Geert van der Heijden, Stefan Listl, Petra Knaup-Gregori
Published online: Apr 18, 2017

Local variation in the use of out-of-home care in England: analysis of linked administrative data

Louise McGrath-Lone, Katie Harron, Lorraine Dearden, Bilal Nasim, Ruth Gilbert
Published online: Apr 18, 2017

Linking Hospital and Tax data to support research on the economic impacts of hospitalization

Claudia Sanmartin, Alexander Reicker, Allan Garland, Theodore Iwashyna, Randy Fransoo, Damon Scales, Hannah Wunsch, Evelyn Forget, Hanqing Qiu
Published online: Apr 18, 2017

Defining ‘sensitive’ health status: a systematic approach using health code terminologies.

Andy Boyd, Rosie Cornish, Jennifer Provis, Alison Teyhan, John Macleod
Published online: Apr 18, 2017

Managing Emerging Data Types in the NGLMS

James Farrow
Published online: Apr 18, 2017

PATHS Data Resource: A population-based suite of linkable administrative records and metadata for population health research

Nathan Nickel, Marni Brownell, Dan Chateau, Alan Katz, Elaine Burland
Published online: Apr 18, 2017

Longditudinal Study of Type-2 Diabetics – Do the morbidly obese really have better outcomes?

Kerry Bailey, Kelly Nock, Helen Thomas, Craig Barker, Luke Player
Published online: Apr 18, 2017

Exploring local variation in the use of out-of-home care in England using linked administrative data

Louise Mc Grath-Lone, Katie Harron, Lorraine Dearden, Bilal Nasim, Ruth Gilbert
Published online: Apr 18, 2017

Gaps in Health and Wealth: The relationship between trends in income inequality and breastfeeding inequalities

Nathan Nickel, Marni Brownell, Dan Chateau, Alan Katz, Elaine Burland
Published online: Apr 18, 2017

Assessing the accuracy of probabilistic record linkage of social and health databases in the 100 million Brazilian cohort

Marcos Barreto, André Alves, Samila Sena, Rosemeire Fiaccone, Leila Amorim, Maria Yuri Ichihara, Mauricio Barreto
Published online: Apr 18, 2017

Survival to Diabetes by age, gender and BMI category

Kelly Nock, Kerry Bailey, Craig Barker, Helen Thomas
Published online: Apr 18, 2017

Social outcomes associated with alcohol-related diagnoses: a population-based analysis using linked administrative data

Nathan Nickel, Leonard MacWilliam, Oke Eukema, Heather Prior, Joshua Nepon
Published online: Apr 18, 2017

Can censoring of research outputs be automated to ensure robust data protection?

Michael Nicholas, Chris Davies, Kelly Nock, Kerry Bailey, Craig Barker, Luke Player, Helen Thomas
Published online: Apr 18, 2017

The ELAStiC (Electronic Longitudinal Alcohol Study in Communities) project

Ashley Akbari, Ronan Lyons, Damon Berridge, John Gallacher, John MacLeod, Jon Heron, Matthew Hickman, Liam Mahedy, Mark Bellis, David Fone, Shantini Paranjothy, Laszlo Trefan, Annette Evans, Frank Dunstan, Karen Tingay, Amrita Bandyopadhyay, Vanessa Gross, Yu-Chiao Wang, Simon Moore
Published online: Apr 18, 2017

Data linkage in social care: a pilot project

Alison Orrell, Martin Heaven, Diane Seddon, Catherine Robinson
Published online: Apr 18, 2017

CHA2DS2-VASc Calculations in Patients with Atrial Fibrillation receiving oral anticoagulants in Scotland: an analysis of linked administrative data

Wenjie Zeng, Tanja Mueller, Brian Godman, Samantha Alvarez-Madrazo, Marion Bennie
Published online: Apr 18, 2017

Clinical Validation of the UKMS Register Minimal Dataset utilising Natural Language Processing

Rod Middleton, Ashley Akbari, Hazel Lockhart-Jones, Jemma Jones, Charlotte Owen, Stella Hughes, Richard Gain, David Ford
Published online: Apr 18, 2017

Privacy protected text analysis in DataSHIELD

Rebecca Wilson, Oliver Butters, Demetris Avraam, Andrew Turner, Paul Burton
Published online: Apr 18, 2017

Patient-level data linkage across ambulance services and acute trusts: assessing the potential for improving patient care

Sophie Clark, Michael Damiani, Holly Dorning, Mary Halter, Alison Porter
Published online: Apr 18, 2017

Processing of heterogeneous MS register data within the EUReMS project

Tina Meissner, Karoline Buckow, Benjamin Baum
Published online: Apr 19, 2017

Privacy protected graphical functionality in DataSHIELD

Demetris Avraam, Amadou Gaye, Julia Isaeva, Thomas Burton, Rebecca Wilson, Andrew Turner, Paul Burton
Published online: Apr 19, 2017

Data linkage and statistical modelling to provide stratified risk assessment for HAI

Kim Kavanagh, Jiafeng Pan, Chris Robertson, Marion Bennie, Charis Marwick, Colin McCowan
Published online: Apr 19, 2017

Analysing the daily, weekly and yearly cycles of births and their implications for the NHS using linked data

Gill Harper, Alison MacFarlane, Nirupa Dattani, Miranda Dodwell, Rod Gibson, Mario Cortina, Peter Martin
Published online: Apr 19, 2017

Tomorrow’s Health Data Scientists in the Making: 2 Years of Training & Capacity Building Activities with the Farr Institute

Athanasios Anastasiou, Georgina Moulton, Colin McCowan, Paul Taylor, Catharine Goddard
Published online: Apr 19, 2017

Supplementing linked datasets with meaningful meta-data to enable high quality research

Shivani Padmanabhan, Oliver Smith, Helen Strongman
Published online: Apr 19, 2017

Disseminating findings from the Data Analysis with Privacy Protection for Epidemiological Research (DAPPER) workshop

Rebecca Wilson, Paul Burton, Innes Asher, Kim Carter, Adriana Castelli, David Cumin, Chris Evelo, Lesley Stewart, Kelvin Tsoi, Emma White
Published online: Apr 19, 2017

Linking child travel routes and routine health data

Amy Mizen, Sarah Rodgers, Richard Fry, Ronan Lyons
Published online: Apr 19, 2017

Introducing the PRIDAL model for linking routine health and identifiable patient reported questionnaire data

Mark Kingston, Martin Heaven, Helen Snooks, Hayley Hutchings
Published online: Apr 19, 2017