Identifying population level insights

Under this category, the spotlight is on collections of individuals at multiple scales. This is the category to share new found and deep understandings of biological, social and environmental experiences that shape health and well-being that have the potential to bring about change and make a significant impact.

 

• ‘Leading by Science’ through Covid-19: the GDPR & Automated Decision-Making

  Miranda Jane Mourby

  Published online: Apr 7, 2021

• A bespoke data linkage of an IVF clinical quality registry to population health datasets; methods and performance

  Georgina M Chambers, Stephanie K.Y. Choi, Katie Irvine, Christos Venetis, Katie Harris, Alys Havard, Robert J Norman, Kei Lui, William Ledger, Louisa R Jorm

  Published online: Sep 13, 2021

• A more accurate approach to define abortion cohorts using linked administrative data: an application to Ontario, Canada

  Laura Schummers, Kimberlyn McGrail, Elizabeth K Darling, Sheila Dunn, Anastasia Gayowsky, Janusz Kaczorowski, Wendy V. Norman

  Published online: Apr 29, 2022

• A Pan-Canadian Data Resource for Monitoring Child Developmental Health: The Canadian Neighbourhoods Early Child Development (CanNECD) Database

  Magdalena Janus, Nazeem Muhajarine, Marni Brownell, Eric Duku, Simon Webb, Ashley Gaskin, Rob Raos, Barry Forer, Jennifer Enns, Martin Guhn

  Published online: Sep 21, 2018

• A population level study into health vulnerabilities of mothers and fathers involved in public law care proceedings in Wales, UK between 2011 and 2019

  Rhodri David Johnson, Dr Laura North, Dr Bachar Alrouh, Professor Ann John, Professor Kerina A Jones, Ashley Akbari, Jon Smart, Simon Thompson, Dr Claire Hargreaves, Dr Stefanie Doebler, Dr Linda Cusworth, Professor Karen Broadhurst, Professor David V Ford, Dr Lucy J Griffiths

  Published online: Apr 6, 2022

• A profile of the Grampian Data Safe Haven, a regional Scottish safe haven for health and population data research

  Katherine O'Sullivan, Katie Wilde

  Published online: Mar 16, 2023

• A Profile of the SAIL Databank on the UK Secure Research Platform

  Kerina H Jones, David Vincent Ford, Simon Thompson, Ronan Lyons

  Published online: Oct 19, 2020

• A retrospective epidemiological study of Type 1 Diabetes Mellitus in Wales, UK between 2008 and 2018

  James Rafferty, Jeffery W Stephens, Mark D Atkinson, Stephen D Luzio, Ashley Akbari, John W Gregory, Stephen Bain, David R Owens, Rebecca L Thomas

  Published online: Apr 20, 2021

• Achieving quality primary care data: a description of the Canadian Primary Care Sentinel Surveillance Network data capture, extraction, and processing in Alberta

  Stephanie Garies, Hude Quan, Kimberley Duerksen, Donna Manca, Neil Drummond, Matt Taylor, Boglarka Soos, Kerry McBrien, Brian Forst, Michael Cummings, Tyler Williamson

  Published online: Nov 20, 2019

• Administrative Data Research Northern Ireland (ADR NI)

  Dermot O'Reilly, Orla Bateson, Gemma McGreevy, Chris Snoddy, Tracy Power

  Published online: Feb 25, 2020

• ADRF Network Hosts Research Conference to Advance Uses of Administrative Data in the United States

  Monica M King

  Published online: Apr 20, 2021

• Assistive technology access in longitudinal datasets: a global review

  Jamie Danemayer, Sophie Mitra, Cathy Holloway, Shereen Hussein

  Published online: Mar 16, 2023

• Benefits of not smoking during pregnancy for non-Aboriginal women and their babies in New South Wales, Australia: a record linkage study

  Jillian A Patterson, Aaron Cashmore, Sally Ioannides, Andrew J Milat, Tanya A Nippita, Jonathan M Morris, Siranda Torvaldsen

  Published online: Dec 14, 2021

• Centre for Health Record Linkage

  expanding access to linked population data for NSW and the ACT, Australia

  Katie Irvine, Rick Hall, Lee Taylor

  Published online: Oct 19, 2020

• Characterizing mental health/addictions and assault visits in the year prior to death: a population-based linked cohort study of homicide victims

  Meghan O'Neill, Emmalin Buajitti, Peter D Donnelly, Kathy Kornas, Laura Rosella

  Published online: May 24, 2021

• Characterizing social and policy determinants of hospital length of stay among paediatric inpatients with diabetes using linked population-based data

  Heather Higgins, Neeru Gupta

  Published online: Dec 7, 2021

• Childbirth-Related Hospital Burden by Socioeconomic Status in a Universal Health Care Setting

  Sarah Meghan Mah, Claudia Sanmartin, Sam Harper, Nancy A Ross

  Published online: Jul 5, 2018

• The Children’s Data Network

  Harnessing the Scientific Potential of Linked, Administrative Data to Inform Children’s Programs and Policies

  Regan Foust, Jonathan Hoonhout, Andrea Eastman, John Prindle, Rebecca Rebbe, Huy Nghiem, Himal Suthar, Stephanie Cuccaro-Alamin, Michael Mitchell, William Dawson, Lindsey Palmer, Siddharth Raj, Eunhye Ahn, Ivy Hammond, Claire McNellan, Julia Reddy, Wan-Ting Chen, Kamilah Mayfield, Emily Putnam-Hornstein, Jacquelyn McCroskey

  Published online: Mar 23, 2022

• Claims-based measures of continuity of care have non-linear associations with health: data linkage study

  Bich Tran, Michael Falster, Louisa Jorm

  Published online: Dec 4, 2018

• Counting Households Containing Same-Sex Couples: An Inclusive Approach

  Peter Brandon, Oleg Ivashchenko

  Published online: Oct 12, 2022

• Creating individual level air pollution exposures in an anonymised data safe haven: a platform for evaluating impact on educational attainment

  Amy Mizen, Rhodri Johnson, Lorraine Dearden, Mohammad Al Sallakh, Anna Mavrogianni, Gwyneth Davies, Iain Lake, Ashley Akbari, David Carruthers, Ai Milojevic, Paul Wilkinson, Damon Berridge, Ruth Doherty, Jane Lyons, Sarah Elizabeth Rodgers

  Published online: Aug 21, 2018

• Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa

  Andrew Boulle, Ian de Vega, Melvin Moodley, Lesley Shand, Adam Loff, Naadir Fredericks, Robin Dyers, Renier van Rooyen, Eduan Coetzee, Kasturi Buddiga, Cara Pienaar, Florence Phelanyane, Nesbert Zinyakatira, Themba Mutemaringa, Mariette Smith, Nicki Tiffin, Alexa Heekes, Krish Vallabhjee

  Published online: Nov 20, 2019

• Data linkage can reduce the burden and increase the opportunities in the implementation of Value-Based Health Care policy: a study in patients with ulcerative colitis (PROUD-UC Study)

  John David Walshe, Ashley Akbari, Dr Barney Hawthorne, Hamish Laing

  Published online: Nov 24, 2022

• Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

  Suneela Mehta, Rod Jackson, Daniel J Exeter, Billy P Wu, Sue Wells, Andrew J Kerr

  Published online: Sep 2, 2019

• Defining a study population using enhanced reporting of Aboriginality and the effects on study outcomes

  Carol Anne McInerney, Ibinabo Ibiebele, Siranda Torvaldsen, Jane B Ford, Jonathan M Morris, Michael Nelson, Deborah Randall

  Published online: Mar 20, 2020

• Describing a complex primary health care population to support future decision support initiatives

  Jacqueline K Kueper, Jennifer Rayner, Merrick Zwarenstein, Daniel J Lizotte

  Published online: Oct 24, 2022

• DLforum – A multidisciplinary online discussion forum for data linkage researchers and practitioners

  https://dmm.anu.edu.au/DLforum/

  Peter Christen, Thilina Ranbaduge, Dinusha Vatsalan

  Published online: Feb 20, 2018

• Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales

  Daniela K Schlüter, Rowena Griffiths, Ashley Akbari, David Taylor-Robinson

  Published online: Jun 27, 2022

• Establishing the impact of COVID-19 on the health outcomes of domiciliary care workers in Wales using routine data: a protocol for the OSCAR study.

  Fiona Victoria Lugg-Widger, Rebecca Cannings-John, Ashley Akbari, Lucy Brookes-Howell, Kerenza Hood, Ann John, Hywel Jones, Hayley Prout, Simon Schoenbuchner, Daniel Thomas, Michael Robling

  Published online: Jul 14, 2021

• Estimates of age specific death rates in people with diabetes and associated multimorbidity using Australian administrative pharmaceutical data

  Mr Shaun Purkiss, Dr Tessa Keegel, Dr Hassan Vally, Dr Dennis Wollersheim

  Published online: Mar 9, 2021

• Estimating surge in COVID-19 cases, hospital resources and PPE demand with the interactive and locally-informed COVID-19 Health System Capacity Planning Tool

  Olga Krylova, Omar Kazmi, Hui Wang, Kelvin Lim, Chloe Logar-Henderson, Katerina Gapanenko

  Published online: Apr 6, 2022

• Evaluation of the effectiveness of the Family Nurse Partnership home visiting programme in first time young mothers in Scotland: a protocol for a natural experiment

  Fiona V Lugg-Widger, Michael Robling, Mandy Lau, Shantini Paranjothy, Jill Pell, Julia Sanders, James White, Rebecca Cannings-John

  Published online: Mar 16, 2020

• Family Matters: High School Graduation and Sibling Influence

  Elizabeth Wall-Wieler, Leslie Leon Roos

  Published online: Oct 10, 2017

• Health and household environment factors linked with early alcohol use in adolescence: a record-linked, data-driven, longitudinal cohort study

  Amrita Bandyopadhyay, Sinead Brophy, Ashley Akbari, Joanne Demmler, Jonathan Kennedy, Shantini Paranjothy, Ronan Lyons, Simon Moore

  Published online: Jul 7, 2022

• Hospital admissions from care homes in England during the COVID-19 pandemic: a retrospective, cross-sectional analysis using linked administrative data

  Fiona Grimm, Karen Hodgson, Richard Brine, Sarah R Deeny

  Published online: Jul 8, 2021

• ICES: Data, Discovery, Better Health

  Michael J Schull, Mahmoud Azimaee, Marcel Marra, Rosario G Cartagena, Marian J Vermeulen, Minnie M Ho, Astrid Guttmann

  Published online: Mar 11, 2020

• Identifying Cases of Sleep Disorders through International Classification of Diseases (ICD) Codes in Administrative Data

  Rachel J Jolley, Zhiying Liang, Mingkai Peng, Sachin R Pendharkar, Willis Tsai, Guanmin Chen, Cathy A Eastwood, Hude Quan, Paul E Ronksley

  Published online: Jul 10, 2018

• Immigrant and ethnic neighbourhood concentration and reduced child developmental vulnerability

  A Canadian cohort study

  Daphne N. McRae, Nazeem Muhajarine, Magdalena Janus, Eric Duku, Marni Brownell, Barry Forer, Martin Guhn

  Published online: Feb 26, 2020

• Impact of COVID-19 pandemic on community medication dispensing: a national cohort analysis in Wales, UK

  Fatemeh Torabi, Julian Halcox, Andrew Morris, Neil Jenkins, Daniel Harris, Rowena Griffiths, Gareth Davies, Mike Gravenor, Hoda Abbasizanjani, Stuart Bedston, Jane Lyons, Laura North, Ashley Akbari, Ronan A Lyons

  Published online: Apr 28, 2022

• Including household effects in Big Data research: the experience of building a longitudinal residence algorithm using linked administrative data in Wales

  Karen Susan Tingay, Matthew Roberts, Charles B.A. Musselwhite

  Published online: Nov 20, 2018

• Income inequalities in the risk of potentially avoidable hospitalisation for chronic obstructive pulmonary disease

  a population data linkage analysis

  Nicholas Quinn, Neeru Gupta

  Published online: Oct 22, 2020

• Individual and neighbourhood socioeconomic status increase risk of avoidable hospitalizations among Canadian adults: A retrospective cohort study of linked population health data

  Lauren E Wallar, Laura C Rosella

  Published online: Sep 1, 2020

• INTEGRATE: A methodology to facilitate critical care research using multiple, linked electronic health records at population scale.

  Rowena Griffiths, Laura Herbert, Ashley Akbari, Rowena Bailey, Joe Hollinghurst, Richard Pugh, Tamas Szakmany, Fatemeh Torabi, Ronan A Lyons

  Published online: Jul 18, 2022

• Investigating the impact of distance on the use of primary care extended hours

  Jen Murphy, Mark Elliot, William Whittaker, Rathi Ravindrarajah

  Published online: Oct 6, 2021

• Is place or person more important in determining higher rural cancer mortality? A data-linkage study to compare individual versus area-based measures of deprivation

  Is place or person more important in determining higher rural cancer mortality?

  Peter Murchie, Shona Fielding, Dr, Melanie Turner, Dr, Lisa Iversen, Chris Dibben, Professor

  Published online: Apr 1, 2021

• Island medicine: using data linkage to establish the kidney health of the population of Tasmania, Australia.

  Kidney disease in Tasmania

  Matthew Jose, Rajesh Raj, Kim Jose, Alex Kitsos, Tim Saunder, Charlotte McKercher, Jan Radford

  Published online: Aug 3, 2021

• Laying the Foundation for Real-World Evidence Studies of Psoriatic Disease in Newfoundland and Labrador

  Winifred Badaiki, Evelyn Pyper, Kendra Lester, Janelle Skeard, Michelle Penney, Janey Shin, Brenda Fisher, Huong Hew, Susanne Gulliver, Wayne Gulliver, Proton Rahman

  Published online: Sep 2, 2022

• Lessons in Linkage: Combining Administrative Data Using Deterministic Linkage for Surveillance of Sports and Recreation Injuries in Florida, United States

  Charlotte Baker, Quinton Nottingham, Jonathan Holloway

  Published online: Jul 26, 2022

• Lessons learned from using linked administrative data to evaluate the Family Nurse Partnership in England and Scotland

  Francesca L Cavallaro, Rebecca Cannings-John, Fiona Lugg-Widger, Ruth Gilbert, Eilis Kennedy, Sally Kendall, Michael Robling, Katie L Harron

  Published online: May 11, 2023

• Linking data on women in public family law court proceedings concerning their children to mental health service records in South London

  Rachel Pearson, Amelia Jewell, Linda Wijlaars, Stuart Bedston, Emily Finch, Karen Broadhurst, Johnny Downs, Ruth Gilbert

  Published online: Feb 24, 2021