Identifying population level insights

Under this category, the spotlight is on collections of individuals at multiple scales. This is the category to share new found and deep understandings of biological, social and environmental experiences that shape health and well-being that have the potential to bring about change and make a significant impact.

 

• ‘Leading by Science’ through Covid-19: the GDPR & Automated Decision-Making

  Miranda Jane Mourby

  Published online: Apr 7, 2021

• A bespoke data linkage of an IVF clinical quality registry to population health datasets; methods and performance

  Georgina M Chambers, Stephanie K.Y. Choi, Katie Irvine, Christos Venetis, Katie Harris, Alys Havard, Robert J Norman, Kei Lui, William Ledger, Louisa R Jorm

  Published online: Sep 13, 2021

• A more accurate approach to define abortion cohorts using linked administrative data: an application to Ontario, Canada

  Laura Schummers, Kimberlyn McGrail, Elizabeth K Darling, Sheila Dunn, Anastasia Gayowsky, Janusz Kaczorowski, Wendy V. Norman

  Published online: Apr 29, 2022

• A Pan-Canadian Data Resource for Monitoring Child Developmental Health: The Canadian Neighbourhoods Early Child Development (CanNECD) Database

  Magdalena Janus, Nazeem Muhajarine, Marni Brownell, Eric Duku, Simon Webb, Ashley Gaskin, Rob Raos, Barry Forer, Jennifer Enns, Martin Guhn

  Published online: Sep 21, 2018

• A population level study into health vulnerabilities of mothers and fathers involved in public law care proceedings in Wales, UK between 2011 and 2019

  Rhodri David Johnson, Dr Laura North, Dr Bachar Alrouh, Professor Ann John, Professor Kerina A Jones, Ashley Akbari, Jon Smart, Simon Thompson, Dr Claire Hargreaves, Dr Stefanie Doebler, Dr Linda Cusworth, Professor Karen Broadhurst, Professor David V Ford, Dr Lucy J Griffiths

  Published online: Apr 6, 2022

• A profile of the Grampian Data Safe Haven, a regional Scottish safe haven for health and population data research

  Katherine O'Sullivan, Katie Wilde

  Published online: Mar 16, 2023

• A retrospective epidemiological study of Type 1 Diabetes Mellitus in Wales, UK between 2008 and 2018

  James Rafferty, Jeffery W Stephens, Mark D Atkinson, Stephen D Luzio, Ashley Akbari, John W Gregory, Stephen Bain, David R Owens, Rebecca L Thomas

  Published online: Apr 20, 2021

• Achieving quality primary care data: a description of the Canadian Primary Care Sentinel Surveillance Network data capture, extraction, and processing in Alberta

  Stephanie Garies, Hude Quan, Kimberley Duerksen, Donna Manca, Neil Drummond, Matt Taylor, Boglarka Soos, Kerry McBrien, Brian Forst, Michael Cummings, Tyler Williamson

  Published online: Nov 20, 2019

• Administrative Data Research Northern Ireland (ADR NI)

  Dermot O'Reilly, Orla Bateson, Gemma McGreevy, Chris Snoddy, Tracy Power

  Published online: Feb 25, 2020

• ADRF Network Hosts Research Conference to Advance Uses of Administrative Data in the United States

  Monica M King

  Published online: Apr 20, 2021

• Advancing cross-sectoral data linkage to understand and address the health impacts of social exclusion: Challenges and potential solutions

  Ms Lindsay A. Pearce, Associate Professor Rohan Borschmann, Dr Jesse T. Young, Professor Stuart A. Kinner

  Published online: Jun 7, 2023

• Assistive technology access in longitudinal datasets: a global review

  Jamie Danemayer, Sophie Mitra, Cathy Holloway, Shereen Hussein

  Published online: Mar 16, 2023

• Benefits of not smoking during pregnancy for non-Aboriginal women and their babies in New South Wales, Australia: a record linkage study

  Jillian A Patterson, Aaron Cashmore, Sally Ioannides, Andrew J Milat, Tanya A Nippita, Jonathan M Morris, Siranda Torvaldsen

  Published online: Dec 14, 2021

• Centre for Health Record Linkage

  expanding access to linked population data for NSW and the ACT, Australia

  Katie Irvine, Rick Hall, Lee Taylor

  Published online: Oct 19, 2020

• Characterizing mental health/addictions and assault visits in the year prior to death: a population-based linked cohort study of homicide victims

  Meghan O'Neill, Emmalin Buajitti, Peter D Donnelly, Kathy Kornas, Laura Rosella

  Published online: May 24, 2021

• Characterizing social and policy determinants of hospital length of stay among paediatric inpatients with diabetes using linked population-based data

  Heather Higgins, Neeru Gupta

  Published online: Dec 7, 2021

• Childbirth-Related Hospital Burden by Socioeconomic Status in a Universal Health Care Setting

  Sarah Meghan Mah, Claudia Sanmartin, Sam Harper, Nancy A Ross

  Published online: Jul 5, 2018

• The Children’s Data Network

  Harnessing the Scientific Potential of Linked, Administrative Data to Inform Children’s Programs and Policies

  Regan Foust, Jonathan Hoonhout, Andrea Eastman, John Prindle, Rebecca Rebbe, Huy Nghiem, Himal Suthar, Stephanie Cuccaro-Alamin, Michael Mitchell, William Dawson, Lindsey Palmer, Siddharth Raj, Eunhye Ahn, Ivy Hammond, Claire McNellan, Julia Reddy, Wan-Ting Chen, Kamilah Mayfield, Emily Putnam-Hornstein, Jacquelyn McCroskey

  Published online: Mar 23, 2022

• Claims-based measures of continuity of care have non-linear associations with health: data linkage study

  Bich Tran, Michael Falster, Louisa Jorm

  Published online: Dec 4, 2018

• Cohort profile: A population-based record linkage platform to address critical epidemiological evidence gaps in respiratory syncytial virus and other respiratory infections

  Minda Sarna, Belaynew Taye, Huong Le, Fiona Giannini, Kathryn Glass, Christopher C Blyth, Peter Richmond, Rebecca Glauert, Avram Levy, Hannah C Moore

  Published online: Apr 11, 2024

• Cohort profile: working age adults accessing secondary mental health services in South London (UK) and benefits – a data linkage of electronic mental health records and benefits data.

  Ava Phillips, Ray Leal , Amelia Jewell , Ira Madan, Johnny Downs, Matthew Broadbent, Matthew Hotopf, Sarah Dorrington, Nicola T. Fear, Sharon A.M. Stevelink

  Published online: May 23, 2024

• Color Coded Health Data: Factors related to willingness to share health information in South Asian community members in Canada

  Iffat Naeem, Meriem Aroua, Nashit Chowdhury, Vineet Saini, Hude Quan, Tanvir C Turin

  Published online: Jun 20, 2023

• Correlates of child mental health and substance use related emergency department visits in Ontario: A linked population survey and administrative health data study

  Jinette Comeau, Li Wang, Laura Duncan, Jordan Edwards, Katholiki Georgiades, Kelly K. Anderson, Piotr Wilk, Tammy Lau

  Published online: Aug 14, 2023

• Counting Households Containing Same-Sex Couples: An Inclusive Approach

  Peter Brandon, Oleg Ivashchenko

  Published online: Oct 12, 2022

• Creating individual level air pollution exposures in an anonymised data safe haven: a platform for evaluating impact on educational attainment

  Amy Mizen, Rhodri Johnson, Lorraine Dearden, Mohammad Al Sallakh, Anna Mavrogianni, Gwyneth Davies, Iain Lake, Ashley Akbari, David Carruthers, Ai Milojevic, Paul Wilkinson, Damon Berridge, Ruth Doherty, Jane Lyons, Sarah Elizabeth Rodgers

  Published online: Aug 21, 2018

• Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa

  Andrew Boulle, Ian de Vega, Melvin Moodley, Lesley Shand, Adam Loff, Naadir Fredericks, Robin Dyers, Renier van Rooyen, Eduan Coetzee, Kasturi Buddiga, Cara Pienaar, Florence Phelanyane, Nesbert Zinyakatira, Themba Mutemaringa, Mariette Smith, Nicki Tiffin, Alexa Heekes, Krish Vallabhjee

  Published online: Nov 20, 2019

• Data linkage can reduce the burden and increase the opportunities in the implementation of Value-Based Health Care policy: a study in patients with ulcerative colitis (PROUD-UC Study)

  John David Walshe, Ashley Akbari, Dr Barney Hawthorne, Hamish Laing

  Published online: Nov 24, 2022

• Data Resource Profile: COVid VAXines Effects on the Aged (COVVAXAGE)

  Kaleen N. Hayes, Daniel A. Harris, Andrew R. Zullo, Djeneba Audrey Djibo, Renae L. Smith-Ray, Michael S. Taitel, Tanya G. Singh, Cheryl McMahill-Walraven, Preeti Chachlani, Katherine J. Wen, Ellen P. McCarthy, Stefan Gravenstein, Sean McCurdy, Kristina E. Baird, Daniel Moran, Derek Fenson, Yalin Deng, Vincent Mor

  Published online: Oct 18, 2023

• Data Resource Profile: ECHILD only-children and siblings (ECHILD-oCSib): a national cohort of linked health, education and social care data on mothers and children in England

  Qi Feng, Georgina Ireland, Ruth Gilbert, Katie Harron

  Published online: Jun 6, 2024

• Data Resource Profile: The Hospital Electronic Prescribing and Medicines Administration (HEPMA) National Data Collection in Scotland

  Tanja Mueller, Euan Proud, Amanj Kurdi, Lynne Jarvis, Kat Reid, Stuart McTaggart, Marion Bennie

  Published online: Oct 11, 2023

• Data Resource Profile: the Virtual International Care Homes Trials Archive (VICHTA)

  Lisa Irvine, Jenni Burton, Myzoon Ali, Jo Booth, James Desborough, Pip Logan, Esme Moniz-Cook, Claire Surr, David Wright, Claire Goodman

  Published online: Jan 15, 2024

• Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

  Suneela Mehta, Rod Jackson, Daniel J Exeter, Billy P Wu, Sue Wells, Andrew J Kerr

  Published online: Sep 2, 2019

• Defining a study population using enhanced reporting of Aboriginality and the effects on study outcomes

  Carol Anne McInerney, Ibinabo Ibiebele, Siranda Torvaldsen, Jane B Ford, Jonathan M Morris, Michael Nelson, Deborah Randall

  Published online: Mar 20, 2020

• Deprivation effects on length of stay and death of hospitalised COVID-19 patients in Greater Manchester

  Jen Murphy, Mark Elliot, Rathi Ravidrarajah, William Whittaker

  Published online: Feb 22, 2024

• Describing a complex primary health care population to support future decision support initiatives

  Jacqueline K Kueper, Jennifer Rayner, Merrick Zwarenstein, Daniel J Lizotte

  Published online: Oct 24, 2022

• Determining households from patient addresses and unique property reference numbers in general practitioner electronic health records

  Gillian Harper, Nicola Firman, Marta Wilk, Milena Marszalek, Paul Simon, David Stables, Rich Fry, Kelvin Smith, Carol Dezateux

  Published online: Apr 9, 2024

• DLforum – A multidisciplinary online discussion forum for data linkage researchers and practitioners

  https://dmm.anu.edu.au/DLforum/

  Peter Christen, Thilina Ranbaduge, Dinusha Vatsalan

  Published online: Feb 20, 2018

• Early childhood obesity and subsequent asthma diagnoses: A longitudinal study using linked routinely collected data from Wales

  Waleed Mohamed Abdeldayem, Jo Davies, Lucy Jane Griffiths

  Published online: Jun 26, 2024

• Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales

  Daniela K Schlüter, Rowena Griffiths, Ashley Akbari, David Taylor-Robinson

  Published online: Jun 27, 2022

• Establishing the impact of COVID-19 on the health outcomes of domiciliary care workers in Wales using routine data: a protocol for the OSCAR study.

  Fiona Victoria Lugg-Widger, Rebecca Cannings-John, Ashley Akbari, Lucy Brookes-Howell, Kerenza Hood, Ann John, Hywel Jones, Hayley Prout, Simon Schoenbuchner, Daniel Thomas, Michael Robling

  Published online: Jul 14, 2021

• Establishment of a birth-to-education cohort of 1 million Palestinian refugees using electronic medical records and electronic education records

  Zeina Jamaluddine, Akihiro Seita, Ghada Ballout, Husam Al-Fudoli, Gloria Paolucci, Shatha Albaik, Rami Ibrahim, Miho Sato, Hala Ghattas, Oona Campbell

  Published online: Oct 24, 2023

• Estimates of age specific death rates in people with diabetes and associated multimorbidity using Australian administrative pharmaceutical data

  Mr Shaun Purkiss, Dr Tessa Keegel, Dr Hassan Vally, Dr Dennis Wollersheim

  Published online: Mar 9, 2021

• Estimating surge in COVID-19 cases, hospital resources and PPE demand with the interactive and locally-informed COVID-19 Health System Capacity Planning Tool

  Olga Krylova, Omar Kazmi, Hui Wang, Kelvin Lim, Chloe Logar-Henderson, Katerina Gapanenko

  Published online: Apr 6, 2022

• Evaluating the “right@home” randomised trial of nurse home visiting using linked administrative data at school transition

  Anna Price, Jiaxin Zhang, Sharon Goldfeld, John Carlin, Fiona Mensah

  Published online: May 16, 2024

• Evaluation of the effectiveness of the Family Nurse Partnership home visiting programme in first time young mothers in Scotland: a protocol for a natural experiment

  Fiona V Lugg-Widger, Michael Robling, Mandy Lau, Shantini Paranjothy, Jill Pell, Julia Sanders, James White, Rebecca Cannings-John

  Published online: Mar 16, 2020

• Family Matters: High School Graduation and Sibling Influence

  Elizabeth Wall-Wieler, Leslie Leon Roos

  Published online: Oct 10, 2017

• Global trends in prevalence of maternal overweight and obesity: A systematic review and meta-analysis of routinely collected data retrospective cohorts

  Lisa Kent, Meabh McGirr, Kelly-Ann Eastwood

  Published online: Jul 15, 2024

• Health and household environment factors linked with early alcohol use in adolescence: a record-linked, data-driven, longitudinal cohort study

  Amrita Bandyopadhyay, Sinead Brophy, Ashley Akbari, Joanne Demmler, Jonathan Kennedy, Shantini Paranjothy, Ronan Lyons, Simon Moore

  Published online: Jul 7, 2022

• Health service use of infants involved in family justice care and supervision proceedings in Wales: a data linkage study

  Ian Farr, Laura Cowley, Karen Broadhurst, David Odd, Carys Jones, Grace Bailey, Bachar Alrouh, Mariam Abouelenin, Linda Cusworth, Stephanie Doebler, David Ford, Lucy Griffiths

  Published online: Apr 15, 2024

• Hospital admissions from care homes in England during the COVID-19 pandemic: a retrospective, cross-sectional analysis using linked administrative data

  Fiona Grimm, Karen Hodgson, Richard Brine, Sarah R Deeny

  Published online: Jul 8, 2021