Developing safe, privacy-sensitive and ethical infrastructure to support research
To achieve all of the above categories, we need to successfully develop and operate the right sociotechnical systems. Within this category, IJPDS encourages new submissions containing details and developments around secure environments, metadata, data quality, information governance etc.
58 Items
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‘Leading by Science’ through Covid-19: the GDPR & Automated Decision-Making
Published online: Apr 7, 2021 -
A bespoke data linkage of an IVF clinical quality registry to population health datasets; methods and performance
Published online: Sep 13, 2021 -
A Metadata Manifesto: The Need for Global Health Metadata
Published online: Aug 21, 2018 -
A profile of the Grampian Data Safe Haven, a regional Scottish safe haven for health and population data research
Published online: Mar 16, 2023 -
A Profile of the SAIL Databank on the UK Secure Research Platform
Published online: Oct 19, 2020 -
Administrative Data Research Northern Ireland (ADR NI)
Published online: Feb 25, 2020 -
ADRF Network Hosts Research Conference to Advance Uses of Administrative Data in the United States
Published online: Apr 20, 2021 -
An overview on synthetic administrative data for research
Published online: May 23, 2022 -
Attitudes towards the collection and linkage of maltreatment data for research: A qualitative study
Published online: Jan 26, 2022 -
Centre for Health Record Linkage
expanding access to linked population data for NSW and the ACT, Australia
Published online: Oct 19, 2020 -
The Concept Dictionary and Glossary at MCHP
Tools and Techniques to Support a Population Research Data Repository
Published online: Jul 19, 2021 -
Constructing a toolkit to evaluate quality of state and local administrative data
Published online: Jan 31, 2019 -
Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa
Published online: Nov 20, 2019 -
Data resource profile: children looked after administrative records in Wales
Published online: Aug 2, 2022 -
Development and implementation of a national online application system for cross-jurisdictional linked data
Published online: Apr 27, 2022 -
Evaluation of approximate comparison methods on Bloom filters for probabilistic linkage
Published online: May 23, 2019 -
Health Data Linkage for Public Interest Research in the UK: Key Obstacles and Solutions
Published online: Apr 2, 2019 -
ICES: Data, Discovery, Better Health
Published online: Mar 11, 2020 -
Laying the Foundation for Real-World Evidence Studies of Psoriatic Disease in Newfoundland and Labrador
Published online: Sep 2, 2022 -
Linking education and hospital data in England: linkage process and quality
Published online: Sep 16, 2021 -
National data opt out programme: consequences for maternity services in England
Published online: Jan 30, 2020 -
Not in Employment, Education or Training (NEET); more than a youth policy issue
Published online: Sep 21, 2021 -
Population Data BC: Supporting population data science in British Columbia
Published online: Mar 26, 2020 -
Population Data Centre Profile - The Western Australian Data Linkage Branch
Published online: Mar 11, 2020 -
Population Data Centre Profile: SA NT DataLink (South Australia and Northern Territory)
Published online: Dec 5, 2019 -
Population Data Centre Profile: The Manitoba Centre for Health Policy
Published online: Feb 25, 2020 -
Population Data Centre Profiles: Centre for Data Linkage
Published online: Mar 11, 2020 -
A Position Statement on Population Data Science:
The science of data about people
Published online: Feb 22, 2018 -
Prevalence of Down's Syndrome in England, 1998–2013
Comparison of linked surveillance data and electronic health records
Published online: Mar 19, 2020 -
A Privacy Attack on Multiple Dynamic Match-key based Privacy-Preserving Record Linkage
Published online: Aug 11, 2020 -
Privacy preserving linkage using multiple dynamic match keys
Published online: Jul 19, 2021 -
Quantifying Depression-Related Language on Social Media During the COVID-19 Pandemic
Published online: Mar 30, 2022 -
The SEEDS of Indigenous Population Health Data Linkage
Published online: Jun 30, 2021 -
Sensing pedestrian flows for real-time assessment of non-pharmaceutical policy interventions during the COVID-19 pandemic
Published online: Jan 13, 2022 -
The Center for Data and Knowledge Integration for Health (CIDACS)
An Experience of Linking Health and Social Data in Brazil
Published online: Nov 20, 2019 -
The International Population Data Linkage Network – Banff and Beyond
Published online: Aug 28, 2018 -
The Population Health Research Network - Population Data Centre Profile
Published online: Nov 20, 2019