Data use for positive impact on individuals and populations

This is all about how data is being used to improve lives and make positive change for public good. It also encompasses the science and practice of public engagement.

 

• “If it’s gonnae make things better then I don’t have any issue”: Perspectives of People Who Use Drugs on the Use of Administrative Data for Research

  Louise Marryat, Hazel Booth, Sarah Gray, Andrea Mohan, Senga Robertson, Sreekanth Thekkumkara, Camila Biazus-Dalcin

  Published online: Jun 30, 2026

• A bespoke data linkage of an IVF clinical quality registry to population health datasets; methods and performance

  Georgina M Chambers, Stephanie K.Y. Choi, Katie Irvine, Christos Venetis, Katie Harris, Alys Havard, Robert J Norman, Kei Lui, William Ledger, Louisa R Jorm

  Published online: Sep 13, 2021

• Data Resource Profile: A Guide for Constructing School-to-work Sequence Analysis Trajectories Using the Longitudinal Education Outcomes (LEO) Data

  Shivani Sickotra

  Published online: Mar 25, 2025

• A Longitudinal Cohort Study of Participation in the Boys & Girls Clubs of Winnipeg

  Jennifer Enns, Nathan C. Nickel, Dan Chateau, Alan Katz, Joykrishna Sarkar, Drew Lambert, Marni Brownell

  Published online: Jun 9, 2022

• A maternal and child health administrative cohort in Scotland: the utility of linked administrative data for understanding early years' outcomes and inequalities

  Paul Henery, Ruth Dundas, Srinivasa Vittal Katikireddi , Alastair H Leyland, Lynda Fenton, Sonya Scott, Claire Cameron, Anna Pearce

  Published online: Nov 27, 2024

• A more accurate approach to define abortion cohorts using linked administrative data: an application to Ontario, Canada

  Laura Schummers, Kimberlyn McGrail, Elizabeth K Darling, Sheila Dunn, Anastasia Gayowsky, Janusz Kaczorowski, Wendy V. Norman

  Published online: Apr 29, 2022

• A novel protocol for a "Citizen Panel" for diverse Public and Participant Involvement in the review and development of the process to access data in the UK Longitudinal Linkage Collaboration Trusted Research Environment

  Lidis Garbovan, Betty O. Idemudia, Robin Flaig, Kirsteen Campbell, Katharine Evans, Andy Boyd, Sarah Cunningham-Burley, Emma L. Turner

  Published online: Jul 8, 2025

• A population level study into health vulnerabilities of mothers and fathers involved in public law care proceedings in Wales, UK between 2011 and 2019

  Rhodri David Johnson, Dr Laura North, Dr Bachar Alrouh, Professor Ann John, Professor Kerina A Jones, Ashley Akbari, Jon Smart, Simon Thompson, Dr Claire Hargreaves, Dr Stefanie Doebler, Dr Linda Cusworth, Professor Karen Broadhurst, Professor David V Ford, Dr Lucy J Griffiths

  Published online: Apr 6, 2022

• A profile of the Grampian Data Safe Haven, a regional Scottish safe haven for health and population data research

  Katherine O'Sullivan, Katie Wilde

  Published online: Mar 16, 2023

• A small area deprivation index for monitoring and evaluating health inequalities in a diverse, low and middle income country: the Índice Brasileiro de Privação (IBP)

  Mirjam Allik, Elzo Pereira Pinto-Júnior, Dandara Ramos, Andrêa J.F Ferreira, Flavia Jose Alves, Camila Teixeira, Marilyn Agranonik, Renzo Flores-Ortiz, Poliana Rebouças, Rita de Cássia Ribeiro-Silva, Mauro Sanchez, Srinivasa Vittal Katikireddi, Mauricio L Barreto, Alastair H Leyland, Maria Yury Ichihara, Ruth Dundas

  Published online: Nov 19, 2025

• A statewide system for maternal-infant linked longitudinal surveillance: Indiana's model for improving maternal and child health

  Jill Inderstrodt, Daniel P. Riggins, Acatia Greenwell, John P. Price, Jennifer L. Williams, Eden Bezy, Allison Forkner, Elizabeth Bowman, Summer D. Miller, Titus K.L. Schleyer, Shaun J. Grannis, Brian E. Dixon

  Published online: Nov 11, 2024

• Access to services for mental ill-health and substance use among people released from prison in Scotland (RELEASE): Retrospective observational cohort study protocol

  Richard Kjellgren, Jan Savinc, Nadine Dougall, Amanj Kurdi, Alastair Leyland, Emily Tweed, Jim Watson, Kate Hunt, Catriona Connell

  Published online: Oct 16, 2025

• Achieving quality primary care data: a description of the Canadian Primary Care Sentinel Surveillance Network data capture, extraction, and processing in Alberta

  Stephanie Garies, Michael Cummings, Brian Forst, Kerry McBrien, Boglarka Soos, Matt Taylor, Neil Drummond, Donna Manca, Kimberley Duerksen, Hude Quan, Tyler Williamson

  Published online: Nov 20, 2019

• Adapting historical clinical genetic test records for anonymised data linkage: obstacles and opportunities

  Robert T. Maddison, Karen R. Reed, Rebecca Cannings-John, Fiona Lugg-Widger, Thomas Stoneman, Sarah Anderson, Andrew E. Fry

  Published online: Feb 20, 2025

• Addressing uncertainty in identifying pregnancies in the English CPRD GOLD Pregnancy Register: a methodological study using a worked example

  Yangmei Li, Jennifer J Kurinczuk, Fiona Alderdice, Maria A Quigley, Oliver Rivero-Arias, Julia Sanders, Sara Kenyon, Dimitrios Siassakos, Nikesh Parekh, Suresha De Almeida, Claire Carson

  Published online: Feb 25, 2025

• Administrative Data Research Northern Ireland (ADR NI)

  Dermot O'Reilly, Orla Bateson, Gemma McGreevy, Chris Snoddy, Tracy Power

  Published online: Feb 25, 2020

• ADRF Network Hosts Research Conference to Advance Uses of Administrative Data in the United States

  Monica M King

  Published online: Apr 20, 2021

• Advancing cross-sectoral data linkage to understand and address the health impacts of social exclusion: Challenges and potential solutions

  Ms Lindsay A. Pearce, Associate Professor Rohan Borschmann, Dr Jesse T. Young, Professor Stuart A. Kinner

  Published online: Jun 7, 2023

• Ascertaining Household-Level Exposure to Air Pollution: Socio-Demographic Patterning and Urban-Rural Differences in People with Schizophrenia and Other Psychotic Disorders and the General Population

  Ella S. Christoforou, Jane Lyons , Ann John , Rich Fry, Martin J.D. Clift , Amy Mizen

  Published online: Jul 2, 2026

• Assistive technology access in longitudinal datasets: a global review

  Jamie Danemayer, Sophie Mitra, Cathy Holloway, Shereen Hussein

  Published online: Mar 16, 2023

• Association between daily maximum temperature and immediate-to-delayed gout flare hospitalisations: a population-level time series study in metropolitan Perth, Australia

  Derrick Lopez, Ross J. Marriott, Hans Nossent, Helen I. Keen, Charles Inderjeeth, David B. Preen

  Published online: Feb 25, 2026

• Benefits of not smoking during pregnancy for non-Aboriginal women and their babies in New South Wales, Australia: a record linkage study

  Jillian A Patterson, Aaron Cashmore, Sally Ioannides, Andrew J Milat, Tanya A Nippita, Jonathan M Morris, Siranda Torvaldsen

  Published online: Dec 14, 2021

• Building the Iowa Data Drive: A Participatory Approach to Developing Early Childhood Indicators for State and Local Policymaking

  Heather Rouse, Sharon Zanti, Hannah Kim, Cassandra Dorius, Todd Abraham, Giorgi Chighladze

  Published online: Oct 23, 2025

• Can administrative data be used to research health visiting in England? A completeness assessment of the Community Services Dataset

  Amanda Clery, Catherine Bunting, Mengyun Liu, Katie Harron, Jenny Woodman, Louise Mc Grath-Lone

  Published online: Jun 20, 2024

• Can routinely collected primary healthcare data be used to assess Aboriginal children's health and wellbeing longitudinally? A retrospective analysis of electronic medical records from an Aboriginal community-controlled health service in Central Australia

  Catherine Lloyd-Johnsen, John Boffa, Vahab Baghbanian, Rachel Walpole, Shuaijun Guo, Sandra Eades, Anita D'Aprano, Sharon Goldfeld

  Published online: Jul 1, 2025