Bringing together and analysing data from multiple sources

This category focuses on the datasets themselves and their merging and analyses. This could incorporate secondary use/reuse of health data, routinely collected administrative data, or other emerging sources of data. Here is where we delve into scientific developments (data linkage, analytical advances, methods advancements etc.)

 

• A bespoke data linkage of an IVF clinical quality registry to population health datasets; methods and performance

  Georgina M Chambers, Stephanie K.Y. Choi, Katie Irvine, Christos Venetis, Katie Harris, Alys Havard, Robert J Norman, Kei Lui, William Ledger, Louisa R Jorm

  Published online: Sep 13, 2021

• A commentary on the value of hospital data for covid-19 pandemic surveillance and planning

  Douglas G. Manuel, Carl van Walraven, Alan J. Forster

  Published online: Mar 3, 2021

• A composite neonatal adverse outcome indicator using population-based data

  Stephanie Todd, Jennifer Bowen, Ibinabo Ibiebele, Jillian Patterson, Siranda Torvaldson, Jane Ford, Tanya Nippita, Jonathan Morris, Deborah Randall

  Published online: Aug 13, 2020

• Data Resource Profile: A Guide for Constructing School-to-work Sequence Analysis Trajectories Using the Longitudinal Education Outcomes (LEO) Data

  Shivani Sickotra

  Published online: Mar 25, 2025

• A Longitudinal Cohort Study of Participation in the Boys & Girls Clubs of Winnipeg

  Jennifer Enns, Nathan C. Nickel, Dan Chateau, Alan Katz, Joykrishna Sarkar, Drew Lambert, Marni Brownell

  Published online: Jun 9, 2022

• A maternal and child health administrative cohort in Scotland: the utility of linked administrative data for understanding early years' outcomes and inequalities

  Paul Henery, Ruth Dundas, Srinivasa Vittal Katikireddi , Alastair H Leyland, Lynda Fenton, Sonya Scott, Claire Cameron, Anna Pearce

  Published online: Nov 27, 2024

• A more accurate approach to define abortion cohorts using linked administrative data: an application to Ontario, Canada

  Laura Schummers, Kimberlyn McGrail, Elizabeth K Darling, Sheila Dunn, Anastasia Gayowsky, Janusz Kaczorowski, Wendy V. Norman

  Published online: Apr 29, 2022

• A Pan-Canadian Data Resource for Monitoring Child Developmental Health: The Canadian Neighbourhoods Early Child Development (CanNECD) Database

  Magdalena Janus, Nazeem Muhajarine, Marni Brownell, Eric Duku, Simon Webb, Ashley Gaskin, Rob Raos, Barry Forer, Jennifer Enns, Martin Guhn

  Published online: Sep 21, 2018

• A population level study into health vulnerabilities of mothers and fathers involved in public law care proceedings in Wales, UK between 2011 and 2019

  Rhodri David Johnson, Dr Laura North, Dr Bachar Alrouh, Professor Ann John, Professor Kerina A Jones, Ashley Akbari, Jon Smart, Simon Thompson, Dr Claire Hargreaves, Dr Stefanie Doebler, Dr Linda Cusworth, Professor Karen Broadhurst, Professor David V Ford, Dr Lucy J Griffiths

  Published online: Apr 6, 2022

• A profile of the Grampian Data Safe Haven, a regional Scottish safe haven for health and population data research

  Katherine O'Sullivan, Katie Wilde

  Published online: Mar 16, 2023

• A scoping review of preprocessing methods for unstructured text data to assess data quality

  Marcello Nesca, Alan Katz, Carson Leung, Lisa Lix

  Published online: Oct 5, 2022

• A statewide system for maternal-infant linked longitudinal surveillance: Indiana's model for improving maternal and child health

  Jill Inderstrodt, Daniel P. Riggins, Acatia Greenwell, John P. Price, Jennifer L. Williams, Eden Bezy, Allison Forkner, Elizabeth Bowman, Summer D. Miller, Titus K.L. Schleyer, Shaun J. Grannis, Brian E. Dixon

  Published online: Nov 11, 2024

• Access to services for mental ill-health and substance use among people released from prison in Scotland (RELEASE): Retrospective observational cohort study protocol

  Richard Kjellgren, Jan Savinc, Nadine Dougall, Amanj Kurdi, Alastair Leyland, Emily Tweed, Jim Watson, Kate Hunt, Catriona Connell

  Published online: Oct 16, 2025

• Achieving cross provincial comparisons of osteoporosis screening performance from administrative health data.

  Jacqueline Kathleen Kueper, Mhd. Wasem Alsabbagh, Sandra Peterson, Sabrina T Wong

  Published online: Jul 19, 2021

• Achieving quality primary care data: a description of the Canadian Primary Care Sentinel Surveillance Network data capture, extraction, and processing in Alberta

  Stephanie Garies, Hude Quan, Kimberley Duerksen, Donna Manca, Neil Drummond, Matt Taylor, Boglarka Soos, Kerry McBrien, Brian Forst, Michael Cummings, Tyler Williamson

  Published online: Nov 20, 2019

• Adapting historical clinical genetic test records for anonymised data linkage: obstacles and opportunities

  Robert T. Maddison, Karen R. Reed, Rebecca Cannings-John, Fiona Lugg-Widger, Thomas Stoneman, Sarah Anderson, Andrew E. Fry

  Published online: Feb 20, 2025

• Addressing uncertainty in identifying pregnancies in the English CPRD GOLD Pregnancy Register: a methodological study using a worked example

  Yangmei Li, Jennifer J Kurinczuk, Fiona Alderdice, Maria A Quigley, Oliver Rivero-Arias, Julia Sanders, Sara Kenyon, Dimitrios Siassakos, Nikesh Parekh, Suresha De Almeida, Claire Carson

  Published online: Feb 25, 2025

• Administrative data linkage to Census 2021 in Wales, UK: A cross-sectional study examining completeness and representativeness for population analytics

  Jane Lyons, Rhodri D Johnson, Michael Edwards , Samantha Turner, Richard Fry, Lucy J Griffiths, Ronan A Lyons

  Published online: Nov 26, 2025

• Administrative Data Research Northern Ireland (ADR NI)

  Dermot O'Reilly, Orla Bateson, Gemma McGreevy, Chris Snoddy, Tracy Power

  Published online: Feb 25, 2020

• ADRF Network Hosts Research Conference to Advance Uses of Administrative Data in the United States

  Monica M King

  Published online: Apr 20, 2021

• Advancing cross-sectoral data linkage to understand and address the health impacts of social exclusion: Challenges and potential solutions

  Ms Lindsay A. Pearce, Associate Professor Rohan Borschmann, Dr Jesse T. Young, Professor Stuart A. Kinner

  Published online: Jun 7, 2023

• Agreement of acute serious events recorded across datasets using linked Australian general practice, hospital, emergency department and death data: implications for research and surveillance

  Sarah Ahmed, Dr Allan Pollack, Alys Havard, Sallie-Anne Pearson, Kendal Chidwick

  Published online: Jan 24, 2023

• Assistive technology access in longitudinal datasets: a global review

  Jamie Danemayer, Sophie Mitra, Cathy Holloway, Shereen Hussein

  Published online: Mar 16, 2023

• Association between neighbourhood composition, kindergarten educator-reported distance learning barriers, and return to school concerns during the first wave of the COVID-19 pandemic in Ontario, Canada

  Natalie Spadafora, Jade Wang, Caroline Reid-Westoby, Magdalena Janus

  Published online: Apr 4, 2023

• Building the National Database of Health Centred on the Individual: Administrative and Epidemiological Record Linkage - Brazil, 2000-2015

  Augusto Afonso Guerra Junior, Francisco Assis Acurcio, Afonso Reis, Núbia Santos, Juliano Ávila, Leonardo Vinicius Dias, Mariangela Cherchiglia, Eli Iola Gurgel, Ramon Gonçalves Pereira, Wagner Meira Junior

  Published online: Nov 14, 2018

• Can Linked Electronic Medical Record and Administrative Data Help Us Identify Those Living with Frailty?

  Sabrina Wong, Alan Katz, Tyler Williamson, Alexander Singer, Sandra Peterson, Carole Taylor, Morgan Price, Rita McCracken, Manpreet Thandi

  Published online: Oct 14, 2020

• A case study in distributed team science in research using electronic health records

  Jiao Song, Elizabeth Elliot, Andrew D Morris, Joannes J Kerssens, Ashley Akbari, Simon Ellwood-Thompson, Ronan A Lyons

  Published online: Sep 21, 2018

• Centre for Health Record Linkage

  expanding access to linked population data for NSW and the ACT, Australia

  Katie Irvine, Rick Hall, Lee Taylor

  Published online: Oct 19, 2020

• Challenges Associated with Cross-Jurisdictional Analyses using Administrative Health Data and Primary Care Electronic Medical Records in Canada

  Alan Katz, Jennifer Enns, Sabrina T Wong, Tyler Williamson, Alexander Singer, Kimberlyn McGrail, Jeffery A Bakal, Carole Taylor, Sandra Peterson

  Published online: Oct 5, 2018

• Challenges in accessing routinely collected data from multiple providers in the UK for primary studies: Managing the morass.

  Fiona V Lugg-Widger, Lianna Angel, Rebecca Cannings-John, Kerenza Hood, Kathryn Hughes, Gwenllian Moody, Michael Robling

  Published online: Sep 12, 2018

• Characterising firearm-related databases across Canada: opportunities for data linkage to inform understanding of injury burden and prevention

  Aliki Karanikas, David Gomez, Tharani Raveendran, Natasha Saunders

  Published online: Jun 24, 2025

• Characterizing social and policy determinants of hospital length of stay among paediatric inpatients with diabetes using linked population-based data

  Heather Higgins, Neeru Gupta

  Published online: Dec 7, 2021

• Childhood adversity, mental health and suicide (CHASE): a protocol for a longitudinal case-control linked data study

  Nadine J Dougall, Susan Abbott-Smith, Carina Hibberd, Jonathan I Bisson, Claire Fyvie, Helen Cheyne, Ann John, Graeme Grandison, Brian Williams, Rory C O'Connor, Thanos Karatzias, Margaret Maxwell, Jan Savinc, Liz Nolan

  Published online: Apr 2, 2020

• The Children’s Data Network

  Harnessing the Scientific Potential of Linked, Administrative Data to Inform Children’s Programs and Policies

  Regan Foust, Jonathan Hoonhout, Andrea Eastman, John Prindle, Rebecca Rebbe, Huy Nghiem, Himal Suthar, Stephanie Cuccaro-Alamin, Michael Mitchell, William Dawson, Lindsey Palmer, Siddharth Raj, Eunhye Ahn, Ivy Hammond, Claire McNellan, Julia Reddy, Wan-Ting Chen, Kamilah Mayfield, Emily Putnam-Hornstein, Jacquelyn McCroskey

  Published online: Mar 23, 2022

• Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data

  Ming Ye, Jennifer Vena, Jeffrey Johnson, Grace Shen-Tu, Dean Eurich

  Published online: Oct 21, 2021

• Closing the UK care home data gap – methodological challenges and solutions

  Closing the UK care home data gap

  Jennifer Kirsty Burton, Claire Goodman, Bruce Guthrie, Adam L Gordon, Barbara Hanratty, Terry J Quinn

  Published online: Dec 15, 2020

• Cohort Profile Update: Reflecting back and looking ahead: Updating the Comparative Outcomes and Service Utilization Trends (COAST) Study to include 28 years of linked data from people with and without HIV in British Columbia, Canada

  Michael O. Budu, Katherine W. Kooij, Kate Heath, Taylor McLinden, Claudette Cardinal, Scott D. Emerson, Paul Sereda, Jason Trigg, Jenny Li, Erin Ding, Mark W. Hull, Kate Salters, Viviane D. Lima, Rolando Barrios, Julio S. G. Montaner, Robert S. Hogg, for the COAST Study Team

  Published online: Mar 6, 2025

• Cohort profile: A population-based record linkage platform to address critical epidemiological evidence gaps in respiratory syncytial virus and other respiratory infections

  Minda Sarna, Belaynew Taye, Huong Le, Fiona Giannini, Kathryn Glass, Christopher C Blyth, Peter Richmond, Rebecca Glauert, Avram Levy, Hannah C Moore

  Published online: Apr 11, 2024

• Cohort profile: The SAIL long-term conditions e-cohort (SLTC cohort) investigating area-level changes in healthcare resource use in Wales

  Timothy Osborne, Rowena Bailey, Amy Mizen, Richard Fry, Ronan A Lyons

  Published online: Jun 17, 2025

• Cohort profile: working age adults accessing secondary mental health services in South London (UK) and benefits – a data linkage of electronic mental health records and benefits data.

  Ava Phillips, Ray Leal , Amelia Jewell , Ira Madan, Johnny Downs, Matthew Broadbent, Matthew Hotopf, Sarah Dorrington, Nicola T. Fear, Sharon A.M. Stevelink

  Published online: May 23, 2024

• The Common governance model: a way to avoid data segregation between existing trusted research environment

  Fatemeh Torabi, Chris Orton, Emma Squires, Sharon Heys , Richard Hier, Ronan A. Lyons, Simon Thompson

  Published online: Nov 9, 2023

• Community-based Health Data Cooperatives Towards Improving the Immigrant Community Health: A Scoping Review to Inform Policy and Practice

  Iffat Naeem, Hossain AKM Nurul, Marcus Vaska, Suzanne Goopy, Ruksana Rashid, Anusha Kassan, Fariba Aghajafari, Ilyan Ferrer, Ahsan Kazi, Iftekhar Sadi, Maeve O'Beirne, Charles Leduc, Tanvir C Turin

  Published online: Jun 23, 2020

• A comparison of Australian chronic disease prevalence estimates using administrative pharmaceutical dispensing data with international and community survey data

  Shaun Francis Purkiss, Tessa Keegel, Hassan Vally, Dennis Wollersheim

  Published online: Dec 11, 2020

• The Concept Dictionary and Glossary at MCHP

  Tools and Techniques to Support a Population Research Data Repository

  Mark Smith, Ken Turner, Ruth Bond, Tiva Kawakami, Leslie Leon Roos

  Published online: Jul 19, 2021

• Concept Libraries for Automatic Electronic Health Record Based Phenotyping: A Review

  Zahra Ahmed Almowil, Shang-Ming Zhou, Sinead Brophy

  Published online: Jun 15, 2021

• Considerations for selecting and implementing comorbidity indices when using secondary data sources: a guide for health researchers

  Boglarka Soos, Tyler Williamson, Kerry McBrien, Samuel Wiebe, Marcello Tonelli, Danielle A. Southern, Cathy A. Eastwood, Bing Li, Hude Quan, Paul Ronksley

  Published online: Sep 2, 2025

• Correlates of child mental health and substance use related emergency department visits in Ontario: A linked population survey and administrative health data study

  Jinette Comeau, Li Wang, Laura Duncan, Jordan Edwards, Katholiki Georgiades, Kelly K. Anderson, Piotr Wilk, Tammy Lau

  Published online: Aug 14, 2023

• Counting Households Containing Same-Sex Couples: An Inclusive Approach

  Peter Brandon, Oleg Ivashchenko

  Published online: Oct 12, 2022

• Creating an 11-year longitudinal substance use harm cohort from linked health and census data to analyse social drivers of health

  Anousheh Marouzi, Charles Plante, Barbara Fornssler

  Published online: Oct 17, 2024

• Creating individual level air pollution exposures in an anonymised data safe haven: a platform for evaluating impact on educational attainment

  Amy Mizen, Rhodri Johnson, Lorraine Dearden, Mohammad Al Sallakh, Anna Mavrogianni, Gwyneth Davies, Iain Lake, Ashley Akbari, David Carruthers, Ai Milojevic, Paul Wilkinson, Damon Berridge, Ruth Doherty, Jane Lyons, Sarah Elizabeth Rodgers

  Published online: Aug 21, 2018