Bringing together and analysing data from multiple sources

This category focuses on the datasets themselves and their merging and analyses. This could incorporate secondary use/reuse of health data, routinely collected administrative data, or other emerging sources of data. Here is where we delve into scientific developments (data linkage, analytical advances, methods advancements etc.)

 

• A bespoke data linkage of an IVF clinical quality registry to population health datasets; methods and performance

  Georgina M Chambers, Stephanie K.Y. Choi, Katie Irvine, Christos Venetis, Katie Harris, Alys Havard, Robert J Norman, Kei Lui, William Ledger, Louisa R Jorm

  Published online: Sep 13, 2021

• A commentary on the value of hospital data for covid-19 pandemic surveillance and planning

  Douglas G. Manuel, Carl van Walraven, Alan J. Forster

  Published online: Mar 3, 2021

• A composite neonatal adverse outcome indicator using population-based data: an update

  an update

  Stephanie Todd, Jennifer Bowen, Ibinabo Ibiebele, Jillian Patterson, Siranda Torvaldson, Jane Ford, Tanya Nippita, Jonathan Morris, Deborah Randall

  Published online: Aug 13, 2020

• A Longitudinal Cohort Study of Participation in the Boys & Girls Clubs of Winnipeg

  Jennifer Enns, Nathan C. Nickel, Dan Chateau, Alan Katz, Joykrishna Sarkar, Drew Lambert, Marni Brownell

  Published online: Jun 9, 2022

• A more accurate approach to define abortion cohorts using linked administrative data: an application to Ontario, Canada

  Laura Schummers, Kimberlyn McGrail, Elizabeth K Darling, Sheila Dunn, Anastasia Gayowsky, Janusz Kaczorowski, Wendy V. Norman

  Published online: Apr 29, 2022

• A Pan-Canadian Data Resource for Monitoring Child Developmental Health: The Canadian Neighbourhoods Early Child Development (CanNECD) Database

  Magdalena Janus, Nazeem Muhajarine, Marni Brownell, Eric Duku, Simon Webb, Ashley Gaskin, Rob Raos, Barry Forer, Jennifer Enns, Martin Guhn

  Published online: Sep 21, 2018

• A population level study into health vulnerabilities of mothers and fathers involved in public law care proceedings in Wales, UK between 2011 and 2019

  Rhodri David Johnson, Dr Laura North, Dr Bachar Alrouh, Professor Ann John, Professor Kerina A Jones, Ashley Akbari, Jon Smart, Simon Thompson, Dr Claire Hargreaves, Dr Stefanie Doebler, Dr Linda Cusworth, Professor Karen Broadhurst, Professor David V Ford, Dr Lucy J Griffiths

  Published online: Apr 6, 2022

• A profile of the Grampian Data Safe Haven, a regional Scottish safe haven for health and population data research

  Katherine O'Sullivan, Katie Wilde

  Published online: Mar 16, 2023

• A Profile of the SAIL Databank on the UK Secure Research Platform

  Kerina H Jones, David Vincent Ford, Simon Thompson, Ronan Lyons

  Published online: Oct 19, 2020

• A scoping review of preprocessing methods for unstructured text data to assess data quality

  Marcello Nesca, Alan Katz, Carson Leung, Lisa Lix

  Published online: Oct 5, 2022

• Achieving cross provincial comparisons of osteoporosis screening performance from administrative health data.

  Jacqueline Kathleen Kueper, Mhd. Wasem Alsabbagh, Sandra Peterson, Sabrina T Wong

  Published online: Jul 19, 2021

• Achieving quality primary care data: a description of the Canadian Primary Care Sentinel Surveillance Network data capture, extraction, and processing in Alberta

  Stephanie Garies, Hude Quan, Kimberley Duerksen, Donna Manca, Neil Drummond, Matt Taylor, Boglarka Soos, Kerry McBrien, Brian Forst, Michael Cummings, Tyler Williamson

  Published online: Nov 20, 2019

• Administrative Data Research Northern Ireland (ADR NI)

  Dermot O'Reilly, Orla Bateson, Gemma McGreevy, Chris Snoddy, Tracy Power

  Published online: Feb 25, 2020

• ADRF Network Hosts Research Conference to Advance Uses of Administrative Data in the United States

  Monica M King

  Published online: Apr 20, 2021

• Agreement of acute serious events recorded across datasets using linked Australian general practice, hospital, emergency department and death data: implications for research and surveillance

  Sarah Ahmed, Dr Allan Pollack, Alys Havard, Sallie-Anne Pearson, Kendal Chidwick

  Published online: Jan 24, 2023

• Assistive technology access in longitudinal datasets: a global review

  Jamie Danemayer, Sophie Mitra, Cathy Holloway, Shereen Hussein

  Published online: Mar 16, 2023

• Building the National Database of Health Centred on the Individual: Administrative and Epidemiological Record Linkage - Brazil, 2000-2015

  Augusto Afonso Guerra Junior, Francisco Assis Acurcio, Afonso Reis, Núbia Santos, Juliano Ávila, Leonardo Vinicius Dias, Mariangela Cherchiglia, Eli Iola Gurgel, Ramon Gonçalves Pereira, Wagner Meira Junior

  Published online: Nov 14, 2018

• Can Linked Electronic Medical Record and Administrative Data Help Us Identify Those Living with Frailty?

  Sabrina Wong, Alan Katz, Tyler Williamson, Alexander Singer, Sandra Peterson, Carole Taylor, Morgan Price, Rita McCracken, Manpreet Thandi

  Published online: Oct 14, 2020

• A case study in distributed team science in research using electronic health records

  Jiao Song, Elizabeth Elliot, Andrew D Morris, Joannes J Kerssens, Ashley Akbari, Simon Ellwood-Thompson, Ronan A Lyons

  Published online: Sep 21, 2018

• Centre for Health Record Linkage

  expanding access to linked population data for NSW and the ACT, Australia

  Katie Irvine, Rick Hall, Lee Taylor

  Published online: Oct 19, 2020

• Challenges Associated with Cross-Jurisdictional Analyses using Administrative Health Data and Primary Care Electronic Medical Records in Canada

  Alan Katz, Jennifer Enns, Sabrina T Wong, Tyler Williamson, Alexander Singer, Kimberlyn McGrail, Jeffery A Bakal, Carole Taylor, Sandra Peterson

  Published online: Oct 5, 2018

• Challenges in accessing routinely collected data from multiple providers in the UK for primary studies: Managing the morass.

  Fiona V Lugg-Widger, Lianna Angel, Rebecca Cannings-John, Kerenza Hood, Kathryn Hughes, Gwenllian Moody, Michael Robling

  Published online: Sep 12, 2018

• Characterizing social and policy determinants of hospital length of stay among paediatric inpatients with diabetes using linked population-based data

  Heather Higgins, Neeru Gupta

  Published online: Dec 7, 2021

• Childhood adversity, mental health and suicide (CHASE): a protocol for a longitudinal case-control linked data study

  Nadine J Dougall, Susan Abbott-Smith, Carina Hibberd, Jonathan I Bisson, Claire Fyvie, Helen Cheyne, Ann John, Graeme Grandison, Brian Williams, Rory C O'Connor, Thanos Karatzias, Margaret Maxwell, Jan Savinc, Liz Nolan

  Published online: Apr 2, 2020

• The Children’s Data Network

  Harnessing the Scientific Potential of Linked, Administrative Data to Inform Children’s Programs and Policies

  Regan Foust, Jonathan Hoonhout, Andrea Eastman, John Prindle, Rebecca Rebbe, Huy Nghiem, Himal Suthar, Stephanie Cuccaro-Alamin, Michael Mitchell, William Dawson, Lindsey Palmer, Siddharth Raj, Eunhye Ahn, Ivy Hammond, Claire McNellan, Julia Reddy, Wan-Ting Chen, Kamilah Mayfield, Emily Putnam-Hornstein, Jacquelyn McCroskey

  Published online: Mar 23, 2022

• Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data

  Ming Ye, Jennifer Vena, Jeffrey Johnson, Grace Shen-Tu, Dean Eurich

  Published online: Oct 21, 2021

• Closing the UK care home data gap – methodological challenges and solutions

  Closing the UK care home data gap

  Jennifer Kirsty Burton, Claire Goodman, Bruce Guthrie, Adam L Gordon, Barbara Hanratty, Terry J Quinn

  Published online: Dec 15, 2020

• Community-based Health Data Cooperatives Towards Improving the Immigrant Community Health: A Scoping Review to Inform Policy and Practice

  Iffat Naeem, Hossain AKM Nurul, Marcus Vaska, Suzanne Goopy, Ruksana Rashid, Anusha Kassan, Fariba Aghajafari, Ilyan Ferrer, Ahsan Kazi, Iftekhar Sadi, Maeve O'Beirne, Charles Leduc, Tanvir C Turin

  Published online: Jun 23, 2020

• A comparison of Australian chronic disease prevalence estimates using administrative pharmaceutical dispensing data with international and community survey data

  Shaun Francis Purkiss, Tessa Keegel, Hassan Vally, Dennis Wollersheim

  Published online: Dec 11, 2020

• The Concept Dictionary and Glossary at MCHP

  Tools and Techniques to Support a Population Research Data Repository

  Mark Smith, Ken Turner, Ruth Bond, Tiva Kawakami, Leslie Leon Roos

  Published online: Jul 19, 2021

• Concept Libraries for Automatic Electronic Health Record Based Phenotyping: A Review

  Zahra Ahmed Almowil, Shang-Ming Zhou, Sinead Brophy

  Published online: Jun 15, 2021

• Counting Households Containing Same-Sex Couples: An Inclusive Approach

  Peter Brandon, Oleg Ivashchenko

  Published online: Oct 12, 2022

• Creating individual level air pollution exposures in an anonymised data safe haven: a platform for evaluating impact on educational attainment

  Amy Mizen, Rhodri Johnson, Lorraine Dearden, Mohammad Al Sallakh, Anna Mavrogianni, Gwyneth Davies, Iain Lake, Ashley Akbari, David Carruthers, Ai Milojevic, Paul Wilkinson, Damon Berridge, Ruth Doherty, Jane Lyons, Sarah Elizabeth Rodgers

  Published online: Aug 21, 2018

• Creation of the first national linked colorectal cancer dataset in Scotland: prospects for future research and a reflection on lessons learned

  Creation of Scottish colorectal cancer dataset for research purposes

  Dr Catherine R Hanna, Dr Elizabeth Lemmon, Dr Holly Ennis, Professor Robert J Jones, Joy Hay, Professor Roger Halliday, Mr Steve Clark, Professor Eva Morris, Dr Peter Hall

  Published online: Mar 31, 2021

• Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa

  Andrew Boulle, Ian de Vega, Melvin Moodley, Lesley Shand, Adam Loff, Naadir Fredericks, Robin Dyers, Renier van Rooyen, Eduan Coetzee, Kasturi Buddiga, Cara Pienaar, Florence Phelanyane, Nesbert Zinyakatira, Themba Mutemaringa, Mariette Smith, Nicki Tiffin, Alexa Heekes, Krish Vallabhjee

  Published online: Nov 20, 2019

• Data Harmonization and Data Pooling from Cohort Studies: A Practical Approach for Data Management

  Kamala Adhikari, Scott B Patten , Alka B Patel , Shahirose Premji , Suzanne Tough , Nicole Letourneau , Gerald Giesbrecht , Amy Metcalfe

  Published online: Nov 30, 2021

• Data linkage can reduce the burden and increase the opportunities in the implementation of Value-Based Health Care policy: a study in patients with ulcerative colitis (PROUD-UC Study)

  John David Walshe, Ashley Akbari, Dr Barney Hawthorne, Hamish Laing

  Published online: Nov 24, 2022

• Data resource profile: children looked after administrative records in Wales

  Gemma Allnatt, Alexandra Lee, Jonathan Scourfield, Martin Elliott, Karen Broadhurst, Lucy Griffiths

  Published online: Aug 2, 2022

• Data Resource: Children and Family Court Advisory and Support Service (Cafcass) public family law administrative records in England

  Stuart Bedston, Rachel Pearson, Matthew A Jay, Karen Broadhurst, Ruth Gilbert, Linda Wijlaars

  Published online: Mar 26, 2020

• Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.

  Alexandra Lee, Martin Elliott, Jonathan Scourfield, Stuart Bedston, Karen Broadhurst, David Ford, Lucy Griffiths

  Published online: May 9, 2022

• Data Resource: population level family justice administrative data with opportunities for data linkage

  Rhodri David Johnson, David V Ford, Karen Broadhurst, Linda Cusworth, Kerina Jones, Ashley Akbari, Stuart Bedston, Bachar Alrouh, Stefanie Doebler, Alexandra Lee, Jon Smart, Simon Thompson, Liz Trinder, Lucy J Griffiths

  Published online: Aug 24, 2020

• Data Resource: the Kent Integrated Dataset (KID)

  Dan Lewer, Tom Bourne, Abraham George, Gerrard Abi-Aad, Clint Taylor, Julie George

  Published online: Apr 25, 2018

• Data Resource: the National Pupil Database (NPD)

  Matthew Alexander Jay, Louise Mc Grath-Lone, Ruth Gilbert

  Published online: Mar 20, 2019

• Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

  Suneela Mehta, Rod Jackson, Daniel J Exeter, Billy P Wu, Sue Wells, Andrew J Kerr

  Published online: Sep 2, 2019

• Demystifying probabilistic linkage

  Common myths and misconceptions

  James C Doidge, Katie Harron

  Published online: Jan 10, 2018

• Describing agreement in the Main Condition coding field using Canadian ICD-11 inpatient data

  Natalie Wiebe, Hude Quan, Danielle A Southern, Chelsea Doktorchik, Catherine Eastwood

  Published online: Oct 20, 2021

• Describing the linkage between administrative social assistance and health care databases in Ontario, Canada

  Claire de Oliveira, Evgenia Gatov, Laura Rosella, Simon Chen, Rachel Strauss, Mahmoud Azimaee , Elizabeth Paterno, Astrid Guttmann, Ministry of Children, Community and Social Services-ICES Working Group, Nelson Chong, Peter Ionescu, Sean Ji, Alexander Kopp, Annie Lan, Charlotte Ma, Miranda Pring, Priyanka Raj, Steven Ryan, Refik Saskin, Fiona Wong

  Published online: Mar 3, 2022

• Developing a population data science approach to assess increased risk of COVID-19 associated with attending large events

  Mark Drakesmith, Gemma Hobson, Gareth John, Emily Steggall, Ashley Gould, John Parkinson, Daniel Rhys Thomas

  Published online: Aug 3, 2022

• Developing and validating a primary care EMR-based frailty definition using machine learning

  Tyler Williamson, PhD, Sylvia Aponte-Hao, BSc, Bria Mele, MSc, Brendan Cord Lethebe, MSc, Charles Leduc, MD, MSc, Manpreet Thandi, RN, MSN, MPH, Alan Katz, MBChB, MSc, CCFP, Sabrina Wong, RN, PhD

  Published online: Sep 1, 2020

• Development and implementation of a national online application system for cross-jurisdictional linked data

  Natalie Wray, Kate Miller, Katie Irvine, Elizabeth Moore, Alice Crisp, Kathleen Bapaume, Catherine Taylor, Rob Smetak, Nadine Wiggins, Mikhalina Dombrovskaya, Felicity Flack

  Published online: Apr 27, 2022