Data use for positive impact on individuals and populations

This is all about how data is being used to improve lives and make positive change for public good. It also encompasses the science and practice of public engagement.

 

• Tasmanian Data Linkage Unit

  Supporting innovative research, planning and policy formulation in Australia through the provision of high-quality linked-data services.

  Brian Stokes, Nadine Wiggins, Tim Albion, Alison Venn

  Published online: Feb 25, 2020

• The application of population data linkage to capture sibling health outcomes among children and young adults with neurodevelopmental conditions. A scoping review

  Caitlin Gray, Helen Leonard, Matthew N. Cooper, Dheeraj Rai, Emma J. Glasson

  Published online: Mar 18, 2025

• The Center for Data and Knowledge Integration for Health (CIDACS)

  An Experience of Linking Health and Social Data in Brazil

  Mauricio Lima Barreto, Maria Yuri Ichihara, Bethania de Araujo Almeida, Marcos Ennes Barreto, Liliana Cabral, Rosemeire Fiaccone, Roberto P Carreiro, Carlos Teles, Robespierre Pita, Gerson Penna, Manoel Barral-Netto, M. Sanni Ali, George Barbosa, Spiros Denaxas, Laura Rodrigues, Liam Smeeth

  Published online: Nov 20, 2019

• The centre for health informatics: a novel approach to accelerating the field of health data science

  Danielle A Southern, Cathy A Eastwood, Erin O'Connor, Chelsea Doktorchik, Marcello Tonelli, Jon Meddings, Hude Quan, Tyler S Williamson

  Published online: Mar 21, 2024

• The changing face of Australian data reforms: Impact on pharmacoepidemiology research

  Juliana de Oliveira Costa, Claudia Bruno, Andrea L Schaffer, Smriti Raichand, Emily A Karanges , Sallie-Anne Pearson

  Published online: Apr 15, 2021

• The Health Informatics Centre: a Regional Safe Haven and Trusted Research Environment Enabling World-Leading Research

  Laura M. Ward, Jenny Johnston, Keith R. Milburn, Christopher Hall, Claire Jones, Magalie Guignard-Duff, Susan Krueger, Gordon Milligan, Jill Anderson, Richard Walls, Christian Cole

  Published online: Mar 16, 2026

• The impact of cross-jurisdictional patient flows on ascertainment of hospitalisations and cardiac procedures for ST-segment-elevation myocardial infarction in an Australian population.

  Branislav Igic, Rachel Farber, Maria Alfaro-Ramirez, Michael A Nelson , Lee K Taylor

  Published online: Feb 8, 2023

• The Impact of Indirect Transport to a Trauma Centre on Survival for Major Trauma Patients: A National Propensity-Adjusted Observational Study

  Gabrielle Davie, Bridget Dicker, Rebbecca Lilley, Nicola Campbell, Shanthi Ameratunga, Ian Civil, Charles Branas, Papaarangi Reid, Brandon de Graaf, Luisa Montoya, Bridget Kool

  Published online: Jun 9, 2026

• The intergenerational health, social care, and justice system contacts associated with household substance misuse in Wales

  Hywel T Evans, Ian W Farr, Grace A Bailey, Gareth I Davies, Josh Dixon, Sam Fallick, Joanne Maimaris, Columbus Ohaeri, Olabambo Oluwasuji, Ryan Phillips, Matthew Skermer, Delyth James, Josie Smith

  Published online: Jan 14, 2026

• The International Population Data Linkage Network – Banff and Beyond

  William A Ghali, Michael J Schull

  Published online: Aug 28, 2018

• The Medicines Intelligence Centre of Research Excellence: Co-creating real-world evidence to support the evidentiary needs of Australian regulators and payers.

  Nicole Pratt, Ximena Camacho, Claire Vajdic, Louisa Degenhardt, Tracey-Lea Laba, Jodie Hillen, Christopher Etherton-Beer , David Preen, Louisa Jorm, Natasha Donnolley, Alys Havard, Sallie-Ann Pearson

  Published online: Jun 13, 2022

• The nature and extent of the literature on linked reproductive health datasets in the UK: a scoping review

  Jennifer Hall, Lois Harvey-Pescott, Sum Yue (Jessica) Ko, Rose Stevens, Neha Pathak, Ifra Ali, Geraldine Barrett, Jenny Shand, Kelly Dickson

  Published online: Sep 9, 2025

• The Need for Fully-Effective Federated Analytics of Data Sources for Clinical Trials

  Stella Maris Fabiane † These authors contributed equally, Sharon B. Love † These authors contributed equally, David Fisher, Ian R. White, Jayne F. Tierney, Catherine Dampney, Folkert W. Asselbergs, Philip R. Quinlan, Macey L. Murray ‡ These authors contributed equally, Matthew R. Sydes ‡ These authors contributed equally

  Published online: Aug 27, 2026

• The Population Health Research Network - Population Data Centre Profile

  Felicity Flack, Merran Smith

  Published online: Nov 20, 2019

• The practicalities of adapting UK maternity clinical information systems for observational research: Experiences of the POOL study

  Fiona Lugg-Widger, Christian Barlow, Rebecca Cannings-John, Chris Gale, Nicola Houlding, Rebecca Milton, Rachel Plachcinski, Michael Robling, Julia Sanders

  Published online: Aug 7, 2023

• The Research Data Centre of the German Federal Employment Agency at the Institute for Employment Research (RDC-IAB)

  Linked Microdata for Labour Market Research

  Manfred Antoni, Alexandra Schmucker

  Published online: Nov 20, 2019

• The Road to Hell Winds on: The High Administrative Burden of Maintaining Linked National Health Data

  Julie A. Taylor, Christina Pagel, Ferran Espuny Pujol, Sonya Crowe

  Published online: Apr 30, 2026

• Trend control charts for multiple sclerosis case definitions

  Naomi Hamm, Ruth Ann Marrie, Depeng Jiang, Pourang Irani, Lisa Lix

  Published online: Apr 30, 2024

• Trust, security and public interest: Striking the balance

  A review of previous literature on public attitudes towards the sharing, linking and use of administrative data for research

  Elizabeth Waind

  Published online: Dec 11, 2020

• UK Longitudinal Linkage Collaboration (UK LLC): The National Trusted Research Environment for Longitudinal Research

  Andy Boyd, Katharine M. Evans, Emma Turner, Robin Flaig, Jacqui Oakley, Kirsteen C. Campbell, Richard Thomas, Stela McLachlan, Matthew Crane, To view the complete list of authors, please see the PDF

  Published online: Feb 17, 2025

• Understanding data provenance when using electronic medical records for research: Lessons learned from the Deliver Primary Healthcare Information (DELPHI) database

  Jason Edward Black, Amanda L. Terry, Sonny Cejic, Thomas R Freeman, Daniel J. Lizotte, Scott McKay, Mark Speechley, Bridget Ryan

  Published online: Sep 28, 2023

• Understanding Inclusion, Diversity, Equity, and Accessibility in a Distributed Data Network: Environmental Scan Within Health Data Research Network Canada

  Amy Freier, Laura Bowler, Hannah Owczar, Amédé Gogovor, Mamata Pandey, John Riley, Morgan Stirling, Jessica Duris, Kimberlyn McGrail, Nathan C. Nickel

  Published online: Apr 8, 2026

• Understanding Inequalities in Adult Social Care in Wales: Protocol for the CARE Lab Linked Administrative Data Study

  Fiona Victoria Lugg-Widger, Ashley Akbari, Rebecca Cannings-John, Oliver S Cumming, Matthew Curds, Miranda Evans, José-Luis Fernandez, Henrietta Graham, Mala Mann, Melissa Meindl, Abigail Palmer, Lisa Trigg, Nell Warner, Paul Willis, Julie Wych, Simone Willis, Jonathan Scourfield

  Published online: Aug 3, 2026

• The Use of administrative record linkage to examine patterns of universal early childhood health and education service use from birth to Kindergarten (age 4 years) and developmental vulnerability in the Preparatory Year (age 5 years) in Tasmania, Australia.

  Catherine Louise Taylor, Daniel Christensen, Alison Venn, David Preen, Joel Stafford, Emily Hansen, Kim Jose, Stephen Zubrick

  Published online: Jan 19, 2022

• Use of Large Language Models (LLM) for Occupational Classification: An example of Early Learning & Child Care (ELCC) Workers

  Maria Ahmed, Kristyn Frank, Anne Guèvremont, Dafna Kohen, Joanne Yoon

  Published online: Oct 19, 2026