Data use for positive impact on individuals and populations

This is all about how data is being used to improve lives and make positive change for public good. It also encompasses the science and practice of public engagement.

 

• The intergenerational health, social care, and justice system contacts associated with household substance misuse in Wales

  Hywel T Evans, Ian W Farr, Grace A Bailey, Gareth I Davies, Josh Dixon, Sam Fallick, Joanne Maimaris, Columbus Ohaeri, Olabambo Oluwasuji, Ryan Phillips, Matthew Skermer, Delyth James, Josie Smith

  Published online: Jan 14, 2026

• The International Population Data Linkage Network – Banff and Beyond

  William A Ghali, Michael J Schull

  Published online: Aug 28, 2018

• The Medicines Intelligence Centre of Research Excellence: Co-creating real-world evidence to support the evidentiary needs of Australian regulators and payers.

  Nicole Pratt, Ximena Camacho, Claire Vajdic, Louisa Degenhardt, Tracey-Lea Laba, Jodie Hillen, Christopher Etherton-Beer , David Preen, Louisa Jorm, Natasha Donnolley, Alys Havard, Sallie-Ann Pearson

  Published online: Jun 13, 2022

• The nature and extent of the literature on linked reproductive health datasets in the UK: a scoping review

  Jennifer Hall, Lois Harvey-Pescott, Sum Yue (Jessica) Ko, Rose Stevens, Neha Pathak, Ifra Ali, Geraldine Barrett, Jenny Shand, Kelly Dickson

  Published online: Sep 9, 2025

• The Population Health Research Network - Population Data Centre Profile

  Felicity Flack, Merran Smith

  Published online: Nov 20, 2019

• The practicalities of adapting UK maternity clinical information systems for observational research: Experiences of the POOL study

  Fiona Lugg-Widger, Christian Barlow, Rebecca Cannings-John, Chris Gale, Nicola Houlding, Rebecca Milton, Rachel Plachcinski, Michael Robling, Julia Sanders

  Published online: Aug 7, 2023

• The Research Data Centre of the German Federal Employment Agency at the Institute for Employment Research (RDC-IAB)

  Linked Microdata for Labour Market Research

  Manfred Antoni, Alexandra Schmucker

  Published online: Nov 20, 2019

• The Road to Hell Winds on: The High Administrative Burden of Maintaining Linked National Health Data

  Julie A. Taylor, Christina Pagel, Ferran Espuny Pujol, Sonya Crowe

  Published online: Apr 30, 2026

• Trend control charts for multiple sclerosis case definitions

  Naomi Hamm, Ruth Ann Marrie, Depeng Jiang, Pourang Irani, Lisa Lix

  Published online: Apr 30, 2024

• Trust, security and public interest: Striking the balance

  A review of previous literature on public attitudes towards the sharing, linking and use of administrative data for research

  Elizabeth Waind

  Published online: Dec 11, 2020

• UK Longitudinal Linkage Collaboration (UK LLC): The National Trusted Research Environment for Longitudinal Research

  Andy Boyd, Katharine M. Evans, Emma Turner, Robin Flaig, Jacqui Oakley, Kirsteen C. Campbell, Richard Thomas, Stela McLachlan, Matthew Crane, To view the complete list of authors, please see the PDF

  Published online: Feb 17, 2025

• Understanding data provenance when using electronic medical records for research: Lessons learned from the Deliver Primary Healthcare Information (DELPHI) database

  Jason Edward Black, Amanda L. Terry, Sonny Cejic, Thomas R Freeman, Daniel J. Lizotte, Scott McKay, Mark Speechley, Bridget Ryan

  Published online: Sep 28, 2023

• Understanding Inclusion, Diversity, Equity, and Accessibility in a Distributed Data Network: Environmental Scan Within Health Data Research Network Canada

  Amy Freier, Laura Bowler, Hannah Owczar, Amédé Gogovor, Mamata Pandey, John Riley, Morgan Stirling, Jessica Duris, Kimberlyn McGrail, Nathan C. Nickel

  Published online: Apr 8, 2026

• Understanding Inequalities in Adult Social Care in Wales: Protocol for the CARE Lab Linked Administrative Data Study

  Fiona Victoria Lugg-Widger, Ashley Akbari, Rebecca Cannings-John, Oliver S Cumming, Matthew Curds, Miranda Evans, José-Luis Fernandez, Henrietta Graham, Mala Mann, Melissa Meindl, Abigail Palmer, Lisa Trigg, Nell Warner, Paul Willis, Julie Wych, Simone Willis, Jonathan Scourfield

  Published online: Aug 3, 2026

• The Use of administrative record linkage to examine patterns of universal early childhood health and education service use from birth to Kindergarten (age 4 years) and developmental vulnerability in the Preparatory Year (age 5 years) in Tasmania, Australia.

  Catherine Louise Taylor, Daniel Christensen, Alison Venn, David Preen, Joel Stafford, Emily Hansen, Kim Jose, Stephen Zubrick

  Published online: Jan 19, 2022

• Using a deterministic matching computer routine to identify hospital episodes in a Brazilian de-identified administrative database for the analysis of obstetrics hospitalisations

  Claudia Medina Coeli, Rosa Maria Soares Madeira Domingues, Lana Meijinhos, Daniela Medina Coeli Bastos, Rejane Sobrino Pinheiro, Valeria Saraceni , Marcos Augusto Bastos Dias, Natália Santana Paiva, Kenneth Rochel de Camargo Jr

  Published online: Mar 3, 2025

• Using data linkage to monitor COVID-19 vaccination

  Development of a vaccination linked data repository

  Tom Eitelhuber, Sera Ngeh, Lauren Bloomfield, Bhaval Chandaria, Paul Effler

  Published online: Dec 15, 2022

• Using data to improve the health of coastal communities: The Coda Network

  Martyn Patel, Elizabeth Ford, Emily Murray , Phil Ward

  Published online: Mar 11, 2026

• Using linked Census ancestry data to examine all-cause mortality by ethnicity in Australia

  Fiona Stanaway, Lin Zhu, Bree McDonald, Jioji Ravulo, Michelle Dickson, Natasha Nassar, Mei Ling Yap, Louisa Jorm, Sarah Aitken, Leonard Kritharides, Andrew Wilson, Fiona M Blyth, Carmen Huckel Schneider, Saman Khalatbari Soltani, Benjumin Hsu, Liz Allen

  Published online: Sep 11, 2025

• Validating a novel deterministic privacy-preserving record linkage between administrative & clinical data: applications in stroke research

  Alisia Southwell, Susan E. Bronskill, Tom Gee, Brendan Behan, Susan G. Evans, Tom Mikkelsen, Elizabeth Theriault, Kirk Nylen, Shannon Lefaivre, Nelson Chong, Mahmoud Azimaee, Natasa Tusevljak, Douglas Lee, Richard H. Swartz

  Published online: Nov 23, 2022

• Validating the QCOVID risk prediction algorithm for risk of mortality from COVID-19 in the adult population in Wales, UK

  Jane Lyons, Vahé Nafilyan, Ashley Akbari, Gareth Davies, Rowena Griffiths, Ewen Harrison, Julia Hippisley-Cox, Joe Hollinghurst, Kamlesh Khunti, Laura North, Aziz Sheikh, Fatemeh Torabi, Ronan Lyons

  Published online: Feb 16, 2022

• Validation of Preterm Birth Related Perinatal and Neonatal Data in the Canadian Discharge Abstract Database to Facilitate Long-term Outcomes Research of Individuals Born Preterm

  Deepak Louis, Peace Eshemokhai, Chelsea Ruth, Kristene Cheung, Lisa Lix, Lisa Flaten, Prakesh Shah, Allan Garland

  Published online: Oct 8, 2024

• Validity of heart failure diagnoses, treatments, and readmissions in the Danish National Patient Registry

  Kasper Bonnesen, Christoffer Tobias Witt, Brian Løgstrup, Hans Eiskjær, Morten Schmidt

  Published online: Oct 22, 2024

• Variation in colorectal cancer treatment and outcomes in Scotland: real world evidence from national linked administrative health data

  Elizabeth Lemmon, Catherine Hanna, Katharina Diernberger, Hugh M Paterson, Sarah H Wild, Holly Ennis, Peter S Hall

  Published online: Feb 20, 2024

• Variation in hospital cost trajectories at the end of life by age, multimorbidity and cancer type

  Katharina Diernberger, Xhyljeta Luta, Joanna Bowden, Joanne Droney, Elizabeth Lemmon, Giovanni Tramonti, Bethany Shinkins, Ewan Gray, Joachim Marti, Peter S. Hall

  Published online: Jan 16, 2023