Data use for positive impact on individuals and populations

This is all about how data is being used to improve lives and make positive change for public good. It also encompasses the science and practice of public engagement.

 

• A Position Statement on Population Data Science:

  The science of data about people

  Rachael Moorin, Milton Kotelchuck, Grant Wyper, Tyler Williamson, Christine Williams, Mark Smith, Michael Schull, Claudia Sanmartin, Hude Quan, David Preen, Christine O'Keefe, Ros Moran, Kim McGrail, Hye-Chung Kum, Russell S Kirby, David Ford, Nadine Dougall, Spiros Denaxas, Xinjie Cui, Fabrizio Carinci, Andrew Boyd, Tell Bennett, Ashley Akbari, Kerina Jones

  Published online: Feb 22, 2018

• Preventive Care Uptake and Long-Term Healthcare Use Among Children with Fetal Opioid Exposure in Ontario, Canada: A Population-Based Retrospective Cohort Study

  Arum Han, Gabrielle Pratt Tremblay, Michael Pugliese, Deshayne B Fell, Daniel J Corsi

  Published online: Jun 2, 2026

• Public engagement can change your research, but how can it change your research institution? ICES Case Study

  Jenine Paul, Randy Davidson, Cheryl Johnstone, Margaret Loong, John Matecsa, Astrid Guttmann, Michael J Schull

  Published online: Sep 30, 2020

• Public Involvement & Engagement in health inequalities research on COVID-19 pandemic: a case study of CIDACS/FIOCRUZ BAHIA

  Adalton dos Anjos Fonseca, Denise Moraes Pimenta, Mariana Rodrigues Sebastião de Almeida, Raiza Tourinho Lima, Mauricio Lima Barreto, Maria Yury Travassos Ichihara

  Published online: Jun 6, 2023

• Public Involvement & Engagement in the work of a data safe haven:

  a case study of the SAIL Databank

  Kerina Jones; Sharon Heys, Rachel Thompson, Lynsey Cross, David Ford

  Published online: Aug 24, 2020

• Public involvement and engagement in primary and emergency care research

  the story from PRIME Centre Wales

  Bridie Angela Evans, John Gallanders, Lesley Griffiths, Robert Harris-Mayes, Mari James, Sian Jones, Natalie Joseph-Williams, Mary Nettle, Martin Rolph, Helen Snooks, Carolyn Wallace, Adrian Edwards

  Published online: Sep 30, 2020

• Public Preferences regarding Data Linkage for Health Research: A Discrete Choice Experiment

  Mhairi Aitken, Gareth McAteer, Sara Davidson, Clive Frostick, Sarah Cunningham-Burley

  Published online: Jun 26, 2018

• Public sector health analytics capacity before and after Covid-19: A case study of manager perspectives in New Brunswick, Canada

  James Ayles, Maria do Carmo Correia de Lima, Neeru Gupta

  Published online: Jul 22, 2024

• Putting Voluntary, Charity, and Social Enterprise (VCSE) Organisations at the Heart of Research: Creating a Northern Ireland VCSE Research Directory

  Eric Spikol, Enya Redican, Orla McBride, Jamie Murphy, Mark Shevlin

  Published online: May 14, 2026

• Record linkage as a vital key player for the COVID-19 syndemic -- The call for legal harmonization to overcome research challenges

  Julia Nadine Doetsch, Eero Kajantie, Vasco Dias, Marit S. Indredavik, Randi Kallar Devold, Raquel Teixeira, Jarkko Reittu, Henrique Barros

  Published online: Jun 13, 2023

• Residential mobility and receipt of measles, mumps and rubella vaccination: analysis of linked primary care electronic health records in a London region

  Nicola Firman, Laura North, Milena Marszalek, Marta Wilk, Ana Gutierrez, Rhodri Johnson, Carol Dezateux

  Published online: Mar 25, 2026

• Secondary use of routinely collected administrative health data for epidemiologic research: Answering research questions using data collected for a different purpose

  Scott D. Emerson, Taylor McLinden, Paul Sereda, Amanda M. Yonkman, Jason Trigg, Sandra Peterson, Robert S. Hogg, Kate A. Salters, Viviane D. Lima, Rolando Barrios

  Published online: Nov 19, 2024

• The SEEDS of Indigenous Population Health Data Linkage

  Robyn Rowe, Stephanie Russo Carroll, Chyloe Healy, Desi Rodriguez-Lonebear, Jennifer D Walker

  Published online: Jun 30, 2021

• Semantically Interoperable Census Data: Unlocking the Semantics of Census Data Using Ontologies and Linked Data

  Anderson Wong, Mark Fox, Megan Katsumi

  Published online: May 20, 2024

• Semi-automated data provenance tracking for transparent data production and linkage to enhance auditing and quality assurance in Trusted Research Environments

  Katherine O'Sullivan, Milan Markovic, Jaroslaw Dymiter, Bernhard Scheliga, Chinasa Odo, Katie Wilde

  Published online: Feb 6, 2025

• Sensing pedestrian flows for real-time assessment of non-pharmaceutical policy interventions during the COVID-19 pandemic

  Jonas Klingwort, Sofie De Broe, Sven Alexander Brocker

  Published online: Jan 13, 2022

• Sharing data to better understand one of the world's most significant shared experiences: data resource profile of the longitudinal COVID-19 psychological research consortium (C19PRC) study

  Orla McBride, Sarah Butter, Todd Hartman, Jamie Murphy, Philip Hyland, Mark Shevlin, Jilly Gibson-Miller, Liat Levita, Liam Mason, Anton Martinez, Ryan McKay, Alex Lloyd, Thomas Stocks, Kate Bennett, Frédérique Vallières, Thanos Karatzias, Carmen Valiente, Carmelo Vazquez, Alba Contreras Cuevas, Marco Bertamini, Anna Panzeri, Giovanni Bruno, Richard Bentall

  Published online: Feb 17, 2022

• Sharing linked data sets for research: results from a deliberative public engagement event in British Columbia, Canada

  Jack Teng, Colene Bentley, Michael M Burgess, Kieran C O'Doherty, Kimberlyn M McGrail

  Published online: May 7, 2019

• Spatio-temporal forecasting of COVID-19 cases in the Netherlands for source and contact tracing

  Max Keuken, Jizzo R. Bosdriesz, Anders Boyd, Elisabeth M. den Boogert, Ivo K. Joore, Nicole H.T.M. Dukers – Muijrers, Gini van Rijckevorsel, Hannelore M. Götz, Irene E. Goverse, Mariska W.F. Petrignani, Stijn F.H. Raven, Susan van den Hof, Kirsten V.C. Wevers-de Boer, Maarten F. Schim van der Loeff, Amy Matser

  Published online: May 7, 2025

• Student Achievement Trajectories in Ontario: Creating and validating a province-wide, multi-cohort and longitudinal database

  Jeanne Sinclair, Scott Davies, Magdalena Janus

  Published online: Feb 2, 2023

• Study protocol: Generation Victoria (GenV) special care nursery registry

  Jing Wang, Yanhong Jessika Hu, Lana Collins, Anna Fedyukova, Varnika Aggarwal, Fiona Mensah, Jeanie L. Y. Cheong, Melissa Wake, and on behalf of the GenV Newborns Working Group

  Published online: Jan 10, 2024

• Supermarket Loyalty Card Data for Delivering and Evaluating Dietary Interventions: A Narrative Review

  Romana Burgess, Alisha Suhag, Anya Skatova

  Published online: Apr 9, 2026

• Supporting Local Early Years Decision-Makers in England to use Linked Data Research: A Qualitative Study

  Hollie Henderson, Sally Bridges, Kayley Ciesla

  Published online: Oct 1, 2026

• Supporting policy and practice in Ontario through ICES’ Applied Health Research Question (AHRQ) Program

  Lisa Ishiguro, Diana Ann An, Lesley Plumptre, Jenine Paul, Graham Mecredy, Kathy Li, Minnie Ho, Susan E. Bronskill, J. Charles Victor, Michael J. Schull, J. Michael Paterson

  Published online: Oct 28, 2021

• Sussex Integrated Dataset (SID) Data Resource Profile

  Elizabeth Ford, Jon Elsom, Paul Molyneux, David Crees, Yemisi Bakare, Dan Hughes

  Published online: Jun 17, 2026