Data use for positive impact on individuals and populations

This is all about how data is being used to improve lives and make positive change for public good. It also encompasses the science and practice of public engagement.

 

• Developing a Data Integrated COVID-19 Tracking System for Decision-Making and Public Use

  Alexander Krusina, Oscar Chen, Lucia Otero Varela, Chelsea Doktorchik, Vince Avati, Søren Knudsen, Danielle Southern, Cathy Eastwood, Nishan Sharma, Tyler Williamson

  Published online: Sep 28, 2020

• Developing a population data science approach to assess increased risk of COVID-19 associated with attending large events

  Mark Drakesmith, Gemma Hobson, Gareth John, Emily Steggall, Ashley Gould, John Parkinson, Daniel Rhys Thomas

  Published online: Aug 3, 2022

• Developing and evaluating a model of public involvement and engagement embedded in a national longitudinal study: HealthWise Wales

  Julia Townson, Jan Davies, Lisa Hurt, Dr, Pauline Ashfield-Watt, Dr, Shantini Paranjothy, Professor

  Published online: Apr 16, 2021

• Developing resources to facilitate public conversations about the use of linked address-based data for research

  Nicola Firman, Carol Dezateux, Claire Newman, Harriet Baird, Rich Fry, Gill Harper, Lucy Griffiths, Chris Dibben, Alison Robert, Alison Thomson

  Published online: Jan 22, 2026

• Development and Validation of a Mortality Risk Prediction Index Score for Adults Living with HIV and Multiple Chronic Comorbidities

  Viviane D. Lima, Bronhilda T. Takeh, Neil Faught , Hasan Nathani , Jielin Zhu , Scott Emerson , Katerina Dolguikh , Jason Trigg , Kate A. Salters, Rolando Barrios , Julio S. G. Montaner

  Published online: Jun 10, 2025

• Developmental Impacts of the COVID-19 Pandemic on Young Children: A Conceptual Model for Research with Integrated Administrative Data Systems

  Heather L. Rouse, Rebecca J. Bulotsky Shearer, Sydney S. Idzikowski, Amy Hawn Nelson, Mark Needle, Matthew F. Katz , Jhonelle Bailey, Justin T. Lane, Emily Berkowitz, Sharon Zanti, Astrid Pena , Maggie Reeves

  Published online: Oct 7, 2021

• DLforum – A multidisciplinary online discussion forum for data linkage researchers and practitioners

  https://dmm.anu.edu.au/DLforum/

  Peter Christen, Thilina Ranbaduge, Dinusha Vatsalan

  Published online: Feb 20, 2018

• Early child development in England: Cross-sectional analysis of ASQ®-3 records from the 2-2½-year universal health visiting review using national administrative data (Community Service Dataset, CSDS)

  Jayu Jung, Sarah Cattan, Claire Powell, Jane Barlow, Mengyun Liu, Amanda Clery, Louise Mc Grath-Lone, Catherine Bunting, Jenny Woodman

  Published online: Feb 27, 2025

• Enrolment, Attendance, and Education Resourcing and Support among 5-12 year old Autistic Students in Aotearoa New Zealand: A Nationwide Cross-sectional Study

  Nicholas Bowden, Francesca Anns, Sally Clendon, Joanne Dacombe, Lisa Meehan, Hien Vu, Emma Woodford, Laurie McLay

  Published online: Mar 19, 2026

• Establishing a national linked database for Fetal Alcohol Spectrum Disorder (FASD) in the UK: multi-method public and professional involvement to determine acceptability and feasibility

  Sarah K. Harding, Beverley Samways, Amy Dillon, Sandra Butcher, Andy Boyd, Raja Mukherjee, Penny A. Cook, Cheryl McQuire

  Published online: Sep 19, 2024

• Establishment of a birth-to-education cohort of 1 million Palestinian refugees using electronic medical records and electronic education records

  Zeina Jamaluddine, Akihiro Seita, Ghada Ballout, Husam Al-Fudoli, Gloria Paolucci, Shatha Albaik, Rami Ibrahim, Miho Sato, Hala Ghattas, Oona Campbell

  Published online: Oct 24, 2023

• Estimating surge in COVID-19 cases, hospital resources and PPE demand with the interactive and locally-informed COVID-19 Health System Capacity Planning Tool

  Olga Krylova, Omar Kazmi, Hui Wang, Kelvin Lim, Chloe Logar-Henderson, Katerina Gapanenko

  Published online: Apr 6, 2022

• Evaluating the “right@home” randomised trial of nurse home visiting using linked administrative data at school transition

  Anna Price, Jiaxin Zhang, Sharon Goldfeld, John Carlin, Fiona Mensah

  Published online: May 16, 2024

• Evaluating the accuracy of data extracted from electronic health records into MedicineInsight, a national Australian general practice database

  Benjamin Daniels, Alys Havard, Rimma Myton, Cynthia Lee, Kendal Chidwick

  Published online: Jun 29, 2022

• Evaluation of special educational needs and disability provision in English primary schools using administrative health and education data in the ECHILD database

  Ruth Gilbert [Joint first author], Jennifer Saxton [Joint first author], Ayana Cant, Kate Lewis, Vincent Nguyen, Hayley Gains, Ania Zylbersztejn, Joachim Tan, Laura Gimeno, Jacob Matthews, Isaac Winterburn, Jugnoo Rahi, Johnny Downs, Stuart Logan, William Farr, Lorraine Dearden, Katie Harron, Tamsin Ford, Bianca De Stavola, on behalf of the HOPE study team.

  Published online: Feb 12, 2026

• Evaluation of the ASSIGN open-source deterministic address-matching algorithm for allocating Unique Property Reference Numbers to general practitioner-recorded patient addresses

  Gill Harper, David Stables, Paul Simon, Zaheer Ahmed, Kelvin Smith, John Robson, Carol Dezateux

  Published online: Dec 8, 2021

• Extent of Open Science Practices in the Reporting of Real World Evidence Research

  Lillian Liu, Louisa Jorm, Nahee Kim, Tom Honeyman, Claire M Vajdic

  Published online: Apr 16, 2026

• Four Questions to Guide Decision-Making for Data Sharing and Integration

  Amy Hawn Nelson, Sharon Zanti

  Published online: Oct 4, 2023

• A Framework for Centering Racial Equity Throughout the Administrative Data Life Cycle

  Amy L Hawn Nelson, Sharon Zanti

  Published online: Sep 30, 2020

• Genetic risk score informed re-evaluation of phenotype quality control to maximize power in epidemiological studies: application to lung function

  Jing Chen, Nick Shrine, Abril G Izquierdo, Anna Guyatt, Alex Williams, Henry Völzke, Stephanie London, Ian P Hall, Frank Dudbridge, SpiroMeta Consortium, CHARGE Consortium, Louise V Wain, Martin D Tobin, Catherine John

  Published online: Feb 9, 2026

• Health data social licence: An inclusive process to learn more about the perspectives of experienced public and patient advisors

  Julia Burt, Annabelle Cumyn, Roxanne Dault, Louise Belzile, Louise Binder, Cris Carter, Paul Carter, Brian Cho, Clara Dallaire, André Gaudreau, Frédéric L'Hérault, Annette McKinnon, Danièle Remy, Leah Stephenson, Cindy Yip, P Alison Paprica

  Published online: Apr 17, 2024

• Home and Neighbourhood Built Environment Latent Class Profiles and Young Children’s Developmental Vulnerability: Findings from the Australian Early Development Census

  Hayley Christian, Emma Kate Adams, Mingxuan Zhao, Karen Villanueva, Sally Brinkman, Jasper Schipperijn, Bryan Boruff, Jacinta Francis

  Published online: Jul 23, 2026

• How to analyze and link patient experience surveys with administrative data to drive health service improvement -- examples from Alberta, Canada

  Kyle Kemp, Paul Fairie, Brian Steele, Maria Santana

  Published online: Oct 13, 2022

• I-SIRch: AI-powered concept annotation tool for equitable extraction and analysis of safety insights from maternity investigations

  Mohit Kumar Singh, Georgina Cosma, Patrick Waterson, Jonathan Back, Gyuchan Thomas Jun

  Published online: Nov 20, 2024

• ICES: Data, Discovery, Better Health

  Michael J Schull, Mahmoud Azimaee, Marcel Marra, Rosario G Cartagena, Marian J Vermeulen, Minnie M Ho, Astrid Guttmann

  Published online: Mar 11, 2020