Data use for positive impact on individuals and populations

This is all about how data is being used to improve lives and make positive change for public good. It also encompasses the science and practice of public engagement.

 

• Canadian Metadata Catalogue for Health Science Research

  Allan Garland, Peter Dodek, Kednapa Thavorn, Rita Wissa, Wendy Sligl, Wynona Marleau, M. Elizabeth Wilcox, Isabel Fortier, for the Sepsis Canada Network

  Published online: Jul 9, 2026

• Centre for Health Record Linkage

  expanding access to linked population data for NSW and the ACT, Australia

  Katie Irvine, Rick Hall, Lee Taylor

  Published online: Oct 19, 2020

• Child Outcomes for Mothers Facing Trial (COMFT): Protocol for a multi-national data linkage study to understand caregiver arrangements for children of mothers involved in the criminal and family justice systems

  Karen Broadhurst, Bachar Alrouh, Leslie Humphreys, Laura Elizabeth Cowley, Laura North, Kathryn Tranter, Claire Hargreaves, Amy Mizen, Lucy J Griffiths

  Published online: Jun 4, 2026

• The Children’s Data Network

  Harnessing the Scientific Potential of Linked, Administrative Data to Inform Children’s Programs and Policies

  Regan Foust, Jonathan Hoonhout, Andrea Eastman, John Prindle, Rebecca Rebbe, Huy Nghiem, Himal Suthar, Stephanie Cuccaro-Alamin, Michael Mitchell, William Dawson, Lindsey Palmer, Siddharth Raj, Eunhye Ahn, Ivy Hammond, Claire McNellan, Julia Reddy, Wan-Ting Chen, Kamilah Mayfield, Emily Putnam-Hornstein, Jacquelyn McCroskey

  Published online: Mar 23, 2022

• Chronic Disease Surveillance in Alberta’s Tomorrow Project using Administrative Health Data

  Ming Ye, Jennifer Vena, Jeffrey Johnson, Grace Shen-Tu, Dean Eurich

  Published online: Oct 21, 2021

• CIDACS' efforts towards an inclusive and dialogic data governance in Brazil: a focused literature review

  Bethania de Araujo Almeida, Roberto P. Carreiro, Maíra L. de Souza, Mauricio L. Barreto

  Published online: Mar 13, 2024

• Citizen Health Science

  Theodore Adrien Walls, Shannon Forkus, Abbigayle Coria

  Published online: Sep 26, 2019

• Cleaning and validating longitudinal maternal and child postcode histories from a national healthcare registry for environmental health research in London, UK

  Pia Hardelid [Joint First Author], Glory Atilola [Joint First Author], Amal Rammah, Bianca De Stavola, Tom Clemens, Steve Cunningham , Chris Dibben, Samantha Hajna, Alison Macfarlane, Ai Milojevic, Jonathon Taylor, Linda Wijlaars

  Published online: Feb 5, 2026

• Closing the loop: From system-based data to evidence-influenced policy and practice

  Dr. Alan Katz, Dr. Marni Brownell, Dr. Jennifer E. Enns, Dr. Nathan C. Nickel

  Published online: Jan 25, 2022

• Co-creating an Inclusion, Diversity, Equity, and Accessibility (IDEA) Strategy in a Pan-Canadian Health Data Research Network

  Morgan Stirling, Laura Bowler, Jeffrey Morgan, David Yang, Lisa Nowlan, Kate Millberry, Kelli Buckreus, Jennifer Hagen, Jannath Naveed, Kim McGrail, Nathan Nickel, Amy Freier

  Published online: Aug 13, 2026

• Co-producing data-intensive research with an underserved group: a case study and evaluation identifying pathways to impact

  Sarah McKenna, Ash Salem, Esla Ibrahim, Rhianna Brown, Martha McCallin, Brenda Kilpatrick, Jo Irvine, Lee Kane, Elizabeth Nelson, Aideen Maguire

  Published online: Nov 4, 2025

• Co-resident grandparent and maternal employment. A Northern Ireland cross-sectional administrative data analysis

  Ana Corina Miller, Dermot O'Reilly, David Wright

  Published online: Oct 9, 2024

• Cohort Profile Update: Reflecting back and looking ahead: Updating the Comparative Outcomes and Service Utilization Trends (COAST) Study to include 28 years of linked data from people with and without HIV in British Columbia, Canada

  Michael O. Budu, Katherine W. Kooij, Kate Heath, Taylor McLinden, Claudette Cardinal, Scott D. Emerson, Paul Sereda, Jason Trigg, Jenny Li, Erin Ding, Mark W. Hull, Kate Salters, Viviane D. Lima, Rolando Barrios, Julio S. G. Montaner, Robert S. Hogg, for the COAST Study Team

  Published online: Mar 6, 2025

• Cohort profile: A population-based record linkage platform to address critical epidemiological evidence gaps in respiratory syncytial virus and other respiratory infections

  Minda Sarna, Belaynew Taye, Huong Le, Fiona Giannini, Kathryn Glass, Christopher C Blyth, Peter Richmond, Rebecca Glauert, Avram Levy, Hannah C Moore

  Published online: Apr 11, 2024

• Cohort profile: Creation of an E-cohort to Address the Evaluation of Population Secondary Prevention Quality and Outcomes Post-Stroke (ESP-QOPS) in Wales

  Daniel King, Elizabeth A. Ellins, Hywel T. Evans, Nicholas R. Evans, Mike Gravenor, Julian Halcox, Jonathan Hewitt, Manju Krishnan, Barry McDonnell, Keeron Stone, Daniel E. Harris, Ashley Akbari

  Published online: Apr 21, 2026

• Cohort profile: The SAIL long-term conditions e-cohort (SLTC cohort) investigating area-level changes in healthcare resource use in Wales

  Timothy Osborne, Rowena Bailey, Amy Mizen, Richard Fry, Ronan A Lyons

  Published online: Jun 17, 2025

• Cohort profile: working age adults accessing secondary mental health services in South London (UK) and benefits – a data linkage of electronic mental health records and benefits data.

  Ava Phillips, Ray Leal , Amelia Jewell , Ira Madan, Johnny Downs, Matthew Broadbent, Matthew Hotopf, Sarah Dorrington, Nicola T. Fear, Sharon A.M. Stevelink

  Published online: May 23, 2024

• Community Priority setting for Fetal Alcohol Spectrum Disorder Research in Australia

  Amy Finlay-Jones, Martyn Symons, Tracey W Tsang, Narelle Mullan, Heather Jones, Anne McKenzie, Tracy Reibel, Lisa Cannon, Bridgette Birda, Neil Reynolds, Paula Sargent, Helen Gailes, Diane Mayers, Elizabeth J Elliott, Carol Bower

  Published online: Dec 10, 2020

• Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

  Lamiece Hassan, Donald J Willison, Kay Gallacher, Natalie Fitzpatrick, Sarah Fox, Elizabeth Ford, Johannes van Delden, Lynsey Cross, Michael Burgess, Corri Black, Natalie Banner, Sarah Cunningham-Burley, Simon Denegri, Carol Porteous, Mary P Tully, Catharine Goddard, Mhairi Aitken, Ron Jamieson, Joanne Webb, John Rouse, Emma Victoria Richards, Nicola Perrin, Alison Paprica, Malcolm Oswald, Madeleine J Murtagh, Rosalyn Moran, Anne McKenzie, Kimberlyn McGrail, Fiona Lugg-Widger, Minna Kaarakainen, Kerina H Jones

  Published online: Dec 10, 2020

• Construction of a healthy lifestyle index using Italian National survey data

  Manuela Scioni, Chiara Baldan, Alessia Ghirardo, Giovanna Boccuzzo

  Published online: Dec 1, 2025

• Correlates of child mental health and substance use related emergency department visits in Ontario: A linked population survey and administrative health data study

  Jinette Comeau, Li Wang, Laura Duncan, Jordan Edwards, Katholiki Georgiades, Kelly K. Anderson, Piotr Wilk, Tammy Lau

  Published online: Aug 14, 2023

• Counting Households Containing Same-Sex Couples: An Inclusive Approach

  Peter Brandon, Oleg Ivashchenko

  Published online: Oct 12, 2022

• Data Centre Profile: The Provincial Health Data Centre of the Western Cape Province, South Africa

  Eduan Coetzee, Krish Vallabhjee, Ian de Vega, Melvin Moodley, Lesley Shand, Adam Loff, Naadir Fredericks, Robin Dyers, Renier van Rooyen, Andrew Boulle, Kasturi Buddiga, Cara Pienaar, Florence Phelanyane, Nesbert Zinyakatira, Themba Mutemaringa, Mariette Smith, Nicki Tiffin, Alexa Heekes

  Published online: Nov 20, 2019

• Data linkage can reduce the burden and increase the opportunities in the implementation of Value-Based Health Care policy: a study in patients with ulcerative colitis (PROUD-UC Study)

  John David Walshe, Ashley Akbari, Dr Barney Hawthorne, Hamish Laing

  Published online: Nov 24, 2022

• Data Note: Challenges when combining housing data from multiple sources to identify overcrowded households

  Laura Scott, Yan Weigang, Marcella Ucci, Jessica Sheringham

  Published online: May 20, 2025