Vol. 9 No. 5 (2024): Conference Proceedings for International Population Data Linkage Conference 2024 | International Journal of Population Data Science

We are delighted to have welcomed new and old members of the International Population Data Linkage Network (IPDLN) to our 2024 conference in Chicago. As we discovered, hosting a conference is no small feat, and we are indebted to our colleagues across the globe who pitched in for the abstract review process and who shared their guidance and time in conference planning. Over 500 abstracts were submitted from which 256 were invited for oral presentations and panel discussions. Another 96 posters were accepted, along with 77 rapid-fire presentations. Through partnership with the International Journal of Population Data Science (IJPDS), we are publishing these abstracts to share the rich and diverse contributions from the conference with a wider audience.

Thank you to everyone for making the conference such a success, and for sharing your wisdom and scholarship with us! To stay up to date on IPDLN, visit www.ipdln.org.

Dennis Culhane, Abel Kho and Amy O'Hara.
IPDLN Co-Directors 2023 - 2024

Potentially burdensome care at the end-of-life for people who had a death from cancer: A retrospective population-level cohort study

Rebecca Mitchell, Geoffrey P Delaney, Gaston Arnolda, Winston Liauw, Jane Phillips, Reidar Lystad, Reema Harrison, Jeffrey Braithwaite

DOI https://doi.org/10.23889/ijpds.v9i5.2479

Published online: Sep 10, 2024

Exploring public views on the use of synthetic datasets for research - results from the DELIMIT study

Fiona Lugg-Widger, Claire Nollett, Lucy Brookes-Howell, Mike Robling, Rob Trubey

DOI https://doi.org/10.23889/ijpds.v9i5.2919

Published online: Sep 10, 2024

Pragmatic Clinical Trials, Linkages and Agreements: Interjurisdictional Collaboration on Pragmatic Clinical Trials

Jeff Bakal, Erik Youngson, Scott Garrison

DOI https://doi.org/10.23889/ijpds.v9i5.2505

Published online: Sep 10, 2024

IPDLN Workshop: Opportunities for Cross-Country Comparisons of Linked Administrative Education and Health Data

Anne-Marie Nybo Andersen, Siddartha Aradhya, Josephine Funck Bilsteen, Nick Bowden, Erin Early, Kathleen Falster, Martin Flatø, Michael Fleming, Rob French, Erika Hagemann, Katie Harron, Jen Keating, Gissler Mika, Rebecca Mitchell, Alicia Montgomerie, Nathan Nickell, Irene Papanicolas, Rhiannon Pilkington, Paul Romitti, Sujitha Ratnasingham, Lisa Smithers, Nieves Valdés, Ben Wilson

DOI https://doi.org/10.23889/ijpds.v9i5.2925

Published online: Oct 9, 2024

Supporting a Strong Start: Using Universal Vital Records to Understand the Service Needs of Newborns and their Families

Regan Foust, Emily Putnam-Hornstein, John Prindle

DOI https://doi.org/10.23889/ijpds.v9i5.2497

Published online: Sep 10, 2024

Mapping the dynamics between violence and alcohol outlets in Scotland using data from ambulance services.

Susan McVie, Ana Morales-Gomez

DOI https://doi.org/10.23889/ijpds.v9i5.2918

Published online: Sep 10, 2024

Predictors of high hospital admission and criminal reoffending in adults experiencing homelessness: a retrospective cohort study

Rebecca Mitchell, Nicholas Burns, Nicholas Glozier, Olav Nielssen

DOI https://doi.org/10.23889/ijpds.v9i5.2480

Published online: Sep 10, 2024

Leveraging Administrative Records and Record Linkages to Enhance Health Data at the U.S. Census Bureau

Victoria Udalova

DOI https://doi.org/10.23889/ijpds.v9i5.2481

Published online: Sep 10, 2024

Prevalence of dementia among people experiencing homelessness in Ontario, Canada: a population-based comparative analysis

Richard Booth, Cheryl Forchuk, Monidipa Dasgupta, Salimah Shariff

DOI https://doi.org/10.23889/ijpds.v9i5.2482

Published online: Sep 10, 2024

Generating synthetic identifiers to support development and evaluation of data linkage methods

Joseph Lam, Andy Boyd, Robin Linacre, Ruth Blackburn, Katie Harron

DOI https://doi.org/10.23889/ijpds.v9i5.2483

Published online: Sep 10, 2024

Factors influencing young people’s transitions from child to adult mental health services in Wales

Louisa Roberts, Sophie Wood, David Wilkins, Katherine Shelton

DOI https://doi.org/10.23889/ijpds.v9i5.2484

Published online: Sep 10, 2024

Cumulative incidence of chronic health conditions recorded in hospital admissions from birth to age 16 in England: a cohort study using linked hospital and education administrative data

Matthew Jay, Lauren Herlitz, Jessica Deighton, Ruth Gilbert, Ruth Blackburn

DOI https://doi.org/10.23889/ijpds.v9i5.2485

Published online: Sep 10, 2024

A profile of the mental health needs of children in out-of-home care in Wales between 2019-2020

Aimee Cummings

DOI https://doi.org/10.23889/ijpds.v9i5.2486

Published online: Sep 10, 2024

Ethnoracial disparities in childhood growth trajectories in Brazil: a longitudinal nationwide study of four million children

Helena Benes Matos da Silva, Juliana Freitas de Mello e Silva, Rita de Cássia Ribeiro‑Silva, Irina Chis Ster, Poliana Rebouças, Emanuelle Goes, Maria Yury Ichihara, Andrêa Ferreira, Julia M. Pescarini, Rosemeire Leovigildo Fiaccone, Enny S. Paixão, Maurício L. Barreto, Bethania de Araujo Almeida

DOI https://doi.org/10.23889/ijpds.v9i5.2487

Published online: Sep 10, 2024

Assessing antidepressant exposure and response using UK electronic health record data

Matthew Iveson, Emily Ball, Arlene Casey, Matus Falis, Andrew McIntosh, Heather Whalley

DOI https://doi.org/10.23889/ijpds.v9i5.2488

Published online: Sep 10, 2024

Rates and causes of death after release from incarceration: an individual participant data meta-analysis from 1,471,526 people in eight high- and middle-income countries

Rohan Borschmann, Stuart Kinner, MARIC team

DOI https://doi.org/10.23889/ijpds.v9i5.2489

Published online: Sep 10, 2024

Healthcare contact days for people with stage IV non-small cell lung cancer (NSCLC) in Ontario: A population-based study

Paul Nguyen, Arjun Gupta, Christopher Booth, Timothy Hanna

DOI https://doi.org/10.23889/ijpds.v9i5.2490

Published online: Sep 10, 2024

Opioid-related overdose deaths among people experiencing homelessness, 2017 to 2021: A population-based analysis using coroner and health administrative data from Ontario, Canada

Richard Booth, Salimah Shariff, Brooke Carter, Stephen Hwang, Aaron Orkin, Cheryl Forchuk, Tara Gomes

DOI https://doi.org/10.23889/ijpds.v9i5.2492

Published online: Sep 10, 2024

Applying Newly Identified Financially Focused Home Care Quality and Performance Indicators In Alberta's $23.5B/annum Health System - Preliminary Findings

Max Jajszczok, Hude Quan, Catherine A Eastwood, Mingshan Lu, Ceara Cunningham

DOI https://doi.org/10.23889/ijpds.v9i5.2493

Published online: Sep 10, 2024

Patient Identity Management in The Global Health Context

Toan Ong, Mary Pittman, Paul Biondich, Burke Mamlin, Brett Onions, Martin Suleman, Jennifer Shivers

DOI https://doi.org/10.23889/ijpds.v9i5.2494

Published online: Sep 10, 2024

Linking trial data to ICES: incorporating a prompt in a research ethics protocol submission platform in Southwestern Ontario

Theresa FitzGerald, Amit Garg, Erika Basile

DOI https://doi.org/10.23889/ijpds.v9i5.2495

Published online: Sep 10, 2024

Creating an intergenerational cohort of mothers and their children using administrative data from health, education and social care in England (ECHILD)

Q Feng, Ruth Gilbert, Georgina Ireland, Katie Harron

DOI https://doi.org/10.23889/ijpds.v9i5.2498

Published online: Sep 10, 2024

Bringing data to life: A model for involving lived experience in data-driven research

Sarah McKenna, Elizabeth Nelson, Aideen Maguire

DOI https://doi.org/10.23889/ijpds.v9i5.2499

Published online: Sep 10, 2024

Changing education landscapes and (in)equality in Wales: An exploration of barriers to tertiary education using linked UK Census and education data

Katy Huxley, Rhys Davies

DOI https://doi.org/10.23889/ijpds.v9i5.2500

Published online: Sep 10, 2024

Development of a framework to facilitate a data assembly plan for multi-regional research

Ali Anis, Carrie-Anne Whyte, Carmen La, Jean-François Ethier, Mark McGilchrist

DOI https://doi.org/10.23889/ijpds.v9i5.2501

Published online: Sep 10, 2024

Development of a dictionary of information items inspired by common data models to support health research data access requests

Carrie-Anne Whyte, Carmen La, Ali Anis, David Yang, Jean-François Ethier, Mark McGilchrist

DOI https://doi.org/10.23889/ijpds.v9i5.2502

Published online: Sep 10, 2024

How DASH enables external data linkage to support multi-regional research

Ali Anis, Carrie-Anne Whyte, Carmen La, Jean-François Ethier, Mark McGilchrist

DOI https://doi.org/10.23889/ijpds.v9i5.2503

Published online: Sep 10, 2024

Mental Health Crisis and Policing Demand

Allison Kurpiel, Susan McVie

DOI https://doi.org/10.23889/ijpds.v9i5.2504

Published online: Sep 10, 2024

Population health value of being in target: Results from the Canadian Multi-Morbidity Model for Type 2 Diabetes

Ian Sobotka, Lauren Cipriano, Doug Coyle, Deva Thiruchelvam, Baiju Shah

DOI https://doi.org/10.23889/ijpds.v9i5.2506

Published online: Sep 10, 2024

Approaches to Identifying health disparities by ethnicity using linked Australian Census data

Fiona Stanaway, Liz Allen, Lin Zhu, Bree McDonald, Mei Ling Yap, Michelle Dickson, Natasha Nassar

DOI https://doi.org/10.23889/ijpds.v9i5.2507

Published online: Sep 10, 2024

Spatial variation of healthcare resource use in Wales following the COVID-19 pandemic

Timothy Osborne, Rowena Bailey, Amy Mizen, Richard Fry

DOI https://doi.org/10.23889/ijpds.v9i5.2508

Published online: Sep 10, 2024

Data linkage of routinely collected qualitative health data: Using qualitative Patient Reported Experience Measures to understand the impact of digital hospitals on patients

Teyl Engstrom, Clair Sullivan, Shirley Thompson, Jacqueline Daly, Jason D Pole

DOI https://doi.org/10.23889/ijpds.v9i5.2509

Published online: Sep 10, 2024

Democratising data within a data-driven research centre: Examining the role of public engagement and involvement

Elizabeth Nelson

DOI https://doi.org/10.23889/ijpds.v9i5.2512

Published online: Sep 10, 2024

Screening for psychological distress in childhood and mental health-related hospital attendance among young adults

Gergo Baranyi, Katie Harron, Nasir Rajah, Emla Fitzsimons

DOI https://doi.org/10.23889/ijpds.v9i5.2513

Published online: Sep 10, 2024

Improving Cardiac Insights: Harnessing Privacy-Preserving Record Linkage (PPRL) to Obtain, Link, and Enhance Data for a Healthier Australia

Philip Witowski, Windra Sulaiman, Mark Sipthorp, Adam Ismail, Beverley Phillips, Sharon Williams

DOI https://doi.org/10.23889/ijpds.v9i5.2514

Published online: Sep 10, 2024

Pilot Federated Analysis Projects

Simon Thompson

DOI https://doi.org/10.23889/ijpds.v9i5.2515

Published online: Sep 10, 2024

Improving Responsiveness: Our Journey from Manual Yearly Updates to Automated Linkage for Near Real-Time Understanding of Outcomes and Modelling Future Service Demand

Philip Witowski, Mark Sipthorp, Adam Ismail, Windra Sulaiman, Beverley Phillips, Sharon Williams

DOI https://doi.org/10.23889/ijpds.v9i5.2516

Published online: Sep 10, 2024

Family Matters: Enhancing Insight in Linked Administrative Data Through Familial Linkage

Beverley Phillips, Philip Witowski, Adam Ismail, Windra Sulaiman, Mark Sipthorp, Sharon Williams

DOI https://doi.org/10.23889/ijpds.v9i5.2517

Published online: Sep 10, 2024

Leveraging Machine Learning to Combat Missingness and Error in Data

Beverley Phillips, Philip Witowski, Windra Sulaiman, Adam Ismail, Mark Sipthorp, Sharon Williams

DOI https://doi.org/10.23889/ijpds.v9i5.2518

Published online: Sep 10, 2024

Occupation exposure to coal dust and vulnerability to Influenza: Scottish miners and the 1918 Influenza Pandemic.

Chris Dibben, Lee Williamson, Alice Reid, Eilidh Garrett, Peter Christen, Charini Nanayakkara

DOI https://doi.org/10.23889/ijpds.v9i5.2520

Published online: Sep 10, 2024

Developing a Framework for Safe AI Model Development on Sensitive Healthcare Data

Lewis Hotchkiss, Emma Squires, Timothy Rittman, John Gallacher, Simon Thompson

DOI https://doi.org/10.23889/ijpds.v9i5.2521

Published online: Sep 10, 2024

Expanding a cohort of children who had a response to the Household Food Security Survey Module: A novel approach using linked ICES administrative data

Britney Le, Kristin Clemens, Salimah Shariff

DOI https://doi.org/10.23889/ijpds.v9i5.2522

Published online: Sep 10, 2024

Leveraging Linked Ontario’s Health-administrative Data to Evaluate Internet-delivered Cognitive Behavioural Therapy (iCBT) in routine care

Evgenia (Jenny) Gatov, David Wiljer, Gillian Strudwick, Onil Bhattacharyya, Paul Kurdyak

DOI https://doi.org/10.23889/ijpds.v9i5.2523

Published online: Sep 10, 2024

Navigating Indigenous Data Sovereignty: A Decolonizing Approach to Understanding Opioid Use Amongst First Nations in Manitoba

Wanda Phillips-Beck, Leona Star, Sidney Leggett

DOI https://doi.org/10.23889/ijpds.v9i5.2524

Published online: Sep 10, 2024

Long-term trends in co-occurring medical and psychiatric hospitalizations among children and adolescents in Ontario, Canada.

Natasha Saunders, Astrid Guttmann, Maria Chiu, Sima Gandhi, Simone Vigod, Paul Kurdyak, Kinwah Fung, Isobel Sharpe, Scott Emerson, Alene Toulany

DOI https://doi.org/10.23889/ijpds.v9i5.2525

Published online: Sep 10, 2024

Creating a population-wide Desirable Health Service Utilisation Indicator using linked health and administrative data

Harri Doel, Lucy Griffiths, Richard Fry, Rhodri Johnson, Samantha Turner, Ronan Lyons, Jane Lyons

DOI https://doi.org/10.23889/ijpds.v9i5.2526

Published online: Sep 10, 2024

Linking Education Data in Wales (UK) – Methodology and Lessons Learned

Lucy Robinson

DOI https://doi.org/10.23889/ijpds.v9i5.2527

Published online: Sep 10, 2024

Comparing health service use before and after transition to a supported housing model for clients who experience severe and persistent mental illness in southwestern Ontario, Canada

Richard G. Booth, Melody Lam, Cheryl Forchuk, Annie Yang, Salimah Z. Shariff

DOI https://doi.org/10.23889/ijpds.v9i5.2528

Published online: Sep 10, 2024

Exploring care-experienced young people’s perceptions of the use of administrative data in research

Aimee Cummings

DOI https://doi.org/10.23889/ijpds.v9i5.2529

Published online: Sep 10, 2024

Privacy Preserving Evaluation of Sensitive Population Record Linkage in the Absence of Ground Truth Data

Jie Song, Charini Nanayakkara, Peter Christen, Eilidh Garrett

DOI https://doi.org/10.23889/ijpds.v9i5.2530

Published online: Sep 10, 2024

A single parameter method for secure privacy preserving record linkage

Peter Christen, Sumayya Ziyad, Anushka Vidanage, Charini Nanayakkara, Rainer Schnell

DOI https://doi.org/10.23889/ijpds.v9i5.2531

Published online: Sep 10, 2024

Building a Historic Population Platform

Charini Nanayakkara, Peter Christen, Chris Dibben, Lee Williamson, Eilidh Garrett

DOI https://doi.org/10.23889/ijpds.v9i5.2532

Published online: Sep 10, 2024

Efficiency and Privacy in Record Linkage: Evaluating a Novel Blocking Technique Implemented on Cryptographic Longterm Keys

Dean Resnick, Núria Adell Raventós

DOI https://doi.org/10.23889/ijpds.v9i5.2534

Published online: Sep 10, 2024

Trends in incidence of self-harm, neurodevelopmental and mental health conditions among university students compared to the general population: a nationwide electronic data linkage study in Wales.

Olivier Rouquette, Sze Chim Lee, Jo Smith, Marcos del Pozo Banos, Ann John

DOI https://doi.org/10.23889/ijpds.v9i5.2535

Published online: Sep 10, 2024

Up-skilling the next generation of researchers to analyse complex linked population-level datasets: ADR UK PhD studentships case study

Saba Mir, Emily Oliver, Emma Gordon

DOI https://doi.org/10.23889/ijpds.v9i5.2536

Published online: Sep 10, 2024

Algorithmic Identification of Multiple Sclerosis in the SAIL databank

Rod Middleton, Richard Nicholas, Emma Tallantyre, James Witts, Ruth Ann Marrie, Elaine Craig, Sarah Knowles, Owen Pearson, Katherine Harding, Karim Kreft, Jonathon Hawken, Gillian Ingram, Bethan Morgan, Neil Robertson

DOI https://doi.org/10.23889/ijpds.v9i5.2537

Published online: Sep 10, 2024

Unravelling the Complexity of Homelessness: Investigating Reasons and Risk Factors for Chronic Homelessness

Eileen Mitchell, Siobhán Murphy, Dermot O'Reilly, Michael O’Donnelly

DOI https://doi.org/10.23889/ijpds.v9i5.2538

Published online: Sep 10, 2024

Improving transparency and quality assurance: Operationalising semi-automated data provenance tracking in a Trusted Research Environment

Katherine O'Sullivan, Milan Markovic, Jaroslaw Dymiter, Adrian Martin, Chinasa Odo, Helen Rowlands, Ana Ciocarlan, Katie Wilde, Arlene Casey

DOI https://doi.org/10.23889/ijpds.v9i5.2539

Published online: Sep 10, 2024

AD|ARC (Administrative Data Agri-Research Collection): Comparative analysis of highest educational qualification in Welsh households receiving a farming subsidy with rurality-matched control households, using 2011 UK Census data.

Katy Addison, Sian Morrison-Rees, Paul Caskie, Liam Crowley, Laura Madden, Sean Scully

DOI https://doi.org/10.23889/ijpds.v9i5.2541

Published online: Sep 10, 2024

Are Métis mothers receiving adequate prenatal care in Ontario? A population-based study

Helana Boutros, Noel Tsui, Haley Golding, Abigail Simms, Sarah Edwards

DOI https://doi.org/10.23889/ijpds.v9i5.2542

Published online: Sep 10, 2024

Prevalence of Multimorbidity and Chronic Diseases in citizens of the Métis Nation of Ontario

Noel Tsui, Shelley Cripps, Abigail Simms, Gabriel Tjong, Haley Golding, Sarah Edwards

DOI https://doi.org/10.23889/ijpds.v9i5.2543

Published online: Sep 10, 2024

Using linked cohort data to help address residual confounding in analyses of population administrative data

Richard Silverwood, Gergo Baranyi, Lisa Calderwood, Bianca De Stavola, George Ploubidis, Katie Harron

DOI https://doi.org/10.23889/ijpds.v9i5.2544

Published online: Sep 10, 2024

Maternal immigrant status and survival among children with congenital heart disease

Qun (Grace) Miao, Sandra Dunn, Shi-Wu Wen, Jane Lougheed, Rebecca Griffiths, Carolina Lavin Venegas, Maria Velez, Mark Walker

DOI https://doi.org/10.23889/ijpds.v9i5.2545

Published online: Sep 10, 2024

Local authority variation in special educational needs provision at the start of primary school: observational study of preterm children born in England, 2003-2013

Kate Lewis, Vincent Nguyen, Bianca De Stavola, Lorraine Dearden

DOI https://doi.org/10.23889/ijpds.v9i5.2546

Published online: Sep 10, 2024

Equity in practice: Lessons from a cohort-based model for community voice and input in data linkage and use

Amy Hawn Nelson, Adelia Jenkins, Deja Kemp, Emily Berkowitz, TC Burnett, Jessie Rios Benitez, Sharon Zanti

DOI https://doi.org/10.23889/ijpds.v9i5.2547

Published online: Sep 10, 2024

Linking Data in a Shared Service Environment

Lisa Mirel, Cordell Goldent, Rob Zybrick, Rui Wang, Chrystine Tadler, Christine Cox

DOI https://doi.org/10.23889/ijpds.v9i5.2548

Published online: Sep 10, 2024

Identifying hospitalization episodes of care among people with and without HIV in British Columbia, Canada

Scott Emerson, Taylor McLinden, Paul Sereda, Amanda Yonkman, Jason Trigg, Rolando Barrios, Robert Hogg

DOI https://doi.org/10.23889/ijpds.v9i5.2549

Published online: Sep 10, 2024

A Bayesian Multi-Layered Record Linkage Procedure to Analyze Functional Status of Medicare Patients with Traumatic Brain Injury

Roee Gutman, Kali Thomas, Mingyang Shan

DOI https://doi.org/10.23889/ijpds.v9i5.2550

Published online: Sep 10, 2024

Multiple imputation Procedure for Record Linkage and Causal Inference to Estimate the Effects of home-delivered meals

Roee Gutman, Kali Thomas, Mingyang Shan

DOI https://doi.org/10.23889/ijpds.v9i5.2551

Published online: Sep 10, 2024

A Bayesian Record Linkage Approach that Adjusts for Variables in One File

Gauri Kamat, Mingyang Shan, Roee Gutman

DOI https://doi.org/10.23889/ijpds.v9i5.2552

Published online: Sep 10, 2024

Free Text Analysis: Identification of adverse drug events in clinical notes

Alan Katz, Abhishek Dhankar, Christine Leong, Amani Hamad, Alex Singer

DOI https://doi.org/10.23889/ijpds.v9i5.2553

Published online: Sep 10, 2024

Harnessing Machine Learning to Predict Methadone Overdose Risk: Insights from Illinois's SUDORS Data

Yingxuan Liu, Maryann Mason

DOI https://doi.org/10.23889/ijpds.v9i5.2554

Published online: Sep 10, 2024

10 year risk of death in adolescents with learning disability or autism in England: a national cohort study using linked health and education data from ECHILD

Ania Zylbersztejn, Isobel Ward, Katie Harron, Ruth Gilbert

DOI https://doi.org/10.23889/ijpds.v9i5.2555

Published online: Sep 10, 2024

Using linkage to assess coverage of population estimates

Josie Plachta

DOI https://doi.org/10.23889/ijpds.v9i5.2556

Published online: Sep 10, 2024

The burden of acute eye conditions on different healthcare providers in Wales: a retrospective population-based study

Anna Rawlings, Angharad Hobby, Barbara Ryan, Rachel North, Andrew Carson-Stevens, Mat Smith, Nik Sheen, Jennifer Acton

DOI https://doi.org/10.23889/ijpds.v9i5.2557

Published online: Sep 10, 2024

Inequalities in severe COVID-19 outcomes in Wales, UK

Lucy Robinson, Matthew Curds, Ashley Akbari, Hoda Abbasizanjani, Stuart Bedston

DOI https://doi.org/10.23889/ijpds.v9i5.2558

Published online: Sep 10, 2024

Mapping domains of early-life determinants of future multimorbidity across three UK longitudinal cohort studies.

Sebastian Stannard, Ann Berrington, Simon Fraser, Shantini Paranjothy, Rebecca Hoyle, Rhiannon Owen, Ashley Akbari, Mozhdeh Shiranirad, Roberta Chiovoloni, Nisreen Alwan

DOI https://doi.org/10.23889/ijpds.v9i5.2559

Published online: Sep 10, 2024

Identifying “problematic” clusters in record linkage using graph measures

Tony Stone

DOI https://doi.org/10.23889/ijpds.v9i5.2560

Published online: Sep 10, 2024

Research to understand and provide evidence for a generalised approach to data linkage

Rachel Huck, Sarah Cummins

DOI https://doi.org/10.23889/ijpds.v9i5.2561

Published online: Sep 10, 2024

Understanding the developmental well-being of children from refugee backgrounds in British Columbia, Canada: A population-level mixed methods approach

Monique Gagné Petteni, Anne Gadermann, Martin Guhn, Brenda Poon, Magdalena Janus, Benjamin Edwards

DOI https://doi.org/10.23889/ijpds.v9i5.2562

Published online: Sep 10, 2024

Evaluation of the Adult Migrant English Program for the Australian Government Department of Home Affairs

Francis Mitrou, Ha Trong Nguyen

DOI https://doi.org/10.23889/ijpds.v9i5.2563

Published online: Sep 10, 2024

A governance framework for facilitating cross-agency data sharing

Katherine O'Sullivan, Joanne Lumsden, Caroline Anderson, Corri Black, William Ball, Katie Wilde

DOI https://doi.org/10.23889/ijpds.v9i5.2564

Published online: Sep 10, 2024

Training and capacity building: Developing a support framework for researchers using administrative data

Emily Oliver, Saba Mir, Emma Gordon

DOI https://doi.org/10.23889/ijpds.v9i5.2565

Published online: Sep 10, 2024

Healthcare use among people using methamphetamine in Winnipeg, Canada

Jennifer Enns, Joykrishna Sarkar, Nathan Nickel, Amy Freier, Carolyn Shimmin, Ogai Sherzoi, Aaron Goss, Chelsey McDougall

DOI https://doi.org/10.23889/ijpds.v9i5.2566

Published online: Sep 10, 2024

The European Union Settlement Scheme Data Linkage Project in Wales: Findings relating to mental health and education

Ffion Lloyd-Williams, Matthew Curds, Stephen Drinkwater

DOI https://doi.org/10.23889/ijpds.v9i5.2567

Published online: Sep 10, 2024

Linking data across multiple sectors to reduce health inequities among justice-involved young people in Australia

Lindsay Pearce, Lucas Calais-Ferreira, Rohan Borschmann, Matthew Legge, Susan Sawyer, Stuart Kinner

DOI https://doi.org/10.23889/ijpds.v9i5.2568

Published online: Sep 10, 2024

Adaptive Governance: Empowering Data Sharing for Public Health Impact - Insights from North Carolina Department of Health and Human Services

Amy Hawn Nelson, Paul Hogle, Sharon Zanti, Scott Proescholdbell, Jessie Tenenbaum

DOI https://doi.org/10.23889/ijpds.v9i5.2569

Published online: Sep 10, 2024

Linking Maternal and Child Health Data to Enhance Public Health Surveillance in Indiana

Daniel P. Riggins, Jill Inderstrodt, John Price, Shaun J. Grannis, Titus Schleyer, Jennifer Crago, Stephen O'Brien, Brian E. Dixon

DOI https://doi.org/10.23889/ijpds.v9i5.2570

Published online: Sep 10, 2024

Maternal And preGnancy hEalth duriNg elevaTed heAt – MAGENTA: Novel data linkages and methods to understand the impacts of climate change on deprived communities in Wales and London.

Rich Fry, Rhiannon Owen, Samantha Turner, Amy Mizen, Lucy Griffiths, Pia Hardelid, Cathy Thornton

DOI https://doi.org/10.23889/ijpds.v9i5.2571

Published online: Sep 10, 2024

Special educational needs provision in primary education and its impact on unauthorised absence in children born with Cleft Lip and Palate: a population level study using linked health and education data

Vincent Nguyen, Kate Lewis, Lorraine Dearden, Bianca De Stavola

DOI https://doi.org/10.23889/ijpds.v9i5.2572

Published online: Sep 10, 2024

National Center for Health Statistics Data Linkage Program: Generating Synthetic Data to Support Tiered Access

Cordel Golden

DOI https://doi.org/10.23889/ijpds.v9i5.2573

Published online: Sep 10, 2024

Towards Streamlined Transparent Data Linkage

Michael Edwards, Alexandra Lee, Simon Thompson

DOI https://doi.org/10.23889/ijpds.v9i5.2574

Published online: Sep 10, 2024

Federated Data Linkage in Practice

Michael Edwards, Alexandra Lee, Simon Thompson

DOI https://doi.org/10.23889/ijpds.v9i5.2575

Published online: Sep 10, 2024

Linking Community-based Substance Use Disorder Treatment to Health Administrative Data: understanding vulnerable populations.

Paul Kurdyak, Matthew Crocker, Anjie Huang, Natasha Saunders

DOI https://doi.org/10.23889/ijpds.v9i5.2576

Published online: Sep 10, 2024

Unlocking data to inform public health policy and practice: A pilot study on utilising police data for linked population data research

Amrita Bandyopadhyay, Sinead Brophy, Natasha Kennedy, Hope Jones, Julie Evans, Mark A Bellis, Benjamin Rowe, Irena Spasic, Cynthia L. Mcnerney, Simon Moore

DOI https://doi.org/10.23889/ijpds.v9i5.2577

Published online: Sep 10, 2024

Improving and re-developing the Clerical Resolution Online Widget (CROW): open-source software for clerical review

Hannah O'Dair, Sarah Cummins, Ira Ashia, Rachel Huck

DOI https://doi.org/10.23889/ijpds.v9i5.2578

Published online: Sep 10, 2024

Investigating the quality of NHS number linkage of COVID 19 vaccines data to Census 2021.

Hannah O'Dair, Sarah Cummins, Rachel Huck

DOI https://doi.org/10.23889/ijpds.v9i5.2579

Published online: Sep 10, 2024

Looking beyond the neonatal: what does administrative data tell us about the preschool health and developmental outcomes of children exposed to opioids in utero?

Louise Marryat, Senga Robertson-Albertyn, James P Boardman, Alison McFadden, Anne Whittaker

DOI https://doi.org/10.23889/ijpds.v9i5.2580

Published online: Sep 10, 2024

Modelling The Effects of Multi-Indication Treatment for Multiple Long-Term Conditions Using Population-Scale Linked Electronic Health Records To Inform Healthcare Policy

Rhiannon Owen, James Rafferty, Jane Lyons, Ronan Lyons, Keith Abrams

DOI https://doi.org/10.23889/ijpds.v9i5.2581

Published online: Sep 10, 2024

Lived Experience Co-Production Within the Alleviate Pain Data Hub

Gordon Milligan, Christian Cole, Judith Fisher, Antony Chuter, Jillian Beggs, Blair Smith, Lesley Colvin, Susan Long

DOI https://doi.org/10.23889/ijpds.v9i5.2582

Published online: Sep 10, 2024

Associations between household overcrowding and adult mental illness in an ethnically diverse urban population: cross-sectional study using linked primary care and housing records.

Marta Wilk, Nicola Firman, Gill Harper, Rich Fry, Lucy Griffiths, Rohini Mathur, Carol Dezateux

DOI https://doi.org/10.23889/ijpds.v9i5.2583

Published online: Sep 10, 2024

Wastewater-Based Surveillance of Substances of Potential Abuse

Danielle Southern, Monty Ghosh, Megan Harmon, Darina Kuzma, Aleshia Kormendi, Kayla Moffett, Paul Westlund, Casey Hubert, Michael Parkins, Tyler Williamson

DOI https://doi.org/10.23889/ijpds.v9i5.2584

Published online: Sep 10, 2024

Improving Care Transitions in Alberta: Assessing the Effects of Introducing a Provincial Clinical Information System on Hospital-to-Home Transitions.

Tanmay Patil, Robin Walker, Congshi Shi, Wanning Song, Judy Seidel, Scott Oddie

DOI https://doi.org/10.23889/ijpds.v9i5.2585

Published online: Sep 10, 2024

An Applied Research Partnership to Improve The Children’s Behavioral Health System Of Care

Sharon Zanti

DOI https://doi.org/10.23889/ijpds.v9i5.2586

Published online: Sep 10, 2024

The employment, retention and exit of public school teachers in New Brunswick, Canada: an analysis using linked administrative data

Ted McDonald, Pablo Miah

DOI https://doi.org/10.23889/ijpds.v9i5.2587

Published online: Sep 10, 2024

OmniMatch: A Large Language Model-Based Data Linkage Tool

Xiaowei Xu, Xingqiao Wang, Vivek Gunasekaran, Jonathan White, Anup Mathur

DOI https://doi.org/10.23889/ijpds.v9i5.2588

Published online: Sep 10, 2024

Socio-demographic variations in prostate cancer diagnosis recording: Primary care compared to the Cancer Registry in England

Gayasha Somathilake, Elizabeth Ford, Jo Armes, Sotiris Moschoyiannis, Sophie Otter, Agnieszka Lemanska

DOI https://doi.org/10.23889/ijpds.v9i5.2589

Published online: Sep 10, 2024

How ethnic name variations influence data linkage results: A population level study using public voter databases

Joseph Lam, Sumayya Ziyad, Peter Christen, Rainer Schnell

DOI https://doi.org/10.23889/ijpds.v9i5.2590

Published online: Sep 10, 2024

Self-reported Ethnicity Changes over Time: A Population Level Study using Public Voter Databases

Sumayya Ziyad, Joseph Lam, Peter Christen, Rainer Schnell, Charini Nanayakkara

DOI https://doi.org/10.23889/ijpds.v9i5.2591

Published online: Sep 10, 2024

Towards a "Biography" of Population Health Data about Substance Use Disorders: Qualitative Approaches to Communicating Context

Jeffrey Morgan, Seonaid Nolan, Jeannie Shoveller, Kim McGrail

DOI https://doi.org/10.23889/ijpds.v9i5.2592

Published online: Sep 10, 2024

The hidden impact of alcohol on young victims: an analysis of police-related alcohol offences resulting in hospitalisation

Scott Sims

DOI https://doi.org/10.23889/ijpds.v9i5.2593

Published online: Sep 10, 2024

Multiple risks for children of incarcerated mothers: A descriptive study

Megan Bell, Sharon Dawe, Leonie Segal, Matthew Spittal, Susan Dennison, Stuart Kinner, David Preen, Scott Sims

DOI https://doi.org/10.23889/ijpds.v9i5.2594

Published online: Sep 10, 2024

Transitions of care for people living with dementia – insights using linked data

Emma Gearon, Bronwyn Wyatt, Ingrid Evans, Megan Fraser, Ann-Kristin Raymer, Fleur de Crespigny, Melanie Dunford, Claire Sparke

DOI https://doi.org/10.23889/ijpds.v9i5.2595

Published online: Sep 10, 2024

A discovery platform to improve visibility of linked data across Australia.

Kate Miller, Felicity Flack, Vicki Bennett, Merran Smith

DOI https://doi.org/10.23889/ijpds.v9i5.2596

Published online: Sep 10, 2024

Linking for Impact: Enhancing Linked Data Infrastructure to Meet Clinical Trials Sector Needs

Kate Miller, Felicity Flack

DOI https://doi.org/10.23889/ijpds.v9i5.2597

Published online: Sep 10, 2024

A data landscape: picturing the residential and environmental features of the places where children and young people live in Wales, UK.

Rowena Bailey, Jo Davies, Rebecca Pedrick-Case, Amy Mizen, Rhodri Johnson, Richard Fry, Lucy Griffiths

DOI https://doi.org/10.23889/ijpds.v9i5.2598

Published online: Sep 10, 2024

A race against time – an evaluation of lifesaving treatment pathways for patients following cardiac arrest in a non-hospital setting.

Rowena Bailey, Laura Herbert, Richard Pugh, Ronan Lyons, Tamas Tszakmany

DOI https://doi.org/10.23889/ijpds.v9i5.2599

Published online: Sep 10, 2024

Measuring error in the Demographic Index – steps towards a future population statistics system in England and Wales

Rosalind Archer, Peshali Diyasena, Emma Grant

DOI https://doi.org/10.23889/ijpds.v9i5.2600

Published online: Sep 10, 2024

Exploring the Experiences of Children in Kinship Care in Scotland: A Sequence Analysis of Care Journeys, Characteristics and Outcomes

Joanna Soraghan, Robert Porter

DOI https://doi.org/10.23889/ijpds.v9i5.2601

Published online: Sep 10, 2024

Using administrative early-years education data to identify children at risk of persistent absenteeism

Megan Wood, Lydia Gunning, Mark Mon-Williams

DOI https://doi.org/10.23889/ijpds.v9i5.2602

Published online: Sep 10, 2024

Federating governance, access and infrastructure to support researcher use of synthetic data

Katherine O'Sullivan, Jackie Caldwell, Christian Cole, Kathy Harrison, Charlie Mayor, Antonietta Chaliou, Jaroslaw Dymiter, Stacey Dawson, Diane Brown, Katie Wilde

DOI https://doi.org/10.23889/ijpds.v9i5.2603

Published online: Sep 10, 2024

Disabilities in children receiving care and support in Wales and risk factors associated with being placed in care: A population-based data linkage study

Jeanne Childs, Lucy Griffiths, Helen Hodges, Grace Bailey, Martin Elliott, Laura Cowley

DOI https://doi.org/10.23889/ijpds.v9i5.2605

Published online: Sep 10, 2024

Surveillance of violence through health service interactions in Wales: A longitudinal national data linkage study.

Jane Lyons, Harri Doel, Richard Fry, Rhodri Johnson, Arron Lacey, Huw Strafford, Samantha Turner, Ronan Lyons, Lucy Griffiths

DOI https://doi.org/10.23889/ijpds.v9i5.2606

Published online: Sep 10, 2024

Social deprivation in adolescence and the risk of depression in young adulthood: a longitudinal analysis of linked administrative data from Northern Ireland.

Stein Menting, Ronald McDowell, Enya Redican, Michael Rosato, Jamie Murphy, Gerard Leavey

DOI https://doi.org/10.23889/ijpds.v9i5.2607

Published online: Sep 10, 2024

Balancing constraints and requirements in an application process

Stela McLachlan, Katharine Evans, Rebecca Whitehorn, Emma Turner, Jacqueline Oakley, Andy Boyd, Robin Flaig

DOI https://doi.org/10.23889/ijpds.v9i5.2608

Published online: Sep 10, 2024

A UK Specification for Trusted Research Environments

Hari Sood, Simon Li, Tim Machin, Katie Oldfield, Antony Chuter, Jillian Beggs, Sonya Coleman, Dermot Kerr, Ed Chalstrey, Matthew Craddock, Jim Madge, David Sarmiento-Perez, James Robinson, Cian O'Donovan, Martin O'Reilly, Christian Cole

DOI https://doi.org/10.23889/ijpds.v9i5.2609

Published online: Sep 10, 2024

Methodological Challenges when Using Routinely Collected Health Data for Research: A scoping review.

Lili Wei, Ellen Kuenzig, James Im, Yan Zheng, Taylor McLinden, Scott Emerson, Azza Eissa, Henry Halder, Richard Shaw, An-Wen Chan, William Dixon, Vera Ehrenstein, Astrid Guttmann, Katie Harron, Lars G. Hemkens, Asbjørn Hróbjartsson, Ronan Lyons, Shannon E. MacDonald, Jerry Maniate, David Moher, Irene Petersen, Hude Quan, Sigrún Schmidt, Henrik Sørensen, Shirley Wang, David A. McAllister, Sinéad M. Langan, Eric I. Benchimol

DOI https://doi.org/10.23889/ijpds.v9i5.2610

Published online: Sep 10, 2024

Identifying patterns of Long-COVID diagnosis pathways: a Latent Class Analysis of Welsh clinical data

Hoda Abbasizanjani, Stuart Bedston, Lucy Robinson, Matthew Curds, Ashley Akbari

DOI https://doi.org/10.23889/ijpds.v9i5.2611

Published online: Sep 10, 2024

Mental health of children with special health needs in Manitoba, Canada

Caroline Reid-Westoby, Jennifer Enns, Marni Brownell, Gilles Detillieux, Nathan Nickel, Magdalena Janus

DOI https://doi.org/10.23889/ijpds.v9i5.2612

Published online: Sep 10, 2024

Mapping UK Pain Datasets to the OMOP Common Data Model: Lessons Learned

Gordon Milligan, Erum Masood, Phil Quinlan, Sam Cox, Tom Giles, Armando Mendez Villalon, Christian Cole

DOI https://doi.org/10.23889/ijpds.v9i5.2613

Published online: Sep 10, 2024

Poverty and Intellectual Development in Childhood.

Leslie Roos, Gilles Detillieux

DOI https://doi.org/10.23889/ijpds.v9i5.2614

Published online: Sep 10, 2024

Engagement and Communication Challenges for a Complex, Multi-nation Research Project: AD|ARC (Administrative Data | Agricultural Research Collection)

Freya Pryce, Sarah Lowe, Sian Morrison-Rees, Laura Madden, Paul Caskie, Racheal Loftus

DOI https://doi.org/10.23889/ijpds.v9i5.2615

Published online: Sep 10, 2024

Wastewater-based surveillance for SARS-CoV-2 in Alberta

Danielle Southern, Casey Hubert, Michael Parkins, Tyler Williamson

DOI https://doi.org/10.23889/ijpds.v9i5.2616

Published online: Sep 10, 2024

Adverse childhood experiences and multimorbidity of internalising and cardiometabolic conditions in an older-age population.

Lauren Benger, LINC Consortium Benger, Peter Holmans, Michael Owen, Mark Mon-Williams, Ioanna Katzourou, Marianne van den Bree

DOI https://doi.org/10.23889/ijpds.v9i5.2617

Published online: Sep 10, 2024

Integrating Gender Identity and Sexual Orientation in Population-Based Administrative Data

Mikayla Hunter, Nathan Nickel, The SPECTRUM Partnership

DOI https://doi.org/10.23889/ijpds.v9i5.2618

Published online: Sep 10, 2024

Healthcare costs at the end-of-life among immigrant and non-immigrant groups in Manitoba, Canada

Shantanu Debbarman, Julia Witt, Umut Oguzoglu, Marcelo L. Urquia

DOI https://doi.org/10.23889/ijpds.v9i5.2619

Published online: Sep 10, 2024

Co-creating a Data Asset Inventory for Equity-Oriented Research

Morgan Stirling, Amy Freier, Nathan Nickel

DOI https://doi.org/10.23889/ijpds.v9i5.2620

Published online: Sep 10, 2024

Leveraging Fuzzy Match: Building an Automated Record Linkage Template in SAS Dataflux

Charlotte Ma, Gangamma Kalappa, Nan Wang, Mahmoud Azimaee, Winnie Shen

DOI https://doi.org/10.23889/ijpds.v9i5.2621

Published online: Sep 10, 2024

Utilization of Outpatient Mental Health Services During and After The COVID-19 Pandemic

Michelle Hayek, Sulki Park, Mark Lawley, Michelle Bovin, Hye-Chung Kum

DOI https://doi.org/10.23889/ijpds.v9i5.2622

Published online: Sep 10, 2024

Race in Integrated Data Systems: Why, Wherefrom, and How

Stephen Steh, Francisca Richter, Robert Fischer, Meagan Ray-Novak, Michael Henderson

DOI https://doi.org/10.23889/ijpds.v9i5.2623

Published online: Sep 10, 2024

From Probabilistic to Fuzzy Matching Record Linkage: A promising Transition

Mahmoud Azimaee, Gangamma Kalappa, Charlotte Ma, Nan Wang, Winnie Shen

DOI https://doi.org/10.23889/ijpds.v9i5.2624

Published online: Sep 10, 2024

New and Pre-existing Eating Disorders Among Adolescents and Young Adults During the COVID-19 Pandemic: A Population-Based Cohort Study

Amreen Babujee, Hong Lu, Therese Stukel, Natasha Saunders, Astrid Guttmann, Paul Kurdyak, Simone Vigod, Longdi Fu, Alene Toulany

DOI https://doi.org/10.23889/ijpds.v9i5.2625

Published online: Sep 10, 2024

Towards standardised cross-sectoral agreements for data depositing and data access in Trusted Research Environments: streamlined contracting to advance public benefit research.

Rachel Brophy, Cassie Smith, Andy Boyd, Pan UK Data Governance Steering Group

DOI https://doi.org/10.23889/ijpds.v9i5.2626

Published online: Sep 10, 2024

The role of emergency department crowding on the implementation of efficiency strategies to improve care for adult patients presenting with chest pain.

Brian Rowe, Esther Yang, Shandra Doran, Michelle Graham, Sean van Diepen, Josh Raizman, Albert Tsui

DOI https://doi.org/10.23889/ijpds.v9i5.2627

Published online: Sep 10, 2024

Enhancing population-level research among people who inject drugs: a validation and retrospective cohort study using health administrative data in Ontario, Canada

Zoë R Greenwald, Jordan J Feld, Dan Werb, Peter C Austin, Samantha Drover, Daniel Fridman, Ahmed Bayoumi, Tara Gomes, Claire E Kendall, Lauren Lapointe-Shaw, Ayden I Scheim, Sofia R Bartlett, Eric I Benchimol, Zachary Bouck, Christina Greenaway, Naveed Z Janjua, Pamela Leece, William WL Wong, Beate Sander, Jeffrey C Kwong

DOI https://doi.org/10.23889/ijpds.v9i5.2628

Published online: Sep 10, 2024

Navigating the barriers to multi-regional research administrative data access: Forward thinking solutions

Donna Curtis Maillet, Nicole Yada

DOI https://doi.org/10.23889/ijpds.v9i5.2629

Published online: Sep 10, 2024

Improving Detection of Hospital Adverse Events Using Machine Learning on Real-World Narrative EMR Data

Cheligeer Cheligeer, Guosong Wu, Seungwon Lee, Jie Pan, Natalie Sapiro, Danielle A. Southern, Cathy A. Eastwood, Hude Quan, Yuan Xu

DOI https://doi.org/10.23889/ijpds.v9i5.2630

Published online: Sep 10, 2024

A population-based repeated cross-sectional study using administrative health data to examine the impact of the COVID-19 pandemic on mental wellness in citizens of the Métis Nation of Ontario

Abigail Simms, Tera Beaulieu, Benny Michaud, Noel Tsui, Brandon Zagorski, Sarah Edwards

DOI https://doi.org/10.23889/ijpds.v9i5.2631

Published online: Sep 10, 2024

Building Overdose Data Linkage Capacity in US Public Health Departments: Challenges and Opportunities

B. Casey Lyons, Andrea Stewart, Rochelle Obiekwe

DOI https://doi.org/10.23889/ijpds.v9i5.2632

Published online: Sep 10, 2024

Enhancing Disease Detection in Electronic Medical Records: Integrating Human Expertise and Large Language Models with Application to Diabetes, Hypertension, and Acute Myocardial Infarction

Jie Pan, Seungwon Lee, Cheligeer Cheligeer, Elliot Martin, Kiarash Riazi, Hude Quan, Na Li

DOI https://doi.org/10.23889/ijpds.v9i5.2633

Published online: Sep 10, 2024

Administrative health data validity: Changes over 19 years

Jie Pan, Seungwon Lee, Cheligeer Cheligeer, Natalie Sapiro, Bing Li, Guosong Wu, Catherine Eastwood, Hude Quan, Yuan Xu

DOI https://doi.org/10.23889/ijpds.v9i5.2634

Published online: Sep 10, 2024

Pregnant People-Infant Linkage for Surveillance

Amro Hassan, Andrew Hamilton, Shelly Sital

DOI https://doi.org/10.23889/ijpds.v9i5.2635

Published online: Sep 10, 2024

Linkage for risk-sensitive environments: Australian examples of privacy-preserving record linkage using Bloom filters

Anna Ferrante, Adrian Brown, Sean Randall, James Boyd

DOI https://doi.org/10.23889/ijpds.v9i5.2636

Published online: Sep 10, 2024

Individual, household, and socio-economic predictors of COVID-19 testing and vaccination outcomes: a whole population linked data analysis

Nicole Satherley, Andrew Sporle

DOI https://doi.org/10.23889/ijpds.v9i5.2637

Published online: Sep 10, 2024

Policy-driven multidisciplinary primary care after stroke or Transient Ischaemic Attack (TIA) improves survival – an observational target trial evaluation involving linked registry data

Nadine Andrew, David Ung, Monique Kilkenny, Muideen Olaiya, Lachlan Dalli, Leonid Churilov, Taya Collyer, David Snowdon, Joosup Kim, Velandai Srikanth, Dominique Cadilhac, Vijaya Sundararajan, Amanda Thrift, Mark Nelson, Natasha Lannin

DOI https://doi.org/10.23889/ijpds.v9i5.2638

Published online: Sep 10, 2024

Early life child protection contacts and developmental risk at age five: a whole-of-population cohort study of 479,413 children in two Australian states.

Kathleen Falster, Rhiannon Pilkington, Tasnia Ahmed, Alicia Montgomerie, Mark Hanly, BJ Newton, Marni Brownell, Ben Edwards, Raghu Lingam, Anthony Shakeshaft, Michelle Cretikos, Jessica Stewart, Katherine Hawkins, Kitty McLean, John Lynch

DOI https://doi.org/10.23889/ijpds.v9i5.2639

Published online: Sep 10, 2024

Residential mobility and receipt of measles, mumps and rubella vaccination: analysis of linked primary care electronic health records in a disadvantaged London region

Nicola Firman, Laura North, Milena Marszalek, Marta Wilk, Ana Gutierrez, Rhodri Johnson, Lucy Griffiths, Rich Fry, Carol Dezateux

DOI https://doi.org/10.23889/ijpds.v9i5.2640

Published online: Sep 10, 2024

Variation in 10 year birth trajectories of mothers involved in family court care proceedings and their peers in England.

Ruth Gilbert, Georgina Ireland, Matthew Jay, Linda Wijlaars

DOI https://doi.org/10.23889/ijpds.v9i5.2641

Published online: Sep 10, 2024

Hospital admissions among adolescents in out-of-home care or special educational needs in England: insights from the ECHILD database of linked health, education and social care records

Ruth Blackburn, Ania Zylbersztejn, Dora Kokosi, Michelle Heys, Ruth Gilbert

DOI https://doi.org/10.23889/ijpds.v9i5.2642

Published online: Sep 10, 2024

The Data Linkage Hub: a Community of Practice

Esther Lewis, Rachel Huck, Sarah Cummins

DOI https://doi.org/10.23889/ijpds.v9i5.2643

Published online: Sep 10, 2024

Enabling Advanced Multi-Modal Neuroimaging Analysis within a Trusted Research Environment

Lewis Hotchkiss, Emma Squires, John Gallacher, Mark Newbury, Catrin Morris, Ronan Lyons, Simon Thompson

DOI https://doi.org/10.23889/ijpds.v9i5.2644

Published online: Sep 10, 2024

A pathway to improved maternity research in Northern Ireland? Novel linkage of Northern Ireland Longitudinal Study and Northern Ireland Maternity Services System

Estelle Lowry, Neil Rowland

DOI https://doi.org/10.23889/ijpds.v9i5.2645

Published online: Sep 10, 2024

Increased mortality among mothers involved in family court care proceedings compared with their peers in England

Georgina Ireland, Linda Wijlaars, Matthew Jay, Ruth Gilbert

DOI https://doi.org/10.23889/ijpds.v9i5.2646

Published online: Sep 10, 2024

Identifying disease phenotypes from linked health data: Comparison of self-report, hospital inpatient and primary care in UK Biobank.

Megan Conroy, Ben Lacey, Gillian Reeves, Naomi Allen

DOI https://doi.org/10.23889/ijpds.v9i5.2647

Published online: Sep 10, 2024

Establishment of an Australian National Master Linkage Key (NMLK) between AIHW Health Linkage spine (HLS) and Jurisdictional Master Linkage Keys (MLK) - NSW example

Elena Ougrinovski, Clinton Paine, Natalie Cooper, Pooja Nair, Michael Smith, Rama Devi Voruganti, Merran Smith, Felicity Flack

DOI https://doi.org/10.23889/ijpds.v9i5.2648

Published online: Sep 10, 2024

Pushing health data access boundaries - adapting NHS governance for 3 challenges: clinical free-text, safe commercial access and AI development

Amy Tilbrook

DOI https://doi.org/10.23889/ijpds.v9i5.2649

Published online: Sep 10, 2024

Kids’ Environment and Health Cohort

Tolu Adedire, Esther Lewis, Dilly Stephenson, Nathan O'Connor, Leah Quinn, Hannah Goode

DOI https://doi.org/10.23889/ijpds.v9i5.2650

Published online: Sep 10, 2024

Developing a generalisable stratification approach for clerical review of linked data

Leah Maizey, Josie Platcha, Tim Gammon, Matt Wray, Gavin Thompson, Laszlo Antal, Rosaland Archer

DOI https://doi.org/10.23889/ijpds.v9i5.2651

Published online: Sep 10, 2024

Modelling the joint accuracy of two diagnostic tests using evidence synthesis methods incorporating linked electronic health records

Athena Sheppard, Terry Quinn, Sylwia Bujkiewicz, Rhiannon Owen

DOI https://doi.org/10.23889/ijpds.v9i5.2652

Published online: Sep 10, 2024

Identifying homelessness using health administrative data in Ontario, Canada: how coding policies impact case validity

Lucie Richard, Brooke Carter, Rosane Nisenbaum, Michael Liu, Stephen Hwang

DOI https://doi.org/10.23889/ijpds.v9i5.2653

Published online: Sep 10, 2024

Patterns of antidepressant use among older adults in Northern Ireland: An administrative data study.

Enya Redican, Ronald McDowell, Michael Rosato, Jamie Murphy, Gerard Leavey

DOI https://doi.org/10.23889/ijpds.v9i5.2654

Published online: Sep 10, 2024

Psychotropic medication profiles and future treatment risk among Northern Irish adults: a Latent Transition Analysis

Ron McDowell, Michael Rosato, Jamie Murphy, Gerry Leavey

DOI https://doi.org/10.23889/ijpds.v9i5.2655

Published online: Sep 10, 2024

Evaluation of an Optimal Method for Ordering Hierarchical Matchkeys in Data Linkage at the Office for National Statistics

Matthew Wray, Donal McLaughlin, Pratibha Vellanki, Zoe White, Josie Plachta, Leah Maizey

DOI https://doi.org/10.23889/ijpds.v9i5.2656

Published online: Sep 10, 2024

Navigating Data Acquisition and Data Quality Validation of Large Databases: Practical Lessons

Nedeene Hudema, Amanda Hutton, Nirmal Sidhu, Xinya Lu, Xue Feng

DOI https://doi.org/10.23889/ijpds.v9i5.2657

Published online: Sep 10, 2024

Understanding health data social licence: An international comparison of community attitudes towards health data use across Canada and Australia

Julia Burt, Kate Miller, Felicity Flack

DOI https://doi.org/10.23889/ijpds.v9i5.2659

Published online: Sep 10, 2024

Automating thresholds in probabilistic linkage

Zoe White, Josie Plachta, Rachel Shipsey

DOI https://doi.org/10.23889/ijpds.v9i5.2660

Published online: Sep 10, 2024

A value approach to measuring the effect on health resource usage of specialist cardiac interventions in Wales

Gareth Davies, Ashley Akbari, Rowena Bailey, Lloyd Evans, Kendal Smith, Richard Palmer, Jonathan Goodfellow, Michael Thomas, Kerryn Lutchman-Singh

DOI https://doi.org/10.23889/ijpds.v9i5.2661

Published online: Sep 10, 2024

Persisting social disadvantage and intercensal social mobility in Northern Ireland: an examination of morbidity and all-cause mortality using three waves of the Northern Ireland Longitudinal Study (NILS).

Rachel McCarter, Michael Rosato, Gerard Leavey

DOI https://doi.org/10.23889/ijpds.v9i5.2662

Published online: Sep 10, 2024

The benefits of active management of coronary heart disease (CHD) in Wales: how the use of routine collected administrative data can drive efficiency and encourage best practice in condition management.

Kendal Smith, Lloyd Evans, Gareth Davies, Ashley Akbari, Rowena Bailey, Richard Palmer, Jonathan Goodfellow, Michael Thomas, Kerryn Lutchman-Singh

DOI https://doi.org/10.23889/ijpds.v9i5.2663

Published online: Sep 10, 2024

Characterizing school-linked and non-school linked SARS-CoV-2 cases in children and households: a retrospective cohort study using linked population-level administrative data from Manitoba, Canada

Jill Hnatiuk, Monica Sirski, Sharmistha Mishra, Stefan Baral, Diane Gordon-Pappas, Alan Katz

DOI https://doi.org/10.23889/ijpds.v9i5.2664

Published online: Sep 10, 2024

Understanding educational attainment disparities in Northern Ireland: the impact of pupils’ demographic characteristics and health status on post-primary outcomes.

Erin Early, Sarah Miller, Laura Dunne

DOI https://doi.org/10.23889/ijpds.v9i5.2665

Published online: Sep 10, 2024

Conceptualizing community data governance for race-related, population data: a scoping review and key informant interviews

Elise Leong-Sit, Laura Ferreira-Legere, Sabella Yussuf-Homenauth, Astrid Guttmann, Baiju R Shah, Michael J Schull, Sujitha Ratnasingham, J Michael Paterson

DOI https://doi.org/10.23889/ijpds.v9i5.2666

Published online: Sep 10, 2024

Improving surveillance of emergency department activity through natural language processing

Huw Strafford, Beata Fonferko-Shadrach, W. Owen Pickrell, Jane Lyons, Arron Lacey, Jordan Evans, Gareth John, Jennifer Selby, Ronan Lyons

DOI https://doi.org/10.23889/ijpds.v9i5.2667

Published online: Sep 10, 2024

Exploring Disparities in Opioid Utilization: An Analysis Comparing Red River Métis to All Other Manitobans

Kyler Nault, Nathan Nickel, Colton Poitras, Frances Chartrand, Michelle Driedger, Alan Katz, Olena Kloss

DOI https://doi.org/10.23889/ijpds.v9i5.2668

Published online: Sep 10, 2024

Using newly linked hospital and population data to identify opportunities to reduce harms from sedative-hypnotic prescribing at population scale

Surain B Roberts, Mohammad A Imrit, Marwa F Ismail, Trong Shen, Christine Soong, Barbara Liu, Denise YF Mak, Vladyslav Kushnir, Laura C Rosella, Fahad Razak, Amol A Verma

DOI https://doi.org/10.23889/ijpds.v9i5.2669

Published online: Sep 10, 2024

Tailored Strategies for Mental Health Support: Distinctions-Based Approaches for the Red River Métis Community

Kyler Nault, Megan Deptuch, Colton Poitras, Lisa Rodway, Frances Chartrand, Olena Kloss

DOI https://doi.org/10.23889/ijpds.v9i5.2670

Published online: Sep 10, 2024

Practical approaches for engaging the public in a population-level data analysis project.

Sabella Yussuf-Homenauth, Laura Ferreira-Legere, Elise Leong-Sit, Michael J. Schull, Michael Campitelli, J Michael Paterson, The ICES Public Advisory Council

DOI https://doi.org/10.23889/ijpds.v9i5.2671

Published online: Sep 10, 2024

Daymet and DeGAUSS: Development of a Novel Method that Links High Spatial Resolution Gridded Meteorological Data with Geocoded Healthcare Encounters

Benjamin Barrett, Peter Graffy, Daniel Horton, Abel Kho

DOI https://doi.org/10.23889/ijpds.v9i5.2672

Published online: Sep 10, 2024

Estimating natural history of a treatment-eligible type 2 diabetes mellitus population in Scotland using linked primary and secondary care data: Scottish Diabetes Research Network - National Diabetes Dataset

Lili Wei, Elaine Butterly, Peter Hanlon, Houra Haghpanahan, Robert Lindsay, Amanda I Adler, Luke A K Blackbourn, Sofia Dias, Katherine Hughes, Stuart McGurnaghan, John Petrie, Naveed Sattar, Laurie A Tomlinson, Nicky Welton, Sarah Wild, Jim Lewsey, David McAllister

DOI https://doi.org/10.23889/ijpds.v9i5.2673

Published online: Sep 10, 2024

General practitioners’ perspectives on data linkage in Australian general practice

Heidi Green, Justin Beilby, Felicity Flack, Caroyln Adams, Belinda Fabrianesi, Lucy Carolan, Anthony Brown, Alberto Nettel Aguirre, Annette Braunack-Mayer

DOI https://doi.org/10.23889/ijpds.v9i5.2674

Published online: Sep 10, 2024

Exploring vaccine hesitancy among citizens of the Métis Nation of Ontario: a population-based data linkage study

Sarah Edwards, Keith King, Shelley Cripss, Ashok Chaurasia, Eliane Kim, Hira Khan, Kwong Kwong, Jennifer Walker, Martin Cooke

DOI https://doi.org/10.23889/ijpds.v9i5.2676

Published online: Sep 10, 2024

Cardiovascular disease surveillance using electronic medical records: a scoping study

Kiarash Riazi, Adam Virani, Eshnaa Aujla, Jie Pan, Seungwon Lee, Elliot A. Martin, Hude Quan, Na Li

DOI https://doi.org/10.23889/ijpds.v9i5.2677

Published online: Sep 10, 2024

The scale and timing of child protection system contacts from 0-18 years: a study of 1.9 million Australian children

Rhiannon Pilkington, Kathleen Falster, Mark Hanly, Alicia Montgomerie, Tasnia Ahmed, BJ Newton, Ben Edwards, Raghu Lingam, Anthony Shakeshaft, Michelle Cretikos, Jessica Stewart, Katherine Hawkins, Kitty McLean, John Lynch

DOI https://doi.org/10.23889/ijpds.v9i5.2678

Published online: Sep 10, 2024

Impact of out-of-home care on children’s outcomes: A longitudinal cohort study using linked administrative data from Manitoba, Canada

Marni Brownell, Kayla Frank, Nathan Nickel, Jennifer Enns, Lisa Flaten, Stephanie Sinclair, Elizabeth Decaire, Jennifer Chartrand, Scott Sinclair, Teresa Mayer, Chris Nash, Jamie Pfau, Anita Durksen, Colette Scatliff, Mikayla Hunter, Soomin Han, Stephaney Patrick, Hera Casidsid, Sana Amjad, Marlyn Bennett, Hygiea Casiano, James Houston, Laura Bowler, Therese Stukel

DOI https://doi.org/10.23889/ijpds.v9i5.2679

Published online: Sep 10, 2024

Prenatal and early life maternal substance use prevalence among Australian children born 2007-2018: a data linkage study using health, death, and child protection data

Madeleine Powell, Rhiannon Pilkington, Tasnia Ahmed, Mark Hanly, BJ Newton, John Lynch, Timothy Dobbins, Jessica Stewart, Michelle Cretikos, Alys Havard, Falster Kathleen

DOI https://doi.org/10.23889/ijpds.v9i5.2680

Published online: Sep 10, 2024

An innovative approach to developing practice informed evidence in the absence of RCTs for a Family-led peer to peer support program

Alicia Montgomerie, Vita Maiorano, Danielle Abbott, John Lynch, Rhiannon Pilkington

DOI https://doi.org/10.23889/ijpds.v9i5.2681

Published online: Sep 10, 2024

Combining cohorts of prospectively collected and linked data to improve health after release from prison

Matthew Legge, Lindsay Pearce, Craig Cummings, Michael Curtis, Natalia Yee, Kimberlie Dean, David Preen, Mark Stoove, Stuart Kinner

DOI https://doi.org/10.23889/ijpds.v9i5.2682

Published online: Sep 10, 2024

Data as infrastructure: Systematic data curation addressing fundamental data content differences across the UK

Chris Orton, Lara Edwards, David Seymour, Monica Jones, Philip Quinlan, Simon Thompson, Carole Goble, Jennifer Quint, Aziz Sheikh

DOI https://doi.org/10.23889/ijpds.v9i5.2683

Published online: Sep 10, 2024

Mortality in adolescents receiving special education and social care provision: A population-level cohort study in England

Isobel Ward, Matthew Jay, Joseph Ward, Ruth Gilbert, Ania Zylbersztejn

DOI https://doi.org/10.23889/ijpds.v9i5.2684

Published online: Sep 10, 2024

Does the timing of special needs identification have an impact on children’s educational attainment, attendance, and exclusions?

Jennifer Keating, Alexandra Sandu, Katy Huxley, Rob French

DOI https://doi.org/10.23889/ijpds.v9i5.2685

Published online: Sep 10, 2024

Enhancing the usability of health data for inequalities research: a UK quality improvement project and code list curation.

Tetyana Perchyk, Agnieszka Lemanska, Katriina L. Whitaker, Robert Kerrison

DOI https://doi.org/10.23889/ijpds.v9i5.2687

Published online: Sep 10, 2024

Does change in area-level deprivation, change health outcomes? A latent class growth analysis of population data.

Finola Ferry, Ron McDowell, Michael Rosato, Jamie Murphy, Gerard Leavey

DOI https://doi.org/10.23889/ijpds.v9i5.2688

Published online: Sep 10, 2024

Evaluating the effectiveness of the HPV vaccination programme in England, using regression discontinuity design

Isobel Ward, Charlotte Bermingham, Kate Soldan, Vahe Nafilyan

DOI https://doi.org/10.23889/ijpds.v9i5.2689

Published online: Sep 10, 2024

Maternal characteristics and infant and child mortality: A cohort study in England linking Census and health data

Isobel Ward, Sarah Barrat, Charlotte Standeven, Cameron Razieh, Emry John, Daniel Ayoubkhani, Vahe Nafilyan

DOI https://doi.org/10.23889/ijpds.v9i5.2690

Published online: Sep 10, 2024

Understanding the fatal burden of COVID-19 in residential aged care homes in Australia: Using linked data to generate evidence

Jennifer Welsh, Grace Joshy, Rachel Freeman-Robinson, Nicholas Biddle, Emily Banks, Clement Schlegel, Kayla Jordan, Phillip Gould, Paul Kelly, Rosemary Korda

DOI https://doi.org/10.23889/ijpds.v9i5.2691

Published online: Sep 10, 2024

Designing a Data Dashboard for Health Departments and Overdose Fatality Review Teams

Marie Pisani, Madeline Oguss, Claire Manneh, Anoop Mayampurath, Majid Afshar

DOI https://doi.org/10.23889/ijpds.v9i5.2692

Published online: Sep 10, 2024

What’s in a name field?

Frances McCarty, Ben Rogers, Jessie Parker, Cordell Golden

DOI https://doi.org/10.23889/ijpds.v9i5.2693

Published online: Sep 10, 2024

Evidence from an Applied Health Research Question (AHRQ): Describing Bundled Care Use in Ontario among Individuals with Total Joint Arthroplasty from fiscal year 2018-2021.

Haley Golding, Katie Churchill, Charissa Levy, Lesley Plumptre

DOI https://doi.org/10.23889/ijpds.v9i5.2694

Published online: Sep 10, 2024

Health and education needs of primary school children with Down Syndrome in England: What can we learn from linked administrative data?

Julia Shumway, Ruth Gilbert, Bianca De Stavola, Ania Zylbersztejn

DOI https://doi.org/10.23889/ijpds.v9i5.2695

Published online: Sep 10, 2024

A novel linked dataset to improve understanding about the health of people in Northern Ireland’s prisons

Janine Cooper, Dermot O’Reilly, Trish Kelly, Richard Kirk, Stephen McGarrigle, Ruth Gray, Michael Donnelly

DOI https://doi.org/10.23889/ijpds.v9i5.2696

Published online: Sep 10, 2024

Using linked administrative data to describe a cohort of young people who have a parent with a history of homelessness (Study 1)

Jino Distasio, Aynslie Hinds, Corinne Isaak, Jaime Cidro, Nathan Nickel, Sarah Zell, Jitender Sareen

DOI https://doi.org/10.23889/ijpds.v9i5.2697

Published online: Sep 10, 2024

The Impact of COVID-19 on Mental Health Outcomes among Recipients of Ontario Social Assistance Benefits

Michael Campitelli, Eliane Kim, Lesley Plumptre, Astrid Guttmann, Paul Kurdyak

DOI https://doi.org/10.23889/ijpds.v9i5.2698

Published online: Sep 10, 2024

Outcomes in clinical subgroups of patients with alcohol-related hospitalizations: a population-based retrospective cohort study

Erik Friesen, Andrea Mataruga, Nathan Nickel, Paul Kurdyak, James Bolton

DOI https://doi.org/10.23889/ijpds.v9i5.2699

Published online: Sep 10, 2024

A Geospatial Study of Opioid Overdose Risk in Diverse Regions

Hashan Fernando, Adam Spannaus, Anuj Kapadia

DOI https://doi.org/10.23889/ijpds.v9i5.2700

Published online: Sep 10, 2024

Save A Leg – Exploring Disparities in Community Characteristics Between Regions of High and Low Leg Amputation Rates

Chuanfen Ni, Kyle Holtzman, Laura Minardi

DOI https://doi.org/10.23889/ijpds.v9i5.2701

Published online: Sep 10, 2024

Minor Ailments and Pharmacist Management in Ontario, Canada: Attachment and Primary Care

Lisa Dolovich, Paul Nguyen, Yasmin Abdul Aziz, Mina Tadrous, Ernie Avilla, Annalise Mathers, Eliot Frymire, Rick Glazier, Kamila Premji, Liisa Jaakkimainen, Tara Kiran, Lynn Roberts, Michael E Green

DOI https://doi.org/10.23889/ijpds.v9i5.2702

Published online: Sep 10, 2024

Recommended Minimum Elements for Transparent Reporting of Multi-Jurisdiction Algorithm Feasibility Studies

Naomi Hamm, Sharon Bartholomew, Yinshan Zhao, Sandra Peterson, Saeed Al-Azazi, Kimberlyn McGrail, Lisa Lix

DOI https://doi.org/10.23889/ijpds.v9i5.2706

Published online: Sep 10, 2024

Improving risk models for patients having emergency bowel cancer surgery using linked electronic health records: a national cohort study

Helen A Blake, Linda D Sharples, Jemma M Boyle, Angela Kuryba, Suneetha R Moonesinghe, Dave Murray, James Hill, Nicola S Fearnhead, Jan H van der Meulen, Kate Walker

DOI https://doi.org/10.23889/ijpds.v9i5.2707

Published online: Sep 10, 2024

Neighborhood-level sociodemographics and kindergarten children’s developmental vulnerability, pre- and post-COVID-19 in Canada

Caroline Reid-Westoby, Ashley Gaskin, Amanda Offord, Eric Duku, Barry Forer, Marc Jambon, Magdalena Janus

DOI https://doi.org/10.23889/ijpds.v9i5.2708

Published online: Sep 10, 2024

Linkage of Hospital and Community level records for Epidemiological Research: Experiences from Kagando Health and Demographic Surveillance System in Western Uganda

Magdaline Kusuna, Herbert Mulindwa, Asinja Kapuru, Daniel Maina, Caroline Karugu, Gershim Asiki

DOI https://doi.org/10.23889/ijpds.v9i5.2709

Published online: Sep 10, 2024

The application of deterministic and probabilistic methods of data linkage methods to link population and health data in western Uganda

Magdaline Kusuna, Daniel Maina, Herbert Mulindwa, Asinja Kapuru, Caroline Karugu, Daniel Mwanga, Gershim Asiki

DOI https://doi.org/10.23889/ijpds.v9i5.2710

Published online: Sep 10, 2024

GDPR-anonymous population overlap estimation

Patrick Baier

DOI https://doi.org/10.23889/ijpds.v9i5.2711

Published online: Sep 10, 2024

Injury Assessment of Pedestrians, Bicyclists, and Motorcyclists Utilizing Linkage of Police-Reported Crash Data to EMS Data in Michigan

Patrick Bowman, Carol Flannagan, Andrew Leslie, Helen Spradlin

DOI https://doi.org/10.23889/ijpds.v9i5.2712

Published online: Sep 10, 2024

The ICES Indigenous Health Data Training Program: Building knowledge and strengthening capacity within Indigenous communities and organizations

Graham Mecredy, Jessica Jordao

DOI https://doi.org/10.23889/ijpds.v9i5.2713

Published online: Sep 10, 2024

Stimulant treatment for attention-deficit/hyperactivity disorder and risk of first and repeat criminal offending: a population data linkage cohort study

Timothy Nielsen, Ralph Nanan, Tony Butler, Natasha Nassar, Alison Poulton

DOI https://doi.org/10.23889/ijpds.v9i5.2714

Published online: Sep 10, 2024

Using linked data to inform multidimensional real-world issues: Canadian examples

Winnie Chan, Li Xue

DOI https://doi.org/10.23889/ijpds.v9i5.2715

Published online: Sep 10, 2024

Data linkage in public health research: a scoping review of ethical, legal and societal aspects surrounding administrative data

Félix Jesus Neves, Mauricio Lima Barreto, Valerie Wells, Martha Silveira, Bethânia Araújo Almeida

DOI https://doi.org/10.23889/ijpds.v9i5.2716

Published online: Sep 10, 2024

Extracting Social Determinants of Health from Inpatient Electronic Medical Records

Elliot Martin, Adam D'Souza, Vineet Saini, Karen Tang, Hude Quan, Cathy Eastwood

DOI https://doi.org/10.23889/ijpds.v9i5.2717

Published online: Sep 10, 2024

Public informed training: Developing a curriculum for trialists using health systems data

Fiona Lugg-Widger, Rob Trubey, Mike Robling, Marion Mafham, Matthew Sydes, Victoria Shepherd, Rebecca Cannings-John, Kerenza Hood, Nagheen Ahmed, Sadman Islam, Sarah Rawlinson

DOI https://doi.org/10.23889/ijpds.v9i5.2718

Published online: Sep 10, 2024

Quality of care for community-dwelling older adults living with dementia in BC: an interrupted time-series analysis to examine the effect of the COVID-19 pandemic

Mary Helmer-Smith, Kimberlyn McGrail, Sabrina Wong, Michael Law

DOI https://doi.org/10.23889/ijpds.v9i5.2719

Published online: Sep 10, 2024

Data governance for ethical usage of linked routine health data in South Africa: balancing privacy and data sharing.

Themba Mutemaringa, Andrew Boulle, Nicki Tiffin

DOI https://doi.org/10.23889/ijpds.v9i5.2721

Published online: Sep 10, 2024

Educational Attainment Dynamics in Wales: Insights through Data Linkage and Geographically Weighted Regression

Alexandra Sandu, Jennifer Keating, Katy Huxley, Rob French, Anthony Whiffen

DOI https://doi.org/10.23889/ijpds.v9i5.2722

Published online: Sep 10, 2024

Incidence and prevalence of asthma, COPD, and ILD across England, Wales, and South-East Scotland – a harmonised approach to data analysis

Hywel Evans, Sean Scully, Sara Hatam, Sarah Cook, Hannah Whittaker, Costantinos Kallis, Ian Farr, Chris Orton, Aziz Sheikh, Jennifer Quint

DOI https://doi.org/10.23889/ijpds.v9i5.2723

Published online: Sep 10, 2024

Family-homelessness and child absence from school: How data linkage research has identified and quantified the association in Wales, UK

Ian Thomas

DOI https://doi.org/10.23889/ijpds.v9i5.2725

Published online: Sep 10, 2024

Linking community-acquired images to national data in the absence of interoperable systems and unique identifiers

Claire Tochel, Heather Anderson, Miguel Bernabeu, Baljean Dhillon, Malihe Javidi, Tom MacGillivray, Alice McTrusty, Jon Penny, Niall Strang, Andrew Tatham, Jordan Watson, Sam Watts

DOI https://doi.org/10.23889/ijpds.v9i5.2726

Published online: Sep 10, 2024

Transforming and Modernizing Population and Housing Censuses in Africa: Experiences from the 2020 Round (2015-2024)

Rachel Shipsey, William Muhwava

DOI https://doi.org/10.23889/ijpds.v9i5.2727

Published online: Sep 10, 2024

A Population-Based Linked Cohort Study of Maternal Exposure to Bioclimatic Stress and Hypertensive Disorders of Pregnancy in Australia.

Amanuel Gebremedhin, Sylvester Nyadanu, Ivan Hanigan, Gavin Pereira

DOI https://doi.org/10.23889/ijpds.v9i5.2728

Published online: Sep 10, 2024

Evolving the HDRUK Phenotype Library: Phenotype Creation and Editing

Daniel S Thayer, Jack Scanlon, Muhammad A Elmessary, Artur Zinnorov, Ieuan Scanlon, Alex Coldea, Hannah Davies, Carla Oliveira, Spiros Denaxas, Emily Jefferson, Harry Hemingway

DOI https://doi.org/10.23889/ijpds.v9i5.2729

Published online: Sep 10, 2024

Sensitive Data Flagging within Data Quality reports: R and Regex Integration for Effective Text Flagging in Large Datasets

Alex-Ioan Coldea, Muhammad A Elmessary, Daniel S Thayer, Ieuan Scanlon, Hannah Davies

DOI https://doi.org/10.23889/ijpds.v9i5.2730

Published online: Sep 10, 2024

Our Data, Our Truths, Our Voice: Reclaiming First Nations Data Sovereignty in Manitoba

Stephanie Sinclair, Jillian Waruk, Taylor Morrisieau, Carla Cochrane, Ashley Saulog

DOI https://doi.org/10.23889/ijpds.v9i5.2731

Published online: Sep 10, 2024

Validation of the Passive Surveillance Stroke Severity score in three Canadian provinces

Alison L. Park, Sandra Peterson, Yinshan Zhao, Peter C. Austin, Jiming Fang, Michael D. Hill, Noreen Kamal, Thalia S. Field, Raed A. Joundi, Moira K. Kapral, Amy Y. X. Yu

DOI https://doi.org/10.23889/ijpds.v9i5.2732

Published online: Sep 10, 2024

How is ‘shortage’ defined? Exploring Nursing Workforce Data across Canada 2015-2022: An Ecological Study

Megan Harmon, Riley Martens, Shabnam Vatanpour, Natalie Sapiro, Robin Walker, Tracie Risling, Cathy Eastwood

DOI https://doi.org/10.23889/ijpds.v9i5.2733

Published online: Sep 10, 2024

Prevalence and characteristics of people with a high body mass index across the kidney disease spectrum: a population-based cohort study

Gurleen Sahi, Jennifer Reid, Michael Chiu, Louise Moist, Kyla Naylor, Saverio Stranges, Kamel Omer, Amanda Vinson, Janet Madill, Kristin K Clemens

DOI https://doi.org/10.23889/ijpds.v9i5.2734

Published online: Sep 10, 2024

Exploring UK-wide public perceptions of the 'public good' use of data for research and statistics

Shayda Kashef, Mary Cowan

DOI https://doi.org/10.23889/ijpds.v9i5.2735

Published online: Sep 10, 2024

Uptake of COVID-19 vaccinations amongst 3,433,483 children and young people across four nations in the UK

Sarah J Aldridge, Utkarsh Agrawal, Siobhán Murphy, Tristan Millington, Ashley Akbari, Fatima Almaghrabi, Sneha N Anand, Stuart Bedston, Rosalind Goudie, Rowena Griffiths, Mark Joy, Emily Lowthian, Simon de Lusignan, Lynsey Patterson, Chris Robertson, Igor Rudan, Declan T Bradley, Ronan Lyons, Aziz Sheikh, Rhiannon K Owen

DOI https://doi.org/10.23889/ijpds.v9i5.2736

Published online: Sep 10, 2024

Exploring Multimorbidity Through the Use of Deterministic and Probabilistic Record Linkage of Data in Five Health Facilities in Nairobi

Daniel Nderitu, Isaac Kisiangani, Nkosinathi Masilela

DOI https://doi.org/10.23889/ijpds.v9i5.2737

Published online: Sep 10, 2024

Exploring methods for generating synthetic data in Scotland to improve access to public sector data for research

Aileen Grieve, Nora Cooke O'Dowd

DOI https://doi.org/10.23889/ijpds.v9i5.2738

Published online: Sep 10, 2024

RELEASE: Preliminary results from a novel data-linkage study into mental health and substance use service utilisation by people released from Scottish prisons

Jan Savinc, Richard Kjellgren, Catriona Connell, Kate Hunt

DOI https://doi.org/10.23889/ijpds.v9i5.2739

Published online: Sep 10, 2024

Profiling births via Caesarean delivery in Northern Ireland (2011-2019) using the Robson classification: a population-based cohort study using administrative maternity system data.

Orla McBride, Enya Redican, Jamie Murphy

DOI https://doi.org/10.23889/ijpds.v9i5.2740

Published online: Sep 10, 2024

Developing a High Velocity Dataset Quality Checking Pipeline

Hannah Davies, Daniel S Thayer, Muhammad A Elmessary, Alex-Ioan Coldea, Carys Jones, Lorna Evans, Alexander Makovics, Owen Howell-Wright, Lee Hughes

DOI https://doi.org/10.23889/ijpds.v9i5.2741

Published online: Sep 10, 2024

Congenital Anomalies among Offspring of Women Living in Low Socioeconomic Status Neighborhoods or Hispanic/Latino Enclaves, Texas, 1999-2018

Jeremy Schraw, Elwin Jaime, Rutu Rathod, Charles Shumate, Amy Hughes, Sandi Pruitt, Gary Shaw, Philip Lupo

DOI https://doi.org/10.23889/ijpds.v9i5.2742

Published online: Sep 10, 2024

Prevalence of Congenital Anomalies Before and After Implementation of a Novel Wastewater Treatment Technology in Texas: An Augmented Synthetic Control Method Analysis Utilizing Data from a Population-Based Birth Defects Registry

Jeremy Schraw, Kara Rudolph, Charles Shumate, Matthew Gribble

DOI https://doi.org/10.23889/ijpds.v9i5.2743

Published online: Sep 10, 2024

Using machine learning to gain insights into chronic disease multimorbidity: trends and patterns in British Columbia, Canada

Jennifer Ferris, Alexandra Choi, Brandon Wagar, Jonathan Simkin, Ryan Woods, Ognjenka Djurdjev, Hind Sbihi, Kari Harder, Kate Smolina

DOI https://doi.org/10.23889/ijpds.v9i5.2744

Published online: Sep 10, 2024

Outcomes of the Health Data Research Network (HDRN) Canada and Canadian Longitudinal Study on Aging (CLSA) Partnership

Anne Hayes, Sophie Hogeveen, Jodi Gatley, Andrew Costa, Lauren Griffith, Aaron Jones, Sarah Youssef, Parminder Raina, Andrea Gruneir, Carrie Anne Whyte, Carla Hovey, Marie-Chantal Ethier, Donna Curtis Maillet, Mahmoud Azimaee, Erik Youngson, Tim Choi, Lindsey Gilbert, Magda Nunes De Melo, Lindsay Stewart, Kendra Lester, Katelyn Frizzell, Robyn Kydd, Mary-Ann Standing, Charles Burchill, Dave Towns, Jean-Francois Cantin

DOI https://doi.org/10.23889/ijpds.v9i5.2745

Published online: Sep 10, 2024

Understanding Patterns of Care for Older Adults: Data to Action

Beliz Acan Osman, Fernando Maldonado, Suelen Goes, Nirmal Sidhu, Amanda Hutton

DOI https://doi.org/10.23889/ijpds.v9i5.2746

Published online: Sep 10, 2024

An innovative linked Electronic Health Record derived data ecosystem for understanding the complexities of health and ageing.

Nadine Andrew, Richard Beare, Alison Carver, Tanya Ravipati, Emily Parker, Taya Collyer, David Ung, Velandai Srikanth

DOI https://doi.org/10.23889/ijpds.v9i5.2747

Published online: Sep 10, 2024

The occupational roles of nurses and midwives in the UK: an analysis of the Nursing and Midwifery Council-census England and Wales 2021 data linkage study

Michelle Jamieson, Jan Savinc, Iain Atherton

DOI https://doi.org/10.23889/ijpds.v9i5.2748

Published online: Sep 10, 2024

Establishing a linked administrative data sampling frame to recruit families into a new UK-wide birth cohort study: findings from the Early Life Cohort Feasibility (ELC-FS) Study

Orla McBride, Lisa Calderwood, Karen Dennison, Erica Wong, Alyce Raybould, Richard Silverwood, Pia Hardelid, Lucy Griffiths, Pasco Fearon, Alissa Goodman

DOI https://doi.org/10.23889/ijpds.v9i5.2749

Published online: Sep 10, 2024

AD|ARC (Administrative Data | Agricultural Research Collection): Characteristics of farm households participating in agri-environment schemes in Wales, UK.

Sian Morrison-Rees, Rachael Loftus, Laura Madden, Freya Pryce, Matthew Curds, Paul Caskie

DOI https://doi.org/10.23889/ijpds.v9i5.2750

Published online: Sep 10, 2024

Temporal Trends and Determinants of Antibiotic Prescribing in Primary Care: Insights from Northern Ireland

Magda Bucholc, Enya Redican, Stein GP Menting, Finola Ferry, Mark Shevlin, Jamie Murphy

DOI https://doi.org/10.23889/ijpds.v9i5.2751

Published online: Sep 10, 2024

ODISSEI Secure Supercomputer - a breakthrough in complex data linkage and applications.

Kasia Karpinska

DOI https://doi.org/10.23889/ijpds.v9i5.2752

Published online: Sep 10, 2024

The SAIL MELD-B e-cohort (SMC) and SAIL MELD-B Young adult e-cohort (SMYC) – a reproducible methodological pipeline for dynamic cohort curation and research

Roberta Chiovoloni, Nisreen Alwan, Ann Berrington, Michael Boniface, Jakub Dylag, Nic Fair, Simon DS Fraser, Emilia Holland, Rhiannon K Owen, Sebastian Stannard, Zlatko Zlatev, Ashley Akbari

DOI https://doi.org/10.23889/ijpds.v9i5.2753

Published online: Sep 10, 2024

The Kids’ Environment and Health Cohort: a novel administrative data resource for research on the environmental determinants of child health in England

Selin Akaraci, Alison Macfarlane, Amal Rammah, Emily Courtin, Faith Miller, Jessica Mitchell, Joana Cruz, Matthew Lilliman, Niloofar Shoari, Samantha Hajna, Steven Cummins, Vahe Nafilyan, Pia Hardelid

DOI https://doi.org/10.23889/ijpds.v9i5.2754

Published online: Sep 10, 2024

Roadmap for Linking Registry Data with Health Services Data to Support Evidence-Informed Decision-Making.

Magda Nunes de Melo, Anne Hayes, Charles Victor, Laurie Lambert, Trish Caetano, Nicole Mittmann

DOI https://doi.org/10.23889/ijpds.v9i5.2755

Published online: Sep 10, 2024

Do children receiving care and support have higher rates of school exclusion than their peers?

Helen Hodges

DOI https://doi.org/10.23889/ijpds.v9i5.2756

Published online: Sep 10, 2024

Wellbeing and retainment of healthcare workers in Wales from 2020 to 2023

Stuart Bedston, Hoda Abbasizanjani, Lucy Robinson, Matthew Curds, Ashley Akbari

DOI https://doi.org/10.23889/ijpds.v9i5.2757

Published online: Sep 10, 2024

Data Quality Implications in Research when Transitioning to a New Electronic Medical Record

Zoe Hsu, Cassandra Chisholm, Conné Lategan, Eddy Lang, Xiaoming Wang, Erik Youngson

DOI https://doi.org/10.23889/ijpds.v9i5.2758

Published online: Sep 10, 2024

Automated Translation of Chronic Disease Diagnosis Codes using the ChatGPT Large Language Model

Barret Monchka, Hassan Maleki Golandouz, Lisa Lix, Amani Hamad

DOI https://doi.org/10.23889/ijpds.v9i5.2759

Published online: Sep 10, 2024

Reporting on the establishment of a Privacy Preserving Record Linkage to Facilitate an Ongoing Crosswalk Between Research and Health Administrative Databases

Brendan Behan, Alana Sparks, Heena Cheema, Sibel Naska, Francis Jeanson, Shalane Basque, Charlotte Ma, Jason Chai-Onn, Mojib Javadi, Minnie Ho, Tom Mikkelsen

DOI https://doi.org/10.23889/ijpds.v9i5.2760

Published online: Sep 10, 2024

Implementation of the Frictionless data standard for linked data

Mike Jarrett

DOI https://doi.org/10.23889/ijpds.v9i5.2761

Published online: Sep 10, 2024

Probabilistic Record Linkage for Families (PRLF): A Discussion of the Development and Validation of this Open-Source Linkage Tool

John Prindle, Himal Suthar, Emily Putnam-Hornstein, Regan Foust

DOI https://doi.org/10.23889/ijpds.v9i5.2763

Published online: Sep 10, 2024

New Zealanders living with a family member who has a long-term health condition: cross sectional analysis of integrated Census and administrative data

Lisa Underwood, Nick Bowden, Andrea Teng, Ofa Dewes, Lukas Marek, Barry Milne

DOI https://doi.org/10.23889/ijpds.v9i5.2764

Published online: Sep 10, 2024

Designing a utility evaluation framework for synthetic health data

Amir Marashi, Sadiq Dohadwalla, Patrick Browne, Ben Hachey

DOI https://doi.org/10.23889/ijpds.v9i5.2765

Published online: Sep 10, 2024

SynD: Australian synthetic health data community of practice

Ben Hachey, Jodie Austin, James Boyd, Teyl Engstrom, Amir Marashi, Clare Morgan, Reji Philip, Keren Pointon, Meagan Snewin, Clair Sullivan, Melanie Haines

DOI https://doi.org/10.23889/ijpds.v9i5.2766

Published online: Sep 10, 2024

Improving Electronic Health Record (EHR) data linkages for identifying Aged Care Residents through publicly available data

Tanya Ravipati, Richard Beare, Velandai Srikanth, Alison Carver, Lei Huang, Rashwinder Dhillon, Nadine E Andrew

DOI https://doi.org/10.23889/ijpds.v9i5.2767

Published online: Sep 10, 2024

Identifying a Birth Cohort of Twins from Linked Data – Challenges and Opportunities

Alexander Charles Campbell, Jesse T Young

DOI https://doi.org/10.23889/ijpds.v9i5.2768

Published online: Sep 10, 2024

Risk factors and trajectories of self-harm, neurodevelopmental disorders, and mental health conditions in pupils Educated in Other Than At School (EOTAS) in Wales: a retrospective nationwide electronic cohort study

Olivier Y. Rouquette, Marcos del Pozo Banos, Sze Chim Lee, Ann John

DOI https://doi.org/10.23889/ijpds.v9i5.2769

Published online: Sep 10, 2024

Health Outcomes Linkage in UK Biobank

Laura Bramley, Jo Gay, Christopher de Lacy, Howard Callen, Sean Rose, Amy Flaxman, Gemma Codner, Rachael Drake-Brockman, Ben Lacey, Naomi Allen

DOI https://doi.org/10.23889/ijpds.v9i5.2771

Published online: Sep 10, 2024

Investigating associations between the natural environment and COVID-19

Oliver Thwaites, Amy Mizen, Ronan Lyons, Rhiannon Owen, Benedict Wheeler, Richard Fry

DOI https://doi.org/10.23889/ijpds.v9i5.2772

Published online: Sep 10, 2024

Challenges in Early Years data and their implications on programme evaluations

Silvia Colonna, Kathryn Helliwell

DOI https://doi.org/10.23889/ijpds.v9i5.2773

Published online: Sep 10, 2024

Citizen Panel: Novel method for Public Involvement in data access review of linked longitudinal data

Lidis Garbovan, Robin Flaig

DOI https://doi.org/10.23889/ijpds.v9i5.2774

Published online: Sep 10, 2024

Creating a Cleaned Dataset for Ease of Use

Saira Ahmed, Daniel S Thayer, Muhammad A Elmessary, Ieuan Scanlon, Etienne Badoche

DOI https://doi.org/10.23889/ijpds.v9i5.2775

Published online: Sep 10, 2024

Impact of the Welsh Government Flying Start programme on children’s BMI and immunisation uptake

Silvia Colonna, Kathryn Helliwell

DOI https://doi.org/10.23889/ijpds.v9i5.2776

Published online: Sep 10, 2024

The Challenges and Strategies for Cleaning the Routinely Collected Data for Total Knee Replacements (TKR) and Total Hip Replacements (THR) in the Kingdom of Fife

Luciana Pedro, Muhammad Akhtar, Arthur Winata, Colin McCowan

DOI https://doi.org/10.23889/ijpds.v9i5.2777

Published online: Sep 10, 2024

A Cohort Tree-based Representation and a Multimorbidity Progression Across Pregnancies in Scotland

Luciana Pedro, Amaya Azcoaga-Lorenzo, Colin McCowan

DOI https://doi.org/10.23889/ijpds.v9i5.2778

Published online: Sep 10, 2024

Transitions Between Home and Unscheduled Care in the Last Year of Life

Luciana Pedro, Richard Taylor, Sarah Bowers, Sarah Mills, Robin Alexander, Colin McCowan

DOI https://doi.org/10.23889/ijpds.v9i5.2782

Published online: Sep 10, 2024

Cohort Builder: Simplifying Cohort Creation

Roshan Toby, Daniel Thayer, Ieuan Scanlon, Amy Stuart

DOI https://doi.org/10.23889/ijpds.v9i5.2783

Published online: Sep 10, 2024

Involving the public in transforming the data landscape in Scotland

Katie Oldfield, Harriet Baird

DOI https://doi.org/10.23889/ijpds.v9i5.2784

Published online: Sep 10, 2024

Target Trial Emulation: Impact of C-Section on Birth Outcomes for Spontaneous Preterm Breech Presentations

Robin Alexander, Holger Unger, Swetha Bhaskar, Ben Swallow, Stefan Unger, Amaya Azcoaga-Lorenzo, Adeniyi Fagbamigbe, Sarah Stock, Colin McCowan

DOI https://doi.org/10.23889/ijpds.v9i5.2785

Published online: Sep 10, 2024

Comparing the linkage performance of fastLink, Match*Pro and Splink at the Florida Cancer Registry using simulated pseudopeople data

Anders Alexandersson

DOI https://doi.org/10.23889/ijpds.v9i5.2786

Published online: Sep 10, 2024

Differences in prescribing and dispensing at end-of-life between people who died at home before and during the Covid-19 pandemic in Scotland.

Jan Savinc, Iain Atherton

DOI https://doi.org/10.23889/ijpds.v9i5.2787

Published online: Sep 10, 2024

The Networked Data Lab: lessons from four years of analytical collaboration on common problems in health on social care

Hannah Knight, Caroline Fraser, Tom Prendergast, Chamut Kifetew

DOI https://doi.org/10.23889/ijpds.v9i5.2788

Published online: Sep 10, 2024

Identifying substance misuse related foetal anomaly cases in routinely collected data

Ian Farr, Hywel Evans, Columbus Ohaeri, Ryan Phillips, Olabambo Oluwasuji, Josh Dixon, Grace Bailey, Josie Smith

DOI https://doi.org/10.23889/ijpds.v9i5.2789

Published online: Sep 10, 2024

Associations between long-term exposures to environmental factors and the development of amyotrophic lateral sclerosis: A matched case-control study

Daniel Saucier, Mathieu Bélanger, Zikuan Liu, Colleen O'Connell

DOI https://doi.org/10.23889/ijpds.v9i5.2790

Published online: Sep 10, 2024

Comparing Methods for Missing Paternal Linkages in Administrative Data

Amani Hamad, Barret Monchka, Oleguer Plana-Ripoll, Olawale Ayilara, Lisa Lix

DOI https://doi.org/10.23889/ijpds.v9i5.2791

Published online: Sep 10, 2024

Health selection among outmigrants, return migrants and non-migrants in three subcohorts of international, interprovincial migrants and non-migrants in Manitoba, Canada

Marcelo Urquia, Gilles Detillieux, Shantanu Debbarman

DOI https://doi.org/10.23889/ijpds.v9i5.2792

Published online: Sep 10, 2024

Exploitation of Children in England and Wales: Barriers to understanding child-centred support service outcomes using two sources of administrative data

Katy Huxley, Anna Skeels

DOI https://doi.org/10.23889/ijpds.v9i5.2793

Published online: Sep 10, 2024

Projecting patterns of health inequalities in England up to 2040 using linked health data

Ann Raymond, Toby Watt, Laurie Rachet-Jacquet, Hannah-Rose Douglas, Anna Head, Chris Kypridemos

DOI https://doi.org/10.23889/ijpds.v9i5.2794

Published online: Sep 10, 2024

Risk of death after type of intimate partner violence (IPV) involvement

Marcelo Urquia, Brandon Trask, Noah Scatliff, Wendy Au, Jill Hnatiuk

DOI https://doi.org/10.23889/ijpds.v9i5.2795

Published online: Sep 10, 2024

Inequalities in Ambulatory Care Sensitive Conditions: An International Comparison of High-Income Countries

Grace Spiro, Yu Qing Bai, ICCONIC Research Collaborative, Walter Wodchis

DOI https://doi.org/10.23889/ijpds.v9i5.2796

Published online: Sep 10, 2024

Investigating long-term health outcomes in high-level rugby union players using linked administrative data

Stephanie D'Souza, Barry J. Milne, Francesca Anns, Kenneth L. Quarrie

DOI https://doi.org/10.23889/ijpds.v9i5.2797

Published online: Sep 10, 2024

All-cause and cause-specific mortality amongst individuals with substance misuse: A population-based linked data study in Wales

Grace Bailey, Ian Farr, Hywel Evans, Saira Ahmed, Columbus Ohaeri, Lauren O'Gorman, Ryan Phillips, Olabambo Oluwasuji, Josh Dixon, JoshJoanne Maimaris, Josie Smith

DOI https://doi.org/10.23889/ijpds.v9i5.2798

Published online: Sep 10, 2024

Cycling and Pedestrian Injuries in the Region of Peel, Ontario; An application of linked administrative health data to enhance local road safety and health service delivery, through an Applied Health Research Question (AHRQ)

Natalie Troke, Lesley Plumptre, Refik Saskin, Diana An, Natasha Fortin

DOI https://doi.org/10.23889/ijpds.v9i5.2799

Published online: Sep 10, 2024

Transparent reporting on multi-site studies about algorithms for linked health data: A systematic review of Health Data Research Network Canada’s Algorithms Inventory

Lisa M Lix, Nasiba Ahmed, Daryl Fung, Saeed Al-Azazi, Naomi C Hamm

DOI https://doi.org/10.23889/ijpds.v9i5.2800

Published online: Sep 10, 2024

Using Polars to Improve String Similarity Performance in Python

Jeremy Foxcroft, Luiza Antonie

DOI https://doi.org/10.23889/ijpds.v9i5.2801

Published online: Sep 10, 2024

Linked administrative health data on prehospital olanzapine administration by paramedics in Winnipeg, Canada: Challenges and opportunities

Gilles Detillieux, Neil McDonald, Jennifer Enns, Chelsey McDougall, Nathan Nickel

DOI https://doi.org/10.23889/ijpds.v9i5.2802

Published online: Sep 10, 2024

Using Administrative Data to Identify Factors Associated with Healthy Development After Experiencing Household Challenge Adversity in Early Childhood

Anita Durksen, Wanda Phillips-Beck, Jon McGavock, Tracie Afifi, Marni Brownell, Nathan Nickel

DOI https://doi.org/10.23889/ijpds.v9i5.2803

Published online: Sep 10, 2024

Involving patients and the public in research using linked confidential patient information without consent: a case study on the COloRECTal cancer data Repository (CORECT-R)

Aden Chun Hei Kwok, Amy Downing, Paul Affleck, Hannah Rossington, Matt Howard-Murray, Julliet Lwiindi, Chen-Chun Pai, Catriona Gilmour Hamilton, Eva JA Morris

DOI https://doi.org/10.23889/ijpds.v9i5.2804

Published online: Sep 10, 2024

Establishing Australia’s national linked COVID Register

Louise Gates, Claudia Slimings, Bronte O’Donnell, Anna Reynolds, Claire Sparke, Vivien Luong, Daniel Palamara, Renee Foo, Mariam Bakshi, Vanessa D'Souza

DOI https://doi.org/10.23889/ijpds.v9i5.2805

Published online: Sep 10, 2024

Linkage error and ethnicity information source affect estimates of ethnic disparities in non-communicable disease rates

Frederieke Petrović-van der Deen, Sheree Gibb, Melissa McLeod, Andrea Teng

DOI https://doi.org/10.23889/ijpds.v9i5.2806

Published online: Sep 10, 2024

Data Quality and Legal Barriers to Linking US Government Social Program Data

Chapin Hall

DOI https://doi.org/10.23889/ijpds.v9i5.2807

Published online: Sep 10, 2024

CURL Extensions – Weaving a Unique Property Reference Number into Address Histories in the Scottish Community Health Index

David Clark

DOI https://doi.org/10.23889/ijpds.v9i5.2808

Published online: Sep 10, 2024

Implementing a streamlined data access governance process for the release of routinely collected electronic health record data for research

Emily Parker, Naude Kim, Tanya Ravipati, Richard Beare, Lee-Anne Clavarino, Velandai Srikanth, Nadine Andrew

DOI https://doi.org/10.23889/ijpds.v9i5.2809

Published online: Sep 10, 2024

Trends in Pregnancy-Associated Opioid Toxicity and Mortality

Andi Camden, Tara Gomes, Hilary Brown, Rose Schmidt, Aditi Patrikar, Hong Lu, Astrid Guttmann

DOI https://doi.org/10.23889/ijpds.v9i5.2810

Published online: Sep 10, 2024

Investigating variation in reported location of death: A comparison of administrative data sources

James King, Aynharan Sinnarajah, Jeffrey Bakal

DOI https://doi.org/10.23889/ijpds.v9i5.2811

Published online: Sep 10, 2024

IDI Search: a metadata search app for exploring New Zealand’s administrative linked data

Tom Elliott, Barry Milne, Eileen Li, Andrew Sporle, Colin Simpson

DOI https://doi.org/10.23889/ijpds.v9i5.2812

Published online: Sep 10, 2024

The CanPath-HDRN Canada Collaboration: Enabling Multi-jurisdictional Research in Canada

Jennifer Brooks, Anne Hayes, Riaz Alvi, Mahmoud Azimaee, Parveen Bhatti, Sheraz Cheema, Tim Choi, Nouar ElKhair, Megan Fleming, Noah Frank, Katelyn Frizzell, Jodi Gatley, Lindsey Gilbert, Simon Gravel, Shandra Harman, Jason Hicks, Vikki Ho, Jordan Hunt, Stefana Jovanovska, Victoria Kirsh, Robyn Kydd, Carmen La, Kendra Lester, Guillaume Lettre, Magda Nunes De Melo, Mary-Ann Standing, Lindsay Stewart, Donna Turner, Robin Urquhart, Jennifer Vena, Eric Youngson, Philip Awadalla

DOI https://doi.org/10.23889/ijpds.v9i5.2813

Published online: Sep 10, 2024

Expanding opportunities in health data: Enhancing research by facilitating linkage of Ontario’s population-level health administrative data with data from patient support programs (PSPs)

Keresa Arnold, Lisa Ishiguro, Minnie Ho, Dina Skvirisky, Jeruby Retnakanthan, Jacob Etches, Luke Mondor, Saskin Saskin, Charles Victor

DOI https://doi.org/10.23889/ijpds.v9i5.2814

Published online: Sep 10, 2024

Evolution of ad hoc and routine data linkage in Australia

Erika Hagemann, Mikhalina Dombrovskaya, Felicity Flack

DOI https://doi.org/10.23889/ijpds.v9i5.2815

Published online: Sep 10, 2024

Uncharted territory in linking population-based laboratory data for the epidemiology of celiac disease in Canada

James King, Tara Whitten, Bing Li, Erik Youngson, Jeffrey Bakal, Gilaad Kaplan, Tyler Williamson

DOI https://doi.org/10.23889/ijpds.v9i5.2816

Published online: Sep 10, 2024

Novel applications of linked administrative data – adding longitudinal capability and additional variables to a nationally representative survey of an indigenous population.

Tori Diamond, Matt Edwards, Andrew Sporle

DOI https://doi.org/10.23889/ijpds.v9i5.2817

Published online: Sep 10, 2024

Collaborating across government agencies to combine linkage processes and algorithms to create an Australian National Linkage Spine (NLS) to facilitate cross-jurisdictional linkage

Theresa Nunan, Elena Ougrinovski, Brett Frazer, Kelly Dahl, Bronwyn Wilson, Rian Jenkins, Clinton Paine

DOI https://doi.org/10.23889/ijpds.v9i5.2818

Published online: Sep 10, 2024

Expanding data resources beyond “health care”: exploring options and implications

Kimberlyn McGrail, Ted McDonald, Nathan Nickel

DOI https://doi.org/10.23889/ijpds.v9i5.2820

Published online: Sep 10, 2024

Describing the kidney health of ARDAC study participants using data linkage

Amandi Hiyare, Eleonora Dal Grande, Jacqueline Stephens, Kylie-Ann Mallitt, Siah Kim, Armando Teixeria-Pinto, Victoria Sinka, Michelle Dickson, Allison Jaure, Jonathan Craig

DOI https://doi.org/10.23889/ijpds.v9i5.2821

Published online: Sep 10, 2024

Generation Victoria (GenV): Creating a large consented longitudinal infrastructure for discovery and intervention research

Melissa Wake, Sharon Goldfeld, Jatender Mohal, William Siero, Elizabeth Hughes, Susan Clifford, Simon Hall, Naomi Schwarz, Tony Frugier, Jing Wang, Suzanne Mavoa, Natasha Zaritski, Richard Saffery

DOI https://doi.org/10.23889/ijpds.v9i5.2822

Published online: Sep 10, 2024

A game of snakes and ladders: the world of complex health and social care data linkage

Kaat De Corte, Elizabeth Crellin, Freya Tracey, Sarah Hardy, Richard Brine, Therese Lloyd

DOI https://doi.org/10.23889/ijpds.v9i5.2823

Published online: Sep 10, 2024

Exploring longitudinal patterns of absences, exclusions and attainment in secondary schools in Scotland

Morag Treanor, Patricio Troncoso, Lee Williamson, Cecilia Macintyre

DOI https://doi.org/10.23889/ijpds.v9i5.2824

Published online: Sep 10, 2024

Integrating Precision Training for Building a Sustainable National Data Infrastructure in Wales: A Datacise Open Learning (DOL) Based Case Study

Ting Wang, Stephanie Lee, Daniel Thayer, Jack Palmer, Chris Roberts, Michael Bale, Sinead Brophy, Adam Chee, Jonathan Smart, David Ford

DOI https://doi.org/10.23889/ijpds.v9i5.2825

Published online: Sep 10, 2024

The (dis)continuing of antithrombotic drugs and its implications for occurrence of adverse cardiovascular and bleeding events in cancer patients during end of life

Sarah J Aldridge, Ashley Akbari, Adrian Edwards, Kate Lifford, Denise Abbel, Suzanne Cannegieter, Jamilla Goedegebuur, Eva Kempers, Anne Gulbech Ording, Marieke Kruip, Johanneke Portielje, Mette Søgaard, Chantal Visser, Simon Noble

DOI https://doi.org/10.23889/ijpds.v9i5.2826

Published online: Sep 10, 2024

Investigation of the differences in characteristics of Welsh farming households with and without off-farm income

Jenny Thyer, Sian Morrison-Rees, Sean Scully, Paul Caskie

DOI https://doi.org/10.23889/ijpds.v9i5.2827

Published online: Sep 10, 2024

Linkage and Demographic Indexing for Nursing Dynamics in the Integrated Data Service

Nathan O'Connor, Tolu Adedire, Dilly Stephenson, Leah Quinn

DOI https://doi.org/10.23889/ijpds.v9i5.2828

Published online: Sep 10, 2024

The AISP Network of cross-sector data linkage efforts: Results & lessons from a national survey of 40 state and local systems in the US

Berkowitz Emily, Della Jenkins, Amy Nelson, Sharon Zanti, Deja Kemp, TC Burnett, Jessie Rios Benitez

DOI https://doi.org/10.23889/ijpds.v9i5.2829

Published online: Sep 10, 2024

Developing an integrated HIV clinical and population database in rural south Africa

Dickman Gareta, Evelyn Lauren, Khumbo Shumba, Kobus Herbst, Dorina Onoya, Jacob Bor

DOI https://doi.org/10.23889/ijpds.v9i5.2830

Published online: Sep 10, 2024

Round 'Ere: Developing a novel method to engage community on the design of wellbeing data hubs

Emily Rempel, Gianfranco Polizzi

DOI https://doi.org/10.23889/ijpds.v9i5.2831

Published online: Sep 10, 2024

Understanding medicine related adverse events in people with multiple long-term conditions and polypharmacy

James Rafferty, Jane Lyons, Ronan Lyons, Rhiannon Owen

DOI https://doi.org/10.23889/ijpds.v9i5.2832

Published online: Sep 10, 2024

Implementation of a common data model in Health Data Research Network Canada: Lessons learned

Lisa Lix, Georgina Archbold, HDRN Canada CDM Working Group, Mahmoud Azimzee

DOI https://doi.org/10.23889/ijpds.v9i5.2833

Published online: Sep 10, 2024

The Networked Data Lab: using linked data to understand intermediate care services in the United Kingdom

Caroline Fraser, Tom Prendergast, Chamut Kifetew, Zoe Ruziczka, Hannah Knight

DOI https://doi.org/10.23889/ijpds.v9i5.2834

Published online: Sep 10, 2024

AD|ARC (Administrative Data Agri-Research Collection): Linking Individual, Household and Farm Business Data for Sociodemographic Research on Farming Households

Sian Morrison-Rees, Laura Madden, Matthew Curds, Paul Caskie, Rachael Loftus

DOI https://doi.org/10.23889/ijpds.v9i5.2835

Published online: Sep 10, 2024

Family Courts in England & Wales: A population-level evidence base about court users who experience domestic abuse

Ludivine Garside

DOI https://doi.org/10.23889/ijpds.v9i5.2836

Published online: Sep 10, 2024

Prevalence of a dual diagnosis of mental illness and substance use disorder in Ontario, Canada: a retrospective cohort study using linked administrative data

Jesse Young, Bryan Tanner, Matthew Crocker, Isobel Sharpe, Hong Lu, Paul Kurdyak

DOI https://doi.org/10.23889/ijpds.v9i5.2837

Published online: Sep 10, 2024

Collecting and incorporating feedback through user research to provide the right information on data linkage processes needed to conduct research.

Rachel Huck

DOI https://doi.org/10.23889/ijpds.v9i5.2838

Published online: Sep 10, 2024

Urban Trail Exposure in Winnipeg, Canada: Longitudinal Cohort Development for a 20-Year Difference-in-Differences Analysis of a Natural Experiment with Varied Duration of Exposure Times

Heather Prior, Charles Burchill, Jonathan McGavock

DOI https://doi.org/10.23889/ijpds.v9i5.2839

Published online: Sep 10, 2024

Automating production of de-identified linkable data

Madalina Iova, Rachel Huck

DOI https://doi.org/10.23889/ijpds.v9i5.2840

Published online: Sep 10, 2024

Coordinating a growing data enterprise: strategies for facilitating multiple research-practice relationships for the public good.

Carl Frederick

DOI https://doi.org/10.23889/ijpds.v9i5.2841

Published online: Sep 10, 2024

Centering The Voices of People Living with Multimorbity to Develop Visual Dashboards to Facilitate Structured Medication Reviews: The Role of Patient and Public Involvement and Engagement in the DynAIRx Study

Erin McCloskey

DOI https://doi.org/10.23889/ijpds.v9i5.2842

Published online: Sep 10, 2024

Evaluating the potential for multi-generational longitudinal research using U.S. Census data from 1850-2020

Katie Genadek, Trent Alexander

DOI https://doi.org/10.23889/ijpds.v9i5.2843

Published online: Sep 10, 2024

Mental health of children with epilepsy compared to their peers: population-based cohort from linked primary and secondary healthcare record in England

Millie Wagstaff, Ania Zylbersztejn, Sophie Bennett

DOI https://doi.org/10.23889/ijpds.v9i5.2845

Published online: Sep 10, 2024

Model-based algorithms to ascertain smoking in administrative health data: a registry-based validation study

Md Ashiqul Haque, Nathan C Nickel, Maxime Turgeon, Lisa M Lix

DOI https://doi.org/10.23889/ijpds.v9i5.2846

Published online: Sep 10, 2024

Content, controls, audience: contextualizing de-identification as a novel approach to enabling cross-sectoral data linkages

Rosario Cartagena, Michael Smith, Kathy Li, Ash-Lei Lewandoski

DOI https://doi.org/10.23889/ijpds.v9i5.2847

Published online: Sep 10, 2024

Advancements in Pan-Canadian Data Access and Analysis Facilitation: Insights from Collaborative Health Research supported in Alberta, British Columbia, and Ontario

Stefana Jovanovska, Joanna Ou, Erik Youngson, Tim Choi, Carmen La, Erind Dvorani, Refik Saskin, Michael Paterson, Victoria Kirsh, Philip Awadalla, Jennifer Brooks, Sheraz Cheema, Nouar Elkhair, Jennifer Vena, Shandra Harman, Kelly McDonald, Parveen Bhatti, Dina Skvirsky

DOI https://doi.org/10.23889/ijpds.v9i5.2848

Published online: Sep 10, 2024

Identifying patterns of co-occurring chronic conditions preceding dementia: An unsupervised machine learning approach using health administrative data

Laura C. Maclagan, Daniel A. Harris, Xuesong Wang, Mohamed Abdalla, Tomi Odugbemi, Ruth Ann Marrie, Peter C. Austin, Richard H. Swartz, Sandra E. Black, Myuri Ruthirakuhan, Colleen J. Maxwell, Susan E. Bronskill

DOI https://doi.org/10.23889/ijpds.v9i5.2849

Published online: Sep 10, 2024

A proof-of-concept minimum data set for older care home residents: what value does this add?

Freya Tracey, Elizabeth Crellin, Kaat De Corte, Therese Lloyd, Richard Brine

DOI https://doi.org/10.23889/ijpds.v9i5.2850

Published online: Sep 10, 2024

Evidence from an Applied Research Health Question (AHRQ): Physician-prescribed medications to children for oral health issues

Samantha Morais, Diana An, Anna Durbin, Khai-Nhu Zweig, Mina Tadrous, Lesley Plumptre

DOI https://doi.org/10.23889/ijpds.v9i5.2851

Published online: Sep 10, 2024

Linkja: Open Source Privacy-Preserving Record Linkage Tool

Kruti Doshi, William Trick, Keiki Hinami

DOI https://doi.org/10.23889/ijpds.v9i5.2852

Published online: Sep 10, 2024

Development of International Classification of Diseases crosswalks using text analysis methods.

Joykrishna Sarkar, Lisa Lix

DOI https://doi.org/10.23889/ijpds.v9i5.2853

Published online: Sep 10, 2024

Algorithmic Accountability for Record Linkage

Emily Wiegand, Aya Liu, Sabrina Sedovic

DOI https://doi.org/10.23889/ijpds.v9i5.2854

Published online: Sep 10, 2024

An update on ICES’ Applied Health Research Question (AHRQ) program: Informing public health policy and practice using linked, population-based administrative health data in a collaborative model.

Diana An, Minnie Ho, J. Michael Paterson, Refik Saskin, Luke Mondor, Clare Atzema, Lesley Plumptre, Jeruby Retnakanthan, Dina Skvirsky, Charles Victor, Susan E. Bronskill

DOI https://doi.org/10.23889/ijpds.v9i5.2855

Published online: Sep 10, 2024

Co-Creating an Inclusion, Diversity, Equity, and Accessibility Strategy: Defining approach and outcomes in a health data research network

Amy Freier, Morgan Stirling, Nathan Nickel

DOI https://doi.org/10.23889/ijpds.v9i5.2856

Published online: Sep 10, 2024

Concurrent Opioid and Psychotropic Drug Use During Pregnancy: Descriptive Study from Two Canadian Provinces

Lindsey Dahl, Deepa Singal, Marni Brownell, Colin Dormuth, Dan Chateau, Matthew Dahl, Jason Kim, Nathan Nickel

DOI https://doi.org/10.23889/ijpds.v9i5.2857

Published online: Sep 10, 2024

Examining The Care Pathways Patients Experience When Accessing Outpatient Psychiatric Care in British Columbia

Husayn Jessa, David Rudoler, Ruth Lavergne, Sandra Peterson, Rita McCracken, Ridhwana Kaoser

DOI https://doi.org/10.23889/ijpds.v9i5.2858

Published online: Sep 10, 2024

Utilization of Real-World Data in the Intervention to Reduce Early Peanut Allergy in Children (iREACH) Trial

Lucy Bilaver, Jialing Jiang, Ruchi Gupta

DOI https://doi.org/10.23889/ijpds.v9i5.2859

Published online: Sep 10, 2024

Building access to linked data for program evaluation: lessons and opportunities from the evaluation of a pan-Canadian skills training initiative

Max Palamar, Sandra Nkusi

DOI https://doi.org/10.23889/ijpds.v9i5.2860

Published online: Sep 10, 2024

Generation Scotland Teenage Recruitment – Creating, evaluating and evolving a study sign-up process in collaboration with study participants and young people

Robin Flaig, Sarah Robertson, Alex Wood, Liz Kirby, Rosie Tatham, Cathie Sudlow

DOI https://doi.org/10.23889/ijpds.v9i5.2861

Published online: Sep 10, 2024

Generation Scotland – Linking all the records we can

Archie Campbell, Robin Flaig, Daniel McCartney, Heather Whalley, Cathie Sudlow

DOI https://doi.org/10.23889/ijpds.v9i5.2862

Published online: Sep 10, 2024

Exploring Locality Sensitive Hashing as a Blocking Method for Large-Scale Administrative Datasets

Josie Plachta, Rachel Shipsey, Leah Quinn

DOI https://doi.org/10.23889/ijpds.v9i5.2863

Published online: Sep 10, 2024

Exploring Text Classification Systems for Automatically Coding Historical Occupations and Causes of Death

Luiza Antonie, Peter Christen, Chris Dibben, Jeremy Foxcroft, Lee Williamson

DOI https://doi.org/10.23889/ijpds.v9i5.2864

Published online: Sep 10, 2024

Efficiency gains from the implementation of Research IDs for data linkage: A case study from Population Data BC and the Data Innovation Program in British Columbia, Canada

Mike Jarrett, Brent Hills, Maria Kim-Bautista, Megan Ahuja, Jim Mintha, Gitta Oldendorff, Brett Wilmer

DOI https://doi.org/10.23889/ijpds.v9i5.2865

Published online: Sep 10, 2024

Creating a Data Cleaning and Pre-Processing Module for Generalisable Data Linkage

Josie Plachta, Mary Cleaton, Leah Quinn, Alex Mackay, Zoe White

DOI https://doi.org/10.23889/ijpds.v9i5.2866

Published online: Sep 10, 2024

Harnessing electronic health record data for improving delivery of acute renal replacement therapy in Alberta, Canada (Dialyzing Wisely)

Kristin Robertson, Sheena Morton, Lindsay Dasilva, Tara Whitten, Melissa Gardiner, Sarah Seymour, Dawn Opgenorth, Oleksa Rewa

DOI https://doi.org/10.23889/ijpds.v9i5.2867

Published online: Sep 10, 2024

Matching Occupational Injury and Illness Data Using Augmented Twin Neural Networks

Elan Segarra

DOI https://doi.org/10.23889/ijpds.v9i5.2868

Published online: Sep 10, 2024

COVID-19 Policy Decisions in Manitoba and the Experiences of the Red River Métis: A partnership-based, whole-population linked administrative data study

Danielle Saj, Olena Kloss, Francis Chartrand, Oke Ekuma, Carole Taylor, Julianne Sanguins, Alan Katz, Alyson Mahar, Michelle Driedger, Nathan Nickel

DOI https://doi.org/10.23889/ijpds.v9i5.2869

Published online: Sep 10, 2024

IPUMS Multigenerational Longitudinal Panel

Steven Ruggles, Jonas Helgertz, Catherine Fitch

DOI https://doi.org/10.23889/ijpds.v9i5.2870

Published online: Sep 10, 2024

Exploring variations in patient safety events across equity-deserving populations

Dana Riley, Eric De Prophetis, Mayuri Mahendran, Geoffrey Hynes, Ezra Hart, Rukayyah Akinnibosun, Keith Denny

DOI https://doi.org/10.23889/ijpds.v9i5.2871

Published online: Sep 10, 2024

Addressing data gaps on long-term care in Canada through data linkage

Kristyn Frank

DOI https://doi.org/10.23889/ijpds.v9i5.2872

Published online: Sep 10, 2024

Differences in health visiting contacts for children of mothers with and without a history of adversity-related hospital admissions in England (2018/19 to 2019/20): an analysis of novel linked community health and hospital data.

Louise Mc Grath-Lone, Jenny Woodman, Amanda Clery, Mengyun Liu, Catherine Bunting, Katie Harron

DOI https://doi.org/10.23889/ijpds.v9i5.2873

Published online: Sep 10, 2024

Using Integrated Administrative Data for Promoting Access to Early Childhood Education Programs

Hannah Kim, Heather Rouse

DOI https://doi.org/10.23889/ijpds.v9i5.2874

Published online: Sep 10, 2024

Representation in the UK MS Register: A Comparison of Nationwide Ethnicity and Register Data

Rod Middleton, Elaine Craig

DOI https://doi.org/10.23889/ijpds.v9i5.2875

Published online: Sep 10, 2024

Development of an Enhanced System Review for Public Agency Multi-Sectoral Integrated Data Systems

Baron Rodriguez

DOI https://doi.org/10.23889/ijpds.v9i5.2876

Published online: Sep 10, 2024

Adapting to evidence users: accessibility and incentives

Michael Lenczner

DOI https://doi.org/10.23889/ijpds.v9i5.2877

Published online: Sep 10, 2024

Validated Administrative Data-Based ICD-10 Algorithms for Chronic Conditions

Angela Kuang, Claire Xu, Danielle Southern, Namneet Sandhu, Hude Quan

DOI https://doi.org/10.23889/ijpds.v9i5.2878

Published online: Sep 10, 2024

Birthing Unit Closures: Impacts and Opportunities in Iowa

W. Todd Abraham, Heather Rouse, Cora Herbkersman, Gio Chighladze

DOI https://doi.org/10.23889/ijpds.v9i5.2879

Published online: Sep 10, 2024

Data Integration to Support Child Care Business Sustainability: Iowa’s Child Care Connect

Heather Rouse, W. Todd Abraham

DOI https://doi.org/10.23889/ijpds.v9i5.2880

Published online: Sep 10, 2024

As our population changes, so must we: how race and ethnicity data merging has evolved over time in the Wisconsin Administrative Data Core

Krista Bryz-Gornia, Katie Thornton

DOI https://doi.org/10.23889/ijpds.v9i5.2881

Published online: Sep 10, 2024

Balancing Privacy and Precision: Evaluating Meta-Analysis for National Health Data Integration in Canada

Megan Harmon, Jason Black, Na Li, Tolulope Sajobi, Jessalyn Holodinsky, Tyler Williamson

DOI https://doi.org/10.23889/ijpds.v9i5.2882

Published online: Sep 10, 2024

Knowledge-Driven Data Sharing Governance: Developing a data provenance model for constructing context-aware data sharing frameworks for linkage data within the All of Us Research Program.

Melissa Haendel, Nandita Rahman, Richard Moffitt, Charisse Madlock-Brown, Emily Pfaff, Jim Phuong, Daniel Barth-Jones, Jasmin Phua, Chris Chute, David Galey, Brian Gugerty, Anjene Musick, Lew Berman, Andrea Ramirez

DOI https://doi.org/10.23889/ijpds.v9i5.2883

Published online: Sep 10, 2024

Applying Trial Emulation Methods to Population-Scale Linked Electronic Health Records for Individuals with Multiple Long-Term Conditions Whilst Adjusting for Informative Observations

Keith Abrams, James Rafferty, Jane Lyons, Ronan Lyons, Rhiannon Owen

DOI https://doi.org/10.23889/ijpds.v9i5.2884

Published online: Sep 10, 2024

Demographic characteristics of those who cycle commute and the effect access to on- and off-road cycle paths has on cycle commute uptake.

Laurie Berrie, Chris Dibben, Zhiqiang Feng, Tom Clemens, Lee Williamson

DOI https://doi.org/10.23889/ijpds.v9i5.2885

Published online: Sep 10, 2024

The art of research cohort construction using administrative datasets

Lee Williamson

DOI https://doi.org/10.23889/ijpds.v9i5.2886

Published online: Sep 10, 2024

Understanding Housing Stability for Child Welfare-Involved Families

Sydney Johnson, Kristine Piescher, Leah Lindstrom Rhea, Amy Stetzel

DOI https://doi.org/10.23889/ijpds.v9i5.2887

Published online: Sep 10, 2024

Improving reproducibility and validity in measures of chronic disease incidence using large-scale linked data in Australia.

Kylie-Ann Mallitt, Jacqueline Stephens, Eleonora Dal Grande, Amandi Hiyare, Michelle Dickson, Allison Jaure, Jonathan Craig

DOI https://doi.org/10.23889/ijpds.v9i5.2888

Published online: Sep 10, 2024

Assessing Hospital Data Quality: Application of a Data Quality Tool in 15 Countries

Namneet Sandhu, Sarah Whittle, Lucia Otero Varela, Cathy A Eastwood, Danielle A Southern, Hude Quan

DOI https://doi.org/10.23889/ijpds.v9i5.2889

Published online: Sep 10, 2024

Providing data analytic services for national knowledge users in a federated system: learnings from two Canadian use cases

Raquel Duchen, Luke Mondor, Jodi Gatley, Refik Saskin, Jeff Bakal, Ted McDonald, John Knight, Nathan Nickel, Charles Burchill, Erik Youngson, Sandra Magalhaes, Andrew Goosen, Sonya Bowen, Lisa Flaten, Natalie Troke, Christine Warren, Zoe Hsu, Xueyi Chen, Lihui Liu, Yan Wang, Chandy Somayaji, Linyun Shen, Simon Youssef, Sarah Magee, Daniel Dutton

DOI https://doi.org/10.23889/ijpds.v9i5.2890

Published online: Sep 10, 2024

Progress and developments towards making historic administrative data research ready

Lee Williamson, Chris Dibben

DOI https://doi.org/10.23889/ijpds.v9i5.2891

Published online: Sep 10, 2024

Implementing Linkage Quality Assessments in Large-Scale Privacy Preserving Infrastructure: Did we kill them a second time and why are there zombies?

Kenneth Gersing, Jasmin Phua, Shaun Grannis, Sara Rogovin, Saad Ljazouli, Sam Michael, Chris Beesley

DOI https://doi.org/10.23889/ijpds.v9i5.2892

Published online: Sep 10, 2024

HHI: How housing intervention programmes are improving health outcomes for children in New Zealand

Ellie Johnson, Nevil Pierse, Chisholm Chisholm

DOI https://doi.org/10.23889/ijpds.v9i5.2893

Published online: Sep 10, 2024

Barriers and enablers to secondary use of multi-regional linked administrative health data for three distinct user groups: academic researchers, health-system knowledge users, and private sector researchers

Raquel Duchen, Donna Curtis Maillet, Ted McDonald, Jodi Gatley, Keltie Gale, Minnie Ho, Michael Schull, Trish Caetano, Anne Hayes

DOI https://doi.org/10.23889/ijpds.v9i5.2894

Published online: Sep 10, 2024

Using System Dynamics for Local Authority Public Health practice in England

Abraham George

DOI https://doi.org/10.23889/ijpds.v9i5.2895

Published online: Sep 10, 2024

Comparing terminology mappings to ICD-10 coded data in Discharge Abstract Database (DAD) in Alberta, Canada

Namneet Sandhu, Bing Li, Danielle A Southern, Glenda Tower, Debbie Onos, Anita Lochhead, Sarah Whittle, Hude Quan

DOI https://doi.org/10.23889/ijpds.v9i5.2896

Published online: Sep 10, 2024

Association between neighbourhood poverty and type 2 diabetes risk. Does moving from a high to lower poverty neighbourhood reduce diabetes risk?

Sharmin Majumder, Gillian Booth, Rahim Moineddin, Andrew Pinto

DOI https://doi.org/10.23889/ijpds.v9i5.2897

Published online: Sep 10, 2024

Implementing Data Governance with Multi-Modal Privacy-Preserving Record Linkages between Restricted and Public Open Enclaves

Kenneth Gersing, Sam Michael, Fred Prior, Joel Saltz, Richard Moffitt, Sara Rogovin, Jasmin Phua, Shaun Grannis, Ben Amor, Andrew Girvin, Ahmad Baghal

DOI https://doi.org/10.23889/ijpds.v9i5.2898

Published online: Sep 10, 2024

Enhancing integration of administrative databases in South Africa's HIV program: Validation of record linkage using non-representative gold standard

Evelyn Lauren, Dickman Gareta, Khumbo Shumba, Dorina Onoya, Jacob Bor

DOI https://doi.org/10.23889/ijpds.v9i5.2899

Published online: Sep 10, 2024

The Fundamental Role of Linkage Uncertainty in Epidemiological Analysis of Big Data

Jacob Bor, Evelyn Lauren

DOI https://doi.org/10.23889/ijpds.v9i5.2900

Published online: Sep 10, 2024

Data Modernization Opportunity: Alignment between US Public Health Data Policies and Public Health Ethics

Regen Weber-Fares, Fallon Cochlin, Hye-Chung Kum, Cason Schmit

DOI https://doi.org/10.23889/ijpds.v9i5.2901

Published online: Sep 10, 2024

The use of Supervised Learning to perform pairwise classification for Record Linkage over real world data

Ramon Pereira, Wagner Junior, Augusto Afonso Guerra Junior

DOI https://doi.org/10.23889/ijpds.v9i5.2902

Published online: Sep 10, 2024

Iowa’s Integrated Data System for Decision-Making (I2D2): a collaborative approach for responsible and relevant use of population data

Heather Rouse, W. Todd Abraham

DOI https://doi.org/10.23889/ijpds.v9i5.2903

Published online: Sep 10, 2024

Developing and using a full-population resource from Washington State administrative data

Jennifer L Romich, Shannon Harper, Sofia G Ayala, Callie Freitag, Elizabeth Pelletier, Geraldine Germain, Tagoipah Mathno

DOI https://doi.org/10.23889/ijpds.v9i5.2904

Published online: Sep 10, 2024

Evidence from an Applied Health Research Question: Health Equity Profiles of Community Health Centre (CHC) and non-CHC clients

Lesley Plumptre, Eliane Kim, Angela Robertson, Jennifer Rayner, Shelly-Ann Hall, Cynthia Damba, Michael Paterson, Luke Mondor

DOI https://doi.org/10.23889/ijpds.v9i5.2905

Published online: Sep 10, 2024

Platform enabling population-level imaging and data linkage in Scotland

James Sutherland, Thomas Nind, Ruairidh MacLeod, Andrew Brooks, Bianca Prodan, Susan Krueger, Emily Jefferson

DOI https://doi.org/10.23889/ijpds.v9i5.2906

Published online: Sep 10, 2024

A novel encryption protocol for facilitating de-identification of genomics health data

David Copeland, Alasdair Taylor

DOI https://doi.org/10.23889/ijpds.v9i5.2907

Published online: Sep 10, 2024

Evaluation of a Multi-Component Phenotype Algorithm for Systemic Lupus Erythematosus across the PCORnet, OMOP, and i2b2 Common Data Models

Steven Tran, Luke Rasmussen, Jennifer Pacheco, Philip Silberman, Martin Borsje, Prasanth Nannapaneni, Daniel Schneider, Yuan Luo, Abel Kho, Rosalind Ramsey-Goldman, Theresa Walunas

DOI https://doi.org/10.23889/ijpds.v9i5.2908

Published online: Sep 10, 2024