Vol. 8 No. 4 (2023): IJPDS Special Issue: Advances and Innovation in Data Governance

Published: September 20, 2023

Research Articles

Towards a standardised cross-sectoral data access agreement template for research: a core set of principles for data access within trusted research environments

Rachel Brophy, Ester Bellavia, Maeve Groot Bluemink, Katharine Evans, Munisa Hashimi, Yemi Macaulay, Edel McNamara, Allison Noble, Paola Quattroni, Amanda Rudczenko, Andrew D Morris, Cassie Smith, Andy Boyd
DOI https://doi.org/10.23889/ijpds.v8i4.2169
Published online: Oct 9, 2023

The Common governance model: a way to avoid data segregation between existing trusted research environment

Fatemeh Torabi, Chris Orton, Emma Squires, Sharon Heys , Richard Hier, Ronan A. Lyons, Simon Thompson
DOI https://doi.org/10.23889/ijpds.v8i4.2164
Published online: Nov 9, 2023

Four Questions to Guide Decision-Making for Data Sharing and Integration

Amy Hawn Nelson, Sharon Zanti
DOI https://doi.org/10.23889/ijpds.v8i4.2159
Published online: Oct 4, 2023

Features

Health Data Governance for Research Use in Alberta

Namneet Sandhu, Sarah Whittle, Danielle A Southern, Bing Li, Erik Youngson, Jeffery A Bakal, Christie Mcleod, Lexi Hilderman, Tyler S Williamson, Ken Cheligeer, Robin L Walker, Padma Kaul, Hude Quan, Cathy A Eastwood
DOI https://doi.org/10.23889/ijpds.v8i4.2160
Published online: Oct 26, 2023

Essential requirements for the governance and management of data trusts, data repositories, and other data collaborations

P Alison Paprica, Monique Crichlow, Donna Curtis Maillet, Sarah Kesselring, Conrad Pow, Thomas P. Scarnecchia, Michael J Schull, Rosario G. Cartagena , Annabelle Cumyn, Salman Dostmohammad, Keith O. Elliston, Michelle Greiver, Amy Hawn Nelson, Sean L. Hill, Wanrudee Isaranuwatchai, Evgueni Loukipoudis, James Ted McDonald, John R. McLaughlin, Alan Rabinowitz, Fahad Razak, Stefaan G. Verhulst, Amol A. Verma, J. Charles Victor, Andrew Young, Joanna Yu, Kimberlyn McGrail
DOI https://doi.org/10.23889/ijpds.v8i4.2142
Published online: Sep 20, 2023

Commentaries

Implementing the English health inequalities agenda: addressing challenges to person-level, cross-sectoral data linkage, access and routine use for local authority public health

Abraham George, Richard Powell, Mala Rao
DOI https://doi.org/10.23889/ijpds.v8i4.2166
Published online: Feb 7, 2024