Variation in hospital cost trajectories at the end of life by age, multimorbidity and cancer type

Katharina Diernberger, Xhyljeta Luta, Joanna Bowden, Joanne Droney, Elizabeth Lemmon, Giovanni Tramonti, Bethany Shinkins, Ewan Gray, Joachim Marti, Peter S. Hall
Published online: Jan 16, 2023

Generating synthetic data from administrative health records for drug safety and effectiveness studies

Olawale F. Ayilara, Robert W. Platt, Matt Dahl, Janie Coulombe, Pablo Gonzalez Ginestet, Dan Chateau, Lisa M. Lix
Published online: Nov 27, 2023

Lessons learned from using linked administrative data to evaluate the Family Nurse Partnership in England and Scotland

Francesca L Cavallaro, Rebecca Cannings-John, Fiona Lugg-Widger, Ruth Gilbert, Eilis Kennedy, Sally Kendall, Michael Robling, Katie L Harron
Published online: May 11, 2023

Overcoming ethical and legal obstacles to data linkage in health research: stakeholder perspectives

Julie-Anne Smit, Rieke van der Graaf , Menno Mostert , Ilonca Vaartjes , Mira Zuidgeest , Diederik Grobbee, Johannes J.M. van Delden
Published online: Sep 25, 2023

Record linkage for Routinely Collected Health Data in an African Health Information Exchange

Themba Mutemaringa, Alexa Heekes, Mariette Smith, Andrew Boulle, Nicki Tiffin
Published online: Mar 2, 2023

Color Coded Health Data: Factors related to willingness to share health information in South Asian community members in Canada

Iffat Naeem, Meriem Aroua, Nashit Chowdhury, Vineet Saini, Hude Quan, Tanvir C Turin
Published online: Jun 20, 2023

Machine learning models in trusted research environments -- understanding operational risks

Felix Ritchie, Amy Tilbrook, Christian Cole, Emily Jefferson, Susan Krueger, Esma Mansouri-Bensassi, Simon Rogers, Jim Smith
Published online: Dec 14, 2023

Establishment of a birth-to-education cohort of 1 million Palestinian refugees using electronic medical records and electronic education records

Zeina Jamaluddine, Akihiro Seita, Ghada Ballout, Husam Al-Fudoli, Gloria Paolucci, Shatha Albaik, Rami Ibrahim, Miho Sato, Hala Ghattas, Oona Campbell
Published online: Oct 24, 2023

Correlates of child mental health and substance use related emergency department visits in Ontario: A linked population survey and administrative health data study

Jinette Comeau, Li Wang, Laura Duncan, Jordan Edwards, Katholiki Georgiades, Kelly K. Anderson, Piotr Wilk, Tammy Lau
Published online: Aug 14, 2023

The practicalities of adapting UK maternity clinical information systems for observational research: Experiences of the POOL study

Fiona Lugg-Widger, Christian Barlow, Rebecca Cannings-John, Chris Gale, Nicola Houlding, Rebecca Milton, Rachel Plachcinski, Michael Robling, Julia Sanders
Published online: Aug 7, 2023

Using novel data linkage of biobank data with administrative health data to inform genomic analysis for future precision medicine treatment of congenital heart disease

Samantha J. Lain, Gillian M. Blue, Bridget R. O'Malley, David S. Winlaw, Gary Sholler, Sally L. Dunwoodie, Natasha Nassar, The Congenital Heart Disease Synergy Study group
Published online: Nov 14, 2023

Federated learning for generating synthetic data: a scoping review

Claire Little, Mark Elliot, Richard Allmendinger
Published online: Oct 31, 2023

De-identification of Free Text Data containing Personal Health Information: A Scoping Review of Reviews

Bekelu Negash, Alan Katz, Christine J. Neilson, Moniruzzaman Moni, Marcello Nesca, Alexander Singer, Jennifer E. Enns
Published online: Dec 12, 2023

Assistive technology access in longitudinal datasets: a global review

Jamie Danemayer, Sophie Mitra, Cathy Holloway, Shereen Hussein
Published online: Mar 16, 2023

Study protocol: Generation Victoria (GenV) special care nursery registry

Jing Wang, Yanhong Jessika Hu, Lana Collins, Anna Fedyukova, Varnika Aggarwal, Fiona Mensah, Jeanie L. Y. Cheong, Melissa Wake, and on behalf of the GenV Newborns Working Group
Published online: Jan 10, 2024

Developing a linked electronic health record derived data platform to support research into healthy ageing

Nadine Andrew, Richard Beare, Tanya Ravipati, Emily Parker, David Snowdon, Kim Naude, Velandai Srikanth
Published online: Jun 12, 2023

VIKING II, a Worldwide Observational Cohort of Volunteers with Northern Isles Ancestry

Shona Kerr, Rachel Edwards, David Buchanan, John Dean, Zosia Miedzybrodzka, James Wilson
Published online: May 16, 2023

Orthopedic and ophthalmology surgical service projection modelling in Manitoba: Research approach for a data linkage study

Alan Katz, Hannah Owczar, Carole Taylor, John-Micheal Bowes; Ruth-Ann Soodeen
Published online: Oct 16, 2023

Record linkage as a vital key player for the COVID-19 syndemic -- The call for legal harmonization to overcome research challenges

Julia Nadine Doetsch, Eero Kajantie, Vasco Dias, Marit S. Indredavik, Randi Kallar Devold, Raquel Teixeira, Jarkko Reittu, Henrique Barros
Published online: Jun 13, 2023

Advancing cross-sectoral data linkage to understand and address the health impacts of social exclusion: Challenges and potential solutions

Ms Lindsay A. Pearce, Associate Professor Rohan Borschmann, Dr Jesse T. Young, Professor Stuart A. Kinner
Published online: Jun 7, 2023