When we took over the Directorship of IPDLN in January 2021, the world was very much still in the grip of the Covid-19 pandemic. In the UK, our third national lockdown had just started, with hotel quarantine for travellers from 33 high-risk countries coming into place in February. Contemplating how to plan a major international conference in 2022 seemed like a very daunting task, when it was far from clear if people would want to – or be able to – travel. Following the excellent IPDLN 2020 online conference organised by the team in Adelaide, Australia, we also knew the 2022 conference would need to be a hybrid conference. This would enable it to have all the networking benefits of an in-person conference along with the benefits of an online conference.

With the theme of the conference decided upon, ‘Data linkage research: informing policy and practice’, we began to promote in earnest. It was a huge relief to both the Scientific Committee (chaired by Emma) and Conference Organising Committee (chaired by Chris) when abstracts and registrations came flooding in. In total, 346 abstracts were submitted and reviewed, resulting in 281 oral presentations and 29 poster presentations.

Abstracts were across a range of topics including: data linkage, methods, systems and technology; research using real world data; multi-sectoral data linkage; linking data to produce official statistics; ethics, law and social implications; and public engagement and involvement in population data research. Thirty of the presentations were from either PhD or Masters students. Bursaries were awarded to 17 of these students from a range of countries, to help with the costs associated with attending a conference such as this.

We are delighted that the abstracts presented at IPDLN 2022 are being published in this issue of the IJPDS, to ensure that the views, ideas and research outcomes are available to a wider audience. We hope that the work covered by the abstracts is of interest to you. If it is, please do contact the abstract authors to find out more. This will promote collaboration and help to ensure that IPDLN activities related to population data linkage have an even greater impact. You may also like to consider joining the network if you are not a member already. Membership |www.ipdln.org

Dr Emma Gordon & Professor Chris Dibben
IPDLN Co-Directors 2021 - 2022

Using population-scale medication data to evaluate the impact of the COVID-19 pandemic on the usage of analgesics by cancer patients.

Jun Han, Ashley Akbari, Fatemeh Torabi, Rowena Griffiths, Jane Lyons, Martin Rolles, Catherine Arnold, Dyfed Wyn Huws, Mark Lawler, Ronan Lyons
Published online: Aug 25, 2022

Who is your community? Co-designing a community engagement strategy for an emerging data platform.

Kim Naude, Emily Parker, Roisin McNaney, Michelle Daniel, Richard Beare, Velandai Srikanth, Nadine Andrew
Published online: Aug 25, 2022

What do women living with HIV think about research on children born HIV-free in the UK?

Laurette Bukasa, Angelina Namiba, Shema Tariq, Matilda Brown, Estelle Ndungu, Mercy Nangwale, Gillian Letting, Patricia Chirwa, Claire Thorne
Published online: Aug 25, 2022

The hospital burden of intergenerational contact with the welfare system: A whole-of-population liked data study.

Alexandra Procter, Catherine Chittleborough, Rhiannon Pilkington, Odette Pearson, Alicia Montgomerie, John Lynch
Published online: Aug 25, 2022

A population data-driven approach to identifying ‘Long COVID’ cases in support of diagnosis and treatment.

Jennifer Enns, Alan Katz, Marina Yogendran, Marcelo Urquia, Saman Muthukumarana, Surani Matharaarachchi, Alexander Singer, Nathan Nickel, Leona Star, Teresa Cavett, Yoav Keynan, Lisa Lix, Diana Sanchez-Ramirez
Published online: Aug 25, 2022

Health service use of infants involved in family justice care and supervision proceedings in Wales: a longitudinal national data linkage study.

Ian Farr, Carys Jones, Laura Cowley, Bachar Alrouh, Linda Cusworth, Ashley Akbari, Stefanie Doebler, Karen Broadhurst, David Odd, Lucy Griffiths
Published online: Aug 25, 2022

Record linkage for Routinely Collected Health Data in an African Health Information Exchange.

Themba Mutemaringa, Alexa Heekes, Andrew Boulle, Nicki Tiffin
Published online: Aug 25, 2022

Risk of a major adverse cardiovascular event (MACE) following first-ever hospitalisation for acute gout: a Western Australian population-level linked data study.

Derrick Lopez, David Preen, Warren Raymond, Charles Inderjeeth, Kevin Murray, Hans Nossent, Girish Dwivedi, Helen Keen
Published online: Aug 25, 2022

Sleep Medication Use by people with Cerebral Palsy: A Population Level Data Linkage Study.

Lisa Kent, Mary-Elaine McCavert, Karen McConnell, Oliver Perra, Aideen Maguire, Claire Kerr
Published online: Aug 25, 2022

Considerations and Consequences when using First Nations Identifiers in Administrative Data Research.

Anita Durksen, Wanda Phillips-Beck, Joykrishna Sarkar, Farzana Quddus, Jennifer Enns, Mariette Chartier, Nathan Nickel, Marni Brownell
Published online: Aug 25, 2022

Pandemic effects on health condition specific healthcare encounters in British Columbia, Canada.

Jason Flindall, Saiganesh Dhannewar, Mikhail Skrigitil, Siddharth Chadda, Samantha Magnus, Heather Richards, Lisa Corscadden
Published online: Aug 25, 2022

Severe mental illnesses and mortality following COVID-19 infection: Data linkage study using the Clinical Practice Research Database (CPRD).

Jayati Das-Munshi, Alex Dregan, Robert Stewart, Matthew Hotopf, Ioannis Bakolis, Laia Becares, Josephine Ocloo, Ruth Stuart, Elisa Impara
Published online: Aug 25, 2022

Augmenting laboratory COVID serology data granularity for SARS-CoV-2 reporting.

Esmond Urwin, Andy Harris, Jenny Johnstone, Erum Masood, Antony Chuter, Michael Ferguson, Joanne Martin, Neil Sebire, Philip Quinlan, Emily Jefferson
Published online: Aug 25, 2022

Direct and indirect effects of the COVID-19 pandemic on mortality: an individual-level population-scale analysis.

Rhiannon Owen, Jane Lyons, Ashley Akbari, Gareth Davies, Rowena Griffths, Fatemeh Torabi, Ronan Lyons
Published online: Aug 25, 2022

The effect of opioid analgesics, benzodiazepines, gabapentinoids, and opioid agonist treatment on mortality risk among opioid-dependent people.

Chrianna Bharat, Natasa Gisev, Sebastiano Barbieri, Tim Dobbins, Sarah Larney, Michael Farrell, Louisa Degenhardt
Published online: Aug 25, 2022

Severe mental illness and quality of diabetes care: a retrospective national linked cohort study.

Stine Scheuer, Kelly Fleetwood, Kirsty Licence, Stewart Mercer, Daniel Smith, Sarah Wild, Caroline Jackson
Published online: Aug 25, 2022

Design and Creation of a Population-Wide Linkage Spine.

Elena Ougrinovski, Bronwyn Wilson
Published online: Aug 25, 2022

Exploring a novel linked dataset and building linked data analytics skills in Public Health Intelligence teams in Sussex.

Natalie Johnston, Elizabeth Ford, Richard Tyler, Vicki Spencer-Hughes, Anotida Madzvamuse, Graham Evans, Kate Gilchrist
Published online: Aug 25, 2022

Trends in the removal of Aboriginal children in Western Australia.

Benjamin Harrap, Alison Gibberd, Melissa O'Donnell, Koen Simons, Sandra Eades
Published online: Aug 25, 2022

Linkage of national clinical datasets without patient identifiers using probabilistic methods.

Helen Blake, Linda Sharples, Katie Harron, Jan van der Meulen, Kate Walker
Published online: Aug 25, 2022

Our Children, Our Future: The Health and Well-being of First Nations Children in Manitoba, Canada.

Mariette Chartier, Wanda Phillips-Beck, Marni Brownell, Leona Star, Nora Murdock, Wendy Au, John-Michael Bowes, Brooke Cochrane, Rhonda Campbell
Published online: Aug 25, 2022

Chronic disease management improves survival but not hospital presentations: a target trial approach using linked data from the Australian Stroke Clinical Registry.

Nadine Andrew, David Ung, Muideen Olayia, Lachlan Dalli, Leonid Churilov, Joosup Kim, Dominique Cadilhac, Vijaya Sundararajan, Amanda Thrift, Natasha Lannin, Mark Nelson, Velandai Srikanth, Monique Kilkenny
Published online: Aug 25, 2022

Data First: Criminal Courts Linked Data research report.

Georgina Eaton, Kylie Hill, Amy Summerfield
Published online: Aug 25, 2022

Prediction of Asthma Risk Using Family Health Histories identified from Population-based Electronic Healthcare Records.

Amani Hamad, Lin Yan, Joseph Delaney, Mohammad Jafari Jozani, Pingzhao Hu, Shantanu Banerji, Lisa Lix
Published online: Aug 25, 2022

Assessing the impacts of COVID-19 on Care Homes in Wales.

Richard Fry, Joe Hollinghurst, Laura North, Chris Emmerson, Sara Long, Ashley Akbari, Mike Gravenor, Ronan Lyons
Published online: Aug 25, 2022

Bespoke automated linkage to enable analysis of covid deaths by ethnicity.

Shelley Gammon, Rachel Shipsey, Charlie Tomlin, Josie Plachta
Published online: Aug 25, 2022

Early Versus Late Contact with the Youth Justice System: Differences in Characteristics Measured at Birth, Child Protection System Contact and Adolescent Mental Health Outcomes.

Catia Malvaso, Michaela Magann, Pedro Santiago, Alicia Montgomerie, Rhiannon Pilkington, Paul Delfabbro, John Lynch
Published online: Aug 25, 2022

UK Longitudinal Linkage Collaboration – and the challenges in creating a new Longitudinal Populations Studies linked data resource.

Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Emma Turner, Andy Boyd
Published online: Aug 25, 2022

Preliminary comparison of gun homicide deaths for non-probation and probation clients.

Kruti Doshi, Keiki Hinami, Jordan Boulger, Huiyuan Zhang, William Trick, Luke Rasmussen
Published online: Aug 25, 2022

Mapping the use of patient reported outcomes at a health organisation to inform integration into hospital data systems.

David Snowdon, Velandai Srikanth, Lucy Marsh, Richard Beare, Emily Parker, Nadine Andrew
Published online: Aug 25, 2022

Costs of missed work among employed people with inflammatory bowel disease: a cross-sectional population-representative study.

Ellen Kuenzig, Michael Lebenbaum, Joyce Mason, Manav Vyas, Gilaad Kaplan, Sanjay Murthy, Laura Targownik, Eric Benchimol
Published online: Aug 25, 2022

Harnessing the power of data linkage to enrich the cancer research ecosystem in Canada.

Robin Urquhart, Philip Awadalla, Parveen Bhatti, Trevor Dummer, Simon Gravel, Jennifer Vena, Riaz Alvi, Philippe Broet, Cynthia Kendell, Victoria Kirsh, Guillaume Lettre, Kimberly Skead, Grace Shen-Tu, Ellen Sweeney, Donna Turner
Published online: Aug 25, 2022

Associations between household garden size and childhood obesity in Wales, UK.

Rhodri Johnson, Amy Mizen, Rowena Bailey, Lucy Griffiths, Richard Fry
Published online: Aug 25, 2022

Variation in access rates amongst patients groups in Wales for specialist interventions.

Gareth Davies, Kendal Smith, Ashley Akbari, Rowena Bailey, Lloyd Evans, Gareth John, Michael Thomas, Kerryn Lutchman-Singh
Published online: Aug 25, 2022

Quantifying intersecting structural racism in the youth criminal justice system: a whole-population linked administrative data study from Manitoba.

Marni Brownell, Stephanie Sinclair, Nathan Nickel, Lorna Turnbull, Rick Linden, Rosemary Ricciardelli, Wendy Au, Jennifer Enns, Mariette Chartier, Marcelo Urquia, Alyson Mahar, Elizabeth Wall-Wieler, Dan Chateau, Matthew Sanscartier, Hygiea Casiano, Farzana Quddus, Drew Lambert, Ivy Ferland
Published online: Aug 25, 2022

Methamphetamine Use in Manitoba: An Evidence-to-Action (E2A) approach to a linked administrative data study.

Amy Freier, Carolyn Shimmin, Mariette Chartier, Jennifer Enns, Scott McCulloch, The Methamphetamine Use In Manitoba Research Team, Nathan Nickel
Published online: Aug 25, 2022

Linked administrative data can inform policy and practice: An academic - government research partnership in South Australia.

Rhiannon Pilkington, Alicia Montgomerie, Catia Malvaso, Dandara Haag, Angela Gialamas, Angela Gialamas
Published online: Aug 25, 2022

ICES Data and Analytic Services: Eight Years Young.

Minnie M. Ho, Stefana Jovanovska, Jenna Novess, Dina Skvirsky, Refik Saskin, J. Charles Victor
Published online: Aug 25, 2022

Defying Expectations: Can We Identify Neighbourhoods with “Other Than Expected” Developmental Outcomes?

Eric Duku, Barry Forer, Molly Pottruff, Martin Guhn, Magdalena Janus
Published online: Aug 25, 2022

An architecture for building cohorts of images from real-world clinical data from the whole Scottish population supporting research and AI development.

Emily Jefferson, Susan Krueger, Ruairidh Macleod, James Sutherland, Thomas Nind, Roy Mudie, Bianca Prodan, Andrew Brooks, Robert Wallace, Carole Morris, Jacqueline Caldwell, Rob Baxter, Mark Parsons
Published online: Aug 25, 2022

The path to approvals: Facilitating access to healthcare data via a local Governance Forum.

Joanne Lumsden, Katie Wilde, Sharon Gordon, Corri Black, Shantini Paranjothy
Published online: Aug 25, 2022

The UK Longitudinal Linkage Collaboration: a trusted research environment for the longitudinal research community.

Andy Boyd, Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Katharine Evans, Stella McLachlan, Richard Thomas, Emma Turner
Published online: Aug 25, 2022

The changing nature of patient attributes available for matching.

Yu Deng, Lacey Gleason, Adam Culbertson, Don Asmonga, Shaun Grannis, Abel Kho
Published online: Aug 25, 2022

What are the risks for Domiciliary Care Workers in Wales from COVID-19?

Rebecca Cannings-John, Fiona Lugg-Widger, Michael Robling, Simon Schoenbuchner, Hywel Jones
Published online: Aug 25, 2022

The clinically extremely vulnerable to COVID: Identification and changes in healthcare while self-isolating (shielding) during the coronavirus pandemic.

Jessica Butler, Mintu Nath, Dimitra Blana, William Ball, Nicola Beech, Corri Black, Graham Osler, Sebastien Peytrignet, Magdalena Rzewuska, Katie Wilde, Artur Wozniak, Simon Sawhney
Published online: Aug 25, 2022

Predicting Surgical Service Demands: A Modeling challenge using Administrative Data.

Alan Katz, Carole Taylor, Ekuma Okechukwu, Ruth-Ann Soodeen
Published online: Aug 25, 2022

Accelerate the Creation of the cross agency Human Services Dataset.

Pooja Nair, Michael Smith, Maria Theochari
Published online: Aug 25, 2022

COVID-19 transmission and infection: linkage of COVID-19 Infection Survey, Test and Trace, and Patient Demographics Survey.

Leah Maizey, Josie Plachta, Holly Clarke, Sarah Collyer, Sarah Cummins, Gabriela De La Serna, Shelley Gammon, Ben Harries, Elizabeth Pereira, Caroline Youell
Published online: Aug 25, 2022

Engaging im/migrant communities in cross-sectoral health and immigration data linkage research.

Ruth Lavergne, Ruth Carillo, Shira Goldenberg, Selamawit Hagos, Stefanie Machado, Sandra Peterson, Elmira Tayyar, Padmini Thakore, Cecilia Sierra-Heredia, Susitha Wanigaratne, Mei-Ling Wiedmeyer
Published online: Aug 25, 2022

Associations between viewable greenspace and adolescent wellbeing in Wales.

Amy Mizen, James Rafferty, Emily Lowthian, Rowena Bailey , Ann John, Richard Fry, Lucy Griffiths
Published online: Aug 25, 2022

The impact of COVID-19 pandemic on trends in the recorded incidence of Long-Term Conditions identified from routine electronic health records between 2000 and 2021 in Wales: a population data linkage study.

Cathy Qi, Tim Osborne, Rowena Bailey, Joe Hollinghurst, Ashley Akbari, Alison Cooper, Ruth Crowder, Holly Peters, Rebecca-Jane Law, Anthony Davies, Ruth Lewis, Mark Walker, Adrian Edwards, Ronan Lyons
Published online: Aug 25, 2022

Record linkage studies of drug-related deaths among former adult prisoners who have been released to the community: a scoping review.

Janine Cooper, Ifeoma Onyeka, Euan Paterson, Dermot O'Reilly, Richard Kirk, Michael Donnelly
Published online: Aug 25, 2022

Analysing Siamese Neural Network Architectures for Computing Name Similarity.

Nicholas Vinden, Jeremy Foxcroft, Luiza Antonie
Published online: Aug 25, 2022

Potentially non-beneficial interventions in the last 100 days of life of patients with cancer: A population-based retrospective cohort study.

Colleen Webber, Abe Hafid, Anastasia Gayowsky, Michelle Howard, Peter Tanuseputro, Aaron Jones, Mary Scott, Amy Hsu, James Downar, Doug Manuel, Katrin Conen, Sarina Isenberg
Published online: Aug 25, 2022

Changes in healthcare costs and survival in the era of immunotherapy and targeted systemic therapy for melanoma.

Paul Nguyen, Sarah Bateni, Antoine Eskander, Soo Jin Seung, Nicole Mittmann, Kelvin Chan, Nicole Look-Hong, Timothy Hanna
Published online: Aug 25, 2022

Linking Databases in Collaborative and Culturally Safe Ways to Evaluate the Effectiveness of PAX-Good Behaviour Game (PAX) in First Nations Communities.

Mariette Chartier, Garry Munro, Nora Murdock, Frank Turner, Leanne Boyd, Laurence Katz, Marni Brownell, Depeng Jiang , Amanda Martinson, Janique Fortier, Jitender Sareen
Published online: Aug 25, 2022

BREATHE: The Health Data Research Hub for Respiratory Health.

Chris Orton, David Ford, Aziz Sheikh, Jennifer Quint, Martin Tobin, Ian Hall, Christopher Griffiths, Jonathon Crompton, Monica Fletcher
Published online: Aug 25, 2022

Research feasibility and ethics in Scottish new-born blood spot archive.

Sarah Cunningham-Burley, Daniel L McCartney, Archie Campbell, Robin Flaig, Clare El Orange, Carol Porteous, Mhairi Aitken, Ciaran Mulholland, Sara Davidson, Selena M McCafferty
Published online: Aug 25, 2022

Brazilian governmental database linkage to correct the municipalities underreported cases in a time-dependent cluster analysis on COVID-19.

Anderson Ara, Jonatas Espirito Santo, Jackson Conceição, Marcos Ennes Barreto, Lilia Carolina Carneiro Costa, Rafael Felipe da Silva Souza, Rosemeire Leovigildo Fiaccone, Mauricio Lima Barreto, Maria Yury Travassos Ichihara
Published online: Aug 25, 2022

Exploring Social and Locality Variations of Dog Bites in Scotland Using Administrative Data Sources.

Jade Hooper, Paul Lambert, Hannah Buchanan-Smith, Tony Robertson
Published online: Aug 25, 2022

“All about communication" - a perspective on our public involvement practices in the Networked Data Lab in Grampian.

Magdalena Rzewuska, Sharon Gordon, William Ball, Jessica Butler, Achds Ppie Group
Published online: Aug 25, 2022

Experiences of Red River Métis Accessing COVID Vaccines: A partnership-based, whole-population linked administrative data study.

Nathan C. Nickel, Julianne Sanguins, Okechukwu Ekuma, Carole Taylor, Nkiruka Eze, Oludolapo Deborah Balogun, Hera Casidsid, Marni Brownell, Mariette Chartier, Francis Chartrand, Daniel Chateau, Michelle Driedger, Jennifer Enns, Alan Katz, Olena Klos, Lisa Lix, Alyson Mahar, Rachelle Neault, Marcelo Urquia
Published online: Aug 25, 2022

Relative rates of cancers and deaths in Australian communities with PFAS exposure.

Hsei Di Law, Bruce Armstrong, Catherine D'Este, Rose Hosking, Kayla Smurthwaite, Susan Trevenar, Nina Lazarevic, Martyn Kirk, Rosemary Korda
Published online: Aug 25, 2022

Exploring Goldstein et al.’s Scalelink method of data linkage.

Mary Ann Megan Cleaton, Josie Plachta, Rachel Shipsey
Published online: Aug 25, 2022

Challenges in public healthcare research data warehouse integration and operationalisation.

Tanya Ravipati, Nadine E Andrew, Velandai Srikanth, Richard Beare
Published online: Aug 25, 2022

Birth outcomes among Métis women and infants in Manitoba, Canada: A linked administrative data study using health system and justice system data.

Jennifer Enns, Julianne Sanguins, Marni Brownell, Lorna Turnbull, Marcelo Urquia, Alyson Mahar, Farzana Quddus, Hygiea Casiano, Shannon Allard Chartrand , Nathan Nickel
Published online: Aug 25, 2022

Rapid and Responsive Record Linkage to support NSW Health COVID-19 pandemic response.

Michael Nelson, Victoria Pye, Pooja Nair, Tim Harrold, Lisa McCallum, Lee Taylor
Published online: Aug 25, 2022

Ancillary Data Record Linkage to characterize the completeness of data for the All of Us Research Program.

Yuyang Yang, Kelsey Rodriguez, Melissa Basford, Sidd Nambiar, Lew Berman, Abel Kho
Published online: Aug 25, 2022

Exposure to PM 2.5 and Birth Outcomes: Evidence from a Population-wide Database.

Neil Rowland, Babak Jahanshahi, Duncan McVicar, Dermot O'Reilly, Mark McGovern
Published online: Aug 25, 2022

Adults in private family law proceedings in Wales: characteristics and vulnerabilities.

Linda Cusworth, Claire Hargreaves, Bachar Alrouh, Karen Broadhurst, Lucy Griffiths, Ashley Akbari, Ann John, Rhodri Johnson
Published online: Aug 25, 2022

Linking nationwide health and social registry data to inform the policy for Tuberculosis contact tracing in Brazil.

Mauro N. Sanchez, Priscila F.P.S. Pinto, Camila S.S. Teixeira, Joilda S. Nery, Davide Rasella, Samila O.L. Silva, Maria Yury Ichihara, Mauricio L. Barreto, Julia M. Pescarini
Published online: Aug 25, 2022

Public Engagement and other Essential Requirements for Data Trusts, Data Repositories and Other Data Collaborations.

Alison Paprica, Kim McGrail, Monique Crichlow, Donna Curtis Maillet, Sarah Kesselring, Conrad Pow, Thomas Scarnecchia, Michael Schull
Published online: Aug 25, 2022

Intergenerational welfare and contact with the child protection system.

Alexandra Procter, Catherine Chittleborough, Rhiannon Pilkington, John Lynch
Published online: Aug 25, 2022

Involvement and engagement of seldom-heard communities in big data research.

Piotr Teodorowski, Saiqa Ahmed, Naheed Tahir, Kate Fleming, Sarah Rodgers, Lucy Frith
Published online: Aug 25, 2022

Is PAX-Good Behaviour Game (PAX) Associated with Better Mental Health and Educational Outcomes for First Nations Children?

Mariette Chartier, Garry Munro, Depeng Jiang, Scott McCulloch, Wendy Au, Marni Brownell, Rob Santos, Frank Turner, Leanne Boyd, Nora Murdock, James Bolton, Jitender Sareen
Published online: Aug 25, 2022

Examining the quality and sample representativeness of linked 1958 National Child Development Study and Hospital Episode Statistics data.

Richard Silverwood, Nasir Rajah, Lisa Calderwood, Bianca De Stavola, Katie Harron, George Ploubidis
Published online: Aug 25, 2022

Use of “Hidden in Plain Sight” de-identification methodology in electronic healthcare data provides minimal risk of misidentification: Results from the iCAIRD Safe Haven Artificial Intelligence Platform.

Luke Farrow, Katie Wilde, Jaroslaw Dymiter, Moragh Boyle, Alexander Weir, James Blackwood, Charlie Mayor, David Harrison, Lesley Anderson
Published online: Aug 25, 2022

Using linked administrative data to build a Social Disparities Index for Covid-19 to evaluate the effects of inequalities on pandemic in Brazil.

Maria Yury Travassos Ichihara, Rosemeire Leovigildo Fiaccone, Lilia Carolina Carneiro da Costa, Aline Grimberg Pereira de Medeiros, Elzo Pereira Pinto Junior, Rafael Felipe da Silva Souza, Mauricio Lima Barreto, Anderson Ara, Emmanuelle Goes, Julia M Pescarini, Marcos Ennes Barreto, Jaime Gregorio
Published online: Aug 25, 2022

A national cohort of children born after assisted conception in the UK (1992-2009).

Mitana Purayastha, Stephen Roberts, Julian Gardiner, Daniel Brison, Scott Nelson, Deborah Lawlor, Alastair Sutcliffe
Published online: Aug 25, 2022

An investigation of kindergarten educator reported barriers and concerns and school neighbourhood composition in Ontario, Canada.

Natalie Spadafora, Caroline Reid-Westoby, Molly Pottruff, Jade Wang, Eric Duku, Magdalena Janus
Published online: Aug 25, 2022

The Intergenerational Transfer of Mental Disorders: A Population-based Multigenerational Linkage Study.

Amani Hamad, Barret Monchka, Leslie Roos, James Bolton, Aarhus University, Mohamed Elgendi, Lisa Lix
Published online: Aug 25, 2022

DASSL “Data Access Sharing Storage & Linkage” Proof-of-Concept: Health and Related Data Linkage in Ireland.

Orna Fennelly, Bruno Voisin, Marta Olszewska, Derek Corrigan, Frank Moriarty, Tom Fahey, Divyajyoti Sarkar, Sherif Nagy, Simon Wong
Published online: Aug 25, 2022

Revisiting the Quality of the Scottish Record Linkage System.

David Clark, John Reid, Dave Bailey, Suhail Iqbal, Heather Clydesdale, Ken Humphreys, Jade Carruthers, Lena Henderson, Martin Reid, Adebusola Ramsay
Published online: Aug 25, 2022

Impacts of past occupational injury and long-duration compensated work disability on future hospital admissions.

Daniel Griffiths, Michael Di Donato, Tyler Lane, Shannon Gray, Ross Iles, Janneke Berecki-Gisolf, Peter Smith, Alex Collie
Published online: Aug 25, 2022

GRAIMatter: Guidelines and Resources for AI Model Access from TrusTEd Research environments (GRAIMatter).

Emily Jefferson, Christian Cole, Alba Crespi Boixader, Simon Rogers, Maeve Malone , Felix Ritchie, Jim Smith, Francesco Tava, Angela Daly, Jillian Beggs, Antony Chuter
Published online: Aug 25, 2022

Is Long-Term Exposure to Ambient Air Pollution a Risk Factor for Parkinson’s Disease.

Babak Jahanshahi, Duncan McVicar, Neil Rowland, Mark McGovern, Dermot O'Reilly
Published online: Aug 25, 2022

Developmental disability among Aboriginal children in Western Australia (WA).

Alison Gibberd, Sandra Eades, Nicoletta Psilos, Jenny Bourke, Helen Leonard, Emma Carlin, Anne Kavanagh, Roz Walker, Melissa O'Donnell, Rebecca Colbung, Lesley Nelson
Published online: Aug 25, 2022

Better decision making practices and processes.

Felicity Flack, Carolyn Adams, Judy Allen
Published online: Aug 25, 2022

Comparing socio-economic measures as predictors of educational attainment.

Katy Huxley, Rhys Davies, Catherine Foster, Chris Taylor
Published online: Aug 25, 2022

Weeneebayko Area Health Authority-ICES-Laurentian University Collaboration: Working together to support communities with Indigenous Health Research in the James and Hudson Bay Region, in Northeast Ontario, Canada.

Beth Rachlis, Kathleen Qu, Justice Seidel, Yantao Zhao, Robert Gagnon, Sandra Kioke, Elaine Innes, Minnie Ho, Charles Victor, Sujitha Ratnasingham, Jennifer D. Walker, Loretta Loon
Published online: Aug 25, 2022

Pre-pregnancy maternal cardiovascular diseases and risk of offspring’s neurodevelopmental disorders: a population-based cohort study.

M. Zakir Hossin, Kyla A McKay, Lorena Fernández de La Cruz, Anna Sandström, Neda Razaz
Published online: Aug 25, 2022

Towards a Scottish Safe Haven Federation.

Chuang Gao, Charlie Mayor, Sophie McCall, Katie Wilde, Christian Cole, Emily Jefferson
Published online: Aug 25, 2022

An analysis of Covid-19 deaths and equality in Northern Ireland.

John Hughes, Jos Ijpelaar, Rita McAuley, Ian Shuttleworth, Estelle Lowry, Deborah Lyness
Published online: Aug 25, 2022

AD|ARC: Construction of a research ready dataset to better understand farmers and farming households.

Jennifer Hampton, Nicholas Webster, Sophie Jordan, Sian Morrison-Rees, Orla Bateson, James Watson, Scott McFarlane, Alastair McAlpine, Liam Cavin
Published online: Aug 25, 2022

Predicting Youth Justice supervision among young people placed in out-of-home care before age 10.

Catia Malvaso, Pedro Santiago, Rhiannon Pilkington, Alicia Montgomerie, John Lynch
Published online: Aug 25, 2022

A population-level study into health vulnerabilities of mothers and fathers involved in public law care proceedings in Wales, UK.

Rhodri Johnson, Laura North, Bachar Alrouh, Ann John, Kerina Jones, Ashley Akbari, Jon Smart, Simon Thompson, Claire Hargreaves, Stefanie Doebler, Linda Cusworth, Karen Broadhurst, David Ford, Lucy Griffiths
Published online: Aug 25, 2022

Clustering of 31 health conditions among multimorbid people in Fife and Tayside, Scotland: E-cohort analysis.

Adeniyi Fagbamigbe, Utkarsh Agrawal, Amaya Azcoaga-Lorenzo, Briana MacKerron, Colin McCowan
Published online: Aug 25, 2022

Mapping where patients access primary care providers.

Eliot Frymire, Peter Gozdyra, Michael Green, Imaan Bayoumi, Richard Glazier, Liisa Jaakkimainen, Shahriar Khan, Tara Kiran, Kamila Premji
Published online: Aug 25, 2022

Multi-jurisdictional Prostate Cancer Registry Linkage.

Christopher Radbone, Kerri Beckmann, David Roder, Michael O'Callaghan, Kim Moretti, Liesel Fitzgerald, Liz Buckley
Published online: Aug 25, 2022

Evaluating a school-based intervention through routine local authority data and national school data: Challenges and opportunities.

David Westlake, Kim Munnery, Linda Adara, Lena Meister, Philip Pallmann, Stavros Petrou, James White, Fiona Lugg-Widger
Published online: Aug 25, 2022

A configurable software platform for creating, reviewing and adjudicating annotation of unstructured text.

Richard Beare, Adam Morris, Tanya Ravipati, Elizabeth Le, Taya Collyer, Helene Roberts, Velandai Srikanth, Nadine Andrew
Published online: Aug 25, 2022

Public attitudes to population data research in 2022.

Shayda Kashef, Mary Cowan, Elizabeth Waind
Published online: Aug 25, 2022

Using Primary care data metrics to inform policy and practice: Human Health Resource implications.

Eliot Frymire, Michael Green, Richard Glazier, Shahriar Khan, Kamila Premji, Imaan Bayoumi, Liisa Jaakkimainen, Tara Kiran, Peter Gozdyra
Published online: Aug 25, 2022

Privacy Preserving Technologies in US Education.

Amy O'Hara, Stephanie Straus
Published online: Aug 25, 2022

Does cycling to work benefit mental health? A natural experiment using linked administrative data.

Laurie Berrie, Zhiqiang Feng, Tom Clemens, Lee Williamson, Chris Dibben
Published online: Aug 25, 2022

Scottish Medical Imaging Service - Technical and Governance controls.

Jackie Caldwell, Robert Wallace, Carole Morris, Simon Fleming, Rob Baxter, Ruairidh MacLeod, William Kerr, Donald Scobbie, Simon Rogers, Felix Ritchie, Esma Mansouri-Benssassi, Susan Krueger, Emily Jefferson
Published online: Aug 25, 2022

Using an Alternative Method to Estimate Overcount for Census 2021.

Zoe White, Johanna Hall, Kristina Xhaferaj
Published online: Aug 25, 2022

Maternal mental health and children’s development: a bi-directional relationship?

Emily Lowthian, Stuart Bedston, Ashley Akbari, Richard Fry, Katy Huxley, Rhodri Johnson, Sara Madeleine Kristensen, Rhiannon Owen, Chris Taylor, Lucy Griffiths
Published online: Aug 25, 2022

Reflections as a settler person doing research in collaboration with Indigenous peoples.

Benjamin Harrap, Alison Gibberd , Melissa O'Donnell, Koen Simons, Sandra Eades
Published online: Aug 25, 2022

Feasibility of evaluating COVID-19 vaccine effectiveness and variant severity through a routine health information exchange.

Andrew Boulle, Alexa Heekes, Hannah Hussey, Reshna Kassanjee, Mary-Ann Davies
Published online: Aug 25, 2022

The geography of overdose in British Columbia.

Amanda Slaunwhite, Kevin Hu, Brian Klinkenberg, Wenqi Gan
Published online: Aug 25, 2022

Developing Machine Learning Algorithms on Routinely Collected Administrative Health Data - Lessons from Ontario, Canada.

Vinyas Harish, Mathieu Ravaut, Seung Eun Yi, Jahir Gutierrez, Hamed Sadeghi, Kin Kwan Leung, Tristan Watson, Kathy Kornas, Tomi Poutanen, Maksims Volkovs, Laura Rosella
Published online: Aug 25, 2022

Assessing the reliability of ethnicity data recorded in health-related administrative datasets in England.

Isobel Ward, Cameron Razieh, Rose Drummond, Vahé Nafilyan, Neil Bannister, Myer Glickman
Published online: Aug 25, 2022

Estimating Disease Heritability from Electronic Healthcare Records: A Proof-of-Concept Study.

Lisa Lix, Amani Hamad, Lin Yan, Joseph A. Delaney, Elizabeth Wall-Wieler, Mohammad Jafari Jozani, Shantanu Banerji, Olawale Ayilara, Pingzhao Hu
Published online: Aug 25, 2022

Barriers and facilitators to generating synthetic administrative data for research.

Theodora Kokosi, Bianca De Stavola, Robin Mitra, Andrew Copas, Katie Harron
Published online: Aug 25, 2022

The use of social care services by individuals aged 50 and over diagnosed with colorectal cancer in Scotland: a linked data study.

Elizabeth Lemmon, Alasdair Rutherford, Peter Hall, David Bell, David Henderson, Amy Downing, Steve Clark
Published online: Aug 25, 2022

Associations between neighbourhood fast-food environments and hypertension in Canadian adults.

Andrew C. Stevenson, Rachel C. Colley, Kaberi Dasgupta, Leia M. Minaker, Mylene Riva, Michael J. Widener, Nancy A. Ross
Published online: Aug 25, 2022

Biases arising from using linked administrative data for research: A conceptual framework from registration to analysis.

Richard Shaw, Katie Harron, Julia Pescarini, Elzo Júnior, Andressa Siroky, Desmond Campbell, Ruth Dundas, Maria Yury Ichihara , Mauricio Barreto, Vittal Katikireddi
Published online: Aug 25, 2022

Challenges and lessons learned from two countries using linked administrative data to evaluate the Family Nurse Partnership.

Francesca Cavallaro, Rebecca Cannings-John, Fiona Lugg-Widger, Jan van der Meulen, Ruth Gilbert, Eilis Kennedy, Michael Robling, Katie Harron
Published online: Aug 25, 2022

Evaluating the Family Nurse Partnership Programme in Scotland: a natural experiment using linked data from health, education and social care.

Rebecca Cannings-John, Michael Robling, Fiona Lugg-Widger, James White, Julia Sanders, Mandy Lau
Published online: Aug 25, 2022

Spinal pain prevalence in Wales and associated risk factors.

Hywel Turner Evans, Ian Farr, David Byfield, Benjamin Stacey, Damian Bailey
Published online: Aug 25, 2022

POPPY II Cohort Profile– a population-based linked cohort examining the patterns and outcomes of prescription opioid use in NSW, Australia, 2003-2018.

Natasa Gisev, Sallie-Anne Pearson, Timothy Dobbins, Luke Buizen, Tom Murphy, Andrew Wilson, Fiona Blyth, Adrian Dunlop, Sarah Larney, David C. Currow, Richard P. Mattick, Louisa Degenhardt
Published online: Aug 25, 2022

Evaluation of a Sore throat Test and tReat servicE in community Pharmacies (STREP).

Samantha Turner, Haroon Ahmed, Ashley Akbari, Jackie Bethel, Rebecca Cannings-John, Andrew Evans, Efi Mantzourani
Published online: Aug 25, 2022

Access to Cervical Cancer Screening for Women Living With HIV: A Record Linkage Study.

Mushashu Lumpa, Miquel Duran-Frigola, Albert Manasyan, Jane Matambo, Mulindi Mwanahamuntu, Samuel Bosomprah, Izukanji Sikazwe, Julia Bohlius
Published online: Aug 25, 2022

The Impact of the COVID-19 Pandemic on End-of-Life Prescribing in Ontario Nursing Homes.

Christina Milani, Colleen Webber, Anna Clarke, Sarina Isenberg, James Downar, Daniel Kobewka, Amy Hsu, Jenny Lau, Aynharan Sinnarajah, Jessica Simon, Kaitlyn Boese, Amit Arya, Rhiannon Roberts, Luke Turcotte, Michelle Howard, Colleen Maxwell, Benoit Robert, Peter Tanuseputro
Published online: Aug 25, 2022

Development of a Prediction Model for Survival Time in Esophageal Cancer Patients Treated with Resection.

Lyndsay Harrison, Alyson Mahar, Natalie Coburn, Randy Boyes, Michael Pugliese, Carolyn Compton, Gail Darling, Laura Davis, Kathleen Decker, Vaibhav Gupta, Biniam Kidane, Douglas Manuel, Jolie Ringash, Donna Turner, Amy Hsu
Published online: Aug 25, 2022

A Feasibility Study for CODE-MI: High-Sensitivity Cardiac Troponin - Optimizing the Diagnosis of Acute Myocardial Infarction/Injury in Women.

Yinshan Zhao, Atul Sivaswamy, May K. Lee, Mona Izadnegahdar, Anna Chu, Laura E. Ferreira-Legere, Karin H. Humphries , Jacob A. Udell
Published online: Aug 25, 2022

Advancing multi-regional research in Canada through collaboration.

Nicole Yada, Michael Schull, Kimberlyn McGrail
Published online: Aug 25, 2022

The National Centre for Healthy Ageing data platform: establishing an Electronic Health Record derived linked geographic cohort.

Nadine Andrew, Richard Beare, Tanya Ravipati, Emily Parker, Taya Collyer, David Ung, Velandai Srikanth
Published online: Aug 25, 2022

Socioeconomic factors, medication subsidisation and the use of preventative cardiovascular disease medications in Australia.

Ellie Paige, Emily Banks, Jason Agostino, David Brieger, Karen Page, Grace Joshy, Eden Barrett, Rosemary Korda
Published online: Aug 25, 2022

Successful public and patient involvement in bowel cancer research using linked administrative health data.

Elizabeth Lemmon, Emily Connearn, Peter Hall, Eva Morris, UK Colorectal Intelligence Hub And Yorkshire Cancer Research Bowel Cancer Improvement Programme Public-Patient Group
Published online: Aug 25, 2022

Linkage of people experiencing homeless using two consent models.

Rob Trubey, Ian Thomas, Rebecca Cannings-John, Peter Mackie
Published online: Aug 25, 2022

Socioeconomic gradient in mortality of working age and older adults with multiple long-term conditions in England and Ontario, Canada.

Anne Alarilla, Mai Stafford , Luke Mondor, Jay Hughes, Hannah Knight, Anna Pefoyo Kone, Walter Woodchis
Published online: Aug 25, 2022

Expectations for the 2020 Decennial Census and How They Stood Up to Scrutiny.

Isabel Youngs, Christopher Dick, Ronald Prevost, Claire Bowen
Published online: Aug 25, 2022

Barriers and facilitators of cross-sectoral data linkage to inform healthy public policy and practice: lessons from three case study projects in Scotland.

Kristina Cimova, David Henderson, Mirjam Allik, Denise Brown, Petra Meier, Charlie Mayor, Nick Watson, Peter Craig, Emily Tweed
Published online: Aug 25, 2022

A large linked data platform to inform the COVID-19 response in British Columbia: The BC COVID-19 Cohort.

James Wilton, Jalud Abdulmenan, Mei Chong, Ana Becerra, Michael Coss, Marsha Taylor, Ognjenka Djurdjev, Drona Rasali, Hind Sbihi, Mel Krajden, Alexandra Flatt, Seyed Ali Mussavi Rizi, Naveed Janjua
Published online: Aug 25, 2022

Care trajectory in homes care users across mortality-risk profiles: an observational study.

Maya Murmann, Douglas Manuel, Peter Tanuseputro, Carol Bennett, Michael Pugliese, Rhiannon Roberts, Wenshan Li, Amy T. Hsu
Published online: Aug 25, 2022

Documenting First Nations Access to COVID Vaccines: A whole-population linked administrative data study.

Nathan C. Nickel, Wanda Phillips-Beck, Leona Star, Ekuma Okechukwu, Carole Taylor, Oludolapo Deborah Balogun, Marni Brownell, Hera Casidsid, Mariette Chartier, Dan Chateau, Jennifer Enns, Alan Katz, Josee Lavoie, Lisa Lix, Alyson Mahar, Razvan Romanescu, Marcelo Urquia
Published online: Aug 25, 2022

Inequalities in children’s mental health prescribing and referrals for specialist mental health services.

William Ball, Helen Rowlands, Corri Black, Shantini Paranjothy, Adelene Rasalam, David Ritchie, Magdalena Rzewuska, Elaine Thompson, Katie Wilde, Jessica Butler
Published online: Aug 25, 2022

The UK Longitudinal Linkage Collaboration legal & governance framework: managing ‘delegated and distributed’ data processing working with cross-sectorial data owners.

Jacqui Oakley, Robin Flaig, Emma Turner, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Andrew Boyd
Published online: Aug 25, 2022

Potentially inappropriate prescribing in long-term care residents and its association with probable delirium.

Colleen Webber, Christina Milani, Christine Watt, Shirley Bush, Peter Lawlor, Genevieve Casey, Lise Bjerre, Michael Pugliese, Frank Knoefel, Franco Momoli, Kednapa Thavorn, Peter Tanuseputro
Published online: Aug 25, 2022

The Registry of Senior Australians: Informing Aged Care Policy Reforms.

Gillian Caughey, Olivia Ryan, Maria Crotty, Craig Whitehead, Susan Hillier, Keith Evans, Marilyn Von Thien, Cassie Mason, Chris Radbone, Jane Mussared, Julie Ratcliffe, Sally Tideman, Anna Barker, Anna Sheppeard, Caroline Miller, Odette Pearson, Megan Corlis, Allen Candy, Steve Wesselingh, Maria Inacio
Published online: Aug 25, 2022

Developing a population-scale harmonised ethnicity-spine in Wales.

Ashley Akbari, Stuart Bedston, Hoda Abbasizanjani, Gareth Davies, Richard Fry, Emily Lowthian, Jane Lyons, Rhiannon Owen, Fatemeh Torabi, Kamlesh Khunti, Ronan Lyons
Published online: Aug 25, 2022

A proposed approach for standardized reporting of data linkage processes and results.

Yinshan Zhao, Mike Jarrett, Kimberlyn McGail, Brent Hills
Published online: Aug 25, 2022

Analysis of disease clusters and patient outcomes in people with multiple long term conditions using hypergraphs.

James Rafferty, Alexandra Lee, Ed Bennett, Jane Lyons, Farideh Jalali-Najafabadi, Thamer Ba Dhafari, Alan Watkins, Alexander Pate, Glen Martin, Ashley Akbari, Niels Peek, Rowena Bailey
Published online: Aug 25, 2022

Planning for community well-being: Prioritizing and identifying local neighbourhood attributes of belonging.

Sarah Mah, Lori Diemert, Scott McKean, Sarah Collier, Laura Rosella
Published online: Aug 25, 2022

How do infants enter and move through the care and family justice systems in Wales? Protocol for a population-based data linkage study.

Laura Cowley, Laura North, Karen Broadhurst, Stefanie Doebler, Linda Cusworth, Lucy Griffiths
Published online: Aug 25, 2022

A national data linkage study to determine the association of congenital anomalies with standardised education outcomes.

Anna Rawlings, Ieuan Scanlon, Svetlana Glinianaia, Judith Rankin, Maria Loane, Joan Morris, Dan Thayer, David Tucker, Sue Jordan
Published online: Aug 25, 2022

Childhood adversity, mental health and suicide (CHASE): a longitudinal case-control linked data study of lifetime inpatient records associated with suicide.

Jan Savinc, Nadine Dougall, Margaret Maxwell, Thanos Karatzias, Rory O'Connor, Brian Williams, Ann John, Helen Cheyne, Claire Fyvie, Jonathan Bisson, Carina Hibberd, Susan Abbott-Smith, Liz Nolan
Published online: Aug 25, 2022

Risk of children being taken into care amongst Metis parents experiencing incarceration: A linked administrative data study.

Emily Brownell, Julianne Sanguins, Jennifer Enns, Marni Brownell, Randy Walld, Farzana Quddus, Shannon Allard-Chartrand, Anita Durksen, Janelle Boram Lee, Lorna Turnbull, Marcelo Urquia, Alyson Mahar, Elizabeth Wall-Wieler, Hygiea Casiano, Nathan Nickel
Published online: Aug 25, 2022

Trends in dispensing and utilisation of sustained-release tapentadol in Australia.

Ximena Camacho, Andrea Schaffer, Nicholas Buckley, Nicole Pratt, Jonathan Brett, David Henry, Sallie-Anne Pearson
Published online: Aug 25, 2022

Linking fathers and children in administrative data for public health research: A systematic scoping review.

Irina Lut, Katie Harron, Pia Hardelid, Margaret O'Brien, Jenny Woodman
Published online: Aug 25, 2022

Linking Eight Decades of Canadian Census Collections.

Jeremy Foxcroft, Kris Inwood, Luiza Antonie
Published online: Aug 25, 2022

Splink: Free software for probabilistic record linkage at scale.

Robin Linacre, Sam Lindsay, Theodore Manassis, Zoe Slade, Tom Hepworth
Published online: Aug 25, 2022

Better Cardiac Care (BCC) Data Linkage Project: utilising cross-jurisdictional data to improve patient-flow capture.

Rachel Farber, Branislav Igic, Maria Alfaro-Ramirez, Michael Nelson, Catherine Francis, Lee Taylor
Published online: Aug 25, 2022

How public and participant voices have influenced the UK Longitudinal Linkage Collaboration and its Trusted Research Environment.

Kirsteen Campbell, Rebecca Whitehorn, Andy Boyd, Robin Flaig, Stela McLachlan, Christie Levein, Jacqueline Oakley, Sarah Chave, Michael Gregg, Della Ogunleye
Published online: Aug 25, 2022

Improved data linkage in the Extended Cohort for E-health, Environment and DNA (EXCEED) study through an electronic informed consent (eConsent) and recruitment management system.

Xueyang Wang, Emma Adams, Catherine Bee, Anna Guyatt, Catherine John, Richard Packer, David Shepherd, Laura Venn, Martin Tobin, Robert Free
Published online: Aug 25, 2022

Long-term Exposure to Ambient PM2.5 and Self-Reported Health: Evidence from Longitudinally-linked Census Data.

Neil Rowland, Duncan McVicar, Babak Jahanshahi, Mark McGovern, Dermot O'Reilly
Published online: Aug 25, 2022

Developing a population data science approach to assess increased risk of COVID-19 associated with attending large sporting events.

Mark Drakesmith, Gemma Hobson, Gareth John, Emily Stegall, Ashley Gould, John Parkinson, Daniel Rhys Thomas
Published online: Aug 25, 2022

A Synthesis of Algorithms for Multi-Jurisdiction Research in Canada.

Lisa Lix, Viktoriya Vasylkiv, Olawale Ayilara, Lindsey Dahl, Allison Poppel, Saeed Al-Azazi
Published online: Aug 25, 2022

Impact of vaccination on COVID-19-associated admissions to critical care in England: a study of population linked data with quantitative bias analysis for linkage error.

David Harrison, Peter Watkinson, James Doidge, Manu Shankar-Hari, Paul Mouncey, Martina Patone, Carol Coupland, Julia Hippisley-Cox, Kathryn Rowan
Published online: Aug 25, 2022

Progressivity of out-of-pocket costs for Medicare-subsidised services and medicines in Australia.

Hsei Di Law, Dinith Marasinghe, Nicholas Biddle, Danielle Butler, Emily Lancsar, Jane Desborough, Rosemary Korda
Published online: Aug 25, 2022

Generation Scotland - Using Electronic Health Records for Research.

Archie Campbell, Robin Flaig, David Porteous, Cathie Sudlow
Published online: Aug 25, 2022

Using routinely collected data to develop and evaluate a clinical tool for early identification of palliative care needs in long-term care: The RESPECT Project.

Amy T. Hsu, Cathryn Espadero, Peter Tanuseputro, Carol Bennett, Sarah Beach, Rhiannon Roberts, Douglas Manuel
Published online: Aug 25, 2022

Integrating administrative and clinical datasets to improve patient outcomes.

Jennifer Reid, Blayne Welk, Amit Garg, Theresa Fitzgerald, Glen Kearns, Salimah Shariff
Published online: Aug 25, 2022

Evaluation of low acuity patients discharged from a virtual emergency department at a major urban academic health sciences centre in Toronto, Canada.

Emily Borgundvaag, Lesley Plumptre, Michael Paterson, Diana An, Shelley McLeod, Jean-Eric Tarride, Clare Atzema, Michael Schull, Aikta Verma, Justin Hall
Published online: Aug 25, 2022

Establishing an ethics and governance framework for access to and linkage of electronic health data for research projects.

Emily Parker, Tanya Ravipati, Richard Beare, Velandai Srikanth, Nadine Andrew
Published online: Aug 25, 2022

Public involvement in big data projects: an ethnographically-informed study.

Elisa Jones, Lucy Frith, Anna Chiumento, Sarah Rodgers, Alan Clarke, Sarah Markham, Iain Buchan
Published online: Aug 25, 2022

Neonatal mortality in NHS maternity units by timing of birth and method of delivery: a retrospective linked cohort study.

Lucy Carty, Mario Cortina-Borja, Rachel Plachcinski, Chris Grollman, Alison Macfarlane
Published online: Aug 25, 2022

Introducing a new Trusted Research Environment - the Safe Haven Artificial Platform (SHAIP).

Katie Wilde, Lesley Anderson, Moragh Boyle, Alan Pinder, Alexander Weir
Published online: Aug 25, 2022

Public engagement experiences in research using data administrative linkage to build a Social Disparities Index for Covid-19 in Brazil.

Maria Y. Ichihara, Adalton dos Anjos Fonseca, Mariana Rodrigues Sebastião, Denise Moraes Pimenta
Published online: Aug 25, 2022

The challenges of developing an application process for a new linked data resource.

Stela McLachlan, Samantha Berman, Katharine Evans, Christie Levein, Rebecca Whitehorn, Jacqueline Oakley, Kirsteen Campbell, Robin Flaig
Published online: Aug 25, 2022

Data provenance tracking and reporting in a high-security digital research environment.

Bernhard Scheliga, Milan Markovic, Helen Rowlands, Artur Wozniak, Katie Wilde, Jessica Butler
Published online: Aug 25, 2022

Outcomes of children involved with child protection in Manitoba, Canada: a demonstration project for working in partnership across government, community organizations, and academia.

Marni Brownell, Stephanie Sinclair, Nathan Nickel, Marlyn Bennett, Hygiea Casiano, Anita Durksen, Elizabeth Decaire, Lisa Flaten, Kayla Frank, Mikayla Hunter, Nora Murdock, Chris Nash, Jamie Pfau, Heather Prior, Jay Rodgers, Colette Scatliff, Scott Sinclair, Anna Slavina, Randy Walld
Published online: Aug 25, 2022

Changes in health and welfare after workers’ compensation benefits cease.

Daniel Griffiths, Michael Di Donato, Tyler Lane, Shannon Gray, Ross Iles, Janneke Berecki-Gisolf, Peter Smith, Alex Collie
Published online: Aug 25, 2022

Using linked administrative data to evaluate and improve the quality of end-of-life care in nursing homes.

Colleen Webber, Christina Milani, Anna Clarke, Sarina R Isenberg, James Downar, Daniel Kobewka, Amy Hsu, Jenny Lau, Aynharan Sinnarajah, Jessica Simon, Kaitlyn Boese, Amit Arya, Breffni Hannon, Rhiannon Roberts, Luke Turcotte, Michelle Howard, Colleen Maxwell, Peter Tanuseputro
Published online: Aug 25, 2022

Multi-sectoral data linkages to explore associations between the built environment and BMI.

Richard Fry, Lucy Griffiths, Helen Daniels, Amy Mizen, Rhodri Johnson, Rowena Bailey, James Rafferty, Rebecca Pedrick-Case, Gareth Stratton, Dora Pouliou
Published online: Aug 25, 2022

Enabling Fast and Accurate Record Linkage of Large-Scale Health-Related Administrative Databases Through a DNA-Encoded Approach.

José Araújo, Juan Silva, André Costa-Martins, Vanderson Sampaio, Daniel Castro, Robson Souza, Jeevan Giddaluru, Pablo Ramos, Robespierre Pita, Maurício Barreto, Manoel Netto, Helder Nakaya
Published online: Aug 25, 2022

Mental disorders and their impact on academic performance in Australia: a matched population-based cohort study.

Rebecca Mitchell, Anne McMaugh, Carolyn Schniering, Cate Cameron, Reidar Lystad, Tim Badgery-Parker, Olav Nielssen
Published online: Aug 25, 2022

Data on Patient Record Trajectory for Linkage (DataPRinT Linkage).

Sumeet Kalia, Michelle Greiver, Frank Sullivan, Conrad Pow, Aziz Sheikh
Published online: Aug 25, 2022

Marginal structural models using calibrated weights with SuperLearner: application to longitudinal diabetes cohort.

Sumeet Kalia, Michelle Greiver, Frank Sullivan, Ervin Sejdic, Michael Escobar, Jessica Gronsbell, Braden O'Neill, Christopher Meaney, Conrad Pow, Olli Saarela, Rahim Moineddin, Tao Chen, Babak Aliarzadeh
Published online: Aug 25, 2022

Identifying prenuptial births from family pedigrees using record linkage.

Nishadi Kirelle, Peter Christen, Garrett Eilidh
Published online: Aug 25, 2022

Using cross-sector data linkage to track patient journeys across health and social care.

Fiona Grimm, Dan Lewer, John Craig, Rafi Rogans-Watson, Jenny Shand
Published online: Aug 25, 2022

Understanding household health through data linkage.

Mai Stafford, Sarah Deeny, Kathryn Marszalek, Jenny Shand
Published online: Aug 25, 2022

Bias in exposure-outcome associations when using left truncated birth datasets.

Jennifer Dunne, Gizachew Tessema, Gavin Pereira
Published online: Aug 25, 2022

Accuracy of telephone triage for predicting adverse outcomes in suspected COVID-19: An observational cohort study linking NHS 111 telephone triage, primary and secondary healthcare and mortality records.

Carl Marincowitz, Tony Stone, Peter Bath, Richard Campbell, Janette Turner, Richard Pilbery, Benjamin Thomas, Laura Sutton, Fiona Bell, Katie Biggs, Frank Hopfgartner, Madina Hussein, Suvodeep Mazumdar, Jennifer Petrie, Steve Goodacre
Published online: Aug 25, 2022

The COVID - Curated and Open aNalysis aNd rEsearCh plaTform (CO-CONNECT).

Emily Jefferson, Aziz Sheik, Susan Hopkins, Philip Quinlan
Published online: Aug 25, 2022