IJPDS is very pleased to present this special issue on Public Involvement & Engagement.

We define Public Involvement & Engagement as a purposeful set of activities designed to enable an individual or an organisation to work with members of the public in a two-way arrangement. Activities typically focus on the general public/publics, but we include patients, practitioners and other relevant stakeholders within scope.

We refer to Public Involvement as activities in which individuals have a specific role such as being included as co-applicants on research proposals or as members of steering groups for strategic developments. We refer to Public Engagement as a broader two-way process of listening to, and interacting with, the public about research, particular developments or associated issues in order to take their views on board. Particular activities may be primarily one or the other, or include elements of both Public Involvement & Engagement.

This unique collection covers two main types of manuscript: the overarching approach an organisation takes to Public Involvement & Engagement; and research studies that have centred on Public Involvement & Engagement. Some of the manuscripts have been co-written by members of the public and so the language may differ from that of a standard academic article.

We very much hope readers will enjoy this special issue and see it as a valuable addition to the literature base. The special issue will remain open to new submissions so that further articles can be added in the future to continue building this resource.

Participant acceptability of digital footprint data collection strategies: an exemplar approach to participant engagement and involvement in the ALSPAC birth cohort study.

Kate Shiells, Nina Di Cara, Anya Skatova, Oliver Davis, Claire Haworth, Andy Skinner, Richard Thomas, Alastair Tanner, John Macleod, Nicholas Timpson, Andy Boyd
Published online: Mar 16, 2022

Understanding how to build a social licence for using novel linked datasets for planning and research in Kent, Surrey and Sussex: results of deliberative focus groups.

Elizabeth Ford, Melanie Rees-Roberts, Kathryn Stanley, Katie Goddard, Sarah Giles, Jo Armes, Deborah Ikhile, Anotida Madzvamuse, Victoria Spencer-Hughes, Abraham George, Chris Farmer, Jackie Cassell
Published online: Jan 30, 2023

Pivoting data and analytic capacity to support Ontario’s COVID-19 response

Hannah Chung, Mahmoud Azimaee, Susan E Bronskill, Rosario Cartagena, Astrid Guttmann, Minnie M Ho, Lisa Ishiguro, Jeffrey C Kwong, J Michael Paterson, Sujitha Ratnasingham, Laura Rosella, Michael J Schull, Marian J Vermeulen, J Charles Victor
Published online: Jan 18, 2022

Linking pre- and post-adoption records for research in anonymised form in a data safe haven:

legal implications and support for a social licence

Kerina Jones, Sharon Heys, Rachel Thompson, Lucy Griffiths, Rhodri Johnson, Alex Lee, David Ford, Karen Broadhurst
Published online: Oct 23, 2020

Public Involvement & Engagement in the work of a data safe haven:

a case study of the SAIL Databank

Kerina Jones; Sharon Heys, Rachel Thompson, Lynsey Cross, David Ford
Published online: Aug 24, 2020

Developing and evaluating a model of public involvement and engagement embedded in a national longitudinal study: HealthWise Wales

Julia Townson, Jan Davies, Lisa Hurt, Dr, Pauline Ashfield-Watt, Dr, Shantini Paranjothy, Professor
Published online: Apr 16, 2021

Public involvement and engagement in primary and emergency care research

the story from PRIME Centre Wales

Bridie Angela Evans, Carolyn Wallace, Helen Snooks, Martin Rolph, Mary Nettle, Natalie Joseph-Williams, Sian Jones, Mari James, Robert Harris-Mayes, Lesley Griffiths, John Gallanders, Adrian Edwards
Published online: Sep 30, 2020

Public engagement can change your research, but how can it change your research institution? ICES Case Study

Jenine Paul, Randy Davidson, Cheryl Johnstone, Margaret Loong, John Matecsa, Astrid Guttmann, Michael J Schull
Published online: Sep 30, 2020

Community Priority setting for Fetal Alcohol Spectrum Disorder Research in Australia

Amy Finlay-Jones, Elizabeth J Elliott, Diane Mayers, Helen Gailes, Paula Sargent, Neil Reynolds, Bridgette Birda, Lisa Cannon, Tracy Reibel, Anne McKenzie, Heather Jones, Narelle Mullan, Tracey W Tsang, Martyn Symons, Carol Bower
Published online: Dec 10, 2020

Public Involvement & Engagement in health inequalities research on COVID-19 pandemic: a case study of CIDACS/FIOCRUZ BAHIA

Adalton dos Anjos Fonseca, Denise Moraes Pimenta, Mariana Rodrigues Sebastião de Almeida, Raiza Tourinho Lima, Mauricio Lima Barreto, Maria Yury Travassos Ichihara
Published online: Jun 6, 2023