Vol. 4 No. 1 (2019): IJPDS Standard Issue

Mhairi Aitken, Mary P Tully, Carol Porteous, Simon Denegri, Sarah Cunningham-Burley, Natalie Banner, Corri Black, Michael Burgess, Lynsey Cross, Johannes van Delden, Elizabeth Ford, Sarah Fox, Natalie Fitzpatrick, Kay Gallacher, Catharine Goddard, Lamiece Hassan, Ron Jamieson, Kerina H Jones, Minna Kaarakainen, Fiona Lugg-Widger, Kimberlyn McGrail, Anne McKenzie, Rosalyn Moran, Madeleine J Murtagh, Malcolm Oswald, Alison Paprica, Nicola Perrin, Emma Victoria Richards, John Rouse, Joanne Webb, Donald J Willison

DOI https://doi.org/10.23889/ijpds.v4i1.586

Published online: Dec 10, 2020

Health Data Linkage for Public Interest Research in the UK: Key Obstacles and Solutions

Miranda Jane Mourby, James Doidge, Kerina H Jones, Stergios Aidinlis, Hannah Smith, Jessica Bell, Ruth Gilbert, Peter Dutey-Magni, Jane Kaye

DOI https://doi.org/10.23889/ijpds.v4i1.1093

Published online: Apr 2, 2019

Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort

Karen Susan Tingay, Carol Dezateux, Emla Fitzsimons, Suzanne Walton, Efrosini Setakis, Mario Cortina-Borja, Helen Bedford, Sinead Brophy, Ashley Akbari, Lucy Griffiths, Amrita Bandyopadhyay, Ronan Lyons

DOI https://doi.org/10.23889/ijpds.v4i1.579

Published online: Apr 2, 2019

Using Canadian administrative health data to measure the health of caregivers of children with and without health problems: A demonstration of feasibility.
Predicting maternal health based on child health

Jamie C Brehaut, Peter L. Rosenbaum, Lucyna M. Lach, Marni Brownell, Kimberlyn M McGrail, Anton R Miller, Rochelle E Garner, Rubab G Arim, Anne Guèvremont, Dafna E Kohen

DOI https://doi.org/10.23889/ijpds.v4i1.584

Published online: Apr 20, 2021

Sharing linked data sets for research: results from a deliberative public engagement event in British Columbia, Canada

Jack Teng, Colene Bentley, Michael M Burgess, Kieran C O'Doherty, Kimberlyn M McGrail

DOI https://doi.org/10.23889/ijpds.v4i1.1103

Published online: May 7, 2019

Privacy preserving linkage using multiple dynamic match keys

Sean Randall, Adrian P Brown, Anna M Ferrante, James H Boyd

DOI https://doi.org/10.23889/ijpds.v4i1.1094

Published online: Jul 19, 2021

Evaluation of approximate comparison methods on Bloom filters for probabilistic linkage

Adrian P Brown, Sean M Randall, James H Boyd, Anna M Ferrante

DOI https://doi.org/10.23889/ijpds.v4i1.1095

Published online: May 23, 2019

A Population-based study of the association between food insecurity and preventable hospitalization among persons with diabetes using linked survey and administrative data

Neeru Gupta, Zihao Sheng

DOI https://doi.org/10.23889/ijpds.v4i1.1102

Published online: Aug 5, 2019

Using deterministic record linkage to link ambulance and emergency department data: is it possible without patient identifiers?
A case study from the UK

Sophie Jane Clark, Mary Halter, Alison Porter, Holly Christina Smith, Martin Brand, Rachael Fothergill, Jaqualine Lindridge, Martin McTigue, Helen Snooks

DOI https://doi.org/10.23889/ijpds.v4i1.1104

Published online: Aug 5, 2019

Exploring barriers and solutions in advancing cross-centre population data science

Kerina H Jones, Sharon M Heys, Helen Daniels, David V Ford

DOI https://doi.org/10.23889/ijpds.v4i1.1109

Published online: Aug 5, 2019

Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

Suneela Mehta, Rod Jackson, Daniel J Exeter, Billy P Wu, Sue Wells, Andrew J Kerr

DOI https://doi.org/10.23889/ijpds.v4i1.1107

Published online: Sep 2, 2019

Unmet need for chronic mental ill health: A population-based record linkage study

Michael Rosato, Foteini Tseliou, Dermot O'Reilly

DOI https://doi.org/10.23889/ijpds.v4i1.1122

Published online: Nov 29, 2019

Evaluation measure for group-based record linkage

Charini Nanayakkara, Peter Christen, Thilina Ranbaduge, Eilidh Garrett

DOI https://doi.org/10.23889/ijpds.v4i1.1127

Published online: Oct 19, 2020

The Concept Dictionary and Glossary at MCHP
Tools and Techniques to Support a Population Research Data Repository

Mark Smith, Ken Turner, Ruth Bond, Tiva Kawakami, Leslie Leon Roos

DOI https://doi.org/10.23889/ijpds.v4i1.1124

Published online: Jul 19, 2021

Citizen Health Science

Theodore Adrien Walls, Shannon Forkus, Abbigayle Coria

DOI https://doi.org/10.23889/ijpds.v4i1.1074

Published online: Sep 26, 2019

Data Resource: the National Pupil Database (NPD)

Matthew Alexander Jay, Louise Mc Grath-Lone, Ruth Gilbert

DOI https://doi.org/10.23889/ijpds.v4i1.1101

Published online: Mar 20, 2019

The Baby Hearts Study – a case-control methodology with data linkage to evaluate risk and protective factors for congenital heart disease

Nichola McCullough, Helen Dolk, Maria Loane, Briege M Lagan, Frank Casey, Brian Craig

DOI https://doi.org/10.23889/ijpds.v4i1.582

Published online: Apr 8, 2019

Electronic Longitudinal Alcohol Study in Communities (ELAStiC) Wales – protocol for platform development

Laszlo Trefan, Ronan Anthony Lyons, Jonathan Kennedy, Victor Adekanmbi, Ann Smith, Anette Evans, Giles Jeremy Greene, David Fone, Andrea Gartner, Daniel Mark Farewell, Shantini Paranjothy, Ashley Akbari, Simon Moore

DOI https://doi.org/10.23889/ijpds.v4i1.581

Published online: May 20, 2019

Tools for Transparency in Central Government Spending

Charles Rahal

DOI https://doi.org/10.23889/ijpds.v4i1.1092

Published online: Jul 10, 2019

Protocol for evaluation of enhanced models of primary care in the management of stroke and other chronic disease (PRECISE)
A data linkage healthcare evaluation study

Nadine E Andrew, Joosup Kim, Dominique A Cadilhac, Vijaya Sundararajan, Amanda G Thrift, Leonid Churilov, Natasha A Lannin, Velandai Srikanth, Monique F Kilkenny

DOI https://doi.org/10.23889/ijpds.v4i1.1097

Published online: Aug 5, 2019

Data Resource Profile The Scottish Social Care Survey (SCS) and the Scottish Care Home Census (SCHC)

David Alexander Gunn Henderson, Jennifer Kirsty Burton, Ellen Lynch, David Clark, Julie Rintoul, Nick Bailey

DOI https://doi.org/10.23889/ijpds.v4i1.1108

Published online: Sep 2, 2019

Achieving cross provincial comparisons of osteoporosis screening performance from administrative health data.

Jacqueline Kathleen Kueper, Mhd. Wasem Alsabbagh, Sandra Peterson, Sabrina T Wong

DOI https://doi.org/10.23889/ijpds.v4i1.1116

Published online: Jul 19, 2021

Constructing a toolkit to evaluate quality of state and local administrative data

Zachary H. Seeskin, Gabriel Ugarte, A. Rupa Datta

DOI https://doi.org/10.23889/ijpds.v4i1.937

Published online: Jan 31, 2019

The Experience of Establishing Data Sharing & Linkage Platforms for Administrative, Research and Community-Service Data

Kiran Pohar Manhas, Xinjie Cui, Suzanne C Tough

DOI https://doi.org/10.23889/ijpds.v4i1.465

Published online: Jan 24, 2019

Notches on the dial: a call to action to develop plain language communication with the public about users and uses of health data

P Alison Paprica, Kimberlyn McGrail, Michael J Schull

DOI https://doi.org/10.23889/ijpds.v4i1.1106

Published online: Aug 5, 2019

IJPDS International Journal of Population Data Science

Research Articles

Risk factors for hospitalizations associated with depression among women during the years around a birth: a retrospective cohort study

Measuring multimorbidity in hospitalised patients using linked hospital episode data: comparison of two measures

The Good, the Bad, the Clunky
Addressing Challenges in Using Administrative Data for Research

Linking Survey and Administrative Data to Measure Income, Inequality, and Mobility

Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

Health Data Linkage for Public Interest Research in the UK: Key Obstacles and Solutions

Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort

Using Canadian administrative health data to measure the health of caregivers of children with and without health problems: A demonstration of feasibility.
Predicting maternal health based on child health

Sharing linked data sets for research: results from a deliberative public engagement event in British Columbia, Canada

Privacy preserving linkage using multiple dynamic match keys

Evaluation of approximate comparison methods on Bloom filters for probabilistic linkage

A Population-based study of the association between food insecurity and preventable hospitalization among persons with diabetes using linked survey and administrative data

Using deterministic record linkage to link ambulance and emergency department data: is it possible without patient identifiers?
A case study from the UK

Exploring barriers and solutions in advancing cross-centre population data science

Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

Unmet need for chronic mental ill health: A population-based record linkage study

Evaluation measure for group-based record linkage

The Concept Dictionary and Glossary at MCHP
Tools and Techniques to Support a Population Research Data Repository

Review Articles

Citizen Health Science

Protocol Papers

Data Resource: the National Pupil Database (NPD)

The Baby Hearts Study – a case-control methodology with data linkage to evaluate risk and protective factors for congenital heart disease

Electronic Longitudinal Alcohol Study in Communities (ELAStiC) Wales – protocol for platform development

Tools for Transparency in Central Government Spending

Protocol for evaluation of enhanced models of primary care in the management of stroke and other chronic disease (PRECISE)
A data linkage healthcare evaluation study

Features

Data Resource Profile The Scottish Social Care Survey (SCS) and the Scottish Care Home Census (SCHC)

Achieving cross provincial comparisons of osteoporosis screening performance from administrative health data.

Methodological Developments

Constructing a toolkit to evaluate quality of state and local administrative data

Commentaries

The Experience of Establishing Data Sharing & Linkage Platforms for Administrative, Research and Community-Service Data

Notches on the dial: a call to action to develop plain language communication with the public about users and uses of health data