Developing safe, privacy-sensitive and ethical infrastructure to support research

To achieve all of the above categories, we need to successfully develop and operate the right sociotechnical systems. Within this category, IJPDS encourages new submissions containing details and developments around secure environments, metadata, data quality, information governance etc.

 

• Population Data BC: Supporting population data science in British Columbia

  Tavinder Kaur Ark, Sarah Kesselring, Brent Hills, Kim McGrail

  Published online: Mar 26, 2020

• Population Data Centre Profile - The Western Australian Data Linkage Branch

  Steve Hodges, Tom Eitelhuber, Alexandra Merchant, Janine Alan

  Published online: Mar 11, 2020

• Population Data Centre Profile: SA NT DataLink (South Australia and Northern Territory)

  Matthias Schneider, Christopher Gordon Radbone, Stacy Ann Vasquez, Miroslav Palfy, Andrew Kristjan Stanley

  Published online: Dec 5, 2019

• Population Data Centre Profile: The Manitoba Centre for Health Policy

  Alan Katz, Jennifer Enns, Mark Smith, Charles Burchill, Ken Turner, Dave Towns

  Published online: Feb 25, 2020

• Population Data Centre Profiles: Centre for Data Linkage

  James H Boyd, Sean Randall, Adrian P Brown, Max Maller, Davie Botes, Margo Gillies, Anna Ferrante

  Published online: Mar 11, 2020

• A Position Statement on Population Data Science:

  The science of data about people

  Rachael Moorin, Milton Kotelchuck, Grant Wyper, Tyler Williamson, Christine Williams, Mark Smith, Michael Schull, Claudia Sanmartin, Hude Quan, David Preen, Christine O'Keefe, Ros Moran, Kim McGrail, Hye-Chung Kum, Russell S Kirby, David Ford, Nadine Dougall, Spiros Denaxas, Xinjie Cui, Fabrizio Carinci, Andrew Boyd, Tell Bennett, Ashley Akbari, Kerina Jones

  Published online: Feb 22, 2018

• Prevalence of Down's Syndrome in England, 1998–2013

  Comparison of linked surveillance data and electronic health records

  James C Doidge, Joan K Morris, Katie L Harron, Sarah Stevens, Ruth Gilbert

  Published online: Mar 19, 2020

• A Privacy Attack on Multiple Dynamic Match-key based Privacy-Preserving Record Linkage

  Anushka Vidanage, Thilina Ranbaduge, Peter Christen, Sean Randall

  Published online: Aug 11, 2020

• Privacy preserving linkage using multiple dynamic match keys

  Sean Randall, Adrian P Brown, Anna M Ferrante, James H Boyd

  Published online: Jul 19, 2021

• Putting Voluntary, Charity, and Social Enterprise (VCSE) Organisations at the Heart of Research: Creating a Northern Ireland VCSE Research Directory

  Eric Spikol, Enya Redican, Orla McBride, Jamie Murphy, Mark Shevlin

  Published online: May 14, 2026

• Quantifying Depression-Related Language on Social Media During the COVID-19 Pandemic

  Brent Davis, Dawn Estes McKnight, Daniela Teodorescu, Anabel Quan-Haase, Rumi Chunara, Alona Fyshe, Daniel J. Lizotte

  Published online: Mar 30, 2022

• Record linkage as a vital key player for the COVID-19 syndemic -- The call for legal harmonization to overcome research challenges

  Julia Nadine Doetsch, Eero Kajantie, Vasco Dias, Marit S. Indredavik, Randi Kallar Devold, Raquel Teixeira, Jarkko Reittu, Henrique Barros

  Published online: Jun 13, 2023

• Research data use in a digital society: a deliberative public engagement

  Kimberlyn M. McGrail, Jack Teng, Colene Bentley, Kieran C. O'Doherty, Michael M. Burgess

  Published online: Oct 14, 2024

• A Review of Synthetic Data Terminology for Privacy Preserving Use Cases

  Lora Frayling, Shah Suraj Bharat, Elizabeth Pattinson, Joshua Stock, Fiona Lugg-Widger, Emma Gordon, Emily Oliver

  Published online: Oct 15, 2025

• The SEEDS of Indigenous Population Health Data Linkage

  Robyn Rowe, Stephanie Russo Carroll, Chyloe Healy, Desi Rodriguez-Lonebear, Jennifer D Walker

  Published online: Jun 30, 2021

• Semi-automated data provenance tracking for transparent data production and linkage to enhance auditing and quality assurance in Trusted Research Environments

  Katherine O'Sullivan, Milan Markovic, Jaroslaw Dymiter, Bernhard Scheliga, Chinasa Odo, Katie Wilde

  Published online: Feb 6, 2025

• Sensing pedestrian flows for real-time assessment of non-pharmaceutical policy interventions during the COVID-19 pandemic

  Jonas Klingwort, Sofie De Broe, Sven Alexander Brocker

  Published online: Jan 13, 2022

• Study protocol: Generation Victoria (GenV) special care nursery registry

  Jing Wang, Yanhong Jessika Hu, Lana Collins, Anna Fedyukova, Varnika Aggarwal, Fiona Mensah, Jeanie L. Y. Cheong, Melissa Wake, and on behalf of the GenV Newborns Working Group

  Published online: Jan 10, 2024

• Sussex Integrated Dataset (SID) Data Resource Profile

  Elizabeth Ford, Jon Elsom, Paul Molyneux, David Crees, Yemisi Bakare, Dan Hughes

  Published online: Jun 17, 2026

• Tasmanian Data Linkage Unit

  Supporting innovative research, planning and policy formulation in Australia through the provision of high-quality linked-data services.

  Brian Stokes, Nadine Wiggins, Tim Albion, Alison Venn

  Published online: Feb 25, 2020

• The Center for Data and Knowledge Integration for Health (CIDACS)

  An Experience of Linking Health and Social Data in Brazil

  Mauricio Lima Barreto, Maria Yuri Ichihara, Bethania de Araujo Almeida, Marcos Ennes Barreto, Liliana Cabral, Rosemeire Fiaccone, Roberto P Carreiro, Carlos Teles, Robespierre Pita, Gerson Penna, Manoel Barral-Netto, M. Sanni Ali, George Barbosa, Spiros Denaxas, Laura Rodrigues, Liam Smeeth

  Published online: Nov 20, 2019

• The centre for health informatics: a novel approach to accelerating the field of health data science

  Danielle A Southern, Cathy A Eastwood, Erin O'Connor, Chelsea Doktorchik, Marcello Tonelli, Jon Meddings, Hude Quan, Tyler S Williamson

  Published online: Mar 21, 2024

• The International Population Data Linkage Network – Banff and Beyond

  William A Ghali, Michael J Schull

  Published online: Aug 28, 2018

• The Population Health Research Network - Population Data Centre Profile

  Felicity Flack, Merran Smith

  Published online: Nov 20, 2019

• The Research Data Centre of the German Federal Employment Agency at the Institute for Employment Research (RDC-IAB)

  Linked Microdata for Labour Market Research

  Manfred Antoni, Alexandra Schmucker

  Published online: Nov 20, 2019