Bringing together and analysing data from multiple sources

This category focuses on the datasets themselves and their merging and analyses. This could incorporate secondary use/reuse of health data, routinely collected administrative data, or other emerging sources of data. Here is where we delve into scientific developments (data linkage, analytical advances, methods advancements etc.)

 

• Data Resource Profile: the Virtual International Care Homes Trials Archive (VICHTA)

  Lisa Irvine, Jenni Burton, Myzoon Ali, Jo Booth, James Desborough, Pip Logan, Esme Moniz-Cook, Claire Surr, David Wright, Claire Goodman

  Published online: Jan 15, 2024

• Data Resource Profile: Transforming Outcomes through Research in Cancer Healthcare in Victoria (TORCH-VIC)

  Fanny Franchini, Karen Trapani, Jennifer Soon, Piers Gillett, Koen Degeling, Benjamin Daniels, Sophy Athan, Sallie-Anne Pearson [These authors contributed equally], Maarten Joost IJzerman [These authors contributed equally]

  Published online: May 21, 2026

• Data Resource: Children and Family Court Advisory and Support Service (Cafcass) public family law administrative records in England

  Stuart Bedston, Rachel Pearson, Matthew A Jay, Karen Broadhurst, Ruth Gilbert, Linda Wijlaars

  Published online: Mar 26, 2020

• Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.

  Alexandra Lee, Martin Elliott, Jonathan Scourfield, Stuart Bedston, Karen Broadhurst, David Ford, Lucy Griffiths

  Published online: May 9, 2022

• Data Resource: population level family justice administrative data with opportunities for data linkage

  Rhodri David Johnson, Liz Trinder, Simon Thompson, Jon Smart, Alexandra Lee, Stefanie Doebler, Bachar Alrouh, Stuart Bedston, Ashley Akbari, Kerina Jones, Linda Cusworth, Karen Broadhurst, David V Ford, Lucy J Griffiths

  Published online: Aug 24, 2020

• Data Resource: the Kent Integrated Dataset (KID)

  Dan Lewer, Tom Bourne, Abraham George, Gerrard Abi-Aad, Clint Taylor, Julie George

  Published online: Apr 25, 2018

• Data Resource: the National Pupil Database (NPD)

  Matthew Alexander Jay, Louise Mc Grath-Lone, Ruth Gilbert

  Published online: Mar 20, 2019

• Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

  Suneela Mehta, Rod Jackson, Daniel J Exeter, Billy P Wu, Sue Wells, Andrew J Kerr

  Published online: Sep 2, 2019

• Defining a low-risk birth cohort: a cohort study comparing two perinatal data sets in Ontario, Canada

  Elizabeth Darling, Olivia Marquez, Alison Park

  Published online: Mar 18, 2024

• Dementia Data for People Living in Care Homes: Cross-sectoral National Data Linkage Study of Care Home, Healthcare and Administrative Data Sources

  Kalliopi Mavromati, Maria Drelciuc, Ellen Lynch, Sophie A Hay, Peter Hanlon, Terry J Quinn, Jennifer Kirsty Burton

  Published online: Apr 22, 2026

• Demystifying probabilistic linkage

  Common myths and misconceptions

  James C Doidge, Katie Harron

  Published online: Jan 10, 2018

• Describing agreement in the Main Condition coding field using Canadian ICD-11 inpatient data

  Natalie Wiebe, Hude Quan, Danielle A Southern, Chelsea Doktorchik, Catherine Eastwood

  Published online: Oct 20, 2021

• Describing the geographical linkage between the UK Millennium Cohort Study and crime incidents in England and Wales

  Nicolas Libuy, Emla Fitzsimons, David Church

  Published online: Apr 25, 2024

• Describing the linkage between administrative social assistance and health care databases in Ontario, Canada

  Claire de Oliveira, Evgenia Gatov, Laura Rosella, Simon Chen, Rachel Strauss, Mahmoud Azimaee , Elizabeth Paterno, Astrid Guttmann, Ministry of Children, Community and Social Services-ICES Working Group, Nelson Chong, Peter Ionescu, Sean Ji, Alexander Kopp, Annie Lan, Charlotte Ma, Miranda Pring, Priyanka Raj, Steven Ryan, Refik Saskin, Fiona Wong

  Published online: Mar 3, 2022

• Determining households from patient addresses and unique property reference numbers in general practitioner electronic health records

  Gillian Harper, Nicola Firman, Marta Wilk, Milena Marszalek, Paul Simon, David Stables, Rich Fry, Kelvin Smith, Carol Dezateux

  Published online: Apr 9, 2024

• Developing a population data science approach to assess increased risk of COVID-19 associated with attending large events

  Mark Drakesmith, Gemma Hobson, Gareth John, Emily Steggall, Ashley Gould, John Parkinson, Daniel Rhys Thomas

  Published online: Aug 3, 2022

• Developing and validating a primary care EMR-based frailty definition using machine learning

  Tyler Williamson, PhD, Sylvia Aponte-Hao, BSc, Bria Mele, MSc, Brendan Cord Lethebe, MSc, Charles Leduc, MD, MSc, Manpreet Thandi, RN, MSN, MPH, Alan Katz, MBChB, MSc, CCFP, Sabrina Wong, RN, PhD

  Published online: Sep 1, 2020

• Development and implementation of a national online application system for cross-jurisdictional linked data

  Natalie Wray, Kate Miller, Katie Irvine, Elizabeth Moore, Alice Crisp, Kathleen Bapaume, Catherine Taylor, Rob Smetak, Nadine Wiggins, Mikhalina Dombrovskaya, Felicity Flack

  Published online: Apr 27, 2022

• Development and Validation of a Mortality Risk Prediction Index Score for Adults Living with HIV and Multiple Chronic Comorbidities

  Viviane D. Lima, Bronhilda T. Takeh, Neil Faught , Hasan Nathani , Jielin Zhu , Scott Emerson , Katerina Dolguikh , Jason Trigg , Kate A. Salters, Rolando Barrios , Julio S. G. Montaner

  Published online: Jun 10, 2025

• Development of a prognostic prediction model to estimate the risk of multiple chronic diseases

  Constructing a copula-based model using Canadian primary care electronic medical record data

  Jason E. Black, Jacqueline K. Kueper, Amanda L. Terry, Daniel J. Lizotte

  Published online: Jan 19, 2021

• Development of comparable algorithms to measure primary care indicators using administrative health data across three Canadian provinces

  Mhd. Wasem Alsabbagh, Jacqueline Kathleen Kueper, Sabrina T Wong, Frederick Burge, Sharon Johnston, Sandra Peterson, Beverley Lawson, Hannah Chung, Mark Bennett, Stephanie Blackman, Kimberlyn McGrail, Richard Glazier, John Campbell, William Hogg

  Published online: Aug 11, 2020

• Developmental Impacts of the COVID-19 Pandemic on Young Children: A Conceptual Model for Research with Integrated Administrative Data Systems

  Heather L. Rouse, Rebecca J. Bulotsky Shearer, Sydney S. Idzikowski, Amy Hawn Nelson, Mark Needle, Matthew F. Katz , Jhonelle Bailey, Justin T. Lane, Emily Berkowitz, Sharon Zanti, Astrid Pena , Maggie Reeves

  Published online: Oct 7, 2021

• DLforum – A multidisciplinary online discussion forum for data linkage researchers and practitioners

  https://dmm.anu.edu.au/DLforum/

  Peter Christen, Thilina Ranbaduge, Dinusha Vatsalan

  Published online: Feb 20, 2018

• Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales

  Daniela K Schlüter, Rowena Griffiths, Ashley Akbari, David Taylor-Robinson

  Published online: Jun 27, 2022

• Effect of Study Duration and Outcome Measurement Frequency on Estimates of Change for Longitudinal Cohort Studies in Routinely-Collected Administrative Data

  Allison Feely, Elizabeth Wall-Wieler, Leslie L Roos, Lisa Lix

  Published online: Aug 13, 2020