Learning Disability and Northern Ireland: Achieving Proportionate Universalism through Administrative Data Research

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Jamie Murphy
Orla McBride
Lisa Hanna-Trainor
Laurence Taggart
Mark Shevlin
Pauline Heslop
Roy McConkey
Gyles Glover
Published online: Jun 14, 2018


Background
The Department of Health, Social Services & Public Safety’s policy document ‘Fit and Well – Changing Lives (2012-2022)’ indicates that people with a learning disability (LD) represent one of the most vulnerable and disadvantaged groups in Northern Ireland (NI). Individuals with a LD are more likely to experience major illnesses, to develop them earlier, and die of them sooner, than the general population. Furthermore, the LD population is less likely to get some of the evidence-based annual health checks and treatments they need, and continue to face real barriers in accessing services. At present there is no central register detailing the actual number of individuals with LD in NI.


Study aims
The study is based on research funded by the ESRC SDAI (ES/P002293/1). It involves the analysis of Northern Ireland Mortality Study (NIMS) data to:


  • Establish the socio-demographic characteristics of the LD population;

  • Profile morbidity and comorbidity of health care problems among individuals with LD; and

  • Explore the causes of death among the NI LD community.

Results and Conclusions
Preliminary study findings will be available by June 2018. Findings will be of particular interest to a range of government departments, trusts and learning disability support groups.


Background

The Department of Health, Social Services & Public Safety's policy document `Fit and Well – Changing Lives (2012-2022)' indicates that people with a learning disability (LD) represent one of the most vulnerable and disadvantaged groups in Northern Ireland (NI). Individuals with a LD are more likely to experience major illnesses, to develop them earlier, and die of them sooner, than the general population. Furthermore, the LD population is less likely to get some of the evidence-based annual health checks and treatments they need, and continue to face real barriers in accessing services. At present there is no central register detailing the actual number of individuals with LD in NI.

Study aims

The study is based on research funded by the ESRC SDAI (ES/P002293/1). It involves the analysis of Northern Ireland Mortality Study (NIMS) data to:

  • Establish the socio-demographic characteristics of the LD population;

  • Profile morbidity and comorbidity of health care problems among individuals with LD; and

  • Explore the causes of death among the NI LD community.

Results and Conclusions

Preliminary study findings will be available by June 2018. Findings will be of particular interest to a range of government departments, trusts and learning disability support groups.

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