Developing safe, privacy-sensitive and ethical infrastructure to support research

To achieve all of the above categories, we need to successfully develop and operate the right sociotechnical systems. Within this category, IJPDS encourages new submissions containing details and developments around secure environments, metadata, data quality, information governance etc.

64 Items

Study protocol: Generation Victoria (GenV) special care nursery registry

Jing Wang, Yanhong Jessika Hu, Lana Collins, Anna Fedyukova, Varnika Aggarwal, Fiona Mensah, Jeanie L. Y. Cheong, Melissa Wake, and on behalf of the GenV Newborns Working Group

Published online: Jun 15, 2023
Tasmanian Data Linkage Unit
Supporting innovative research, planning and policy formulation in Australia through the provision of high-quality linked-data services.

Brian Stokes, Nadine Wiggins, Tim Albion, Alison Venn

Published online: Feb 25, 2020
The Center for Data and Knowledge Integration for Health (CIDACS)
An Experience of Linking Health and Social Data in Brazil

Mauricio Lima Barreto, Laura Rodrigues, Spiros Denaxas, George Barbosa, M. Sanni Ali, Manoel Barral-Netto, Gerson Penna, Robespierre Pita, Carlos Teles, Roberto P Carreiro, Rosemeire Fiaccone, Liliana Cabral, Marcos Ennes Barreto, Bethania de Araujo Almeida, Maria Yuri Ichihara, Liam Smeeth

Published online: Nov 20, 2019
The International Population Data Linkage Network – Banff and Beyond

William A Ghali, Michael J Schull

Published online: Aug 28, 2018
The Population Health Research Network - Population Data Centre Profile

Felicity Flack, Merran Smith

Published online: Nov 20, 2019
The Research Data Centre of the German Federal Employment Agency at the Institute for Employment Research (RDC-IAB)
Linked Microdata for Labour Market Research

Manfred Antoni, Alexandra Schmucker

Published online: Nov 20, 2019
The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research

Lindsey Todd Dahl, Jennifer D Walker, Michael Schull, P. Alison Paprica, James Ted McDonald, Frank Gavin, Jean-Francois Ethier, Brent Diverty, Kimberlyn McGrail, Alan Katz, Juliana Wu

Published online: Nov 9, 2020
Thirty-three myths and misconceptions about population data: from data capture and processing to linkage

Peter Christen, Rainer Schnell

Published online: Jan 31, 2023
Understanding how to build a social licence for using novel linked datasets for planning and research in Kent, Surrey and Sussex: results of deliberative focus groups.

Elizabeth Ford, Melanie Rees-Roberts, Kathryn Stanley, Katie Goddard, Sarah Giles, Jo Armes, Deborah Ikhile, Anotida Madzvamuse, Victoria Spencer-Hughes, Abraham George, Chris Farmer, Jackie Cassell

Published online: Jan 30, 2023
Unlocking First Nations health information through data linkage

Jennifer Walker, Evelyn Pyper, Carmen R Jones, Saba Khan, Nelson Chong, Dan Legge, Michael J Schull, David Henry

Published online: May 22, 2018
Using data linkage to monitor COVID-19 vaccination
Development of a vaccination linked data repository

Tom Eitelhuber, Sera Ngeh, Lauren Bloomfield, Bhaval Chandaria, Paul Effler

Published online: Dec 15, 2022
Using the RECORD guidelines to improve transparent reporting of studies based on routinely collected data

Katie Harron, Eric Benchimol, Sinead Langan

Published online: Jan 24, 2018
Validating a novel deterministic privacy-preserving record linkage between administrative & clinical data: applications in stroke research

Alisia Southwell, Susan E. Bronskill, Tom Gee, Brendan Behan, Susan G. Evans, Tom Mikkelsen, Elizabeth Theriault, Kirk Nylen, Shannon Lefaivre, Nelson Chong, Mahmoud Azimaee, Natasa Tusevljak, Douglas Lee, Richard H. Swartz

Published online: Nov 23, 2022
What makes administrative data research-ready?
A systematic review and thematic analysis of published literature

Louise Mc Grath-Lone, Matthew A Jay, Ruth Blackburn, Emma Gordon, Ania Zylbersztejn, Linda Wijlaars, Ruth Gilbert

Published online: Jun 20, 2022