Developing safe, privacy-sensitive and ethical infrastructure to support research

To achieve all of the above categories, we need to successfully develop and operate the right sociotechnical systems. Within this category, IJPDS encourages new submissions containing details and developments around secure environments, metadata, data quality, information governance etc.

 

• The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research

  Lindsey Todd Dahl, Jennifer D Walker, Michael Schull, P. Alison Paprica, James Ted McDonald, Frank Gavin, Jean-Francois Ethier, Brent Diverty, Kimberlyn McGrail, Alan Katz, Juliana Wu

  Published online: Nov 9, 2020

• Thirty-three myths and misconceptions about population data: from data capture and processing to linkage

  Peter Christen, Rainer Schnell

  Published online: Jan 31, 2023

• Understanding how to build a social licence for using novel linked datasets for planning and research in Kent, Surrey and Sussex: results of deliberative focus groups.

  Elizabeth Ford, Melanie Rees-Roberts, Kathryn Stanley, Katie Goddard, Sarah Giles, Jo Armes, Deborah Ikhile, Anotida Madzvamuse, Victoria Spencer-Hughes, Abraham George, Chris Farmer, Jackie Cassell

  Published online: Jan 30, 2023

• Unlocking First Nations health information through data linkage

  Jennifer Walker, Evelyn Pyper, Carmen R Jones, Saba Khan, Nelson Chong, Dan Legge, Michael J Schull, David Henry

  Published online: May 22, 2018

• Using data linkage to monitor COVID-19 vaccination

  Development of a vaccination linked data repository

  Tom Eitelhuber, Sera Ngeh, Lauren Bloomfield, Bhaval Chandaria, Paul Effler

  Published online: Dec 15, 2022

• Using the RECORD guidelines to improve transparent reporting of studies based on routinely collected data

  Katie Harron, Eric Benchimol, Sinead Langan

  Published online: Jan 24, 2018

• Validating a novel deterministic privacy-preserving record linkage between administrative & clinical data: applications in stroke research

  Alisia Southwell, Susan E. Bronskill, Tom Gee, Brendan Behan, Susan G. Evans, Tom Mikkelsen, Elizabeth Theriault, Kirk Nylen, Shannon Lefaivre, Nelson Chong, Mahmoud Azimaee, Natasa Tusevljak, Douglas Lee, Richard H. Swartz

  Published online: Nov 23, 2022

• What makes administrative data research-ready?

  A systematic review and thematic analysis of published literature

  Louise Mc Grath-Lone, Matthew A Jay, Ruth Blackburn, Emma Gordon, Ania Zylbersztejn, Linda Wijlaars, Ruth Gilbert

  Published online: Jun 20, 2022