Identifying population level insights

Under this category, the spotlight is on collections of individuals at multiple scales. This is the category to share new found and deep understandings of biological, social and environmental experiences that shape health and well-being that have the potential to bring about change and make a significant impact.

 

• Data Resource Profile: The Age-It Family Demography Survey (Age-It FDS)

  Daniele Vignoli, Elisa Brini, Raffaele Guetto, Giammarco Alderotti, Andrea Ballerini, Marco Cozzani, Alessandro Gallo, Carlos J. Gil-Hernández, Maria Francesca Morabito, Elena Pirani, Davide Soldati, Francesco Tata, Valentina Tocchioni

  Published online: May 13, 2026

• Data Resource Profile: The Disability Statistics - Estimates Database (DS-E Database). An innovative database of internationally comparable statistics on disability inequalities

  Bradley Carpenter, Sureshkumar Kamalakannan, Kaviyarasan Patchaiappan, Katherine Theiss, Jaclyn Yap, Jill Hanass-Hancock, GVS Murthy, Monica Pinilla-Roncancio, Minerva Rivas Velarde, Sophie Mitra

  Published online: Dec 12, 2024

• Data Resource Profile: The Disability Statistics Questionnaire Review Database (DS-QR Database): A Database of Population Censuses and Household Surveys with Internationally Comparable Disability Questions

  Bradley Carpenter, Sureshkumar Kamalakannan, Pavani Saikam, David Vicente Alvarez, Jill Hanass-Hancock, GVS Murthy, Monica Pinilla-Roncancio, Minerva Rivas Velarde, Douglas Teodoro, Sophie Mitra

  Published online: Dec 12, 2024

• Data Resource Profile: The Enhanced Prescribing Database (EPD) in Northern Ireland

  Emma Ross, Janine Cooper, Dermot O'Reilly, Aideen Maguire

  Published online: May 12, 2026

• Data Resource Profile: The Hospital Electronic Prescribing and Medicines Administration (HEPMA) National Data Collection in Scotland

  Tanja Mueller, Euan Proud, Amanj Kurdi, Lynne Jarvis, Kat Reid, Stuart McTaggart, Marion Bennie

  Published online: Oct 11, 2023

• Data Resource Profile: The Mental Health of Children and Young People (MHCYP) 2017 and follow-up surveys

  Mohammad Karimipour, Harry Barker, Tamsin Newlove-Delgado , Johhny Downs, Sally McManus, Franziska Marcheselli, Jessica Penhallow, Lauren Cross, Aslihan Baser, Frances Mathews, Clara Faria, Tamsin Ford

  Published online: Feb 26, 2026

• Data resource profile: the ORIGINS project databank: a collaborative data resource for investigating the developmental origins of health and disease

  Belinda C. Davey, Wesley Billingham, Jacqueline A. Davis, Lisa Gibson, Nina D'Vaz, Susan L. Prescott, Desiree T. Silva, Sarah Whalan

  Published online: Sep 30, 2024

• Data Resource Profile: The Social Services Client Administration and Retrieval Environment (SOSCARE) administrative dataset for children’s social care in Northern Ireland

  Sarah McKenna, Siobhán Murphy, Dermot O’Reilly, Lisa Bunting, Aideen Maguire

  Published online: Dec 3, 2025

• Data Resource Profile: the Virtual International Care Homes Trials Archive (VICHTA)

  Lisa Irvine, Jenni Burton, Myzoon Ali, Jo Booth, James Desborough, Pip Logan, Esme Moniz-Cook, Claire Surr, David Wright, Claire Goodman

  Published online: Jan 15, 2024

• Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

  Suneela Mehta, Rod Jackson, Daniel J Exeter, Billy P Wu, Sue Wells, Andrew J Kerr

  Published online: Sep 2, 2019

• Defining a study population using enhanced reporting of Aboriginality and the effects on study outcomes

  Carol Anne McInerney, Ibinabo Ibiebele, Siranda Torvaldsen, Jane B Ford, Jonathan M Morris, Michael Nelson, Deborah Randall

  Published online: Mar 20, 2020

• Dementia Data for People Living in Care Homes: Cross-sectoral National Data Linkage Study of Care Home, Healthcare and Administrative Data Sources

  Kalliopi Mavromati, Maria Drelciuc, Ellen Lynch, Sophie A Hay, Peter Hanlon, Terry J Quinn, Jennifer Kirsty Burton

  Published online: Apr 22, 2026

• Deprivation effects on length of stay and death of hospitalised COVID-19 patients in Greater Manchester

  Jen Murphy, Mark Elliot, Rathi Ravidrarajah, William Whittaker

  Published online: Feb 22, 2024

• Describing a complex primary health care population to support future decision support initiatives

  Jacqueline K Kueper, Jennifer Rayner, Merrick Zwarenstein, Daniel J Lizotte

  Published online: Oct 24, 2022

• Determining households from patient addresses and unique property reference numbers in general practitioner electronic health records

  Gillian Harper, Nicola Firman, Marta Wilk, Milena Marszalek, Paul Simon, David Stables, Rich Fry, Kelvin Smith, Carol Dezateux

  Published online: Apr 9, 2024

• Development and Validation of a Mortality Risk Prediction Index Score for Adults Living with HIV and Multiple Chronic Comorbidities

  Viviane D. Lima, Bronhilda T. Takeh, Neil Faught , Hasan Nathani , Jielin Zhu , Scott Emerson , Katerina Dolguikh , Jason Trigg , Kate A. Salters, Rolando Barrios , Julio S. G. Montaner

  Published online: Jun 10, 2025

• DLforum – A multidisciplinary online discussion forum for data linkage researchers and practitioners

  https://dmm.anu.edu.au/DLforum/

  Peter Christen, Thilina Ranbaduge, Dinusha Vatsalan

  Published online: Feb 20, 2018

• Early child development in England: Cross-sectional analysis of ASQ®-3 records from the 2-2½-year universal health visiting review using national administrative data (Community Service Dataset, CSDS)

  Jayu Jung, Sarah Cattan, Claire Powell, Jane Barlow, Mengyun Liu, Amanda Clery, Louise Mc Grath-Lone, Catherine Bunting, Jenny Woodman

  Published online: Feb 27, 2025

• Early childhood obesity and subsequent asthma diagnoses: A longitudinal study using linked routinely collected data from Wales

  Waleed Mohamed Abdeldayem, Jo Davies, Lucy Jane Griffiths

  Published online: Jun 26, 2024

• Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales

  Daniela K Schlüter, Rowena Griffiths, Ashley Akbari, David Taylor-Robinson

  Published online: Jun 27, 2022

• Establishing the impact of COVID-19 on the health outcomes of domiciliary care workers in Wales using routine data: a protocol for the OSCAR study.

  Fiona Victoria Lugg-Widger, Rebecca Cannings-John, Ashley Akbari, Lucy Brookes-Howell, Kerenza Hood, Ann John, Hywel Jones, Hayley Prout, Simon Schoenbuchner, Daniel Thomas, Michael Robling

  Published online: Jul 14, 2021

• Establishment of a birth-to-education cohort of 1 million Palestinian refugees using electronic medical records and electronic education records

  Zeina Jamaluddine, Akihiro Seita, Ghada Ballout, Husam Al-Fudoli, Gloria Paolucci, Shatha Albaik, Rami Ibrahim, Miho Sato, Hala Ghattas, Oona Campbell

  Published online: Oct 24, 2023

• Estimated cumulative incidence of intervention by children's social care services to age 18: a whole-of-England administrative data cohort study using the child in need census

  Matthew A Jay, Patricio Troncoso, Andy Bilson, Dave Thomson, Richard Dorsett, Rachel Pearson, Bianca De Stavola, Ruth Gilbert

  Published online: Jan 30, 2025

• Estimates of age specific death rates in people with diabetes and associated multimorbidity using Australian administrative pharmaceutical data

  Mr Shaun Purkiss, Dr Tessa Keegel, Dr Hassan Vally, Dr Dennis Wollersheim

  Published online: Mar 9, 2021

• Estimating surge in COVID-19 cases, hospital resources and PPE demand with the interactive and locally-informed COVID-19 Health System Capacity Planning Tool

  Olga Krylova, Omar Kazmi, Hui Wang, Kelvin Lim, Chloe Logar-Henderson, Katerina Gapanenko

  Published online: Apr 6, 2022

• Evaluating the “right@home” randomised trial of nurse home visiting using linked administrative data at school transition

  Anna Price, Jiaxin Zhang, Sharon Goldfeld, John Carlin, Fiona Mensah

  Published online: May 16, 2024

• Evaluation of special educational needs and disability provision in English primary schools using administrative health and education data in the ECHILD database

  Ruth Gilbert [Joint first author], Jennifer Saxton [Joint first author], Ayana Cant, Kate Lewis, Vincent Nguyen, Hayley Gains, Ania Zylbersztejn, Joachim Tan, Laura Gimeno, Jacob Matthews, Isaac Winterburn, Jugnoo Rahi, Johnny Downs, Stuart Logan, William Farr, Lorraine Dearden, Katie Harron, Tamsin Ford, Bianca De Stavola, on behalf of the HOPE study team.

  Published online: Feb 12, 2026

• Evaluation of the effectiveness of the Family Nurse Partnership home visiting programme in first time young mothers in Scotland: a protocol for a natural experiment

  Fiona V Lugg-Widger, Michael Robling, Mandy Lau, Shantini Paranjothy, Jill Pell, Julia Sanders, James White, Rebecca Cannings-John

  Published online: Mar 16, 2020

• Family Matters: High School Graduation and Sibling Influence

  Elizabeth Wall-Wieler, Leslie Leon Roos

  Published online: Oct 10, 2017

• Global Mind Project data in the United States: A comparison with national statistics

  Joseph Taylor, Oleksii Sukhoi, Jennifer Jane Newson, Tara C Thiagarajan

  Published online: Feb 16, 2026

• Global trends in prevalence of maternal overweight and obesity: A systematic review and meta-analysis of routinely collected data retrospective cohorts

  Lisa Kent, Meabh McGirr, Kelly-Ann Eastwood

  Published online: Jul 15, 2024

• Health and household environment factors linked with early alcohol use in adolescence: a record-linked, data-driven, longitudinal cohort study

  Amrita Bandyopadhyay, Sinead Brophy, Ashley Akbari, Joanne Demmler, Jonathan Kennedy, Shantini Paranjothy, Ronan Lyons, Simon Moore

  Published online: Jul 7, 2022

• Health service use of infants involved in family justice care and supervision proceedings in Wales: a data linkage study

  Ian Farr, Laura Cowley, Karen Broadhurst, David Odd, Carys Jones, Grace Bailey, Bachar Alrouh, Mariam Abouelenin, Linda Cusworth, Stephanie Doebler, David Ford, Lucy Griffiths

  Published online: Apr 15, 2024

• Hospital admissions from care homes in England during the COVID-19 pandemic: a retrospective, cross-sectional analysis using linked administrative data

  Fiona Grimm, Karen Hodgson, Richard Brine, Sarah R Deeny

  Published online: Jul 8, 2021

• I-SIRch: AI-powered concept annotation tool for equitable extraction and analysis of safety insights from maternity investigations

  Mohit Kumar Singh, Georgina Cosma, Patrick Waterson, Jonathan Back, Gyuchan Thomas Jun

  Published online: Nov 20, 2024

• ICES: Data, Discovery, Better Health

  Michael J Schull, Mahmoud Azimaee, Marcel Marra, Rosario G Cartagena, Marian J Vermeulen, Minnie M Ho, Astrid Guttmann

  Published online: Mar 11, 2020

• Identification of International Society on Thrombosis and Haemostasis major and clinically relevant non-major bleed events from electronic health records: a novel algorithm to enhance data utilisation from real-world sources

  Alexander Hartenstein, Khaled Abdelgawwad, Frank Kleinjung, Stephen Privitera, Thomas Viethen, Tatsiana Vaitsiakhovich

  Published online: Oct 2, 2023

• Identifying Cases of Sleep Disorders through International Classification of Diseases (ICD) Codes in Administrative Data

  Rachel J Jolley, Zhiying Liang, Mingkai Peng, Sachin R Pendharkar, Willis Tsai, Guanmin Chen, Cathy A Eastwood, Hude Quan, Paul E Ronksley

  Published online: Jul 10, 2018

• Immigrant and ethnic neighbourhood concentration and reduced child developmental vulnerability

  A Canadian cohort study

  Daphne N. McRae, Nazeem Muhajarine, Magdalena Janus, Eric Duku, Marni Brownell, Barry Forer, Martin Guhn

  Published online: Feb 26, 2020

• Impact of COVID-19 pandemic on community medication dispensing: a national cohort analysis in Wales, UK

  Fatemeh Torabi, Julian Halcox, Andrew Morris, Neil Jenkins, Daniel Harris, Rowena Griffiths, Gareth Davies, Mike Gravenor, Hoda Abbasizanjani, Stuart Bedston, Jane Lyons, Laura North, Ashley Akbari, Ronan A Lyons

  Published online: Apr 28, 2022

• Including household effects in Big Data research: the experience of building a longitudinal residence algorithm using linked administrative data in Wales

  Karen Susan Tingay, Matthew Roberts, Charles B.A. Musselwhite

  Published online: Nov 20, 2018

• Income inequalities in the risk of potentially avoidable hospitalisation for chronic obstructive pulmonary disease

  a population data linkage analysis

  Nicholas Quinn, Neeru Gupta

  Published online: Oct 22, 2020

• Individual and neighbourhood socioeconomic status increase risk of avoidable hospitalizations among Canadian adults: A retrospective cohort study of linked population health data

  Lauren E Wallar, Laura C Rosella

  Published online: Sep 1, 2020

• Individual, household structure, and socioeconomic predictors of COVID-19 testing and vaccination outcomes: a whole population linked data analysis

  Nicole Satherley, Andrew Sporle

  Published online: May 27, 2025

• Inequalities in household overcrowding in an ethnically diverse urban population: a cross-sectional study using linked health and housing records

  Marta Wilk, Gill Harper, Silvia Liverani, Nicola Firman, Paul Simon, Carol Dezateux

  Published online: Jan 23, 2025

• INTEGRATE: A methodology to facilitate critical care research using multiple, linked electronic health records at population scale.

  Rowena Griffiths, Laura Herbert, Ashley Akbari, Rowena Bailey, Joe Hollinghurst, Richard Pugh, Tamas Szakmany, Fatemeh Torabi, Ronan A Lyons

  Published online: Jul 18, 2022

• Investigating the impact of distance on the use of primary care extended hours

  Jen Murphy, Mark Elliot, William Whittaker, Rathi Ravindrarajah

  Published online: Oct 6, 2021

• Is place or person more important in determining higher rural cancer mortality? A data-linkage study to compare individual versus area-based measures of deprivation

  Is place or person more important in determining higher rural cancer mortality?

  Peter Murchie, Shona Fielding, Dr, Melanie Turner, Dr, Lisa Iversen, Chris Dibben, Professor

  Published online: Apr 1, 2021

• Island medicine: using data linkage to establish the kidney health of the population of Tasmania, Australia.

  Kidney disease in Tasmania

  Matthew Jose, Rajesh Raj, Kim Jose, Alex Kitsos, Tim Saunder, Charlotte McKercher, Jan Radford

  Published online: Aug 3, 2021

• Laying the Foundation for Real-World Evidence Studies of Psoriatic Disease in Newfoundland and Labrador

  Winifred Badaiki, Evelyn Pyper, Kendra Lester, Janelle Skeard, Michelle Penney, Janey Shin, Brenda Fisher, Huong Hew, Susanne Gulliver, Wayne Gulliver, Proton Rahman

  Published online: Sep 2, 2022