Data use for positive impact on individuals and populations

This is all about how data is being used to improve lives and make positive change for public good. It also encompasses the science and practice of public engagement.

 

• Data resource profile: Exploring freely accessible data describing wider determinants of health in England

  Steve Childs, Chris Farmer, Abraham George, Elizabeth Ford, Melanie Rees-Roberts

  Published online: Oct 2, 2024

• Data Resource Profile: Harmonisation of a multimodal dataset to evaluate adolescent mental health in rural South Africa

  Nondumiso Mthiyane, Edwin Mkwanazi, Patrick N Mwangala, Dickman Gareta, Sweetness Dube, Kobus Herbst, Maryam Shahmanesh, Kathy Baisley, Amina Abubakar

  Published online: Dec 8, 2025

• Data Resource Profile: Maternity Services Dataset (MSDS)

  Catherine Stewart, Jennifer Hall, Katie Harron

  Published online: Mar 2, 2026

• Data Resource Profile: Nutrition Data in the VA Million Veteran Program

  Xuan-Mai T. Nguyen, Luc Djousse, Michael Gaziano, Kelly Cho, Frank B. Hu, Walter C. Willett, Stacey B. Whitbourne, Kerry Ivey, Yanping Li, and on behalf of the VA Million Veteran Program

  Published online: Mar 7, 2024

• Data Resource Profile: Public Health Scotland (PHS) Homecare Medicines Dataset: A National Resource for Linked Prescribing Data for Specialist Medicines Prescribed in Hospital Outpatient setting and Supplied Via Homecare Services

  Amanj Kurdi, Laura Stobo, Morven Millar, Will Clayton , Andrew Merrick , Stuart McTaggart, Tanja Mueller, Marion Bennie

  Published online: Feb 19, 2026

• Data Resource Profile: The Disability Statistics - Estimates Database (DS-E Database). An innovative database of internationally comparable statistics on disability inequalities

  Bradley Carpenter, Sureshkumar Kamalakannan, Kaviyarasan Patchaiappan, Katherine Theiss, Jaclyn Yap, Jill Hanass-Hancock, GVS Murthy, Monica Pinilla-Roncancio, Minerva Rivas Velarde, Sophie Mitra

  Published online: Dec 12, 2024

• Data Resource Profile: The Disability Statistics Questionnaire Review Database (DS-QR Database): A Database of Population Censuses and Household Surveys with Internationally Comparable Disability Questions

  Bradley Carpenter, Sureshkumar Kamalakannan, Pavani Saikam, David Vicente Alvarez, Jill Hanass-Hancock, GVS Murthy, Monica Pinilla-Roncancio, Minerva Rivas Velarde, Douglas Teodoro, Sophie Mitra

  Published online: Dec 12, 2024

• Data Resource Profile: The Enhanced Prescribing Database (EPD) in Northern Ireland

  Emma Ross, Janine Cooper, Dermot O'Reilly, Aideen Maguire

  Published online: May 12, 2026

• Data resource profile: the ORIGINS project databank: a collaborative data resource for investigating the developmental origins of health and disease

  Belinda C. Davey, Wesley Billingham, Jacqueline A. Davis, Lisa Gibson, Nina D'Vaz, Susan L. Prescott, Desiree T. Silva, Sarah Whalan

  Published online: Sep 30, 2024

• Data Resource Profile: The Social Services Client Administration and Retrieval Environment (SOSCARE) administrative dataset for children’s social care in Northern Ireland

  Sarah McKenna, Siobhán Murphy, Dermot O’Reilly, Lisa Bunting, Aideen Maguire

  Published online: Dec 3, 2025

• Data Resource Profile: the Virtual International Care Homes Trials Archive (VICHTA)

  Lisa Irvine, Jenni Burton, Myzoon Ali, Jo Booth, James Desborough, Pip Logan, Esme Moniz-Cook, Claire Surr, David Wright, Claire Goodman

  Published online: Jan 15, 2024

• Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.

  Alexandra Lee, Martin Elliott, Jonathan Scourfield, Stuart Bedston, Karen Broadhurst, David Ford, Lucy Griffiths

  Published online: May 9, 2022

• Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

  Suneela Mehta, Rod Jackson, Daniel J Exeter, Billy P Wu, Sue Wells, Andrew J Kerr

  Published online: Sep 2, 2019

• Defining a low-risk birth cohort: a cohort study comparing two perinatal data sets in Ontario, Canada

  Elizabeth Darling, Olivia Marquez, Alison Park

  Published online: Mar 18, 2024

• Dementia Data for People Living in Care Homes: Cross-sectoral National Data Linkage Study of Care Home, Healthcare and Administrative Data Sources

  Kalliopi Mavromati, Maria Drelciuc, Ellen Lynch, Sophie A Hay, Peter Hanlon, Terry J Quinn, Jennifer Kirsty Burton

  Published online: Apr 22, 2026

• Describing a complex primary health care population to support future decision support initiatives

  Jacqueline K Kueper, Jennifer Rayner, Merrick Zwarenstein, Daniel J Lizotte

  Published online: Oct 24, 2022

• Describing the geographical linkage between the UK Millennium Cohort Study and crime incidents in England and Wales

  Nicolas Libuy, Emla Fitzsimons, David Church

  Published online: Apr 25, 2024

• Determining households from patient addresses and unique property reference numbers in general practitioner electronic health records

  Gillian Harper, Nicola Firman, Marta Wilk, Milena Marszalek, Paul Simon, David Stables, Rich Fry, Kelvin Smith, Carol Dezateux

  Published online: Apr 9, 2024

• Developing a Data Integrated COVID-19 Tracking System for Decision-Making and Public Use

  Alexander Krusina, Oscar Chen, Lucia Otero Varela, Chelsea Doktorchik, Vince Avati, Søren Knudsen, Danielle Southern, Cathy Eastwood, Nishan Sharma, Tyler Williamson

  Published online: Sep 28, 2020

• Developing a population data science approach to assess increased risk of COVID-19 associated with attending large events

  Mark Drakesmith, Gemma Hobson, Gareth John, Emily Steggall, Ashley Gould, John Parkinson, Daniel Rhys Thomas

  Published online: Aug 3, 2022

• Developing and evaluating a model of public involvement and engagement embedded in a national longitudinal study: HealthWise Wales

  Julia Townson, Jan Davies, Lisa Hurt, Dr, Pauline Ashfield-Watt, Dr, Shantini Paranjothy, Professor

  Published online: Apr 16, 2021

• Developing resources to facilitate public conversations about the use of linked address-based data for research

  Nicola Firman, Carol Dezateux, Claire Newman, Harriet Baird, Rich Fry, Gill Harper, Lucy Griffiths, Chris Dibben, Alison Robert, Alison Thomson

  Published online: Jan 22, 2026

• Development and Validation of a Mortality Risk Prediction Index Score for Adults Living with HIV and Multiple Chronic Comorbidities

  Viviane D. Lima, Bronhilda T. Takeh, Neil Faught , Hasan Nathani , Jielin Zhu , Scott Emerson , Katerina Dolguikh , Jason Trigg , Kate A. Salters, Rolando Barrios , Julio S. G. Montaner

  Published online: Jun 10, 2025

• Developmental Impacts of the COVID-19 Pandemic on Young Children: A Conceptual Model for Research with Integrated Administrative Data Systems

  Heather L. Rouse, Rebecca J. Bulotsky Shearer, Sydney S. Idzikowski, Amy Hawn Nelson, Mark Needle, Matthew F. Katz , Jhonelle Bailey, Justin T. Lane, Emily Berkowitz, Sharon Zanti, Astrid Pena , Maggie Reeves

  Published online: Oct 7, 2021

• DLforum – A multidisciplinary online discussion forum for data linkage researchers and practitioners

  https://dmm.anu.edu.au/DLforum/

  Peter Christen, Thilina Ranbaduge, Dinusha Vatsalan

  Published online: Feb 20, 2018

• Early child development in England: Cross-sectional analysis of ASQ®-3 records from the 2-2½-year universal health visiting review using national administrative data (Community Service Dataset, CSDS)

  Jayu Jung, Sarah Cattan, Claire Powell, Jane Barlow, Mengyun Liu, Amanda Clery, Louise Mc Grath-Lone, Catherine Bunting, Jenny Woodman

  Published online: Feb 27, 2025

• Enrolment, Attendance, and Education Resourcing and Support among 5-12 year old Autistic Students in Aotearoa New Zealand: A Nationwide Cross-sectional Study

  Nicholas Bowden, Francesca Anns, Sally Clendon, Joanne Dacombe, Lisa Meehan, Hien Vu, Emma Woodford, Laurie McLay

  Published online: Mar 19, 2026

• Establishing a national linked database for Fetal Alcohol Spectrum Disorder (FASD) in the UK: multi-method public and professional involvement to determine acceptability and feasibility

  Sarah K. Harding, Beverley Samways, Amy Dillon, Sandra Butcher, Andy Boyd, Raja Mukherjee, Penny A. Cook, Cheryl McQuire

  Published online: Sep 19, 2024

• Establishment of a birth-to-education cohort of 1 million Palestinian refugees using electronic medical records and electronic education records

  Zeina Jamaluddine, Akihiro Seita, Ghada Ballout, Husam Al-Fudoli, Gloria Paolucci, Shatha Albaik, Rami Ibrahim, Miho Sato, Hala Ghattas, Oona Campbell

  Published online: Oct 24, 2023

• Estimating surge in COVID-19 cases, hospital resources and PPE demand with the interactive and locally-informed COVID-19 Health System Capacity Planning Tool

  Olga Krylova, Omar Kazmi, Hui Wang, Kelvin Lim, Chloe Logar-Henderson, Katerina Gapanenko

  Published online: Apr 6, 2022

• Evaluating the “right@home” randomised trial of nurse home visiting using linked administrative data at school transition

  Anna Price, Jiaxin Zhang, Sharon Goldfeld, John Carlin, Fiona Mensah

  Published online: May 16, 2024

• Evaluating the accuracy of data extracted from electronic health records into MedicineInsight, a national Australian general practice database

  Benjamin Daniels, Alys Havard, Rimma Myton, Cynthia Lee, Kendal Chidwick

  Published online: Jun 29, 2022

• Evaluation of special educational needs and disability provision in English primary schools using administrative health and education data in the ECHILD database

  Ruth Gilbert [Joint first author], Jennifer Saxton [Joint first author], Ayana Cant, Kate Lewis, Vincent Nguyen, Hayley Gains, Ania Zylbersztejn, Joachim Tan, Laura Gimeno, Jacob Matthews, Isaac Winterburn, Jugnoo Rahi, Johnny Downs, Stuart Logan, William Farr, Lorraine Dearden, Katie Harron, Tamsin Ford, Bianca De Stavola, on behalf of the HOPE study team.

  Published online: Feb 12, 2026

• Evaluation of the ASSIGN open-source deterministic address-matching algorithm for allocating Unique Property Reference Numbers to general practitioner-recorded patient addresses

  Gill Harper, David Stables, Paul Simon, Zaheer Ahmed, Kelvin Smith, John Robson, Carol Dezateux

  Published online: Dec 8, 2021

• Extent of Open Science Practices in the Reporting of Real World Evidence Research

  Lillian Liu, Louisa Jorm, Nahee Kim, Tom Honeyman, Claire M Vajdic

  Published online: Apr 16, 2026

• Four Questions to Guide Decision-Making for Data Sharing and Integration

  Amy Hawn Nelson, Sharon Zanti

  Published online: Oct 4, 2023

• A Framework for Centering Racial Equity Throughout the Administrative Data Life Cycle

  Amy L Hawn Nelson, Sharon Zanti

  Published online: Sep 30, 2020

• Genetic risk score informed re-evaluation of phenotype quality control to maximize power in epidemiological studies: application to lung function

  Jing Chen, Nick Shrine, Abril G Izquierdo, Anna Guyatt, Alex Williams, Henry Völzke, Stephanie London, Ian P Hall, Frank Dudbridge, SpiroMeta Consortium, CHARGE Consortium, Louise V Wain, Martin D Tobin, Catherine John

  Published online: Feb 9, 2026

• Health data social licence: An inclusive process to learn more about the perspectives of experienced public and patient advisors

  Julia Burt, Annabelle Cumyn, Roxanne Dault, Louise Belzile, Louise Binder, Cris Carter, Paul Carter, Brian Cho, Clara Dallaire, André Gaudreau, Frédéric L'Hérault, Annette McKinnon, Danièle Remy, Leah Stephenson, Cindy Yip, P Alison Paprica

  Published online: Apr 17, 2024

• How to analyze and link patient experience surveys with administrative data to drive health service improvement -- examples from Alberta, Canada

  Kyle Kemp, Paul Fairie, Brian Steele, Maria Santana

  Published online: Oct 13, 2022

• I-SIRch: AI-powered concept annotation tool for equitable extraction and analysis of safety insights from maternity investigations

  Mohit Kumar Singh, Georgina Cosma, Patrick Waterson, Jonathan Back, Gyuchan Thomas Jun

  Published online: Nov 20, 2024

• ICES: Data, Discovery, Better Health

  Michael J Schull, Mahmoud Azimaee, Marcel Marra, Rosario G Cartagena, Marian J Vermeulen, Minnie M Ho, Astrid Guttmann

  Published online: Mar 11, 2020

• Identification of International Society on Thrombosis and Haemostasis major and clinically relevant non-major bleed events from electronic health records: a novel algorithm to enhance data utilisation from real-world sources

  Alexander Hartenstein, Khaled Abdelgawwad, Frank Kleinjung, Stephen Privitera, Thomas Viethen, Tatsiana Vaitsiakhovich

  Published online: Oct 2, 2023

• Identifying Local Priorities for Research with Linked Routine Data: An Online Workshop Method

  Hollie Henderson, Sally Bridges, Maria Bryant, Kayley Ciesla, Kate Pickett

  Published online: Jan 29, 2026

• Identifying the parental figures of children who enter care: The pros and cons of different data linkage methods using Welsh datasets

  Nell Warner, Helen Hodges, Jonathan Scourfield, Rebecca Cannings-John

  Published online: Mar 18, 2026

• Impact of COVID-19 pandemic on community medication dispensing: a national cohort analysis in Wales, UK

  Fatemeh Torabi, Julian Halcox, Andrew Morris, Neil Jenkins, Daniel Harris, Rowena Griffiths, Gareth Davies, Mike Gravenor, Hoda Abbasizanjani, Stuart Bedston, Jane Lyons, Laura North, Ashley Akbari, Ronan A Lyons

  Published online: Apr 28, 2022

• Impact through Engagement

  Co-production of administrative data research and the approach of the Administrative Data Research Centre Northern Ireland.

  Elizabeth Nelson, Frances Burns

  Published online: Nov 10, 2020

• Improving opportunities for data linkage within Children Looked After administrative records in Wales

  Grace A. Bailey, Alex Lee, Saira Ahmed, Ieuan Scanlon, Laura E. Cowley, Amy Stuart, Ian Farr, Caroline Brooks, Laura North, Lucy J. Griffiths

  Published online: Feb 19, 2025

• Indigenizing our Research

  Indigenous Community Leadership in HIV Epidemiology Research

  Valerie Nicholson, Andreea Bratu, Alison R McClean, Simran Jawanda, Niloufar Aran, Knighton Hillstrom, Evelyn Hennie, Claudette Cardinal, Elizabeth Benson, Kerrigan Beaver, Anita C Benoit, Bob Hogg, Denise Jaworsky, Building More Bridges Research Team

  Published online: May 20, 2021

• Individual, household structure, and socioeconomic predictors of COVID-19 testing and vaccination outcomes: a whole population linked data analysis

  Nicole Satherley, Andrew Sporle

  Published online: May 27, 2025