Bringing together and analysing data from multiple sources

This category focuses on the datasets themselves and their merging and analyses. This could incorporate secondary use/reuse of health data, routinely collected administrative data, or other emerging sources of data. Here is where we delve into scientific developments (data linkage, analytical advances, methods advancements etc.)

 

• Prevalence estimation of intellectual disability using national administrative and household survey data: The importance of survey question specificity

  Orla McBride, Pauline Heslop, Gyles Glover, Laurence Taggart, Lisa Hanna-Trainor, Mark Shevlin, Jamie Murphy

  Published online: Jan 28, 2021

• Prevalence of Down's Syndrome in England, 1998–2013

  Comparison of linked surveillance data and electronic health records

  James C Doidge, Joan K Morris, Katie L Harron, Sarah Stevens, Ruth Gilbert

  Published online: Mar 19, 2020

• Privacy preserving linkage using multiple dynamic match keys

  Sean Randall, Adrian P Brown, Anna M Ferrante, James H Boyd

  Published online: Jul 19, 2021

• Probabilistic linkage of national immunisation and state-based health records for a cohort of 1.9 million births to evaluate Australia’s childhood immunisation program

  Heather F Gidding, Lisa McCallum, Parveen Fathima, Thomas Snelling, Bette Liu, Nicholas de Klerk, Christopher C Blyth, Vicky Sheppeard, Ross M Andrews, Louisa Jorm, Peter B McIntyre, Hannah C Moore

  Published online: Sep 18, 2017

• Processes and challenges associated with establishing a linked national suicide database across the criminal justice system

  Alice Rose Dawson, Ms, Verity Wainwright, Dr, Jennifer Shaw, Prof, Jane Senior, Dr, Seena Fazel, Prof, Amanda Perry, Dr, Tammi Walker, Prof, Daniel Pratt, Dr

  Published online: Jun 8, 2021

• Protocol for evaluation of enhanced models of primary care in the management of stroke and other chronic disease (PRECISE)

  A data linkage healthcare evaluation study

  Nadine E Andrew, Joosup Kim, Dominique A Cadilhac, Vijaya Sundararajan, Amanda G Thrift, Leonid Churilov, Natasha A Lannin, Velandai Srikanth, Monique F Kilkenny

  Published online: Aug 5, 2019

• Quantifying Depression-Related Language on Social Media During the COVID-19 Pandemic

  Brent Davis, Dawn Estes McKnight, Daniela Teodorescu, Anabel Quan-Haase, Rumi Chunara, Alona Fyshe, Daniel J. Lizotte

  Published online: Mar 30, 2022

• Record linkage as a vital key player for the COVID-19 syndemic -- The call for legal harmonization to overcome research challenges

  Julia Nadine Doetsch, Eero Kajantie, Vasco Dias, Marit S. Indredavik, Randi Kallar Devold, Raquel Teixeira, Jarkko Reittu, Henrique Barros

  Published online: Jun 13, 2023

• Record linkage for Routinely Collected Health Data in an African Health Information Exchange

  Themba Mutemaringa, Alexa Heekes, Mariette Smith, Andrew Boulle, Nicki Tiffin

  Published online: Mar 2, 2023

• Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort

  Karen Susan Tingay, Carol Dezateux, Emla Fitzsimons, Suzanne Walton, Efrosini Setakis, Mario Cortina-Borja, Helen Bedford, Sinead Brophy, Ashley Akbari, Lucy Griffiths, Amrita Bandyopadhyay, Ronan Lyons

  Published online: Apr 2, 2019

• Relative risks of childhood developmental vulnerabilities in three Australian communities with exposure to per- and polyfluoroalkyl substances: data linkage study

  Hsei Di Law, Bruce Armstrong, Catherine D'este, Rose Hosking, Kayla Smurthwaite, Susan Trevenar, Nina Lazarevic, Robyn Lucas, Archie Clements, Martyn Kirk, Rosemary Korda

  Published online: Feb 5, 2024

• Reporting of gestational diabetes and other maternal medical conditions

  Validation of routinely collected hospital data from New South Wales, Australia

  Heather J Baldwin, Tanya A Nippita, Kristen Rickard, Siranda Torvaldsen, Therese M McGee, Jillian A Patterson

  Published online: Feb 22, 2021

• Representativeness of survey participants in relation to mental disorders: a linkage between national registers and a population-representative survey

  Natalie C Momen, Mathias Lasgaard, Nanna Weye, Jordan Edwards, John McGrath, Oleguer Plana-Ripoll

  Published online: Oct 19, 2022

• School-recorded special educational needs provision in children with major congenital anomalies: a linked administrative records study of births in England, 2003-2013

  Maria Peppa, Kate M. Lewis, Bianca De Stavola, Pia Hardelid, Ruth Gilbert, on behalf of the HOPE study

  Published online: Feb 11, 2025

• Screening for psychiatric morbidity in the population - a comparison of the GHQ-12 and self-reported medication use

  Foteini Tseliou, Michael Donnelly, Dermot O'Reilly

  Published online: Mar 7, 2018

• Secondary use of routinely collected administrative health data for epidemiologic research: Answering research questions using data collected for a different purpose

  Scott D. Emerson, Taylor McLinden, Paul Sereda, Amanda M. Yonkman, Jason Trigg, Sandra Peterson, Robert S. Hogg, Kate A. Salters, Viviane D. Lima, Rolando Barrios

  Published online: Nov 19, 2024

• The SEEDS of Indigenous Population Health Data Linkage

  Robyn Rowe, Stephanie Russo Carroll, Chyloe Healy, Desi Rodriguez-Lonebear, Jennifer D Walker

  Published online: Jun 30, 2021

• Semantically Interoperable Census Data: Unlocking the Semantics of Census Data Using Ontologies and Linked Data

  Anderson Wong, Mark Fox, Megan Katsumi

  Published online: May 20, 2024

• Semi-automated data provenance tracking for transparent data production and linkage to enhance auditing and quality assurance in Trusted Research Environments

  Katherine O'Sullivan, Milan Markovic, Jaroslaw Dymiter, Bernhard Scheliga, Chinasa Odo, Katie Wilde

  Published online: Feb 6, 2025

• Student Achievement Trajectories in Ontario: Creating and validating a province-wide, multi-cohort and longitudinal database

  Jeanne Sinclair, Scott Davies, Magdalena Janus

  Published online: Feb 2, 2023

• Study protocol: Generation Victoria (GenV) special care nursery registry

  Jing Wang, Yanhong Jessika Hu, Lana Collins, Anna Fedyukova, Varnika Aggarwal, Fiona Mensah, Jeanie L. Y. Cheong, Melissa Wake, and on behalf of the GenV Newborns Working Group

  Published online: Jan 10, 2024

• Tasmanian Data Linkage Unit

  Supporting innovative research, planning and policy formulation in Australia through the provision of high-quality linked-data services.

  Brian Stokes, Nadine Wiggins, Tim Albion, Alison Venn

  Published online: Feb 25, 2020

• The application of population data linkage to capture sibling health outcomes among children and young adults with neurodevelopmental conditions. A scoping review

  Caitlin Gray, Helen Leonard, Matthew N. Cooper, Dheeraj Rai, Emma J. Glasson

  Published online: Mar 18, 2025

• The Baby Hearts Study – a case-control methodology with data linkage to evaluate risk and protective factors for congenital heart disease

  Nichola McCullough, Helen Dolk, Maria Loane, Briege M Lagan, Frank Casey, Brian Craig

  Published online: Apr 8, 2019

• The Canadian Chronic Disease Surveillance System: A model for collaborative surveillance

  Lisa Lix, Rolf Puchtinger, Kim Reimer, Cynthia Robitaille, Mark Smith, Lawrence Svenson, Karen Tu, Linda VanTil, Sean Waits, Louise Pelletier, Karen Phillips, Catherine Pelletier, J. Michael Paterson, James Ayles, Sharon Bartholomew, Charmaine Cooke, Joellyn Ellison, Valerie Emond, Naomi Hamm, Heather Hannah, Sonia Jean, Shannon LeBlanc, Siobhan O'Donnel

  Published online: Oct 5, 2018

• The Center for Data and Knowledge Integration for Health (CIDACS)

  An Experience of Linking Health and Social Data in Brazil

  Mauricio Lima Barreto, Laura Rodrigues, Spiros Denaxas, George Barbosa, M. Sanni Ali, Manoel Barral-Netto, Gerson Penna, Robespierre Pita, Carlos Teles, Roberto P Carreiro, Rosemeire Fiaccone, Liliana Cabral, Marcos Ennes Barreto, Bethania de Araujo Almeida, Maria Yuri Ichihara, Liam Smeeth

  Published online: Nov 20, 2019

• The centre for health informatics: a novel approach to accelerating the field of health data science

  Danielle A Southern, Cathy A Eastwood, Erin O'Connor, Chelsea Doktorchik, Marcello Tonelli, Jon Meddings, Hude Quan, Tyler S Williamson

  Published online: Mar 21, 2024

• The changing face of Australian data reforms: Impact on pharmacoepidemiology research

  Juliana de Oliveira Costa, Claudia Bruno, Andrea L Schaffer, Smriti Raichand, Emily A Karanges , Sallie-Anne Pearson

  Published online: Apr 15, 2021

• The data we have: Pregnancy and birth related data collection in Australia, Canada, Europe and the USA- A web-based survey of practice

  Kathleen Lamont, NW Scott, S Bhattacharya

  Published online: Mar 22, 2021

• The effect of number of healthcare visits on study sample selection in electronic health record data

  Laura Rasmussen-Torvik, Al'ona Furmanchuk, Alexander Stoddard, Kristen Osinski, John Meurer, Nicholas Smith, Elizabeth Chrischilles, Bernard Black, Abel Kho

  Published online: Apr 2, 2020

• The Experience of Establishing Data Sharing & Linkage Platforms for Administrative, Research and Community-Service Data

  Kiran Pohar Manhas, Xinjie Cui, Suzanne C Tough

  Published online: Jan 24, 2019

• The Good, the Bad, the Clunky

  Addressing Challenges in Using Administrative Data for Research

  Kerina Helen Jones, Sharon Heys, Karen S Tingay, Paul Jackson, Chris Dibben

  Published online: Jan 21, 2019

• The impact of cross-jurisdictional patient flows on ascertainment of hospitalisations and cardiac procedures for ST-segment-elevation myocardial infarction in an Australian population.

  Branislav Igic, Rachel Farber, Maria Alfaro-Ramirez, Michael A Nelson , Lee K Taylor

  Published online: Feb 8, 2023

• The International Population Data Linkage Network – Banff and Beyond

  William A Ghali, Michael J Schull

  Published online: Aug 28, 2018

• The Mortality After Release from Incarceration Consortium (MARIC): Protocol for a multi-national, individual participant data meta-analysis

  Rohan Borschmann, Holly Tibble, Matthew J Spittal, David Preen, Jane Pirkis, Sarah Larney, David L Rosen, Jesse T Young, Alexander D Love, Frederick L Altice, Ingrid A Binswanger, Anne Bukten, Tony Butler, Zheng Chang, Chuan-Yu Chen, Thomas Clausen, Peer Brehm Christensen, Gabriel J Culbert, Louisa Degenhardt, Anja J.E. Dirkzwager, Kate Dolan, Seena Fazel, Colin Fischbacher, Margaret Giles, Lesley Graham, David Harding, Yen-Fang Huang, Florence Huber, Azar Karaminia, Fiona G Kouyoumdjian, Sungwoo Lim, Lars Møller, Akm Moniruzzaman, Jeffrey Morenoff, Eamonn O'Moore, Lia N Pizzicato, Daniel Pratt, Scott F Proescholdbell, Shabbar I Ranapurwala, Meghan E Shanahan, Jenny Shaw, Amanda Slaunwhite, Julian M Somers, Anne C Spaulding, Marc F Stern, Kendra M Viner, Nadia Wang, Melissa Willoughby, Bin Zhao, Stuart A Kinner

  Published online: Feb 25, 2020

• The Population Health Research Network - Population Data Centre Profile

  Felicity Flack, Merran Smith

  Published online: Nov 20, 2019

• The practicalities of adapting UK maternity clinical information systems for observational research: Experiences of the POOL study

  Fiona Lugg-Widger, Christian Barlow, Rebecca Cannings-John, Chris Gale, Nicola Houlding, Rebecca Milton, Rachel Plachcinski, Michael Robling, Julia Sanders

  Published online: Aug 7, 2023

• The Research Data Centre of the German Federal Employment Agency at the Institute for Employment Research (RDC-IAB)

  Linked Microdata for Labour Market Research

  Manfred Antoni, Alexandra Schmucker

  Published online: Nov 20, 2019

• Data Resource Profile The Scottish Social Care Survey (SCS) and the Scottish Care Home Census (SCHC)

  David Alexander Gunn Henderson, Jennifer Kirsty Burton, Ellen Lynch, David Clark, Julie Rintoul, Nick Bailey

  Published online: Sep 2, 2019

• Cohort profile: The Secure Anonymised Information Linkage databank Dementia e-cohort (SAIL-DeC)

  Christian Schnier, Tim Wilkinson, Ashley Akbari, Chris Orton, Kristel Sleegers, John Gallacher, Ronan A Lyons, Cathie LM Sudlow

  Published online: Feb 25, 2020

• The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research

  Lindsey Todd Dahl, Jennifer D Walker, Michael Schull, P. Alison Paprica, James Ted McDonald, Frank Gavin, Jean-Francois Ethier, Brent Diverty, Kimberlyn McGrail, Alan Katz, Juliana Wu

  Published online: Nov 9, 2020

• Thirty-three myths and misconceptions about population data: from data capture and processing to linkage

  Peter Christen, Rainer Schnell

  Published online: Jan 31, 2023

• Tools for Transparency in Central Government Spending

  Charles Rahal

  Published online: Jul 10, 2019

• UK Longitudinal Linkage Collaboration (UK LLC): The National Trusted Research Environment for Longitudinal Research

  Andy Boyd, Katharine M. Evans, Emma Turner, Robin Flaig, Jacqui Oakley, Kirsteen C. Campbell, Richard Thomas, Stela McLachlan, Matthew Crane, To view the complete list of authors, please see the PDF

  Published online: Feb 17, 2025

• Unlocking the Potential of Electronic Health Records for Health Research

  Seungwon Lee, Yuan Xu, Adam G D'Souza, Elliot A Martin, Chelsea Doktorchik, Zilong Zhang, Hude Quan

  Published online: Jan 30, 2020

• Use of administrative record linkage to measure medical and social risk factors for early developmental vulnerability in Ontario, Canada

  Natasha Ruth Saunders, Magdalena Janus, Joan Porter, Hong Lu, Ashley Gaskin, Gangamma Kalappa, Astrid Guttmann

  Published online: Feb 11, 2021

• Using administrative records to support the linkage of census data: protocol for building a longitudinal infrastructure of U.S. census records

  J. Trent Alexander, Katie R. Genadek

  Published online: Jan 11, 2023

• Using data linkage to monitor COVID-19 vaccination

  Development of a vaccination linked data repository

  Tom Eitelhuber, Sera Ngeh, Lauren Bloomfield, Bhaval Chandaria, Paul Effler

  Published online: Dec 15, 2022

• Using deterministic record linkage to link ambulance and emergency department data: is it possible without patient identifiers?

  A case study from the UK

  Sophie Jane Clark, Mary Halter, Alison Porter, Holly Christina Smith, Martin Brand, Rachael Fothergill, Jaqualine Lindridge, Martin McTigue, Helen Snooks

  Published online: Aug 5, 2019

• Using general practice clinical information system data for research: the case in Australia

  David Youens, Rachael Moorin, Amy Harrison, Richard Varhol, Suzanne Robinson, Caroline Brooks, James Boyd

  Published online: Jan 27, 2020