Bringing together and analysing data from multiple sources

This category focuses on the datasets themselves and their merging and analyses. This could incorporate secondary use/reuse of health data, routinely collected administrative data, or other emerging sources of data. Here is where we delve into scientific developments (data linkage, analytical advances, methods advancements etc.)

 

• Multi-province epidemiological research using linked administrative data: a case study from Canada.

  Amanda Leanne Butler, Mark Smith, Wayne Jones, Carol E Adair, Simone Vigod, Paul Kurdyak, Alain Lesage

  Published online: Sep 21, 2018

• Multigenerational Health Research using Population-Based Linked Databases: An International Review

  Naomi C. Hamm, Amani F Hamad, Elizabeth Wall-Wieler, Leslie L Roos, Oleguer Plana-Ripoll , Lisa M Lix

  Published online: Oct 7, 2021

• A national initiative in data science for health: an evaluation of the UK Farr Institute

  Harry Hemingway, FFPH FRCP FMedSci, Ronan Lyons, Qianrui Li, Iain Buchan, John Ainsworth, Jill Pell, Andrew Morris

  Published online: Apr 8, 2020

• Not in Employment, Education or Training (NEET); more than a youth policy issue

  Associate Professor Francis Mitrou, Professor Michele Haynes, Associate Professor Francisco Perales, Emeritus Professor Stephen R Zubrick, Professor Janeen Baxter

  Published online: Sep 21, 2021

• A Novel Method for Identifying Care Home Residents in England: A Validation Study

  Filipe Santos, Stefano Conti, Arne Wolters

  Published online: Sep 15, 2021

• Parity: A key measure of confounding in data-linkage studies of outcomes after medically assisted reproduction

  Georgina M Chambers, Associate Professor, Christos A Venetis, Dr, Louisa R Jorm, Professor, Claire M Vajdic, Associate Professor

  Published online: Mar 16, 2020

• Participant acceptability of digital footprint data collection strategies: an exemplar approach to participant engagement and involvement in the ALSPAC birth cohort study.

  Kate Shiells, Nina Di Cara, Anya Skatova, Oliver Davis, Claire Haworth, Andy Skinner, Richard Thomas, Alastair Tanner, John Macleod, Nicholas Timpson, Andy Boyd

  Published online: Mar 16, 2022

• Point-of-contact interactive record linkage (PIRL) between demographic surveillance and health facility data in rural Tanzania

  Christopher T. Rentsch, Jim Todd, Mark Urassa, Redempta Natalis, Denna Michael, Paul Mee, Katie Harron, Baltazar Mtenga, Richard Machemba, Chodziwadziwa Kabudula, Georges Reniers, Basia Zaba

  Published online: Dec 15, 2017

• Population Data BC: Supporting population data science in British Columbia

  Tavinder Kaur Ark, Sarah Kesselring, Brent Hills, Kim McGrail

  Published online: Mar 26, 2020

• Population Data Centre Profile - The Western Australian Data Linkage Branch

  Steve Hodges, Tom Eitelhuber, Alexandra Merchant, Janine Alan

  Published online: Mar 11, 2020

• Population Data Centre Profile: SA NT DataLink (South Australia and Northern Territory)

  Matthias Schneider, Christopher Gordon Radbone, Stacy Ann Vasquez, Miroslav Palfy, Andrew Kristjan Stanley

  Published online: Dec 5, 2019

• Population Data Centre Profile: The Manitoba Centre for Health Policy

  Alan Katz, Jennifer Enns, Mark Smith, Charles Burchill, Ken Turner, Dave Towns

  Published online: Feb 25, 2020

• Population Data Centre Profiles: Centre for Data Linkage

  James H Boyd, Sean Randall, Adrian P Brown, Max Maller, Davie Botes, Margo Gillies, Anna Ferrante

  Published online: Mar 11, 2020

• A population level study of SARS-CoV-2 prevalence amongst people experiencing homelessness in Wales, UK

  Ian Thomas, Peter Mackie

  Published online: Dec 2, 2021

• A Position Statement on Population Data Science:

  The science of data about people

  Kim McGrail, Ros Moran, Christine O'Keefe, David Preen, Hude Quan, Claudia Sanmartin, Michael Schull, Mark Smith, Christine Williams, Tyler Williamson, Grant Wyper, Rachael Moorin, Hye-Chung Kum, Kerina Jones, Ashley Akbari, Tell Bennett, Andrew Boyd, Fabrizio Carinci, Xinjie Cui, Spiros Denaxas, Nadine Dougall, David Ford, Russell S Kirby, Milton Kotelchuck

  Published online: Feb 22, 2018

• Prevalence estimation of intellectual disability using national administrative and household survey data: The importance of survey question specificity

  Orla McBride, Pauline Heslop, Gyles Glover, Laurence Taggart, Lisa Hanna-Trainor, Mark Shevlin, Jamie Murphy

  Published online: Jan 28, 2021

• Prevalence of Down's Syndrome in England, 1998–2013

  Comparison of linked surveillance data and electronic health records

  James C Doidge, Joan K Morris, Katie L Harron, Sarah Stevens, Ruth Gilbert

  Published online: Mar 19, 2020

• Privacy preserving linkage using multiple dynamic match keys

  Sean Randall, Adrian P Brown, Anna M Ferrante, James H Boyd

  Published online: Jul 19, 2021

• Probabilistic linkage of national immunisation and state-based health records for a cohort of 1.9 million births to evaluate Australia’s childhood immunisation program

  Heather F Gidding, Lisa McCallum, Parveen Fathima, Thomas Snelling, Bette Liu, Nicholas de Klerk, Christopher C Blyth, Vicky Sheppeard, Ross M Andrews, Louisa Jorm, Peter B McIntyre, Hannah C Moore

  Published online: Sep 18, 2017

• Processes and challenges associated with establishing a linked national suicide database across the criminal justice system

  Alice Rose Dawson, Ms, Verity Wainwright, Dr, Jennifer Shaw, Prof, Jane Senior, Dr, Seena Fazel, Prof, Amanda Perry, Dr, Tammi Walker, Prof, Daniel Pratt, Dr

  Published online: Jun 8, 2021

• Protocol for evaluation of enhanced models of primary care in the management of stroke and other chronic disease (PRECISE)

  A data linkage healthcare evaluation study

  Nadine E Andrew, Joosup Kim, Dominique A Cadilhac, Vijaya Sundararajan, Amanda G Thrift, Leonid Churilov, Natasha A Lannin, Velandai Srikanth, Monique F Kilkenny

  Published online: Aug 5, 2019

• Quantifying Depression-Related Language on Social Media During the COVID-19 Pandemic

  Brent Davis, Dawn Estes McKnight, Daniela Teodorescu, Anabel Quan-Haase, Rumi Chunara, Alona Fyshe, Daniel J. Lizotte

  Published online: Mar 30, 2022

• Record linkage for Routinely Collected Health Data in an African Health Information Exchange

  Themba Mutemaringa, Alexa Heekes, Mariette Smith, Andrew Boulle, Nicki Tiffin

  Published online: Mar 2, 2023

• Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort

  Karen Susan Tingay, Carol Dezateux, Emla Fitzsimons, Suzanne Walton, Efrosini Setakis, Mario Cortina-Borja, Helen Bedford, Sinead Brophy, Ashley Akbari, Lucy Griffiths, Amrita Bandyopadhyay, Ronan Lyons

  Published online: Apr 2, 2019

• Reporting of gestational diabetes and other maternal medical conditions

  Validation of routinely collected hospital data from New South Wales, Australia

  Heather J Baldwin, Tanya A Nippita, Kristen Rickard, Siranda Torvaldsen, Therese M McGee, Jillian A Patterson

  Published online: Feb 22, 2021

• Representativeness of survey participants in relation to mental disorders: a linkage between national registers and a population-representative survey

  Natalie C Momen, Mathias Lasgaard, Nanna Weye, Jordan Edwards, John McGrath, Oleguer Plana-Ripoll

  Published online: Oct 19, 2022

• Screening for psychiatric morbidity in the population - a comparison of the GHQ-12 and self-reported medication use

  Foteini Tseliou, Michael Donnelly, Dermot O'Reilly

  Published online: Mar 7, 2018

• The SEEDS of Indigenous Population Health Data Linkage

  Robyn Rowe, Stephanie Russo Carroll, Chyloe Healy, Desi Rodriguez-Lonebear, Jennifer D Walker

  Published online: Jun 30, 2021

• Student Achievement Trajectories in Ontario: Creating and validating a province-wide, multi-cohort and longitudinal database

  Jeanne Sinclair, Scott Davies, Magdalena Janus

  Published online: Feb 2, 2023

• Tasmanian Data Linkage Unit

  Supporting innovative research, planning and policy formulation in Australia through the provision of high-quality linked-data services.

  Brian Stokes, Nadine Wiggins, Tim Albion, Alison Venn

  Published online: Feb 25, 2020

• The Baby Hearts Study – a case-control methodology with data linkage to evaluate risk and protective factors for congenital heart disease

  Nichola McCullough, Helen Dolk, Maria Loane, Briege M Lagan, Frank Casey, Brian Craig

  Published online: Apr 8, 2019

• The Canadian Chronic Disease Surveillance System: A model for collaborative surveillance

  Lisa Lix, Rolf Puchtinger, Kim Reimer, Cynthia Robitaille, Mark Smith, Lawrence Svenson, Karen Tu, Linda VanTil, Sean Waits, Louise Pelletier, Karen Phillips, Catherine Pelletier, J. Michael Paterson, James Ayles, Sharon Bartholomew, Charmaine Cooke, Joellyn Ellison, Valerie Emond, Naomi Hamm, Heather Hannah, Sonia Jean, Shannon LeBlanc, Siobhan O'Donnel

  Published online: Oct 5, 2018

• The Center for Data and Knowledge Integration for Health (CIDACS)

  An Experience of Linking Health and Social Data in Brazil

  Mauricio Lima Barreto, Laura Rodrigues, Spiros Denaxas, George Barbosa, M. Sanni Ali, Manoel Barral-Netto, Gerson Penna, Robespierre Pita, Carlos Teles, Roberto P Carreiro, Rosemeire Fiaccone, Liliana Cabral, Marcos Ennes Barreto, Bethania de Araujo Almeida, Maria Yuri Ichihara, Liam Smeeth

  Published online: Nov 20, 2019

• The changing face of Australian data reforms: Impact on pharmacoepidemiology research

  Juliana de Oliveira Costa, Claudia Bruno, Andrea L Schaffer, Smriti Raichand, Emily A Karanges , Sallie-Anne Pearson

  Published online: Apr 15, 2021

• The data we have: Pregnancy and birth related data collection in Australia, Canada, Europe and the USA- A web-based survey of practice

  Kathleen Lamont, NW Scott, S Bhattacharya

  Published online: Mar 22, 2021

• The effect of number of healthcare visits on study sample selection in electronic health record data

  Laura Rasmussen-Torvik, Al'ona Furmanchuk, Alexander Stoddard, Kristen Osinski, John Meurer, Nicholas Smith, Elizabeth Chrischilles, Bernard Black, Abel Kho

  Published online: Apr 2, 2020

• The Experience of Establishing Data Sharing & Linkage Platforms for Administrative, Research and Community-Service Data

  Kiran Pohar Manhas, Xinjie Cui, Suzanne C Tough

  Published online: Jan 24, 2019

• The Good, the Bad, the Clunky

  Addressing Challenges in Using Administrative Data for Research

  Kerina Helen Jones, Sharon Heys, Karen S Tingay, Paul Jackson, Chris Dibben

  Published online: Jan 21, 2019

• The impact of cross-jurisdictional patient flows on ascertainment of hospitalisations and cardiac procedures for ST-segment-elevation myocardial infarction in an Australian population.

  Branislav Igic, Rachel Farber, Maria Alfaro-Ramirez, Michael A Nelson , Lee K Taylor

  Published online: Feb 8, 2023

• The International Population Data Linkage Network – Banff and Beyond

  William A Ghali, Michael J Schull

  Published online: Aug 28, 2018

• The Mortality After Release from Incarceration Consortium (MARIC): Protocol for a multi-national, individual participant data meta-analysis

  Rohan Borschmann, Holly Tibble, Matthew J Spittal, David Preen, Jane Pirkis, Sarah Larney, David L Rosen, Jesse T Young, Alexander D Love, Frederick L Altice, Ingrid A Binswanger, Anne Bukten, Tony Butler, Zheng Chang, Chuan-Yu Chen, Thomas Clausen, Peer Brehm Christensen, Gabriel J Culbert, Louisa Degenhardt, Anja J.E. Dirkzwager, Kate Dolan, Seena Fazel, Colin Fischbacher, Margaret Giles, Lesley Graham, David Harding, Yen-Fang Huang, Florence Huber, Azar Karaminia, Fiona G Kouyoumdjian, Sungwoo Lim, Lars Møller, Akm Moniruzzaman, Jeffrey Morenoff, Eamonn O'Moore, Lia N Pizzicato, Daniel Pratt, Scott F Proescholdbell, Shabbar I Ranapurwala, Meghan E Shanahan, Jenny Shaw, Amanda Slaunwhite, Julian M Somers, Anne C Spaulding, Marc F Stern, Kendra M Viner, Nadia Wang, Melissa Willoughby, Bin Zhao, Stuart A Kinner

  Published online: Feb 25, 2020

• The Population Health Research Network - Population Data Centre Profile

  Felicity Flack, Merran Smith

  Published online: Nov 20, 2019

• The Research Data Centre of the German Federal Employment Agency at the Institute for Employment Research (RDC-IAB)

  Linked Microdata for Labour Market Research

  Manfred Antoni, Alexandra Schmucker

  Published online: Nov 20, 2019

• Data Resource Profile The Scottish Social Care Survey (SCS) and the Scottish Care Home Census (SCHC)

  David Alexander Gunn Henderson, Jennifer Kirsty Burton, Ellen Lynch, David Clark, Julie Rintoul, Nick Bailey

  Published online: Sep 2, 2019

• Cohort profile: The Secure Anonymised Information Linkage databank Dementia e-cohort (SAIL-DeC)

  Christian Schnier, Tim Wilkinson, Ashley Akbari, Chris Orton, Kristel Sleegers, John Gallacher, Ronan A Lyons, Cathie LM Sudlow

  Published online: Feb 25, 2020

• The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research

  Lindsey Todd Dahl, Jennifer D Walker, Michael Schull, P. Alison Paprica, James Ted McDonald, Frank Gavin, Jean-Francois Ethier, Brent Diverty, Kimberlyn McGrail, Alan Katz, Juliana Wu

  Published online: Nov 9, 2020

• Thirty-three myths and misconceptions about population data: from data capture and processing to linkage

  Peter Christen, Rainer Schnell

  Published online: Jan 31, 2023

• Tools for Transparency in Central Government Spending

  Charles Rahal

  Published online: Jul 10, 2019

• Unlocking the Potential of Electronic Health Records for Health Research

  Seungwon Lee, Yuan Xu, Adam G D'Souza, Elliot A Martin, Chelsea Doktorchik, Zilong Zhang, Hude Quan

  Published online: Jan 30, 2020

• Use of administrative record linkage to measure medical and social risk factors for early developmental vulnerability in Ontario, Canada

  Natasha Ruth Saunders, Magdalena Janus, Joan Porter, Hong Lu, Ashley Gaskin, Gangamma Kalappa, Astrid Guttmann

  Published online: Feb 11, 2021