Bringing together and analysing data from multiple sources

This category focuses on the datasets themselves and their merging and analyses. This could incorporate secondary use/reuse of health data, routinely collected administrative data, or other emerging sources of data. Here is where we delve into scientific developments (data linkage, analytical advances, methods advancements etc.)

 

• Data resource profile: children looked after administrative records in Wales

  Gemma Allnatt, Alexandra Lee, Jonathan Scourfield, Martin Elliott, Karen Broadhurst, Lucy Griffiths

  Published online: Aug 2, 2022

• Data Resource Profile: COVid VAXines Effects on the Aged (COVVAXAGE)

  Kaleen N. Hayes, Daniel A. Harris, Andrew R. Zullo, Djeneba Audrey Djibo, Renae L. Smith-Ray, Michael S. Taitel, Tanya G. Singh, Cheryl McMahill-Walraven, Preeti Chachlani, Katherine J. Wen, Ellen P. McCarthy, Stefan Gravenstein, Sean McCurdy, Kristina E. Baird, Daniel Moran, Derek Fenson, Yalin Deng, Vincent Mor

  Published online: Oct 18, 2023

• Data Resource Profile: ECHILD only-children and siblings (ECHILD-oCSib): a national cohort of linked health, education and social care data on mothers and children in England

  Qi Feng, Georgina Ireland, Ruth Gilbert, Katie Harron

  Published online: Jun 6, 2024

• Data resource profile: Exploring freely accessible data describing wider determinants of health in England

  Steve Childs, Chris Farmer, Abraham George, Elizabeth Ford, Melanie Rees-Roberts

  Published online: Oct 2, 2024

• Data resource profile: the ORIGINS project databank: a collaborative data resource for investigating the developmental origins of health and disease

  Belinda C. Davey, Wesley Billingham, Jacqueline A. Davis, Lisa Gibson, Nina D'Vaz, Susan L. Prescott, Desiree T. Silva, Sarah Whalan

  Published online: Sep 30, 2024

• Data Resource Profile: the Virtual International Care Homes Trials Archive (VICHTA)

  Lisa Irvine, Jenni Burton, Myzoon Ali, Jo Booth, James Desborough, Pip Logan, Esme Moniz-Cook, Claire Surr, David Wright, Claire Goodman

  Published online: Jan 15, 2024

• Data Resource: Children and Family Court Advisory and Support Service (Cafcass) public family law administrative records in England

  Stuart Bedston, Rachel Pearson, Matthew A Jay, Karen Broadhurst, Ruth Gilbert, Linda Wijlaars

  Published online: Mar 26, 2020

• Data Resource: Children Receiving Care and Support and Children in Need, administrative records in Wales.

  Alexandra Lee, Martin Elliott, Jonathan Scourfield, Stuart Bedston, Karen Broadhurst, David Ford, Lucy Griffiths

  Published online: May 9, 2022

• Data Resource: population level family justice administrative data with opportunities for data linkage

  Rhodri David Johnson, David V Ford, Karen Broadhurst, Linda Cusworth, Kerina Jones, Ashley Akbari, Stuart Bedston, Bachar Alrouh, Stefanie Doebler, Alexandra Lee, Jon Smart, Simon Thompson, Liz Trinder, Lucy J Griffiths

  Published online: Aug 24, 2020

• Data Resource: the Kent Integrated Dataset (KID)

  Dan Lewer, Tom Bourne, Abraham George, Gerrard Abi-Aad, Clint Taylor, Julie George

  Published online: Apr 25, 2018

• Data Resource: the National Pupil Database (NPD)

  Matthew Alexander Jay, Louise Mc Grath-Lone, Ruth Gilbert

  Published online: Mar 20, 2019

• Data Resource: Vascular Risk in Adult New Zealanders (VARIANZ) datasets

  Suneela Mehta, Rod Jackson, Daniel J Exeter, Billy P Wu, Sue Wells, Andrew J Kerr

  Published online: Sep 2, 2019

• Defining a low-risk birth cohort: a cohort study comparing two perinatal data sets in Ontario, Canada

  Elizabeth Darling, Olivia Marquez, Alison Park

  Published online: Mar 18, 2024

• Demystifying probabilistic linkage

  Common myths and misconceptions

  James C Doidge, Katie Harron

  Published online: Jan 10, 2018

• Describing agreement in the Main Condition coding field using Canadian ICD-11 inpatient data

  Natalie Wiebe, Hude Quan, Danielle A Southern, Chelsea Doktorchik, Catherine Eastwood

  Published online: Oct 20, 2021

• Describing the geographical linkage between the UK Millennium Cohort Study and crime incidents in England and Wales

  Nicolas Libuy, Emla Fitzsimons, David Church

  Published online: Apr 25, 2024

• Describing the linkage between administrative social assistance and health care databases in Ontario, Canada

  Claire de Oliveira, Evgenia Gatov, Laura Rosella, Simon Chen, Rachel Strauss, Mahmoud Azimaee , Elizabeth Paterno, Astrid Guttmann, Ministry of Children, Community and Social Services-ICES Working Group, Nelson Chong, Peter Ionescu, Sean Ji, Alexander Kopp, Annie Lan, Charlotte Ma, Miranda Pring, Priyanka Raj, Steven Ryan, Refik Saskin, Fiona Wong

  Published online: Mar 3, 2022

• Determining households from patient addresses and unique property reference numbers in general practitioner electronic health records

  Gillian Harper, Nicola Firman, Marta Wilk, Milena Marszalek, Paul Simon, David Stables, Rich Fry, Kelvin Smith, Carol Dezateux

  Published online: Apr 9, 2024

• Developing a population data science approach to assess increased risk of COVID-19 associated with attending large events

  Mark Drakesmith, Gemma Hobson, Gareth John, Emily Steggall, Ashley Gould, John Parkinson, Daniel Rhys Thomas

  Published online: Aug 3, 2022

• Developing and validating a primary care EMR-based frailty definition using machine learning

  Tyler Williamson, PhD, Sylvia Aponte-Hao, BSc, Bria Mele, MSc, Brendan Cord Lethebe, MSc, Charles Leduc, MD, MSc, Manpreet Thandi, RN, MSN, MPH, Alan Katz, MBChB, MSc, CCFP, Sabrina Wong, RN, PhD

  Published online: Sep 1, 2020

• Development and implementation of a national online application system for cross-jurisdictional linked data

  Natalie Wray, Kate Miller, Katie Irvine, Elizabeth Moore, Alice Crisp, Kathleen Bapaume, Catherine Taylor, Rob Smetak, Nadine Wiggins, Mikhalina Dombrovskaya, Felicity Flack

  Published online: Apr 27, 2022

• Development of a prognostic prediction model to estimate the risk of multiple chronic diseases

  Constructing a copula-based model using Canadian primary care electronic medical record data

  Jason E. Black, Jacqueline K. Kueper, Amanda L. Terry, Daniel J. Lizotte

  Published online: Jan 19, 2021

• Development of comparable algorithms to measure primary care indicators using administrative health data across three Canadian provinces

  Mhd. Wasem Alsabbagh, John Campbell, Richard Glazier, Kimberlyn McGrail, Stephanie Blackman, Mark Bennett, Hannah Chung, Beverley Lawson, Sandra Peterson, Sharon Johnston, Frederick Burge, Sabrina T Wong, Jacqueline Kathleen Kueper, William Hogg

  Published online: Aug 11, 2020

• Developmental Impacts of the COVID-19 Pandemic on Young Children: A Conceptual Model for Research with Integrated Administrative Data Systems

  Heather L. Rouse, Rebecca J. Bulotsky Shearer, Sydney S. Idzikowski, Amy Hawn Nelson, Mark Needle, Matthew F. Katz , Jhonelle Bailey, Justin T. Lane, Emily Berkowitz, Sharon Zanti, Astrid Pena , Maggie Reeves

  Published online: Oct 7, 2021

• DLforum – A multidisciplinary online discussion forum for data linkage researchers and practitioners

  https://dmm.anu.edu.au/DLforum/

  Peter Christen, Thilina Ranbaduge, Dinusha Vatsalan

  Published online: Feb 20, 2018

• Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales

  Daniela K Schlüter, Rowena Griffiths, Ashley Akbari, David Taylor-Robinson

  Published online: Jun 27, 2022

• Effect of Study Duration and Outcome Measurement Frequency on Estimates of Change for Longitudinal Cohort Studies in Routinely-Collected Administrative Data

  Allison Feely, Elizabeth Wall-Wieler, Leslie L Roos, Lisa Lix

  Published online: Aug 13, 2020

• Electronic Longitudinal Alcohol Study in Communities (ELAStiC) Wales – protocol for platform development

  Laszlo Trefan, Ronan Anthony Lyons, Jonathan Kennedy, Victor Adekanmbi, Ann Smith, Anette Evans, Giles Jeremy Greene, David Fone, Andrea Gartner, Daniel Mark Farewell, Shantini Paranjothy, Ashley Akbari, Simon Moore

  Published online: May 20, 2019

• Empowering knowledge generation through international data network: the IMeCCHI-DATANETWORK

  Lucia Otero Varela, Raffaele Perego, Emanuele Carlini, Hongsoo Kim, Alka Patel, Phil Hider, Pia Kjær Kristensen, Amy Metcalfe, Marie-Annick Le Pogam, Rosa Gini

  Published online: Feb 25, 2020

• Establishment of a birth-to-education cohort of 1 million Palestinian refugees using electronic medical records and electronic education records

  Zeina Jamaluddine, Akihiro Seita, Ghada Ballout, Husam Al-Fudoli, Gloria Paolucci, Shatha Albaik, Rami Ibrahim, Miho Sato, Hala Ghattas, Oona Campbell

  Published online: Oct 24, 2023

• Estimates of drug treated diabetes incidence and prevalence using Australian administrative pharmaceutical data

  Shaun Francis Purkiss, Tessa Keegel, Hassan Vally, Dennis Wollersheim

  Published online: May 10, 2021

• Estimating surge in COVID-19 cases, hospital resources and PPE demand with the interactive and locally-informed COVID-19 Health System Capacity Planning Tool

  Olga Krylova, Omar Kazmi, Hui Wang, Kelvin Lim, Chloe Logar-Henderson, Katerina Gapanenko

  Published online: Apr 6, 2022

• Estimation of age of transition from children's to adult healthcare for young people with long term conditions using linked routinely collected healthcare data

  Stuart William Jarvis, Gerry Richardson, Kate Flemming, Lorna Fraser

  Published online: Nov 4, 2021

• Evaluating pregnancy reporting in Siaya Health and Demographic Surveillance System through record linkage with ANC clinics

  Hallie Eilerts-Spinelli, Julio Romero Prieto, Julie Ambia, Sammy Khagayi, Chodziwadziwa Kabudula, Jeffrey W. Eaton, Georges Reniers

  Published online: Sep 29, 2022

• Evaluating the “right@home” randomised trial of nurse home visiting using linked administrative data at school transition

  Anna Price, Jiaxin Zhang, Sharon Goldfeld, John Carlin, Fiona Mensah

  Published online: May 16, 2024

• Evaluating the accuracy of data extracted from electronic health records into MedicineInsight, a national Australian general practice database

  Benjamin Daniels, Alys Havard, Rimma Myton, Cynthia Lee, Kendal Chidwick

  Published online: Jun 29, 2022

• Evaluation measure for group-based record linkage

  Charini Nanayakkara, Peter Christen, Thilina Ranbaduge, Eilidh Garrett

  Published online: Oct 19, 2020

• Evaluation of the ASSIGN open-source deterministic address-matching algorithm for allocating Unique Property Reference Numbers to general practitioner-recorded patient addresses

  Gill Harper, David Stables, Paul Simon, Zaheer Ahmed, Kelvin Smith, John Robson, Carol Dezateux

  Published online: Dec 8, 2021

• Examining the quality and population representativeness of linked survey and administrative data: guidance and illustration using linked 1958 National Child Development Study and Hospital Episode Statistics data

  Richard J Silverwood, Nasir Rajah, Lisa Calderwood, Bianca L De Stavola, Katie Harron, George B Ploubidis

  Published online: Jan 9, 2024

• Expanding the impact of a longstanding Canadian cardiac registry through data linkage: challenges and opportunities

  Danielle A Southern, Matthew T James, Stephen B Wilton, Lawrence DeKoning, Hude Quan, Merril L Kundtson, William A Ghali

  Published online: Nov 12, 2018

• Exploring barriers and solutions in advancing cross-centre population data science

  Kerina H Jones, Sharon M Heys, Helen Daniels, David V Ford

  Published online: Aug 5, 2019

• Factors Affecting Access to Administrative Health Data for Research in Canada: A Study Protocol

  Cynthia Kendell, Dr. Adrian R Levy, Dr. Geoff Porter, Elaine Gibson, Dr. Robin Urquhart

  Published online: Sep 28, 2021

• Federated learning for generating synthetic data: a scoping review

  Claire Little, Mark Elliot, Richard Allmendinger

  Published online: Oct 31, 2023

• Filmed Monologue Vignettes: a novel method for investigating how clinicians document consultations in electronic health records

  Simon Glew, Dr, Elizabeth M Ford, Helen Elizabeth Smith, Professor

  Published online: Nov 14, 2018

• Fit for purpose - developing a software platform to support the modern challenges of data linkage in Western Australia

  Tom Walter Eitelhuber, James Thackray, Steve Hodges, Janine Alan

  Published online: Nov 12, 2018

• Generating synthetic data from administrative health records for drug safety and effectiveness studies

  Olawale F. Ayilara, Robert W. Platt, Matt Dahl, Janie Coulombe, Pablo Gonzalez Ginestet, Dan Chateau, Lisa M. Lix

  Published online: Nov 27, 2023

• Health and household environment factors linked with early alcohol use in adolescence: a record-linked, data-driven, longitudinal cohort study

  Amrita Bandyopadhyay, Sinead Brophy, Ashley Akbari, Joanne Demmler, Jonathan Kennedy, Shantini Paranjothy, Ronan Lyons, Simon Moore

  Published online: Jul 7, 2022

• Health Data Linkage for Public Interest Research in the UK: Key Obstacles and Solutions

  Miranda Jane Mourby, James Doidge, Kerina H Jones, Stergios Aidinlis, Hannah Smith, Jessica Bell, Ruth Gilbert, Peter Dutey-Magni, Jane Kaye

  Published online: Apr 2, 2019

• How effective are population health surveys for estimating prevalence of chronic conditions compared to anonymised clinical data?

  Tony Whiffen, Ashley Akbari, Tony Paget, Sarah Lowe, Ronan Lyons

  Published online: Jun 12, 2020

• How to analyze and link patient experience surveys with administrative data to drive health service improvement -- examples from Alberta, Canada

  Kyle Kemp, Paul Fairie, Brian Steele, Maria Santana

  Published online: Oct 13, 2022