Bringing together and analysing data from multiple sources

This category focuses on the datasets themselves and their merging and analyses. This could incorporate secondary use/reuse of health data, routinely collected administrative data, or other emerging sources of data. Here is where we delve into scientific developments (data linkage, analytical advances, methods advancements etc.)

 

• Developing a population data science approach to assess increased risk of COVID-19 associated with attending large events

  Mark Drakesmith, Gemma Hobson, Gareth John, Emily Steggall, Ashley Gould, John Parkinson, Daniel Rhys Thomas

  Published online: Aug 3, 2022

• Developing and validating a primary care EMR-based frailty definition using machine learning

  Tyler Williamson, PhD, Sylvia Aponte-Hao, BSc, Bria Mele, MSc, Brendan Cord Lethebe, MSc, Charles Leduc, MD, MSc, Manpreet Thandi, RN, MSN, MPH, Alan Katz, MBChB, MSc, CCFP, Sabrina Wong, RN, PhD

  Published online: Sep 1, 2020

• Development and implementation of a national online application system for cross-jurisdictional linked data

  Natalie Wray, Kate Miller, Katie Irvine, Elizabeth Moore, Alice Crisp, Kathleen Bapaume, Catherine Taylor, Rob Smetak, Nadine Wiggins, Mikhalina Dombrovskaya, Felicity Flack

  Published online: Apr 27, 2022

• Development of a prognostic prediction model to estimate the risk of multiple chronic diseases

  Constructing a copula-based model using Canadian primary care electronic medical record data

  Jason E. Black, Jacqueline K. Kueper, Amanda L. Terry, Daniel J. Lizotte

  Published online: Jan 19, 2021

• Development of comparable algorithms to measure primary care indicators using administrative health data across three Canadian provinces

  Mhd. Wasem Alsabbagh, John Campbell, Richard Glazier, Kimberlyn McGrail, Stephanie Blackman, Mark Bennett, Hannah Chung, Beverley Lawson, Sandra Peterson, Sharon Johnston, Frederick Burge, Sabrina T Wong, Jacqueline Kathleen Kueper, William Hogg

  Published online: Aug 11, 2020

• Developmental Impacts of the COVID-19 Pandemic on Young Children: A Conceptual Model for Research with Integrated Administrative Data Systems

  Heather L. Rouse, Rebecca J. Bulotsky Shearer, Sydney S. Idzikowski, Amy Hawn Nelson, Mark Needle, Matthew F. Katz , Jhonelle Bailey, Justin T. Lane, Emily Berkowitz, Sharon Zanti, Astrid Pena , Maggie Reeves

  Published online: Oct 7, 2021

• DLforum – A multidisciplinary online discussion forum for data linkage researchers and practitioners

  https://dmm.anu.edu.au/DLforum/

  Peter Christen, Thilina Ranbaduge, Dinusha Vatsalan

  Published online: Feb 20, 2018

• Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales

  Daniela K Schlüter, Rowena Griffiths, Ashley Akbari, David Taylor-Robinson

  Published online: Jun 27, 2022

• Effect of Study Duration and Outcome Measurement Frequency on Estimates of Change for Longitudinal Cohort Studies in Routinely-Collected Administrative Data

  Allison Feely, Elizabeth Wall-Wieler, Leslie L Roos, Lisa Lix

  Published online: Aug 13, 2020

• Electronic Longitudinal Alcohol Study in Communities (ELAStiC) Wales – protocol for platform development

  Laszlo Trefan, Ronan Anthony Lyons, Jonathan Kennedy, Victor Adekanmbi, Ann Smith, Anette Evans, Giles Jeremy Greene, David Fone, Andrea Gartner, Daniel Mark Farewell, Shantini Paranjothy, Ashley Akbari, Simon Moore

  Published online: May 20, 2019

• Empowering knowledge generation through international data network: the IMeCCHI-DATANETWORK

  Lucia Otero Varela, Raffaele Perego, Emanuele Carlini, Hongsoo Kim, Alka Patel, Phil Hider, Pia Kjær Kristensen, Amy Metcalfe, Marie-Annick Le Pogam, Rosa Gini

  Published online: Feb 25, 2020

• Estimates of drug treated diabetes incidence and prevalence using Australian administrative pharmaceutical data

  Shaun Francis Purkiss, Tessa Keegel, Hassan Vally, Dennis Wollersheim

  Published online: May 10, 2021

• Estimating surge in COVID-19 cases, hospital resources and PPE demand with the interactive and locally-informed COVID-19 Health System Capacity Planning Tool

  Olga Krylova, Omar Kazmi, Hui Wang, Kelvin Lim, Chloe Logar-Henderson, Katerina Gapanenko

  Published online: Apr 6, 2022

• Estimation of age of transition from children's to adult healthcare for young people with long term conditions using linked routinely collected healthcare data

  Stuart William Jarvis, Gerry Richardson, Kate Flemming, Lorna Fraser

  Published online: Nov 4, 2021

• Evaluating pregnancy reporting in Siaya Health and Demographic Surveillance System through record linkage with ANC clinics

  Hallie Eilerts-Spinelli, Julio Romero Prieto, Julie Ambia, Sammy Khagayi, Chodziwadziwa Kabudula, Jeffrey W. Eaton, Georges Reniers

  Published online: Sep 29, 2022

• Evaluating the accuracy of data extracted from electronic health records into MedicineInsight, a national Australian general practice database

  Benjamin Daniels, Alys Havard, Rimma Myton, Cynthia Lee, Kendal Chidwick

  Published online: Jun 29, 2022

• Evaluation measure for group-based record linkage

  Charini Nanayakkara, Peter Christen, Thilina Ranbaduge, Eilidh Garrett

  Published online: Oct 19, 2020

• Evaluation of the ASSIGN open-source deterministic address-matching algorithm for allocating Unique Property Reference Numbers to general practitioner-recorded patient addresses

  Gill Harper, David Stables, Paul Simon, Zaheer Ahmed, Kelvin Smith, John Robson, Carol Dezateux

  Published online: Dec 8, 2021

• Expanding the impact of a longstanding Canadian cardiac registry through data linkage: challenges and opportunities

  Danielle A Southern, Matthew T James, Stephen B Wilton, Lawrence DeKoning, Hude Quan, Merril L Kundtson, William A Ghali

  Published online: Nov 12, 2018

• Exploring barriers and solutions in advancing cross-centre population data science

  Kerina H Jones, Sharon M Heys, Helen Daniels, David V Ford

  Published online: Aug 5, 2019

• Factors Affecting Access to Administrative Health Data for Research in Canada: A Study Protocol

  Cynthia Kendell, Dr. Adrian R Levy, Dr. Geoff Porter, Elaine Gibson, Dr. Robin Urquhart

  Published online: Sep 28, 2021

• Filmed Monologue Vignettes: a novel method for investigating how clinicians document consultations in electronic health records

  Simon Glew, Dr, Elizabeth M Ford, Helen Elizabeth Smith, Professor

  Published online: Nov 14, 2018

• Fit for purpose - developing a software platform to support the modern challenges of data linkage in Western Australia

  Tom Walter Eitelhuber, James Thackray, Steve Hodges, Janine Alan

  Published online: Nov 12, 2018

• Health and household environment factors linked with early alcohol use in adolescence: a record-linked, data-driven, longitudinal cohort study

  Amrita Bandyopadhyay, Sinead Brophy, Ashley Akbari, Joanne Demmler, Jonathan Kennedy, Shantini Paranjothy, Ronan Lyons, Simon Moore

  Published online: Jul 7, 2022

• Health Data Linkage for Public Interest Research in the UK: Key Obstacles and Solutions

  Miranda Jane Mourby, James Doidge, Kerina H Jones, Stergios Aidinlis, Hannah Smith, Jessica Bell, Ruth Gilbert, Peter Dutey-Magni, Jane Kaye

  Published online: Apr 2, 2019

• How effective are population health surveys for estimating prevalence of chronic conditions compared to anonymised clinical data?

  Tony Whiffen, Ashley Akbari, Tony Paget, Sarah Lowe, Ronan Lyons

  Published online: Jun 12, 2020

• How to analyze and link patient experience surveys with administrative data to drive health service improvement -- examples from Alberta, Canada

  Kyle Kemp, Paul Fairie, Brian Steele, Maria Santana

  Published online: Oct 13, 2022

• ICES: Data, Discovery, Better Health

  Michael J Schull, Mahmoud Azimaee, Marcel Marra, Rosario G Cartagena, Marian J Vermeulen, Minnie M Ho, Astrid Guttmann

  Published online: Mar 11, 2020

• Identification of International Society on Thrombosis and Haemostasis major and clinically relevant non-major bleed events from electronic health records: a novel algorithm to enhance data utilisation from real-world sources

  Alexander Hartenstein, Khaled Abdelgawwad, Frank Kleinjung, Stephen Privitera, Thomas Viethen, Tatsiana Vaitsiakhovich

  Published online: Oct 2, 2023

• Identifying Cases of Sleep Disorders through International Classification of Diseases (ICD) Codes in Administrative Data

  Rachel J Jolley, Zhiying Liang, Mingkai Peng, Sachin R Pendharkar, Willis Tsai, Guanmin Chen, Cathy A Eastwood, Hude Quan, Paul E Ronksley

  Published online: Jul 10, 2018

• Identifying children with Cystic Fibrosis in population-scale routinely collected data in Wales

  A Retrospective Review

  Rowena Griffiths, Daniela K Schlüter, Ashley Akbari, Rebecca Cosgriff, David Tucker, David Taylor-Robinson

  Published online: Aug 11, 2020

• Identifying incident cancer cases in dispensing claims

  A validation study using Australia’s Repatriation Pharmaceutical Benefits Scheme (PBS) data

  Benjamin Daniels, Hanna E Tervonen, Sallie-Anne Pearson

  Published online: Mar 19, 2020

• Identifying researcher learning needs to develop online training for UK researchers working with administrative data: CENTRIC training

  Fiona Victoria Lugg-Widger, Kim Munnery, Julia Townson, Rob Trubey, Michael Robling

  Published online: Feb 2, 2022

• Identifying young Aboriginal and Torres Strait Islander children in linked administrative data: A comparison of methods

  Bridgette J McNamara, Jocelyn Jones, Carrington CJ Shepherd, Lina Gubhaju, Grace Joshy, Daniel McAullay, David B Preen, Louisa Jorm, Sandra J Eades

  Published online: Mar 16, 2020

• Impact of COVID-19 pandemic on community medication dispensing: a national cohort analysis in Wales, UK

  Fatemeh Torabi, Julian Halcox, Andrew Morris, Neil Jenkins, Daniel Harris, Rowena Griffiths, Gareth Davies, Mike Gravenor, Hoda Abbasizanjani, Stuart Bedston, Jane Lyons, Laura North, Ashley Akbari, Ronan A Lyons

  Published online: Apr 28, 2022

• The impact of workers’ compensation benefit cessation on welfare and health service use

  Protocol for a longitudinal controlled data linkage study

  Tyler Lane, Janneke Berecki-Gisolf, Ross Iles, Alex Collie, Peter Smith

  Published online: May 12, 2021

• Indicators of missing Electronic Medical Record (EMR) discharge summaries: A retrospective study on data from a large Canadian cohort

  Natalie Wiebe, Yuan Xu, MSc, PhD, Abdel Aziz Shaheen, MD, Catherine Eastwood, RN, PhD, Bastien Boussat, PhD, Hude Quan, MD, PhD

  Published online: Dec 11, 2020

• INTEGRATE: A methodology to facilitate critical care research using multiple, linked electronic health records at population scale.

  Rowena Griffiths, Laura Herbert, Ashley Akbari, Rowena Bailey, Joe Hollinghurst, Richard Pugh, Tamas Szakmany, Fatemeh Torabi, Ronan A Lyons

  Published online: Jul 18, 2022

• Intercensal and Postcensal Estimation of Population Size for Small Geographic Areas in the United States

  Yan Wang, Xingyou Zhang, Hua Lu, Kevin A Matthews, Kurt J Greenlund

  Published online: Oct 19, 2020

• Is there an agreement between self-reported medical diagnosis in the CARTaGENE cohort and the Québec administrative health databases?

  Yves Payette, Cristiano Soares de Moura, Catherine Boileau, Sasha Bernatsky, Nolwenn Noisel

  Published online: Mar 26, 2020

• Laying the Foundation for Real-World Evidence Studies of Psoriatic Disease in Newfoundland and Labrador

  Winifred Badaiki, Evelyn Pyper, Kendra Lester, Janelle Skeard, Michelle Penney, Janey Shin, Brenda Fisher, Huong Hew, Susanne Gulliver, Wayne Gulliver, Proton Rahman

  Published online: Sep 2, 2022

• Length of Stay in ICU of Covid-19 Patients in England, March - May 2020

  Nick Shryane, Maria Pampaka, Andrea Lisette Aparicio Castro, Shazaad Ahmad, Mark Elliot, Ji Hye Kim, Jennifer Murphy, Diego Andres Perez Ruiz, Wendy Olsen, Arkadiusz Wiśniowski

  Published online: Mar 3, 2021

• Lessons in Linkage: Combining Administrative Data Using Deterministic Linkage for Surveillance of Sports and Recreation Injuries in Florida, United States

  Charlotte Baker, Quinton Nottingham, Jonathan Holloway

  Published online: Jul 26, 2022

• Lessons learned from using linked administrative data to evaluate the Family Nurse Partnership in England and Scotland

  Francesca L Cavallaro, Rebecca Cannings-John, Fiona Lugg-Widger, Ruth Gilbert, Eilis Kennedy, Sally Kendall, Michael Robling, Katie L Harron

  Published online: May 11, 2023

• Lessons Learned: It Takes a Village to Understand Inter-Sectoral Care Using Administrative Data across Jurisdictions

  Patti Ann Groome, Mary L McBride, Li Jiang, Cynthia Kendell, Kathleen M Decker, Eva Grunfeld, Monika K Krzyzanowska, Marcy Winget

  Published online: Nov 12, 2018

• Linking education and hospital data in England: linkage process and quality

  Nicolás Libuy, Katie Harron, Ruth Gilbert, Richard Caulton, Ellen Cameron, Ruth Blackburn

  Published online: Sep 16, 2021

• Linking National Immigration Data to Provincial Repositories: The case of Canada

  Marcelo Urquia, Randy Walld, Susitha Wanigaratne, Nkiruka Eze, Mahmoud Azimaee, James Ted McDonald, Astrid Guttmann

  Published online: May 25, 2021

• Linking Survey and Administrative Data to Measure Income, Inequality, and Mobility

  Carla Medalia, Bruce D Meyer, Amy B O'Hara, Derek Wu

  Published online: Jan 31, 2019

• Longitudinal child data: What can be gained by linking administrative data and cohort data?

  Leanne Findlay, Elizabeth Beasley, Jungwee Park, Dafna Kohen, Yann Algan, Frank Vitaro, Richard E Tremblay

  Published online: Nov 14, 2018

• Machine learning for identification of frailty in Canadian primary care practices

  Sylvia Aponte-Hao, Sabrina T. Wong, Manpreet Thandi, Paul Ronksley, Kerry McBrien, Joon Lee, Mathew Grandy, Dee Mangin, Alan Katz, Alexander Singer, Donna Manca, Tyler Williamson

  Published online: Sep 10, 2021